Re: new to this scary world

[Guest guest]

Hello , sorry to read about your bout with neuro/sarc, but welcome aboard. You've found the appropriate community. I suspect some of the other members mentioned that we are all in the exact same condition, if they haven't said it yet -- they will. I'm still learning about this dreaded monster and its a year and a half since my affliction. Each day is a challenge. I'm hopeful tho that my doctors will help me control this disease where its manageable and my pain is minimal. It looks like we'e headed in that direction. Ciao, Marge. anthony duquette wrote: Well hello to all, let me rant for a while and tell you a little about myself, I am a 35 yo male, married ,two wonderful kids9 and 7. i had been having severe right arm pain for some time and numbness in both arms and general feeling of crap tired all the time and night sweets that would dehydrate me. at the time they did a mri and found severl leasions on my brain, (to me that was quite scary) I was treated with high doeses of stearoids and all seemed well that is intil recently, i have beeenfeeling like crap again my whole personality changed and left eye intermittent blindness and some mild halosanations (sorry for the spelling) and once again an MRI was performed and guess what, oh yes more leasions and a diagnosses of neurosarcoidosis. so here i am, looking for some other peoples stories and maybe a few friends that know what im dealing with (sorry dont mean to bring anyone

down) oh and by the way im anthony and i live in norfolk va. love to hear from 1 or all of you, have a good night and thanks for listining..ttfn Yahoo! MailUse Photomail to share photos without annoying attachments.

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