Re: chest CT

[Guest guest]

Terri, They have never talked about going after the sentinel lymph node under the collar bone. This particular lymph node is like a filter for the entire body, it is the one they removed from me rather than do a mediostenal stenoscopy. I can only imagine how frustrated you are. (my family says mad enough to chew a 10 penny nail). Have they done ACE levels or any of the blood tests that sometimes give you a heads up about sarc. And what's this mess about a pimple, in theory I understand their concept, but that doesn't mean I believe it, sounds a little far fetched for this GRITS. I don't know how you are putting up with the head pain.....I am so sorry. Keep kicking and scratching, the squeaky wheel does get the oil. Connie **GRITS - Girl Raised In The

South**mosaicgirl1 wrote: Rose, I went for the chest CT results today and they are still saying they will not call it sarcoidosis. The node is not "bulky" enough and too deep to get at so I am in a terminal holding pattern. The lump on my chest under the collar bone is probably a lymph node but she said she thinks it is from a pimple next to it. I am sorry; I have had plenty of pimples and none of them caused a lymph node to swell. I am so sick of this shit it is driving me crazy. They have me scheduled for another chest CT in August. That means I will have been at this for a year! Does this make sense to anyone? Not to me. Well I put in a call to my primary care. Someone needs to get on the ball and get this mess straight or I am

going to tell them all where they can go!!!!!!!! I am going to ask the primary care to call Duke and talk to the Neurologist or call s Hopkins (he won't send me back; he wants me at Duke). Dr. at s Hopkins is the only one who has tried to help. You can hear me but I am screaming really loud inside my head. How do you like them there apples as my Daddy used to say? Well, I have stuff to do. To everyone I missed writing back I am sorry. My head has been killing me and I am up to speed but I know I missed a couple of folks so sorry. Terri G. PS are you still out there.

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[Guest guest]

Connie,

My ACE has been high before but no one has said anything about the

sentinel node biopsy. I appreciate the suggestions. Where did you say

you live?

Terri

> Rose,

> I went for the chest CT results today and they are still saying they

will not call it sarcoidosis. The node is not " bulky " enough and too

deep to get at so I am in a terminal holding pattern. The lump on my

chest under the collar bone is probably a lymph node but she said she

thinks it is from a pimple next to it. I am sorry; I have had plenty of

pimples and none of them caused a lymph node to swell. I am so sick of

this shit it is driving me crazy. They have me scheduled for another

chest CT in August. That means I will have been at this for a year! Does

this make sense to anyone? Not to me. Well I put in a call to my primary

care. Someone needs to get on the ball and get this mess straight or I

am going to tell them all where they can go!!!!!!!!

> I am going to ask the primary care to call Duke and talk to the

Neurologist or call s Hopkins (he won't send me back; he wants me at

Duke). Dr. at s Hopkins is the only one who has tried to

help. You can hear me but I am screaming really loud inside my head. How

do you like them there apples as my Daddy used to say? Well, I have

stuff to do. To everyone I missed writing back I am sorry. My head has

been killing me and I am up to speed but I know I missed a couple of

folks so sorry.

> Terri G.

> PS are you still out there.

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