Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 , I am sorry to hear about all of the problems you are having. I will keep you in my thoughts and prayers. Terri G. > > Hi all-- > > I went to the Mayo clinic in Rochester Minnesota yesterday for a check up. I knew my sarc was in a flare. > > I saw my Rheumy and he ordered me a tapering dose of prednisone. So I start with 30 mgs for a week, then go down by 5 a week. > > He also discussed changing my meds ( I am on imuran 225 mg / day) and I asked about Methotrexate, and he told me, that is not a good choice for me, as it is very hard on the liver. He wanted to get my legs under control before doing anything like that, so hopefully the pred will help. > > Then I go to my Dermatologist, and she takes one look at my legs and says that my sarc is definately in a flare. She called the rheumy and conferred with him. They thought about using plaquinil, but aren't gonna just yet. Actually I am not sure she knows what to do with me. She said I have Venous stasis ulcers. > > As far as the sores on my legs, she wanted me to stay up there yesterday and be admitted to the hospital on a outpatient basis and have my legs wrapped with a wet dressing and compression to hopefully help them. I had a leg doppler done in September and I have Moderate venous insuffiency. Well I didnt take any clothes or my CPAP machine or anything, as I wasnt planning on staying up there, I live 3 hours from there. Her nurse did some checking and I could have rented one but it was gonna cost $250 / week to rent, so I told her that I could drive home and back for that amount of money. ( I think I made her mad at me ROFL ) So, I have to go back up the the Mayo on March 1, be admitted on a outpatient basis and have my legs treated. I will be up there at least 3 days depending on if the compression and wet dressings help. > > So for the rest of this week and next, she put me on a antibiotic, as my legs are severly infected, she put me on triamcinolone cream, and nizoral cream. and she did some blood work so she can put me on i think it was diflucan, but she needed to know if my liver could metabolize it. > > So I am a bit scared, as I worked in a nursing home, and I remember all those elderly people who had this same thing, and the sores that I used to have to treat on their legs. It scares me. I don't wanna be like them. But I am... MAN I LOVE THIS @$)@ing disease. > > Ok that is enough for now. I AM FRUSTRATED AND SCARED!!! > > from Iowa. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 , I am sorry to hear about all of the problems you are having. I will keep you in my thoughts and prayers. Terri G. > > Hi all-- > > I went to the Mayo clinic in Rochester Minnesota yesterday for a check up. I knew my sarc was in a flare. > > I saw my Rheumy and he ordered me a tapering dose of prednisone. So I start with 30 mgs for a week, then go down by 5 a week. > > He also discussed changing my meds ( I am on imuran 225 mg / day) and I asked about Methotrexate, and he told me, that is not a good choice for me, as it is very hard on the liver. He wanted to get my legs under control before doing anything like that, so hopefully the pred will help. > > Then I go to my Dermatologist, and she takes one look at my legs and says that my sarc is definately in a flare. She called the rheumy and conferred with him. They thought about using plaquinil, but aren't gonna just yet. Actually I am not sure she knows what to do with me. She said I have Venous stasis ulcers. > > As far as the sores on my legs, she wanted me to stay up there yesterday and be admitted to the hospital on a outpatient basis and have my legs wrapped with a wet dressing and compression to hopefully help them. I had a leg doppler done in September and I have Moderate venous insuffiency. Well I didnt take any clothes or my CPAP machine or anything, as I wasnt planning on staying up there, I live 3 hours from there. Her nurse did some checking and I could have rented one but it was gonna cost $250 / week to rent, so I told her that I could drive home and back for that amount of money. ( I think I made her mad at me ROFL ) So, I have to go back up the the Mayo on March 1, be admitted on a outpatient basis and have my legs treated. I will be up there at least 3 days depending on if the compression and wet dressings help. > > So for the rest of this week and next, she put me on a antibiotic, as my legs are severly infected, she put me on triamcinolone cream, and nizoral cream. and she did some blood work so she can put me on i think it was diflucan, but she needed to know if my liver could metabolize it. > > So I am a bit scared, as I worked in a nursing home, and I remember all those elderly people who had this same thing, and the sores that I used to have to treat on their legs. It scares me. I don't wanna be like them. But I am... MAN I LOVE THIS @$)@ing disease. > > Ok that is enough for now. I AM FRUSTRATED AND SCARED!!! > > from Iowa. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 , I am sorry to hear about all of the problems you are having. I will keep you in my thoughts and prayers. Terri G. > > Hi all-- > > I went to the Mayo clinic in Rochester Minnesota yesterday for a check up. I knew my sarc was in a flare. > > I saw my Rheumy and he ordered me a tapering dose of prednisone. So I start with 30 mgs for a week, then go down by 5 a week. > > He also discussed changing my meds ( I am on imuran 225 mg / day) and I asked about Methotrexate, and he told me, that is not a good choice for me, as it is very hard on the liver. He wanted to get my legs under control before doing anything like that, so hopefully the pred will help. > > Then I go to my Dermatologist, and she takes one look at my legs and says that my sarc is definately in a flare. She called the rheumy and conferred with him. They thought about using plaquinil, but aren't gonna just yet. Actually I am not sure she knows what to do with me. She said I have Venous stasis ulcers. > > As far as the sores on my legs, she wanted me to stay up there yesterday and be admitted to the hospital on a outpatient basis and have my legs wrapped with a wet dressing and compression to hopefully help them. I had a leg doppler done in September and I have Moderate venous insuffiency. Well I didnt take any clothes or my CPAP machine or anything, as I wasnt planning on staying up there, I live 3 hours from there. Her nurse did some checking and I could have rented one but it was gonna cost $250 / week to rent, so I told her that I could drive home and back for that amount of money. ( I think I made her mad at me ROFL ) So, I have to go back up the the Mayo on March 1, be admitted on a outpatient basis and have my legs treated. I will be up there at least 3 days depending on if the compression and wet dressings help. > > So for the rest of this week and next, she put me on a antibiotic, as my legs are severly infected, she put me on triamcinolone cream, and nizoral cream. and she did some blood work so she can put me on i think it was diflucan, but she needed to know if my liver could metabolize it. > > So I am a bit scared, as I worked in a nursing home, and I remember all those elderly people who had this same thing, and the sores that I used to have to treat on their legs. It scares me. I don't wanna be like them. But I am... MAN I LOVE THIS @$)@ing disease. > > Ok that is enough for now. I AM FRUSTRATED AND SCARED!!! > > from Iowa. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 I am sorry to hear about your experience yesterday , . But it sounds like they are working hard to clear up your legs. The prednisone should help some. You know prednisone, it is the "miracle" drug - it works on anything!!! I know you are frustrated and scared right now, but try and hang in there. Maybe the next time you send us pictures of your legs they will be all cleared up, huh? Then they can work with the rest of your meds. Hugs, Debbie wrote: Hi all-- I went to the Mayo clinic in Rochester Minnesota yesterday for a check up. I knew my sarc was in a flare. I saw my Rheumy and he ordered me a tapering dose of prednisone. So I start with 30 mgs for a week, then go down by 5 a week. He also discussed changing my meds ( I am on imuran 225 mg / day) and I asked about Methotrexate, and he told me, that is not a good choice for me, as it is very hard on the liver. He wanted to get my legs under control before doing anything like that, so hopefully the pred will help. Then I go to my Dermatologist, and she takes one look at my legs and says that my sarc is definately in a flare. She called the rheumy and conferred with him. They thought about using plaquinil, but aren't gonna just yet. Actually I am not sure she knows what to do with me. She said I have Venous stasis ulcers. As far as the sores on my legs, she wanted me to stay up there yesterday and be admitted to the hospital on a outpatient basis and have my legs wrapped with a wet dressing and compression to hopefully help them. I had a leg doppler done in September and I have Moderate venous insuffiency. Well I didnt take any clothes or my CPAP machine or anything, as I wasnt planning on staying up there, I live 3 hours from there. Her nurse did some checking and I could have rented one but it was gonna cost $250 / week to rent, so I told her that I could drive home and back for that amount of money. ( I think I made her mad at me ROFL ) So, I have to go back up the the Mayo on March 1, be admitted on a outpatient basis and have my legs treated. I will be up there at least 3 days depending on if the compression and wet dressings help. So for the rest of this week and next, she put me on a antibiotic, as my legs are severly infected, she put me on triamcinolone cream, and nizoral cream. and she did some blood work so she can put me on i think it was diflucan, but she needed to know if my liver could metabolize it. So I am a bit scared, as I worked in a nursing home, and I remember all those elderly people who had this same thing, and the sores that I used to have to treat on their legs. It scares me. I don't wanna be like them. But I am... MAN I LOVE THIS @$ & #)@ing disease. Ok that is enough for now. I AM FRUSTRATED AND SCARED!!! from Iowa. Relax. Yahoo! Mail virus scanning helps detect nasty viruses! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 I am sorry to hear about your experience yesterday , . But it sounds like they are working hard to clear up your legs. The prednisone should help some. You know prednisone, it is the "miracle" drug - it works on anything!!! I know you are frustrated and scared right now, but try and hang in there. Maybe the next time you send us pictures of your legs they will be all cleared up, huh? Then they can work with the rest of your meds. Hugs, Debbie wrote: Hi all-- I went to the Mayo clinic in Rochester Minnesota yesterday for a check up. I knew my sarc was in a flare. I saw my Rheumy and he ordered me a tapering dose of prednisone. So I start with 30 mgs for a week, then go down by 5 a week. He also discussed changing my meds ( I am on imuran 225 mg / day) and I asked about Methotrexate, and he told me, that is not a good choice for me, as it is very hard on the liver. He wanted to get my legs under control before doing anything like that, so hopefully the pred will help. Then I go to my Dermatologist, and she takes one look at my legs and says that my sarc is definately in a flare. She called the rheumy and conferred with him. They thought about using plaquinil, but aren't gonna just yet. Actually I am not sure she knows what to do with me. She said I have Venous stasis ulcers. As far as the sores on my legs, she wanted me to stay up there yesterday and be admitted to the hospital on a outpatient basis and have my legs wrapped with a wet dressing and compression to hopefully help them. I had a leg doppler done in September and I have Moderate venous insuffiency. Well I didnt take any clothes or my CPAP machine or anything, as I wasnt planning on staying up there, I live 3 hours from there. Her nurse did some checking and I could have rented one but it was gonna cost $250 / week to rent, so I told her that I could drive home and back for that amount of money. ( I think I made her mad at me ROFL ) So, I have to go back up the the Mayo on March 1, be admitted on a outpatient basis and have my legs treated. I will be up there at least 3 days depending on if the compression and wet dressings help. So for the rest of this week and next, she put me on a antibiotic, as my legs are severly infected, she put me on triamcinolone cream, and nizoral cream. and she did some blood work so she can put me on i think it was diflucan, but she needed to know if my liver could metabolize it. So I am a bit scared, as I worked in a nursing home, and I remember all those elderly people who had this same thing, and the sores that I used to have to treat on their legs. It scares me. I don't wanna be like them. But I am... MAN I LOVE THIS @$ & #)@ing disease. Ok that is enough for now. I AM FRUSTRATED AND SCARED!!! from Iowa. Relax. Yahoo! Mail virus scanning helps detect nasty viruses! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 I am sorry to hear about your experience yesterday , . But it sounds like they are working hard to clear up your legs. The prednisone should help some. You know prednisone, it is the "miracle" drug - it works on anything!!! I know you are frustrated and scared right now, but try and hang in there. Maybe the next time you send us pictures of your legs they will be all cleared up, huh? Then they can work with the rest of your meds. Hugs, Debbie wrote: Hi all-- I went to the Mayo clinic in Rochester Minnesota yesterday for a check up. I knew my sarc was in a flare. I saw my Rheumy and he ordered me a tapering dose of prednisone. So I start with 30 mgs for a week, then go down by 5 a week. He also discussed changing my meds ( I am on imuran 225 mg / day) and I asked about Methotrexate, and he told me, that is not a good choice for me, as it is very hard on the liver. He wanted to get my legs under control before doing anything like that, so hopefully the pred will help. Then I go to my Dermatologist, and she takes one look at my legs and says that my sarc is definately in a flare. She called the rheumy and conferred with him. They thought about using plaquinil, but aren't gonna just yet. Actually I am not sure she knows what to do with me. She said I have Venous stasis ulcers. As far as the sores on my legs, she wanted me to stay up there yesterday and be admitted to the hospital on a outpatient basis and have my legs wrapped with a wet dressing and compression to hopefully help them. I had a leg doppler done in September and I have Moderate venous insuffiency. Well I didnt take any clothes or my CPAP machine or anything, as I wasnt planning on staying up there, I live 3 hours from there. Her nurse did some checking and I could have rented one but it was gonna cost $250 / week to rent, so I told her that I could drive home and back for that amount of money. ( I think I made her mad at me ROFL ) So, I have to go back up the the Mayo on March 1, be admitted on a outpatient basis and have my legs treated. I will be up there at least 3 days depending on if the compression and wet dressings help. So for the rest of this week and next, she put me on a antibiotic, as my legs are severly infected, she put me on triamcinolone cream, and nizoral cream. and she did some blood work so she can put me on i think it was diflucan, but she needed to know if my liver could metabolize it. So I am a bit scared, as I worked in a nursing home, and I remember all those elderly people who had this same thing, and the sores that I used to have to treat on their legs. It scares me. I don't wanna be like them. But I am... MAN I LOVE THIS @$ & #)@ing disease. Ok that is enough for now. I AM FRUSTRATED AND SCARED!!! from Iowa. Relax. Yahoo! Mail virus scanning helps detect nasty viruses! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 I will keep you in my thoughts and hope you heal quickly. LM wrote: Hi all-- I went to the Mayo clinic in Rochester Minnesota yesterday for a check up. I knew my sarc was in a flare. I saw my Rheumy and he ordered me a tapering dose of prednisone. So I start with 30 mgs for a week, then go down by 5 a week. He also discussed changing my meds ( I am on imuran 225 mg / day) and I asked about Methotrexate, and he told me, that is not a good choice for me, as it is very hard on the liver. He wanted to get my legs under control before doing anything like that, so hopefully the pred will help. Then I go to my Dermatologist, and she takes one look at my legs and says that my sarc is definately in a flare. She called the rheumy and conferred with him. They thought about using plaquinil, but aren't gonna just yet. Actually I am not sure she knows what to do with me. She said I have Venous stasis ulcers. As far as the sores on my legs, she wanted me to stay up there yesterday and be admitted to the hospital on a outpatient basis and have my legs wrapped with a wet dressing and compression to hopefully help them. I had a leg doppler done in September and I have Moderate venous insuffiency. Well I didnt take any clothes or my CPAP machine or anything, as I wasnt planning on staying up there, I live 3 hours from there. Her nurse did some checking and I could have rented one but it was gonna cost $250 / week to rent, so I told her that I could drive home and back for that amount of money. ( I think I made her mad at me ROFL ) So, I have to go back up the the Mayo on March 1, be admitted on a outpatient basis and have my legs treated. I will be up there at least 3 days depending on if the compression and wet dressings help. So for the rest of this week and next, she put me on a antibiotic, as my legs are severly infected, she put me on triamcinolone cream, and nizoral cream. and she did some blood work so she can put me on i think it was diflucan, but she needed to know if my liver could metabolize it. So I am a bit scared, as I worked in a nursing home, and I remember all those elderly people who had this same thing, and the sores that I used to have to treat on their legs. It scares me. I don't wanna be like them. But I am... MAN I LOVE THIS @$ & #)@ing disease. Ok that is enough for now. I AM FRUSTRATED AND SCARED!!! from Iowa. Yahoo! Autos. Looking for a sweet ride? Get pricing, reviews, more on new and used cars. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 I will keep you in my thoughts and hope you heal quickly. LM wrote: Hi all-- I went to the Mayo clinic in Rochester Minnesota yesterday for a check up. I knew my sarc was in a flare. I saw my Rheumy and he ordered me a tapering dose of prednisone. So I start with 30 mgs for a week, then go down by 5 a week. He also discussed changing my meds ( I am on imuran 225 mg / day) and I asked about Methotrexate, and he told me, that is not a good choice for me, as it is very hard on the liver. He wanted to get my legs under control before doing anything like that, so hopefully the pred will help. Then I go to my Dermatologist, and she takes one look at my legs and says that my sarc is definately in a flare. She called the rheumy and conferred with him. They thought about using plaquinil, but aren't gonna just yet. Actually I am not sure she knows what to do with me. She said I have Venous stasis ulcers. As far as the sores on my legs, she wanted me to stay up there yesterday and be admitted to the hospital on a outpatient basis and have my legs wrapped with a wet dressing and compression to hopefully help them. I had a leg doppler done in September and I have Moderate venous insuffiency. Well I didnt take any clothes or my CPAP machine or anything, as I wasnt planning on staying up there, I live 3 hours from there. Her nurse did some checking and I could have rented one but it was gonna cost $250 / week to rent, so I told her that I could drive home and back for that amount of money. ( I think I made her mad at me ROFL ) So, I have to go back up the the Mayo on March 1, be admitted on a outpatient basis and have my legs treated. I will be up there at least 3 days depending on if the compression and wet dressings help. So for the rest of this week and next, she put me on a antibiotic, as my legs are severly infected, she put me on triamcinolone cream, and nizoral cream. and she did some blood work so she can put me on i think it was diflucan, but she needed to know if my liver could metabolize it. So I am a bit scared, as I worked in a nursing home, and I remember all those elderly people who had this same thing, and the sores that I used to have to treat on their legs. It scares me. I don't wanna be like them. But I am... MAN I LOVE THIS @$ & #)@ing disease. Ok that is enough for now. I AM FRUSTRATED AND SCARED!!! from Iowa. Yahoo! Autos. Looking for a sweet ride? Get pricing, reviews, more on new and used cars. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 I will keep you in my thoughts and hope you heal quickly. LM wrote: Hi all-- I went to the Mayo clinic in Rochester Minnesota yesterday for a check up. I knew my sarc was in a flare. I saw my Rheumy and he ordered me a tapering dose of prednisone. So I start with 30 mgs for a week, then go down by 5 a week. He also discussed changing my meds ( I am on imuran 225 mg / day) and I asked about Methotrexate, and he told me, that is not a good choice for me, as it is very hard on the liver. He wanted to get my legs under control before doing anything like that, so hopefully the pred will help. Then I go to my Dermatologist, and she takes one look at my legs and says that my sarc is definately in a flare. She called the rheumy and conferred with him. They thought about using plaquinil, but aren't gonna just yet. Actually I am not sure she knows what to do with me. She said I have Venous stasis ulcers. As far as the sores on my legs, she wanted me to stay up there yesterday and be admitted to the hospital on a outpatient basis and have my legs wrapped with a wet dressing and compression to hopefully help them. I had a leg doppler done in September and I have Moderate venous insuffiency. Well I didnt take any clothes or my CPAP machine or anything, as I wasnt planning on staying up there, I live 3 hours from there. Her nurse did some checking and I could have rented one but it was gonna cost $250 / week to rent, so I told her that I could drive home and back for that amount of money. ( I think I made her mad at me ROFL ) So, I have to go back up the the Mayo on March 1, be admitted on a outpatient basis and have my legs treated. I will be up there at least 3 days depending on if the compression and wet dressings help. So for the rest of this week and next, she put me on a antibiotic, as my legs are severly infected, she put me on triamcinolone cream, and nizoral cream. and she did some blood work so she can put me on i think it was diflucan, but she needed to know if my liver could metabolize it. So I am a bit scared, as I worked in a nursing home, and I remember all those elderly people who had this same thing, and the sores that I used to have to treat on their legs. It scares me. I don't wanna be like them. But I am... MAN I LOVE THIS @$ & #)@ing disease. Ok that is enough for now. I AM FRUSTRATED AND SCARED!!! from Iowa. Yahoo! Autos. Looking for a sweet ride? Get pricing, reviews, more on new and used cars. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 , I'm scared for you. Man you need more than prednisone. If you were to get MTX by injection, it would bypass the liver. Would he consider giving it to you this way. I know that you need to get those legs settled before starting another immunesuppresant-- once you do-- get them working towards Humira, Enbrel or Remicade. Girl, it's way past time to get aggressive. Hugs, Tracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 , I'm scared for you. Man you need more than prednisone. If you were to get MTX by injection, it would bypass the liver. Would he consider giving it to you this way. I know that you need to get those legs settled before starting another immunesuppresant-- once you do-- get them working towards Humira, Enbrel or Remicade. Girl, it's way past time to get aggressive. Hugs, Tracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 , I'm scared for you. Man you need more than prednisone. If you were to get MTX by injection, it would bypass the liver. Would he consider giving it to you this way. I know that you need to get those legs settled before starting another immunesuppresant-- once you do-- get them working towards Humira, Enbrel or Remicade. Girl, it's way past time to get aggressive. Hugs, Tracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2006 Report Share Posted February 24, 2006 ((((((DENISE))))) Big hugs and prayers for you kiddo. My chemo appt sucked from the minute I went in the pharmacy at the hospital to pick up my meds. It took a total of one hour & 15 minutes to stand in 3 different lines & talk to 3 different people & I had called them in 3 days ago. It looks like they are struggling with the new medicare & medicaid copays. I allowed 45 minutes so I was late for my blood work & that made my chemo an hour late but I crocheted some & slept some too so it wasn't a complete waste. I told the chemo doc about my knees & how I was having a really hard time walking. DUH I was using my walker there for the first time so that should have been a clue to her. She asked me about the reduction in my pred & I know I've told her at least 2 times before every time they knock the amount down walking gets harder. So her reply was " We'll give it a couple of weeks & if it's not better we'll up the pred back to 15. " I thought the idea was to get me off that crap. I told her I was hoping there was something else I could take & she said not really......GRRRRRRRRRR She doesn't have to try to get her fat ass in skin tight sweats. She's a bone! I'm gonna try to get to the library next week & print her out some options. Thank you to all that have provided info & links! Bitch #2 - They finally let me have my meds for cheap & gave me paperwork to fill out AGAIN then proceeded to tell me Hamilton County is trying to stop meds for people who live outside the county. I worked in their county for 30 years whether I lived there or not & paid taxes there for 30 years & they can't cut me a little slack? They got money for TWO new stadiums along with other bullshit projects but they're going to let people do without the meds they need??? I guess it's time to email my congressmen again for all that's worth. At least it won't cost me a stamp. LOL Bitch # 3 4 & 5 The coffee stand was closed & I always buy breakfast there so I had to eat a poptart out of the vending machine, not enough to fill me up, they were too backed up with people getting the butterfly? one stick so I had to get stuck in the arm twice, & the room was ice cold & I was sitting under an airvent! And the final problem -- my sisters cell phone she lets me use gave me a weird message INVALID MOBILE and I had no clue what that meant so I had to go back inside & find a place to call her from so I could haul my draggy ass home......It ended up being some glitch & all I had to do was turn it off & back on so if you ever get that message the customer service guy said it's like when you have to reboot your computer. LOL I've had to do THAT a million times. Individually these are petty complaints but all in one day & iv steroids pushed me over that hill! I'll be better (nicer?) in 3 days when the extra steroids wear off. LOL grannylunatic@... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2006 Report Share Posted February 24, 2006 ((((((DENISE))))) Big hugs and prayers for you kiddo. My chemo appt sucked from the minute I went in the pharmacy at the hospital to pick up my meds. It took a total of one hour & 15 minutes to stand in 3 different lines & talk to 3 different people & I had called them in 3 days ago. It looks like they are struggling with the new medicare & medicaid copays. I allowed 45 minutes so I was late for my blood work & that made my chemo an hour late but I crocheted some & slept some too so it wasn't a complete waste. I told the chemo doc about my knees & how I was having a really hard time walking. DUH I was using my walker there for the first time so that should have been a clue to her. She asked me about the reduction in my pred & I know I've told her at least 2 times before every time they knock the amount down walking gets harder. So her reply was " We'll give it a couple of weeks & if it's not better we'll up the pred back to 15. " I thought the idea was to get me off that crap. I told her I was hoping there was something else I could take & she said not really......GRRRRRRRRRR She doesn't have to try to get her fat ass in skin tight sweats. She's a bone! I'm gonna try to get to the library next week & print her out some options. Thank you to all that have provided info & links! Bitch #2 - They finally let me have my meds for cheap & gave me paperwork to fill out AGAIN then proceeded to tell me Hamilton County is trying to stop meds for people who live outside the county. I worked in their county for 30 years whether I lived there or not & paid taxes there for 30 years & they can't cut me a little slack? They got money for TWO new stadiums along with other bullshit projects but they're going to let people do without the meds they need??? I guess it's time to email my congressmen again for all that's worth. At least it won't cost me a stamp. LOL Bitch # 3 4 & 5 The coffee stand was closed & I always buy breakfast there so I had to eat a poptart out of the vending machine, not enough to fill me up, they were too backed up with people getting the butterfly? one stick so I had to get stuck in the arm twice, & the room was ice cold & I was sitting under an airvent! And the final problem -- my sisters cell phone she lets me use gave me a weird message INVALID MOBILE and I had no clue what that meant so I had to go back inside & find a place to call her from so I could haul my draggy ass home......It ended up being some glitch & all I had to do was turn it off & back on so if you ever get that message the customer service guy said it's like when you have to reboot your computer. LOL I've had to do THAT a million times. Individually these are petty complaints but all in one day & iv steroids pushed me over that hill! I'll be better (nicer?) in 3 days when the extra steroids wear off. LOL grannylunatic@... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2006 Report Share Posted February 24, 2006 ((((((DENISE))))) Big hugs and prayers for you kiddo. My chemo appt sucked from the minute I went in the pharmacy at the hospital to pick up my meds. It took a total of one hour & 15 minutes to stand in 3 different lines & talk to 3 different people & I had called them in 3 days ago. It looks like they are struggling with the new medicare & medicaid copays. I allowed 45 minutes so I was late for my blood work & that made my chemo an hour late but I crocheted some & slept some too so it wasn't a complete waste. I told the chemo doc about my knees & how I was having a really hard time walking. DUH I was using my walker there for the first time so that should have been a clue to her. She asked me about the reduction in my pred & I know I've told her at least 2 times before every time they knock the amount down walking gets harder. So her reply was " We'll give it a couple of weeks & if it's not better we'll up the pred back to 15. " I thought the idea was to get me off that crap. I told her I was hoping there was something else I could take & she said not really......GRRRRRRRRRR She doesn't have to try to get her fat ass in skin tight sweats. She's a bone! I'm gonna try to get to the library next week & print her out some options. Thank you to all that have provided info & links! Bitch #2 - They finally let me have my meds for cheap & gave me paperwork to fill out AGAIN then proceeded to tell me Hamilton County is trying to stop meds for people who live outside the county. I worked in their county for 30 years whether I lived there or not & paid taxes there for 30 years & they can't cut me a little slack? They got money for TWO new stadiums along with other bullshit projects but they're going to let people do without the meds they need??? I guess it's time to email my congressmen again for all that's worth. At least it won't cost me a stamp. LOL Bitch # 3 4 & 5 The coffee stand was closed & I always buy breakfast there so I had to eat a poptart out of the vending machine, not enough to fill me up, they were too backed up with people getting the butterfly? one stick so I had to get stuck in the arm twice, & the room was ice cold & I was sitting under an airvent! And the final problem -- my sisters cell phone she lets me use gave me a weird message INVALID MOBILE and I had no clue what that meant so I had to go back inside & find a place to call her from so I could haul my draggy ass home......It ended up being some glitch & all I had to do was turn it off & back on so if you ever get that message the customer service guy said it's like when you have to reboot your computer. LOL I've had to do THAT a million times. Individually these are petty complaints but all in one day & iv steroids pushed me over that hill! I'll be better (nicer?) in 3 days when the extra steroids wear off. LOL grannylunatic@... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 , Hun I'm so sorry you got such a bad report, and I know what you mean by working in nursing homes etc........I did too....... I know you are scared, I'm here if there is anything I can do, I will keep you in my prayers. Love ya Sis, Jan Quote Link to comment Share on other sites More sharing options...
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