Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 Tony please don't be sorry , we are all here to support each other no matter where we are in this dreaded disease. Blessings and hugs and a pain free day jessica Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 Tony please don't be sorry , we are all here to support each other no matter where we are in this dreaded disease. Blessings and hugs and a pain free day jessica Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 Tony, No need to apologize. Yep, lot's of us have gone down that path--so we can totally relate to where you are. It's such a scary thing to start to realize that your livelyhood is being threatened, because your body is giving up doing what it's always done. This is not self-absorbtion, it's reality. To grieve, to be scared, to laugh and cry about all these losses--is so very human. Don't ever feel like you can't talk about these issues-- you, like many others in the group, are just starting down that path-- and hey, some of the stones have already been laid.--or thrown as far as we could throw them. (Or we visualized throwing them. . ) Speak away-- that's what a support group is about. Sometimes, since we are virtually "faceless" it's easier to speak from the heart- because you probably won't see any of us in the grocery store. With compassion, Tracie NS co-owner/moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 Tony, No need to apologize. Yep, lot's of us have gone down that path--so we can totally relate to where you are. It's such a scary thing to start to realize that your livelyhood is being threatened, because your body is giving up doing what it's always done. This is not self-absorbtion, it's reality. To grieve, to be scared, to laugh and cry about all these losses--is so very human. Don't ever feel like you can't talk about these issues-- you, like many others in the group, are just starting down that path-- and hey, some of the stones have already been laid.--or thrown as far as we could throw them. (Or we visualized throwing them. . ) Speak away-- that's what a support group is about. Sometimes, since we are virtually "faceless" it's easier to speak from the heart- because you probably won't see any of us in the grocery store. With compassion, Tracie NS co-owner/moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 Tony, No need to apologize. Yep, lot's of us have gone down that path--so we can totally relate to where you are. It's such a scary thing to start to realize that your livelyhood is being threatened, because your body is giving up doing what it's always done. This is not self-absorbtion, it's reality. To grieve, to be scared, to laugh and cry about all these losses--is so very human. Don't ever feel like you can't talk about these issues-- you, like many others in the group, are just starting down that path-- and hey, some of the stones have already been laid.--or thrown as far as we could throw them. (Or we visualized throwing them. . ) Speak away-- that's what a support group is about. Sometimes, since we are virtually "faceless" it's easier to speak from the heart- because you probably won't see any of us in the grocery store. With compassion, Tracie NS co-owner/moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 Tony, you don't need to apologize. Yeah, some of us have already experienced some of the things you are just now encountering, but we tell you about it hoping to help you through it. That's what this group is for, among other things. At times you may feel all alone, desperate, hopeless, etc. And we want you to write us. If you can see that some of us have already gone through it, and we are still here, and we can still laugh & find joy in life, then you know that there is hope. And it won't be long before you'll read a new member's letter & just have to respond, because you have been where they are. I'm glad that you are having a better day. What kind of carpentry do you do? My brother was a carpenter. He made his living doing renovations, etc. But what he really loved doing was restorations. He worked on several old homes in Indianapolis, repairing banisters, etc. He also helped restore the ceiling of the main library in downtown Indy. It was a spectacular achievement. He built a dining room table for me. I'll take a picture of it some time when it's cleaned off! He designed & built it over 20 years ago. It's oak with birch inlays. The legs are pine. The thing weighs a ton & is solid as a rock. But the legs screw off & then it's easy to move the table. He built it in Indy, we took it to Mississippi, then the Texas Rio Grande Valley, then San , another house in San , back to Indiana, then 2 more moves to where we are now. It's still solid, with a few dings & marker stains. We were supposed to put at least 2 coats of polyurethane on it when we got to Miss., but my husband at the time decided that one was enough. It wasn't. But I don't really mind; I see the reminders of my kids playing at that table, and now my grandkids. Anyway, my brother died in August 2000 after 4 years of battling cancer. He continued to work as a carpenter until 1/2000, when he began having seizures. He was still able to work around his house, cutting wood, etc., until May. He died 2 weeks after my father; he was 55 years old, had 3 daughters & a granddaughter on the way, although he didn't know it. Well, pardon my rambling. I have a lot of respect & affection for carpenters! Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: MY APPOLIGIEDate: Sun, 19 Feb 2006 12:15:57 -0800 (PST) I want to say im sorry to all of you, here I am complaining about not being able to work and where my life is going not concidering that many of you allready have progressed way past where i have thus far, I must have sounded self absorbed and self centered. I am having a good day today(about time) and started thing how i must have sounded. so again I am truly sorry. tony from virginia __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 Tony, you don't need to apologize. Yeah, some of us have already experienced some of the things you are just now encountering, but we tell you about it hoping to help you through it. That's what this group is for, among other things. At times you may feel all alone, desperate, hopeless, etc. And we want you to write us. If you can see that some of us have already gone through it, and we are still here, and we can still laugh & find joy in life, then you know that there is hope. And it won't be long before you'll read a new member's letter & just have to respond, because you have been where they are. I'm glad that you are having a better day. What kind of carpentry do you do? My brother was a carpenter. He made his living doing renovations, etc. But what he really loved doing was restorations. He worked on several old homes in Indianapolis, repairing banisters, etc. He also helped restore the ceiling of the main library in downtown Indy. It was a spectacular achievement. He built a dining room table for me. I'll take a picture of it some time when it's cleaned off! He designed & built it over 20 years ago. It's oak with birch inlays. The legs are pine. The thing weighs a ton & is solid as a rock. But the legs screw off & then it's easy to move the table. He built it in Indy, we took it to Mississippi, then the Texas Rio Grande Valley, then San , another house in San , back to Indiana, then 2 more moves to where we are now. It's still solid, with a few dings & marker stains. We were supposed to put at least 2 coats of polyurethane on it when we got to Miss., but my husband at the time decided that one was enough. It wasn't. But I don't really mind; I see the reminders of my kids playing at that table, and now my grandkids. Anyway, my brother died in August 2000 after 4 years of battling cancer. He continued to work as a carpenter until 1/2000, when he began having seizures. He was still able to work around his house, cutting wood, etc., until May. He died 2 weeks after my father; he was 55 years old, had 3 daughters & a granddaughter on the way, although he didn't know it. Well, pardon my rambling. I have a lot of respect & affection for carpenters! Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: MY APPOLIGIEDate: Sun, 19 Feb 2006 12:15:57 -0800 (PST) I want to say im sorry to all of you, here I am complaining about not being able to work and where my life is going not concidering that many of you allready have progressed way past where i have thus far, I must have sounded self absorbed and self centered. I am having a good day today(about time) and started thing how i must have sounded. so again I am truly sorry. tony from virginia __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 Tony, you don't need to apologize. Yeah, some of us have already experienced some of the things you are just now encountering, but we tell you about it hoping to help you through it. That's what this group is for, among other things. At times you may feel all alone, desperate, hopeless, etc. And we want you to write us. If you can see that some of us have already gone through it, and we are still here, and we can still laugh & find joy in life, then you know that there is hope. And it won't be long before you'll read a new member's letter & just have to respond, because you have been where they are. I'm glad that you are having a better day. What kind of carpentry do you do? My brother was a carpenter. He made his living doing renovations, etc. But what he really loved doing was restorations. He worked on several old homes in Indianapolis, repairing banisters, etc. He also helped restore the ceiling of the main library in downtown Indy. It was a spectacular achievement. He built a dining room table for me. I'll take a picture of it some time when it's cleaned off! He designed & built it over 20 years ago. It's oak with birch inlays. The legs are pine. The thing weighs a ton & is solid as a rock. But the legs screw off & then it's easy to move the table. He built it in Indy, we took it to Mississippi, then the Texas Rio Grande Valley, then San , another house in San , back to Indiana, then 2 more moves to where we are now. It's still solid, with a few dings & marker stains. We were supposed to put at least 2 coats of polyurethane on it when we got to Miss., but my husband at the time decided that one was enough. It wasn't. But I don't really mind; I see the reminders of my kids playing at that table, and now my grandkids. Anyway, my brother died in August 2000 after 4 years of battling cancer. He continued to work as a carpenter until 1/2000, when he began having seizures. He was still able to work around his house, cutting wood, etc., until May. He died 2 weeks after my father; he was 55 years old, had 3 daughters & a granddaughter on the way, although he didn't know it. Well, pardon my rambling. I have a lot of respect & affection for carpenters! Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: MY APPOLIGIEDate: Sun, 19 Feb 2006 12:15:57 -0800 (PST) I want to say im sorry to all of you, here I am complaining about not being able to work and where my life is going not concidering that many of you allready have progressed way past where i have thus far, I must have sounded self absorbed and self centered. I am having a good day today(about time) and started thing how i must have sounded. so again I am truly sorry. tony from virginia __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 Rose, im a framer, all I do is build the frame and let the others to finish it, right now im in the midle of rentavating my own house(thats when i had a exsaserbation of neurosarcoidosis) we are tring to get out of norfolk va. so im fixing it up and selling.going to ny next year. busy right now but will rwrite more later. tony from vaRose wrote: Tony, you don't need to apologize. Yeah, some of us have already experienced some of the things you are just now encountering, but we tell you about it hoping to help you through it. That's what this group is for, among other things. At times you may feel all alone, desperate, hopeless, etc. And we want you to write us. If you can see that some of us have already gone through it, and we are still here, and we can still laugh & find joy in life, then you know that there is hope. And it won't be long before you'll read a new member's letter & just have to respond, because you have been where they are. I'm glad that you are having a better day. What kind of carpentry do you do? My brother was a carpenter. He made his living doing renovations, etc. But what he really loved doing was restorations. He worked on several old homes in Indianapolis, repairing banisters, etc. He also helped restore the ceiling of the main library in downtown Indy. It was a spectacular achievement. He built a dining room table for me. I'll take a picture of it some time when it's cleaned off! He designed & built it over 20 years ago. It's oak with birch inlays. The legs are pine. The thing weighs a ton & is solid as a rock. But the legs screw off & then it's easy to move the table. He built it in Indy, we took it to Mississippi, then the Texas Rio Grande Valley, then San , another house in San , back to Indiana, then 2 more moves to where we are now. It's still solid, with a few dings & marker stains. We were supposed to put at least 2 coats of polyurethane on it when we got to Miss., but my husband at the time decided that one was enough. It wasn't. But I don't really mind; I see the reminders of my kids playing at that table, and now my grandkids. Anyway, my brother died in August 2000 after 4 years of battling cancer. He continued to work as a carpenter until 1/2000, when he began having seizures. He was still able to work around his house, cutting wood, etc., until May. He died 2 weeks after my father; he was 55 years old, had 3 daughters & a granddaughter on the way, although he didn't know it. Well, pardon my rambling. I have a lot of respect & affection for carpenters! Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: MY APPOLIGIEDate: Sun, 19 Feb 2006 12:15:57 -0800 (PST) I want to say im sorry to all of you, here I am complaining about not being able to work and where my life is going not concidering that many of you allready have progressed way past where i have thus far, I must have sounded self absorbed and self centered. I am having a good day today(about time) and started thing how i must have sounded. so again I am truly sorry. tony from virginia __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 Rose, im a framer, all I do is build the frame and let the others to finish it, right now im in the midle of rentavating my own house(thats when i had a exsaserbation of neurosarcoidosis) we are tring to get out of norfolk va. so im fixing it up and selling.going to ny next year. busy right now but will rwrite more later. tony from vaRose wrote: Tony, you don't need to apologize. Yeah, some of us have already experienced some of the things you are just now encountering, but we tell you about it hoping to help you through it. That's what this group is for, among other things. At times you may feel all alone, desperate, hopeless, etc. And we want you to write us. If you can see that some of us have already gone through it, and we are still here, and we can still laugh & find joy in life, then you know that there is hope. And it won't be long before you'll read a new member's letter & just have to respond, because you have been where they are. I'm glad that you are having a better day. What kind of carpentry do you do? My brother was a carpenter. He made his living doing renovations, etc. But what he really loved doing was restorations. He worked on several old homes in Indianapolis, repairing banisters, etc. He also helped restore the ceiling of the main library in downtown Indy. It was a spectacular achievement. He built a dining room table for me. I'll take a picture of it some time when it's cleaned off! He designed & built it over 20 years ago. It's oak with birch inlays. The legs are pine. The thing weighs a ton & is solid as a rock. But the legs screw off & then it's easy to move the table. He built it in Indy, we took it to Mississippi, then the Texas Rio Grande Valley, then San , another house in San , back to Indiana, then 2 more moves to where we are now. It's still solid, with a few dings & marker stains. We were supposed to put at least 2 coats of polyurethane on it when we got to Miss., but my husband at the time decided that one was enough. It wasn't. But I don't really mind; I see the reminders of my kids playing at that table, and now my grandkids. Anyway, my brother died in August 2000 after 4 years of battling cancer. He continued to work as a carpenter until 1/2000, when he began having seizures. He was still able to work around his house, cutting wood, etc., until May. He died 2 weeks after my father; he was 55 years old, had 3 daughters & a granddaughter on the way, although he didn't know it. Well, pardon my rambling. I have a lot of respect & affection for carpenters! Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: MY APPOLIGIEDate: Sun, 19 Feb 2006 12:15:57 -0800 (PST) I want to say im sorry to all of you, here I am complaining about not being able to work and where my life is going not concidering that many of you allready have progressed way past where i have thus far, I must have sounded self absorbed and self centered. I am having a good day today(about time) and started thing how i must have sounded. so again I am truly sorry. tony from virginia __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 Rose, im a framer, all I do is build the frame and let the others to finish it, right now im in the midle of rentavating my own house(thats when i had a exsaserbation of neurosarcoidosis) we are tring to get out of norfolk va. so im fixing it up and selling.going to ny next year. busy right now but will rwrite more later. tony from vaRose wrote: Tony, you don't need to apologize. Yeah, some of us have already experienced some of the things you are just now encountering, but we tell you about it hoping to help you through it. That's what this group is for, among other things. At times you may feel all alone, desperate, hopeless, etc. And we want you to write us. If you can see that some of us have already gone through it, and we are still here, and we can still laugh & find joy in life, then you know that there is hope. And it won't be long before you'll read a new member's letter & just have to respond, because you have been where they are. I'm glad that you are having a better day. What kind of carpentry do you do? My brother was a carpenter. He made his living doing renovations, etc. But what he really loved doing was restorations. He worked on several old homes in Indianapolis, repairing banisters, etc. He also helped restore the ceiling of the main library in downtown Indy. It was a spectacular achievement. He built a dining room table for me. I'll take a picture of it some time when it's cleaned off! He designed & built it over 20 years ago. It's oak with birch inlays. The legs are pine. The thing weighs a ton & is solid as a rock. But the legs screw off & then it's easy to move the table. He built it in Indy, we took it to Mississippi, then the Texas Rio Grande Valley, then San , another house in San , back to Indiana, then 2 more moves to where we are now. It's still solid, with a few dings & marker stains. We were supposed to put at least 2 coats of polyurethane on it when we got to Miss., but my husband at the time decided that one was enough. It wasn't. But I don't really mind; I see the reminders of my kids playing at that table, and now my grandkids. Anyway, my brother died in August 2000 after 4 years of battling cancer. He continued to work as a carpenter until 1/2000, when he began having seizures. He was still able to work around his house, cutting wood, etc., until May. He died 2 weeks after my father; he was 55 years old, had 3 daughters & a granddaughter on the way, although he didn't know it. Well, pardon my rambling. I have a lot of respect & affection for carpenters! Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: MY APPOLIGIEDate: Sun, 19 Feb 2006 12:15:57 -0800 (PST) I want to say im sorry to all of you, here I am complaining about not being able to work and where my life is going not concidering that many of you allready have progressed way past where i have thus far, I must have sounded self absorbed and self centered. I am having a good day today(about time) and started thing how i must have sounded. so again I am truly sorry. tony from virginia __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 Tony No need to apologize to me! We're here to listen & yes we've been there & maybe we can help or at least make you smile. There's healing in both of those. I had to go on medical leave in November 05 but I have been on several layoffs & replaced by machines 2 times at the same job. That was my lose of idenity. I finally got that job that I thought I would retire from and POOF! some computer genius said we'll let the machines take care of themselves we don't need humans. LOL I just watched Terminator 3 The Rise of the Machines. Oops now I'm rambling but I tend to do that even without the steroids. Hang in there! grannylunatic@... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 Rose What beautiful memories in your table. I lost most everything when I was in a fire in 1989 but most of my pictures survived. I'm greatful for that but my daughters baby book and mementos from her childhood were lost. Fortunately I have most of my long term memory! grannylunatic@... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 Rose What beautiful memories in your table. I lost most everything when I was in a fire in 1989 but most of my pictures survived. I'm greatful for that but my daughters baby book and mementos from her childhood were lost. Fortunately I have most of my long term memory! grannylunatic@... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 , I have never experienced a home fire. It must be one of life's most devastating events. I do worry about my pictures. I have negatives from before I got a digital camera, but they are sitting right here in the house! I used to keep them at work, until I quit working. Some of my digital photos are copied on disks, which are sitting right here next to the computer! And I haven't gotten around to copying the last couple of years' worth. I have a fire & water-proof safe for important papers, but it won't hold all the photos, etc. I guess I need to get a safety deposit box or something. Add that to my lists. Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: RE: MY APPOLIGIEDate: Sun, 19 Feb 2006 21:10:32 -0800 (PST)RoseWhat beautiful memories in your table. I lost mosteverything when I was in a fire in 1989 but most of mypictures survived. I'm greatful for that but mydaughters baby book and mementos from her childhoodwere lost. Fortunately I have most of my long term memory!grannylunatic@...__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 , I have never experienced a home fire. It must be one of life's most devastating events. I do worry about my pictures. I have negatives from before I got a digital camera, but they are sitting right here in the house! I used to keep them at work, until I quit working. Some of my digital photos are copied on disks, which are sitting right here next to the computer! And I haven't gotten around to copying the last couple of years' worth. I have a fire & water-proof safe for important papers, but it won't hold all the photos, etc. I guess I need to get a safety deposit box or something. Add that to my lists. Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: RE: MY APPOLIGIEDate: Sun, 19 Feb 2006 21:10:32 -0800 (PST)RoseWhat beautiful memories in your table. I lost mosteverything when I was in a fire in 1989 but most of mypictures survived. I'm greatful for that but mydaughters baby book and mementos from her childhoodwere lost. Fortunately I have most of my long term memory!grannylunatic@...__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 ADD BATTERIES FOR YOUR SMOKE DETECTORS TO THE LIST! We lived in a rented house & I knew there were smoke detectors on the wall but we'd only been there a few months & I didn't think to check to see if the batteries were any good. Most stuff can be replaced & we have our memories but I lost my husband of 19 years in that fire. I'm just thankful we didn't have our granddaughter at the house for the weekend. grannylunatic@... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 ADD BATTERIES FOR YOUR SMOKE DETECTORS TO THE LIST! We lived in a rented house & I knew there were smoke detectors on the wall but we'd only been there a few months & I didn't think to check to see if the batteries were any good. Most stuff can be replaced & we have our memories but I lost my husband of 19 years in that fire. I'm just thankful we didn't have our granddaughter at the house for the weekend. grannylunatic@... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 ADD BATTERIES FOR YOUR SMOKE DETECTORS TO THE LIST! We lived in a rented house & I knew there were smoke detectors on the wall but we'd only been there a few months & I didn't think to check to see if the batteries were any good. Most stuff can be replaced & we have our memories but I lost my husband of 19 years in that fire. I'm just thankful we didn't have our granddaughter at the house for the weekend. grannylunatic@... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 , I am so sorry for your loss. Thanks for the reminder about the smoke detectors. Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: RE: MY APPOLIGIEDate: Sun, 19 Feb 2006 21:51:55 -0800 (PST)ADD BATTERIES FOR YOUR SMOKE DETECTORS TO THE LIST! Welived in a rented house & I knew there were smokedetectors on the wall but we'd only been there a fewmonths & I didn't think to check to see if thebatteries were any good. Most stuff can be replaced & we have our memories but I lost my husband of 19 yearsin that fire. I'm just thankful we didn't have ourgranddaughter at the house for the weekend.grannylunatic@...__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 Tony, Sound off when ever you need to. this is one of the reasons for this site. Heck, if I had to judge your letter,,,I would have to give it a 5.4 out of a possible 10. LOL. Just ask Rose, we don't call her Ramblin Rose for nothing! LMBO. Please keep yourself strong and use whatever higher power you use to keep going, and if it helps to go off on here,,,then do it. I am so glad that you are having good days now. Take advantage of thoes good days. Lots of Love Lynneanthony duquette wrote: I want to say im sorry to all of you, here I am complaining about not being able to work and where my life is going not concidering that many of you allready have progressed way past where i have thus far, I must have sounded self absorbed and self centered. I am having a good day today(about time) and started thing how i must have sounded. so again I am truly sorry. tony from virginia __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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