Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 I have had iritis for over six months. I have used drops and had injections of kenlog but it keeps persisting. Has anyone had this happen. I am now using dialating drops for the discomfort in my right eye. FYI Saroid stated in my lungs 10 years ago. I have calcifation in my speen and in my bones of my right hip and Lord (ONLY HE KNOWS BECAUSE THE DOCTORS SURE AREN'T LOOKING!) knows where else. I have NS symptoms but no one wants to treat them. I think I replied to this before--but started with bilateral iritis and pulm sarc 15 yrs ago. It's not unusual for sarc to hit the eyes. Hopefully your ophthalmologist has you on both Pred Forte drops up to every 4 hrs during extreme flair, and Homatropine drops to keep your eyes dilated. This is very important to keep from forming adhesions where the pupil adheres to the iris. You have to wean off the drops--if you can come off them-- it truly needs to be totally cleared up before you stop the drops. The reason it's so critical is that the iris (and the uveal tract--uveitis) are the pumping mechanism that controls the intraocular pressure in your eyes. If that pressure goes up--you end up with acute glaucoma and can lose your vision permanently--and quickly. I'm sure you're very light sensitive--so protect your eyes and be sure to wear your sunglasses. I do hope you're seeing an EYE MD--OPHTHALMOLOGIST and not an OD---Optometrist. This is extremely important with the seriousness of our eyes and how the sarc hits them. If you're MD isn't having you checked weekly, or bi-weekly-- then I'd find one that will monitor this closely. It's nothing to mess with. I know some MD's don't like the patient to use Homatropine--as it can make your heart race--but you must keep your eyes dilated. As far as the spinal stenosis--and hips, etc-- most of us do have the sarcoid induced arthritis-- and are on anti-inflamatories and other immune suppresants. With multisystem disease--prednisone is rarely effective--at least not long term. It generally takes a combination of antiinflamatories, DMARDS and BRMS-- to get this under control. Go to our ARCHIVES--- You'll see many posts that I've done about the eyes, and medications. The address is at the bottom of this and every email that goes out-- so scan down the page--and you'll see the address for the LINKS and ARCHIVES. Hope this helps, Tracie NS Co-owner/moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 I have had iritis for over six months. I have used drops and had injections of kenlog but it keeps persisting. Has anyone had this happen. I am now using dialating drops for the discomfort in my right eye. FYI Saroid stated in my lungs 10 years ago. I have calcifation in my speen and in my bones of my right hip and Lord (ONLY HE KNOWS BECAUSE THE DOCTORS SURE AREN'T LOOKING!) knows where else. I have NS symptoms but no one wants to treat them. I think I replied to this before--but started with bilateral iritis and pulm sarc 15 yrs ago. It's not unusual for sarc to hit the eyes. Hopefully your ophthalmologist has you on both Pred Forte drops up to every 4 hrs during extreme flair, and Homatropine drops to keep your eyes dilated. This is very important to keep from forming adhesions where the pupil adheres to the iris. You have to wean off the drops--if you can come off them-- it truly needs to be totally cleared up before you stop the drops. The reason it's so critical is that the iris (and the uveal tract--uveitis) are the pumping mechanism that controls the intraocular pressure in your eyes. If that pressure goes up--you end up with acute glaucoma and can lose your vision permanently--and quickly. I'm sure you're very light sensitive--so protect your eyes and be sure to wear your sunglasses. I do hope you're seeing an EYE MD--OPHTHALMOLOGIST and not an OD---Optometrist. This is extremely important with the seriousness of our eyes and how the sarc hits them. If you're MD isn't having you checked weekly, or bi-weekly-- then I'd find one that will monitor this closely. It's nothing to mess with. I know some MD's don't like the patient to use Homatropine--as it can make your heart race--but you must keep your eyes dilated. As far as the spinal stenosis--and hips, etc-- most of us do have the sarcoid induced arthritis-- and are on anti-inflamatories and other immune suppresants. With multisystem disease--prednisone is rarely effective--at least not long term. It generally takes a combination of antiinflamatories, DMARDS and BRMS-- to get this under control. Go to our ARCHIVES--- You'll see many posts that I've done about the eyes, and medications. The address is at the bottom of this and every email that goes out-- so scan down the page--and you'll see the address for the LINKS and ARCHIVES. Hope this helps, Tracie NS Co-owner/moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 I have had iritis for over six months. I have used drops and had injections of kenlog but it keeps persisting. Has anyone had this happen. I am now using dialating drops for the discomfort in my right eye. FYI Saroid stated in my lungs 10 years ago. I have calcifation in my speen and in my bones of my right hip and Lord (ONLY HE KNOWS BECAUSE THE DOCTORS SURE AREN'T LOOKING!) knows where else. I have NS symptoms but no one wants to treat them. I think I replied to this before--but started with bilateral iritis and pulm sarc 15 yrs ago. It's not unusual for sarc to hit the eyes. Hopefully your ophthalmologist has you on both Pred Forte drops up to every 4 hrs during extreme flair, and Homatropine drops to keep your eyes dilated. This is very important to keep from forming adhesions where the pupil adheres to the iris. You have to wean off the drops--if you can come off them-- it truly needs to be totally cleared up before you stop the drops. The reason it's so critical is that the iris (and the uveal tract--uveitis) are the pumping mechanism that controls the intraocular pressure in your eyes. If that pressure goes up--you end up with acute glaucoma and can lose your vision permanently--and quickly. I'm sure you're very light sensitive--so protect your eyes and be sure to wear your sunglasses. I do hope you're seeing an EYE MD--OPHTHALMOLOGIST and not an OD---Optometrist. This is extremely important with the seriousness of our eyes and how the sarc hits them. If you're MD isn't having you checked weekly, or bi-weekly-- then I'd find one that will monitor this closely. It's nothing to mess with. I know some MD's don't like the patient to use Homatropine--as it can make your heart race--but you must keep your eyes dilated. As far as the spinal stenosis--and hips, etc-- most of us do have the sarcoid induced arthritis-- and are on anti-inflamatories and other immune suppresants. With multisystem disease--prednisone is rarely effective--at least not long term. It generally takes a combination of antiinflamatories, DMARDS and BRMS-- to get this under control. Go to our ARCHIVES--- You'll see many posts that I've done about the eyes, and medications. The address is at the bottom of this and every email that goes out-- so scan down the page--and you'll see the address for the LINKS and ARCHIVES. Hope this helps, Tracie NS Co-owner/moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 Tracie...thank you for your information. I am already doing everything you have listed. I have great confidence in my eye doctor..I seem him weekly or at most every two weeks and he gets me in immediately if I need to. He checks my pressure on each visit. I can't take antiinflammatories because of another disease I have so I do injection of methotrexate every week. The rheumatologist is considering Remacaid. I think the iritis is finally bring him around to consider systemic treatment. I can deal with all the **** this disease has been dishing out but my eyesight is very frighting. I guess I just wanted confirmation we are on the right track. Thanks Ruth > > In a message dated 3/8/06 2:37:22 PM Pacific Standard Time, > olehomepla@... writes: > > > > I have had iritis for over six months. I have used drops and had > > injections of kenlog but it keeps persisting. Has anyone had this > > happen. I am now using dialating drops for the discomfort in my right > > eye. FYI Saroid stated in my lungs 10 years ago. I have calcifation > > in my speen and in my bones of my right hip and Lord (ONLY HE KNOWS > > BECAUSE THE DOCTORS SURE AREN'T LOOKING!) knows where else. I have NS > > symptoms but no one wants to treat them. > > > > I think I replied to this before--but started with bilateral iritis and pulm > sarc 15 yrs ago. > It's not unusual for sarc to hit the eyes. > Hopefully your ophthalmologist has you on both Pred Forte drops up to every 4 > hrs during extreme flair, and Homatropine drops to keep your eyes dilated. > This is very important to keep from forming adhesions where the pupil adheres to > the iris. > You have to wean off the drops--if you can come off them-- it truly needs to > be totally cleared up before you stop the drops. > The reason it's so critical is that the iris (and the uveal tract-- uveitis) > are the pumping mechanism that controls the intraocular pressure in your eyes. > If that pressure goes up--you end up with acute glaucoma and can lose your > vision permanently--and quickly. > I'm sure you're very light sensitive--so protect your eyes and be sure to > wear your sunglasses. > I do hope you're seeing an EYE MD--OPHTHALMOLOGIST and not an > OD---Optometrist. This is extremely important with the seriousness of our eyes and how the > sarc hits them. > If you're MD isn't having you checked weekly, or bi-weekly-- then I'd find > one that will monitor this closely. It's nothing to mess with. I know some > MD's don't like the patient to use Homatropine--as it can make your heart > race--but you must keep your eyes dilated. > As far as the spinal stenosis--and hips, etc-- most of us do have the sarcoid > induced arthritis-- and are on anti-inflamatories and other immune > suppresants. > With multisystem disease--prednisone is rarely effective--at least not long > term. It generally takes a combination of antiinflamatories, DMARDS and BRMS-- > to get this under control. > Go to our ARCHIVES--- You'll see many posts that I've done about the eyes, > and medications. The address is at the bottom of this and every email that goes > out-- so scan down the page--and you'll see the address for the LINKS and > ARCHIVES. > > Hope this helps, > Tracie > NS Co-owner/moderator > Quote Link to comment Share on other sites More sharing options...
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