Guest guest Posted February 11, 2006 Report Share Posted February 11, 2006 Rose And all this time I've been watching my mouth/fingers so I wouldn't get kicked out of here! grannylunatic@... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2006 Report Share Posted February 11, 2006 ....sing mine to Dancing Queen by ABBA!....lol...lol. S. except I sure ain't 17 any more.Rose wrote: Oooooh, Terri. The competition is pretty tough. I think ol' has got you beat there on the expletives. But the music you choose to perform to might swing votes your way. Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: Re: appt. coming up?Date: Wed, 8 Feb 2006 00:36:47 -0800 (PST)Terri, we can all sympathize with your all-over inflammation. I keep sugar-free popsicles in the freezer cuz my insides heat up all the time. Another lady sucks on ice chips all day. You can put your hand somewhere on my body daily and it will be very warm. Excuse me though...I had to laugh, though i know it's not really funny...but the way you put it(...big ball of inflammation...) sounds to me like you (or any of us) could spontaneously combust or something...lol. Who knows...maybe all those reports are true and all those people had sarc! LOL I also have joint problems and they usually just shrug it off as old age. Hey! I was only 42 when I had my last big flare...which has lasted over 7 years now. And good for you not being intimidated by those sons a bitches. Yeah,...just spell it out, girl, cuz we've had a whole lot worse here. Anybody as sick as we are deserves to 'let it rip' once in awhile. I have F'd it up with the best of them once in awhile and I have had some real frickin bad days ...lol. Thank God for the internet and this group, hey? hugs S.mosaicgirl1 wrote: Rose, As usual, you put a smile on my face; at least the half that works right now. I have had both acyclovir and predisone for my face, but they won't give me any meds now because they don't want to mask my symptoms. I actually had shingles on that side of my face in 1998 but I had a Bells type of affect even then. I had blebs in my mouth, up my nose, on my eyelid, on the left side of my nose and across my face. In hindsight I should have had my face photographed so everyone could see how severe it was. At that time I saw infectious disease dr. who said that healthy people just don't get shingles. I had been having some arthritis syptoms and he thought they were connected. 6 months after the initial attack the drooping, drooling and pain started again and since then I have been on and off steroids. I did a number of antivirals during these attacks (in very large doses) but with no relief. Prednisone does the trick but as soon as I go off, it will come back. The strange thing though was that it never affected my eye. I even had an emg on that side of my face. I do not have any permanent damage right now, but who knows what the future holds. As far as ear pain, boy that can really be a b*****tch. (Do I get extra points for the explative?) My ortho thinks that my joint problems are connected to everything, but everyone discounts that. Why, at 41, did I have an erosion of the femur were it meets the tib/fib at the kneecap. I have had the synovium biopsied on that knee and fluid removed on the right knee and all it showed was chronic inflammation. So I guess I am just a big ball of inflammation - what do you think? I am so inflammed, I am waiting for my hair to catch on fire. Well, once again thanks for the "Rose Insight". It always helps. As far as the doctors go, don't worry about me. They put their pants on the same way they do and I am in no way intimidated by them. I'll tell like it is. If I don' write tomorrow night, I will on Thursday to let you guys know. Thanks for everything. Terri G. Yahoo! Mail - Helps protect you from nasty viruses. ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
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