Re: Re: Trachea ring/ER visit

[Guest guest]

Darla,

How frustrated you must feel!! I sure hope that things start to improve. I do know that persistence pays off. If she shows any signs of things becoming worse I would be back in ER. The good part about being home though is that she will not be exposed to all the other illnesses that are hanging around the hospital. My prayers are headed your way that Porrah will start to improve.

Loriann

[Guest guest]

Sorry guys but what is RSV?

RE: Re: Trachea ring/ER visit

Darla:

Last time Brenna was diagnosed with pneumonia they put her on meds and were wondering why the fever kept hanging on ~ then they tested her for the RSV and she had that also.

Hang in there ~

Kerry

-----Original Message-----From: Darla Klein Sent: Wednesday, March 24, 2004 5:42 PMTo: Mito Subject: Re: Trachea ring/ER visit I did actually call Dr. Whiteman before and after the visit to ER. I think the doctor may have confused Dr. Whiteman as to the severity though because she felt Porrah was doing "well?!" I did get a protocall of blood work from him to take to ER and they did "some" of them. They needed to poke her twice to just get that much. I did ask Dr. Whiteman's secretary to draw up a protocall for future ER trips so they know what to do and WHY. Asenath has never looked dehydrated even when she doesn't put urine out and Porrah seems to be the same, yet they still get very cranky, sleep tons, wheeze, and have strokes. They have to be quite bad before they "look" bad. The sad thing is the docs just don't take me seriously, thinking they know best, and my kids pay for it. I think they need the IV to prevent strokes and to help them get over the hump. They don't agree. Also, I asked if they would check for RSV as that is what she had at 5 weeks and caused similar symptoms and resulted in her flet-sided stroke episode. The doc felt it UNNECESSARY! So, home we are without any help. Thanks for your words of advise though. I was thinking the same thing all day!Darla: mommy to Asenath, Zipporrah, and the gang > > > > Please contact mito-owner with any problems or> questions. > > > >

[Guest guest]

Sorry guys but what is RSV?

RE: Re: Trachea ring/ER visit

Darla:

Last time Brenna was diagnosed with pneumonia they put her on meds and were wondering why the fever kept hanging on ~ then they tested her for the RSV and she had that also.

Hang in there ~

Kerry

-----Original Message-----From: Darla Klein Sent: Wednesday, March 24, 2004 5:42 PMTo: Mito Subject: Re: Trachea ring/ER visit I did actually call Dr. Whiteman before and after the visit to ER. I think the doctor may have confused Dr. Whiteman as to the severity though because she felt Porrah was doing "well?!" I did get a protocall of blood work from him to take to ER and they did "some" of them. They needed to poke her twice to just get that much. I did ask Dr. Whiteman's secretary to draw up a protocall for future ER trips so they know what to do and WHY. Asenath has never looked dehydrated even when she doesn't put urine out and Porrah seems to be the same, yet they still get very cranky, sleep tons, wheeze, and have strokes. They have to be quite bad before they "look" bad. The sad thing is the docs just don't take me seriously, thinking they know best, and my kids pay for it. I think they need the IV to prevent strokes and to help them get over the hump. They don't agree. Also, I asked if they would check for RSV as that is what she had at 5 weeks and caused similar symptoms and resulted in her flet-sided stroke episode. The doc felt it UNNECESSARY! So, home we are without any help. Thanks for your words of advise though. I was thinking the same thing all day!Darla: mommy to Asenath, Zipporrah, and the gang > > > > Please contact mito-owner with any problems or> questions. > > > >

[Guest guest]

Sorry guys but what is RSV?

I'm not sure I can spell it any more "Respiratory Syncytial Virus "

It kills babies and spreads through neaonatal nurseries like wildfire.

We nurses turn pale as sheets when anyone says RSV. It's possibly less bad on older kids and adults but with mito it is definitely cause for immediate treatment. Unfortunately as it's a virus, the only treatment I know of is supportive: hydration, albuterol, steroids where applicable, maybe antibiotics to ward off secondary bacterial infection, oxygen for sats below 90%. I bought my own oximeter: best investment I ever made.

kj

mom to De-Arbra age 16