on my own again

[Guest guest]

I saw Dr. Baughman Monday. No help at all. Told me to find someone

to do a muscle biopsy. Well I would have already done that if I had

insurance. I have no insurance, can't see a neurologist because of

this, and can't get the biopsy done. I have been tying to get an appt

for a month at the U.C. Neurology Clinic but can't get anyone to call

back. I call and get excuses. I keep calling, they keep stalling.

I quit. I have had enough. I'm going to my cardiologist because she

is the only one who is actually trying to help me. If she can help

with my heart, then that is all I am going to do. I am tired of

begging hard headed doctors. I know when to quit and now is the time.

I have really appreciated all your replies and help.

Bonnie

[Guest guest]

Bonnie, I'm so sorry that your visit with Baughman was such a disappointment. It's so hard to get our hopes up, then be let down. It's easy to look at Baughman as a miracle worker, but he is a fallible human, like the rest of us. I was disappointed in my second visit with him, as he didn't seem as caring & interested as the first visit. Maybe he's got something going on in his life right now, or maybe sometimes he's just an ass.

You are probably wise to take a break from this, get your heart situation under control, then take another shot at it. Next time you might try writing a letter to U.C. instead of calling. Look up the head of neurology & write to him/her, explaining your inability to get return phone calls, etc.

Hugs,

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: on my own againDate: Tue, 28 Mar 2006 19:58:03 -0000I saw Dr. Baughman Monday. No help at all. Told me to find someone to do a muscle biopsy. Well I would have already done that if I had insurance. I have no insurance, can't see a neurologist because of this, and can't get the biopsy done. I have been tying to get an appt for a month at the U.C. Neurology Clinic but can't get anyone to call back. I call and get excuses. I keep calling, they keep stalling. I quit. I have had enough. I'm going to my cardiologist because she is the only one who is actually trying to help me. If she can help with my heart, then that is all I am going to do. I am tired of begging hard headed doctors. I know when to quit and now is the time.I have really appreciated all your replies and help.Bonnie~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Thanks Rose.

I go with the " ass " part. I found out today that as of April 1 I will

have insurance through my job. Praise the lord. I am going to get my

heart fixed, and my rheumatologist friend is already working on

getting me an appt with a neurologist for a biopsy for neurosarc. I am

staying away from U.C. I hate that place.

Believe me, over the last 3 weeks I have found out who my friends are

and are not. At this point, it is mainly are not. My family doctor

keeps telling me what she is going to do, but does nothing (she is

supposed to be a friend and care so much about me). My friend who is

supposed to be helping me has not been heard from in a week (she gets

my life insurance and every thing that I own if I die, guess I am not

dying fast enough for her).

I am not going to let them know that I have insurance. I am quietly

going to get things taken care of myself and they can take a hike. I'd

rather be alone than have people like that around me. As for Dr.

Baughman, he is not the only doctor in the world.

Once I get my heart fixed, I am going to move, change my phone number

and my good caring friends can kiss off. Oh, yeah, think I'll change

my life insurance beneificiary as well. Sounds logical to me.

Thanks for caring. I do appreciate it.

bonnie