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Re: ?'s about Baclofen

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,

You didn't reply to the wrong message.It was me,talking about .She was

put on Depakote before we knew about the mito.Her doc's tried probably 7 or

8 different meds trying to get her off the Depakote but none ever worked for

her.They finally decided the seizures were more dangerous for her than the

Depakote.

Thanks,

, Mom to

Re: ?'s about Baclofen

> ,

>

> Some mito docs feel that Depakote is not good for mito patients. I

> thought you mentioned that your daughter was on Depakote also.( Hope I

> didn't reply to the wrong message, there are so many to sift through.)

> You should be able to do a search on google regarding depakote & mito, or

> try the UMDF site. If I remember correctly Depakote can contribute to

> Hyperammonemia (high ammonia) which can be a problem with mito kids

> anyways. I know that our Lily had very high ammonia levels which did come

> done (mostly) after finally being taken off Depakene(liquid depakote). If

> you want specific references to the mito toxicity let me know and I'll do

> some digging.

>

> Lee

> Mom to Red, Ada & Angel Lily

>

>

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>

>

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