Re: Second pregnancy-Struggling with moral issues.

[Guest guest]

From what I understand, chances of recurring maternal inheritance can

be quoted as 0%-100% meaning it is completely unpredictable. Some

women will have all mito kids, some will have all healthy kids, and

many are precariously balancing in between. I don't expect a

completely mito free child, but I hope that I can have a child with

much milder syptoms.

> > > > DEAR ERIN MY NAME IS SHANNON AND I ALSO HAD A LITTLE GIRL WITH

> > > LEIGHS DIS....

> > > > IS YOUR CHILD STILL LIVING? I LOST BRANDY IN MAY OF LAST

YEAR SHE

> > > WAS SIX

> > > > MONTHES OLD... http://brandymichelle.cjb.net/ THIS IS HER

> > > WEBSITE ... IF YOU

> > > > WOULD LIKE TO SEE HER .. I AM SO SORRY YOU ARE HAVING THIS

PROBLEM

> > > I AM TRYING

> > > > TO HAVE ANOTHER CHILD MY SELF BUT I AM NOT TRYING WITH THE

SAME

> > > FATHER .. I

> > > > KNOW YOU ARE SCARED I AM TO BUT WE HAVE TO PUT IT IN GODS

HANDS ..

> > > IN YOUR CASE

> > > > YES IT IS VERY POSSIABLE THAT THIS CHILD WILL HAVE A MITO

DIS.. BUT

> > > YOU SHOULD

> > > > NOT ABORT IT GOD SAYS ALL PEOPLE DESEVE A CHANCE YOU REALLY

NEED TO

> > > THINK

> > > > ABOUT HE BLESSED YOU WITH THIS CHILD SO YOU REALLY NEED TO

TRY TO

> > > GO THROUGH WITH

> > > > IT .... CAUSE IF YOU THINK ABOUT IT YOU WOULD BE KILLING THIS

CHILD

> > > AND I KNOW

> > > > IT IS HARD TO WATCH THEM SUFFER I HAVE BEEN THERE AND DONE

THAT AND

> > > I STILL

> > > > LIVE WITH IT EVERY DAY AND YOU WILL BUT AT LEAST YOU KNOW

THAT YOU

> > > TRIED AND

> > > > THAT IS WHAT YOU NEED TO DO ... PLEASE THINK ABOUT THIS

BEFORE YOU

> > > DO IT.. IF

> > > > YOU NEED TO TALK I AM ON HERE ALL THE TIME I DONT REALLY

ANSWER

> > > PEOPLE NO MORE

> > > > BUT I WILL ANSWER YOU SO PLEASE KEEP TALKING ... YOUR FRIEND

SHANNON

> > >

> > >

> > >

> > > Please contact mito-owner with any problems or

> questions.

> > >

[Guest guest]

From what I understand, chances of recurring maternal inheritance can

be quoted as 0%-100% meaning it is completely unpredictable. Some

women will have all mito kids, some will have all healthy kids, and

many are precariously balancing in between. I don't expect a

completely mito free child, but I hope that I can have a child with

much milder syptoms.

> > > > DEAR ERIN MY NAME IS SHANNON AND I ALSO HAD A LITTLE GIRL WITH

> > > LEIGHS DIS....

> > > > IS YOUR CHILD STILL LIVING? I LOST BRANDY IN MAY OF LAST

YEAR SHE

> > > WAS SIX

> > > > MONTHES OLD... http://brandymichelle.cjb.net/ THIS IS HER

> > > WEBSITE ... IF YOU

> > > > WOULD LIKE TO SEE HER .. I AM SO SORRY YOU ARE HAVING THIS

PROBLEM

> > > I AM TRYING

> > > > TO HAVE ANOTHER CHILD MY SELF BUT I AM NOT TRYING WITH THE

SAME

> > > FATHER .. I

> > > > KNOW YOU ARE SCARED I AM TO BUT WE HAVE TO PUT IT IN GODS

HANDS ..

> > > IN YOUR CASE

> > > > YES IT IS VERY POSSIABLE THAT THIS CHILD WILL HAVE A MITO

DIS.. BUT

> > > YOU SHOULD

> > > > NOT ABORT IT GOD SAYS ALL PEOPLE DESEVE A CHANCE YOU REALLY

NEED TO

> > > THINK

> > > > ABOUT HE BLESSED YOU WITH THIS CHILD SO YOU REALLY NEED TO

TRY TO

> > > GO THROUGH WITH

> > > > IT .... CAUSE IF YOU THINK ABOUT IT YOU WOULD BE KILLING THIS

CHILD

> > > AND I KNOW

> > > > IT IS HARD TO WATCH THEM SUFFER I HAVE BEEN THERE AND DONE

THAT AND

> > > I STILL

> > > > LIVE WITH IT EVERY DAY AND YOU WILL BUT AT LEAST YOU KNOW

THAT YOU

> > > TRIED AND

> > > > THAT IS WHAT YOU NEED TO DO ... PLEASE THINK ABOUT THIS

BEFORE YOU

> > > DO IT.. IF

> > > > YOU NEED TO TALK I AM ON HERE ALL THE TIME I DONT REALLY

ANSWER

> > > PEOPLE NO MORE

> > > > BUT I WILL ANSWER YOU SO PLEASE KEEP TALKING ... YOUR FRIEND

SHANNON

> > >

> > >

> > >

> > > Please contact mito-owner with any problems or

> questions.

> > >

[Guest guest]

From what I understand, chances of recurring maternal inheritance can

be quoted as 0%-100% meaning it is completely unpredictable. Some

women will have all mito kids, some will have all healthy kids, and

many are precariously balancing in between. I don't expect a

completely mito free child, but I hope that I can have a child with

much milder syptoms.

> > > > DEAR ERIN MY NAME IS SHANNON AND I ALSO HAD A LITTLE GIRL WITH

> > > LEIGHS DIS....

> > > > IS YOUR CHILD STILL LIVING? I LOST BRANDY IN MAY OF LAST

YEAR SHE

> > > WAS SIX

> > > > MONTHES OLD... http://brandymichelle.cjb.net/ THIS IS HER

> > > WEBSITE ... IF YOU

> > > > WOULD LIKE TO SEE HER .. I AM SO SORRY YOU ARE HAVING THIS

PROBLEM

> > > I AM TRYING

> > > > TO HAVE ANOTHER CHILD MY SELF BUT I AM NOT TRYING WITH THE

SAME

> > > FATHER .. I

> > > > KNOW YOU ARE SCARED I AM TO BUT WE HAVE TO PUT IT IN GODS

HANDS ..

> > > IN YOUR CASE

> > > > YES IT IS VERY POSSIABLE THAT THIS CHILD WILL HAVE A MITO

DIS.. BUT

> > > YOU SHOULD

> > > > NOT ABORT IT GOD SAYS ALL PEOPLE DESEVE A CHANCE YOU REALLY

NEED TO

> > > THINK

> > > > ABOUT HE BLESSED YOU WITH THIS CHILD SO YOU REALLY NEED TO

TRY TO

> > > GO THROUGH WITH

> > > > IT .... CAUSE IF YOU THINK ABOUT IT YOU WOULD BE KILLING THIS

CHILD

> > > AND I KNOW

> > > > IT IS HARD TO WATCH THEM SUFFER I HAVE BEEN THERE AND DONE

THAT AND

> > > I STILL

> > > > LIVE WITH IT EVERY DAY AND YOU WILL BUT AT LEAST YOU KNOW

THAT YOU

> > > TRIED AND

> > > > THAT IS WHAT YOU NEED TO DO ... PLEASE THINK ABOUT THIS

BEFORE YOU

> > > DO IT.. IF

> > > > YOU NEED TO TALK I AM ON HERE ALL THE TIME I DONT REALLY

ANSWER

> > > PEOPLE NO MORE

> > > > BUT I WILL ANSWER YOU SO PLEASE KEEP TALKING ... YOUR FRIEND

SHANNON

> > >

> > >

> > >

> > > Please contact mito-owner with any problems or

> questions.

> > >

[Guest guest]

I'm going back to the hop now to snuggle with Tarok, but before I go,

I'd like to thank everyone again for the overwhelming support you've

all given me. All of your stories are so inspirational. I truly feel

the understanding I came here looking for. Thank you.

[Guest guest]

I'm going back to the hop now to snuggle with Tarok, but before I go,

I'd like to thank everyone again for the overwhelming support you've

all given me. All of your stories are so inspirational. I truly feel

the understanding I came here looking for. Thank you.

[Guest guest]

I'm going back to the hop now to snuggle with Tarok, but before I go,

I'd like to thank everyone again for the overwhelming support you've

all given me. All of your stories are so inspirational. I truly feel

the understanding I came here looking for. Thank you.

[Guest guest]

Hi, If your child's mito is maternal, then that would mean that any future

children would definitely have mito, I think. I guess what you don't know

would be the degree of difficulty he or she would have. From my

perspective, this is somewhat different than autosomal recessive inheritance

(which is actually more common) where the chances of having a healthy child

are 3 out of 4. Such a complex decision . . . . I am " older " (turning 37 in

May) and have one healthy child in addition to my mito child, so I have

decided not to have any more. But, it was a **very** difficulty decision as

I always planned to have a large family with 3 or 4 children.

Take care and good luck with your decision, Lori

Re: Second pregnancy-Struggling with moral issues.

> Thank you for you story. Yes, my son is still living, he is 18 months

> old and coming home from the hospital next week. He's doing well

> right now, back to mischief. He steals Grandma's glasses, and punches

> Mommy. He says " Love you " even if I can only decipher it by tone and

> syllables. He also says " Glasses " and " Bath time "

> It is nice to hear that you are trying for an other child. Do you

> know if your daughter's disease was due to maternal or autosomal

> inheritance? I suspect maternal inheritance in my family because my

> mother and grandmother, and myself have all had chroninc illness

> which has been difficult or impossible to diagnose. I have a

> diagnosis of Chronic Fatigue syndrome for myself. I beleive that it

> is a mild Mito, but am having trouble convincing docs to have a skin

> & muscle biopsy done. good luck with your second child. Maybe we can

> support each other

> With love,

>

> > DEAR ERIN MY NAME IS SHANNON AND I ALSO HAD A LITTLE GIRL WITH

> LEIGHS DIS....

> > IS YOUR CHILD STILL LIVING? I LOST BRANDY IN MAY OF LAST YEAR SHE

> WAS SIX

> > MONTHES OLD... http://brandymichelle.cjb.net/ THIS IS HER

> WEBSITE ... IF YOU

> > WOULD LIKE TO SEE HER .. I AM SO SORRY YOU ARE HAVING THIS PROBLEM

> I AM TRYING

> > TO HAVE ANOTHER CHILD MY SELF BUT I AM NOT TRYING WITH THE SAME

> FATHER .. I

> > KNOW YOU ARE SCARED I AM TO BUT WE HAVE TO PUT IT IN GODS HANDS ..

> IN YOUR CASE

> > YES IT IS VERY POSSIABLE THAT THIS CHILD WILL HAVE A MITO DIS.. BUT

> YOU SHOULD

> > NOT ABORT IT GOD SAYS ALL PEOPLE DESEVE A CHANCE YOU REALLY NEED TO

> THINK

> > ABOUT HE BLESSED YOU WITH THIS CHILD SO YOU REALLY NEED TO TRY TO

> GO THROUGH WITH

> > IT .... CAUSE IF YOU THINK ABOUT IT YOU WOULD BE KILLING THIS CHILD

> AND I KNOW

> > IT IS HARD TO WATCH THEM SUFFER I HAVE BEEN THERE AND DONE THAT AND

> I STILL

> > LIVE WITH IT EVERY DAY AND YOU WILL BUT AT LEAST YOU KNOW THAT YOU

> TRIED AND

> > THAT IS WHAT YOU NEED TO DO ... PLEASE THINK ABOUT THIS BEFORE YOU

> DO IT.. IF

> > YOU NEED TO TALK I AM ON HERE ALL THE TIME I DONT REALLY ANSWER

> PEOPLE NO MORE

> > BUT I WILL ANSWER YOU SO PLEASE KEEP TALKING ... YOUR FRIEND SHANNON

>

>

>

> Please contact mito-owner with any problems or questions.

>

[Guest guest]

Hi, If your child's mito is maternal, then that would mean that any future

children would definitely have mito, I think. I guess what you don't know

would be the degree of difficulty he or she would have. From my

perspective, this is somewhat different than autosomal recessive inheritance

(which is actually more common) where the chances of having a healthy child

are 3 out of 4. Such a complex decision . . . . I am " older " (turning 37 in

May) and have one healthy child in addition to my mito child, so I have

decided not to have any more. But, it was a **very** difficulty decision as

I always planned to have a large family with 3 or 4 children.

Take care and good luck with your decision, Lori

Re: Second pregnancy-Struggling with moral issues.

> Thank you for you story. Yes, my son is still living, he is 18 months

> old and coming home from the hospital next week. He's doing well

> right now, back to mischief. He steals Grandma's glasses, and punches

> Mommy. He says " Love you " even if I can only decipher it by tone and

> syllables. He also says " Glasses " and " Bath time "

> It is nice to hear that you are trying for an other child. Do you

> know if your daughter's disease was due to maternal or autosomal

> inheritance? I suspect maternal inheritance in my family because my

> mother and grandmother, and myself have all had chroninc illness

> which has been difficult or impossible to diagnose. I have a

> diagnosis of Chronic Fatigue syndrome for myself. I beleive that it

> is a mild Mito, but am having trouble convincing docs to have a skin

> & muscle biopsy done. good luck with your second child. Maybe we can

> support each other

> With love,

>

> > DEAR ERIN MY NAME IS SHANNON AND I ALSO HAD A LITTLE GIRL WITH

> LEIGHS DIS....

> > IS YOUR CHILD STILL LIVING? I LOST BRANDY IN MAY OF LAST YEAR SHE

> WAS SIX

> > MONTHES OLD... http://brandymichelle.cjb.net/ THIS IS HER

> WEBSITE ... IF YOU

> > WOULD LIKE TO SEE HER .. I AM SO SORRY YOU ARE HAVING THIS PROBLEM

> I AM TRYING

> > TO HAVE ANOTHER CHILD MY SELF BUT I AM NOT TRYING WITH THE SAME

> FATHER .. I

> > KNOW YOU ARE SCARED I AM TO BUT WE HAVE TO PUT IT IN GODS HANDS ..

> IN YOUR CASE

> > YES IT IS VERY POSSIABLE THAT THIS CHILD WILL HAVE A MITO DIS.. BUT

> YOU SHOULD

> > NOT ABORT IT GOD SAYS ALL PEOPLE DESEVE A CHANCE YOU REALLY NEED TO

> THINK

> > ABOUT HE BLESSED YOU WITH THIS CHILD SO YOU REALLY NEED TO TRY TO

> GO THROUGH WITH

> > IT .... CAUSE IF YOU THINK ABOUT IT YOU WOULD BE KILLING THIS CHILD

> AND I KNOW

> > IT IS HARD TO WATCH THEM SUFFER I HAVE BEEN THERE AND DONE THAT AND

> I STILL

> > LIVE WITH IT EVERY DAY AND YOU WILL BUT AT LEAST YOU KNOW THAT YOU

> TRIED AND

> > THAT IS WHAT YOU NEED TO DO ... PLEASE THINK ABOUT THIS BEFORE YOU

> DO IT.. IF

> > YOU NEED TO TALK I AM ON HERE ALL THE TIME I DONT REALLY ANSWER

> PEOPLE NO MORE

> > BUT I WILL ANSWER YOU SO PLEASE KEEP TALKING ... YOUR FRIEND SHANNON

>

>

>

> Please contact mito-owner with any problems or questions.

>

[Guest guest]

Hi, If your child's mito is maternal, then that would mean that any future

children would definitely have mito, I think. I guess what you don't know

would be the degree of difficulty he or she would have. From my

perspective, this is somewhat different than autosomal recessive inheritance

(which is actually more common) where the chances of having a healthy child

are 3 out of 4. Such a complex decision . . . . I am " older " (turning 37 in

May) and have one healthy child in addition to my mito child, so I have

decided not to have any more. But, it was a **very** difficulty decision as

I always planned to have a large family with 3 or 4 children.

Take care and good luck with your decision, Lori

Re: Second pregnancy-Struggling with moral issues.

> Thank you for you story. Yes, my son is still living, he is 18 months

> old and coming home from the hospital next week. He's doing well

> right now, back to mischief. He steals Grandma's glasses, and punches

> Mommy. He says " Love you " even if I can only decipher it by tone and

> syllables. He also says " Glasses " and " Bath time "

> It is nice to hear that you are trying for an other child. Do you

> know if your daughter's disease was due to maternal or autosomal

> inheritance? I suspect maternal inheritance in my family because my

> mother and grandmother, and myself have all had chroninc illness

> which has been difficult or impossible to diagnose. I have a

> diagnosis of Chronic Fatigue syndrome for myself. I beleive that it

> is a mild Mito, but am having trouble convincing docs to have a skin

> & muscle biopsy done. good luck with your second child. Maybe we can

> support each other

> With love,

>

> > DEAR ERIN MY NAME IS SHANNON AND I ALSO HAD A LITTLE GIRL WITH

> LEIGHS DIS....

> > IS YOUR CHILD STILL LIVING? I LOST BRANDY IN MAY OF LAST YEAR SHE

> WAS SIX

> > MONTHES OLD... http://brandymichelle.cjb.net/ THIS IS HER

> WEBSITE ... IF YOU

> > WOULD LIKE TO SEE HER .. I AM SO SORRY YOU ARE HAVING THIS PROBLEM

> I AM TRYING

> > TO HAVE ANOTHER CHILD MY SELF BUT I AM NOT TRYING WITH THE SAME

> FATHER .. I

> > KNOW YOU ARE SCARED I AM TO BUT WE HAVE TO PUT IT IN GODS HANDS ..

> IN YOUR CASE

> > YES IT IS VERY POSSIABLE THAT THIS CHILD WILL HAVE A MITO DIS.. BUT

> YOU SHOULD

> > NOT ABORT IT GOD SAYS ALL PEOPLE DESEVE A CHANCE YOU REALLY NEED TO

> THINK

> > ABOUT HE BLESSED YOU WITH THIS CHILD SO YOU REALLY NEED TO TRY TO

> GO THROUGH WITH

> > IT .... CAUSE IF YOU THINK ABOUT IT YOU WOULD BE KILLING THIS CHILD

> AND I KNOW

> > IT IS HARD TO WATCH THEM SUFFER I HAVE BEEN THERE AND DONE THAT AND

> I STILL

> > LIVE WITH IT EVERY DAY AND YOU WILL BUT AT LEAST YOU KNOW THAT YOU

> TRIED AND

> > THAT IS WHAT YOU NEED TO DO ... PLEASE THINK ABOUT THIS BEFORE YOU

> DO IT.. IF

> > YOU NEED TO TALK I AM ON HERE ALL THE TIME I DONT REALLY ANSWER

> PEOPLE NO MORE

> > BUT I WILL ANSWER YOU SO PLEASE KEEP TALKING ... YOUR FRIEND SHANNON

>

>

>

> Please contact mito-owner with any problems or questions.

>

[Guest guest]

,

First let me commend you for putting quite well into words a subject that many of us have faced but few want to talk about. It's not an easy thing to even admit that we have doubts about having other children once we know about how difficult the course of a mito disease can be. i didn't know my son was affected until after his younger sister was born (she was born with severe symptoms) and i honestly don't know how i would have reacted to a second pregnancy if i'd known then that Mitch would also have mito problems. I don't regret having my daughter for one single second. My children are my treasures and i cherish every moment we have together. but i will tell you that i made sure i would not be able to have any more children EVER after i really began to understand what we were up against. That is a decision that would not be appropriate for everyone. Some on this list are blessed by new additions to their family after one child has been diagnosed, and sometimes even after a child has gone home to heaven. I would encourage you to follow what your heart is telling you is the right thing to do, if you are pregnant. wanting a child is never selfish. Being a parent is the most self LESS job on the face of this earth! i hope you find contentment with your decision. :-)

ruth

mom to Mitch (nearly 9) and Lexi (6 in about 3 weeks), both mito affected and both my treasures

[Guest guest]

I am very glad to hear that you will keep you child. I completely understand your worries, as you know I am going through it also. Also if you are pregnant, we can share alot! I do know there is some types of mito that can be tested for while you are still pregnant. The tests can be done as early as 10 weeks. If you decided to go that route then at least you know, to be mentally prepared. For us, we decided not to take the risk of the test (1/100 shot of miscarriage, I'm high risk already). Best of luck to you. I am eager to hear your final result of the test. Also if the pressure is killing you, your doctor can run a blood test now to find out if you actually are pregnant.