Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 Tracie...thank you for your information. I am already doing everything you have listed. I have great confidence in my eye doctor..I seem him weekly or at most every two weeks and he gets me in immediately if I need to. He checks my pressure on each visit. I can't take antiinflammatories because of another disease I have so I do injection of methotrexate every week. The rheumatologist is considering Remacaid. I think the iritis is finally bring him around to consider systemic treatment. I can deal with all the **** this disease has been dishing out but my eyesight is very frighting. I guess I just wanted confirmation we are on the right track. Thanks Ruth > > In a message dated 3/8/06 2:37:22 PM Pacific Standard Time, > olehomepla@... writes: > > > > I have had iritis for over six months. I have used drops and had > > injections of kenlog but it keeps persisting. Has anyone had this > > happen. I am now using dialating drops for the discomfort in my right > > eye. FYI Saroid stated in my lungs 10 years ago. I have calcifation > > in my speen and in my bones of my right hip and Lord (ONLY HE KNOWS > > BECAUSE THE DOCTORS SURE AREN'T LOOKING!) knows where else. I have NS > > symptoms but no one wants to treat them. > > > > I think I replied to this before--but started with bilateral iritis and pulm > sarc 15 yrs ago. > It's not unusual for sarc to hit the eyes. > Hopefully your ophthalmologist has you on both Pred Forte drops up to every 4 > hrs during extreme flair, and Homatropine drops to keep your eyes dilated. > This is very important to keep from forming adhesions where the pupil adheres to > the iris. > You have to wean off the drops--if you can come off them-- it truly needs to > be totally cleared up before you stop the drops. > The reason it's so critical is that the iris (and the uveal tract-- uveitis) > are the pumping mechanism that controls the intraocular pressure in your eyes. > If that pressure goes up--you end up with acute glaucoma and can lose your > vision permanently--and quickly. > I'm sure you're very light sensitive--so protect your eyes and be sure to > wear your sunglasses. > I do hope you're seeing an EYE MD--OPHTHALMOLOGIST and not an > OD---Optometrist. This is extremely important with the seriousness of our eyes and how the > sarc hits them. > If you're MD isn't having you checked weekly, or bi-weekly-- then I'd find > one that will monitor this closely. It's nothing to mess with. I know some > MD's don't like the patient to use Homatropine--as it can make your heart > race--but you must keep your eyes dilated. > As far as the spinal stenosis--and hips, etc-- most of us do have the sarcoid > induced arthritis-- and are on anti-inflamatories and other immune > suppresants. > With multisystem disease--prednisone is rarely effective--at least not long > term. It generally takes a combination of antiinflamatories, DMARDS and BRMS-- > to get this under control. > Go to our ARCHIVES--- You'll see many posts that I've done about the eyes, > and medications. The address is at the bottom of this and every email that goes > out-- so scan down the page--and you'll see the address for the LINKS and > ARCHIVES. > > Hope this helps, > Tracie > NS Co-owner/moderator > Quote Link to comment Share on other sites More sharing options...
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