Re: chest CT

May 16, 2006

Connie,

My ACE has been high before but no one has said anything about the

sentinel node biopsy. I appreciate the suggestions. Where did you say

you live?

Terri

> Rose,

> I went for the chest CT results today and they are still saying they

will not call it sarcoidosis. The node is not " bulky " enough and too

deep to get at so I am in a terminal holding pattern. The lump on my

chest under the collar bone is probably a lymph node but she said she

thinks it is from a pimple next to it. I am sorry; I have had plenty of

pimples and none of them caused a lymph node to swell. I am so sick of

this shit it is driving me crazy. They have me scheduled for another

chest CT in August. That means I will have been at this for a year! Does

this make sense to anyone? Not to me. Well I put in a call to my primary

care. Someone needs to get on the ball and get this mess straight or I

am going to tell them all where they can go!!!!!!!!

> I am going to ask the primary care to call Duke and talk to the

Neurologist or call s Hopkins (he won't send me back; he wants me at

Duke). Dr. at s Hopkins is the only one who has tried to

help. You can hear me but I am screaming really loud inside my head. How

do you like them there apples as my Daddy used to say? Well, I have

stuff to do. To everyone I missed writing back I am sorry. My head has

been killing me and I am up to speed but I know I missed a couple of

folks so sorry.

> Terri G.

> PS are you still out there.

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

> NS CHAT:- Has been cancelled for now.

>

> Message Archives:-

>

> Members Database:-

> Listings of locations, phone numbers, and instant messengers.

>

Recommended Posts