RE: Good Doctor in MN? I am desperate!

[Guest guest]

Kim, I'm afraid I don't know anybody in Minnesota. Hopefully someone else will have some suggestions. One thing to consider is an internist/internal medicine specialist. They do primary care. I switched from a family medicine clinic because the only provider there that I really trusted was the nurse-practitioner, and I couldn't always get an appt with her. The first internal med guy I tried was a dud. He was knowledgeable enough, but no personality, no sense of humor, his office staff & nurses were on the rude side. I bombarded my neuro with guilt trips and pressure until he personally called the doctor that I really wanted & convinced him to take me, even though he wasn't taking any new patients. So far I've been happy with him & his staff. Good luck!

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Good Doctor in MN? I am desperate!Date: Wed, 10 May 2006 00:50:29 -0000Hi everyone, I hope this email finds everyone in good health. As some of you know, I was only recently diagnosed with Sarc, neurosarc diagnosis pending. Being just recently diagnosed, I have been very dependent on my doctors for information and treatments. However, I now realize, I cannot depend on the doctors for information, as I have found more information from this group than any doctor I have seen. I have been "abandoned" by every doctor I have seen thus far. I don't even have a GP. Finally, I found a Pulmonary doctor who seemed to be interested in helping me, and after having to fill out FMLA info and doctors notes for my absences from work, her nurse called today and suggested I seek the care of a GP because this was not the "job" of pulmonary specialists. Well... that's fine, except, 2 of 2 GPs have turned me away too. I am SOOO frustrated. I am sure many of you know this feeling. I thought I was lucky to live only an hour away from the Mayo clinic, but go figure, my insurance won't cover it. If anyone knows of a good GP in MN, I will drive where ever I need to in MN to find a good one. Thank you for taking the time to read my "vent" session here, and in advance for any doctors you may know about in MN. Kim ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Thanks Rose. I appreciate you taking the time to email me. I am starting to feel this is like a match.com kind of thing... only with doctors and patients. They have to have the knowledge, but personality and family (being the nurses) are also very important factors. How absurd that we should pay so much money to find a doctor to take on our case though. I'll keep trying. Someone, somewhere must have at least enough curiosity to take me on... :)Rose wrote: Kim, I'm afraid I don't know anybody in Minnesota. Hopefully someone else will have some suggestions. One thing to consider is an internist/internal medicine specialist. They do primary care. I switched from a family medicine clinic

because the only provider there that I really trusted was the nurse-practitioner, and I couldn't always get an appt with her. The first internal med guy I tried was a dud. He was knowledgeable enough, but no personality, no sense of humor, his office staff & nurses were on the rude side. I bombarded my neuro with guilt trips and pressure until he personally called the doctor that I really wanted & convinced him to take me, even though he wasn't taking any new patients. So far I've been happy with him & his staff. Good luck! Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Good Doctor in MN? I am desperate!Date: Wed, 10 May 2006 00:50:29 -0000Hi everyone, I hope this email finds everyone in good health. As some of you know, I was only recently diagnosed with Sarc, neurosarc diagnosis pending. Being just recently diagnosed, I have been very dependent on my doctors for information and treatments. However, I now realize, I cannot depend on the doctors for information, as I have found more information from this group than any doctor I have seen. I have been "abandoned" by every doctor I have seen thus far. I don't even have a GP.

Finally, I found a Pulmonary doctor who seemed to be interested in helping me, and after having to fill out FMLA info and doctors notes for my absences from work, her nurse called today and suggested I seek the care of a GP because this was not the "job" of pulmonary specialists. Well... that's fine, except, 2 of 2 GPs have turned me away too. I am SOOO frustrated. I am sure many of you know this feeling. I thought I was lucky to live only an hour away from the Mayo clinic, but go figure, my insurance won't cover it. If anyone knows of a good GP in MN, I will drive where ever I need to in MN to find a good one. Thank you for taking the time to read my "vent" session here, and in advance for any doctors you may know about in MN. Kim ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for

now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Thanks Rose. I appreciate you taking the time to email me. I am starting to feel this is like a match.com kind of thing... only with doctors and patients. They have to have the knowledge, but personality and family (being the nurses) are also very important factors. How absurd that we should pay so much money to find a doctor to take on our case though. I'll keep trying. Someone, somewhere must have at least enough curiosity to take me on... :)Rose wrote: Kim, I'm afraid I don't know anybody in Minnesota. Hopefully someone else will have some suggestions. One thing to consider is an internist/internal medicine specialist. They do primary care. I switched from a family medicine clinic

because the only provider there that I really trusted was the nurse-practitioner, and I couldn't always get an appt with her. The first internal med guy I tried was a dud. He was knowledgeable enough, but no personality, no sense of humor, his office staff & nurses were on the rude side. I bombarded my neuro with guilt trips and pressure until he personally called the doctor that I really wanted & convinced him to take me, even though he wasn't taking any new patients. So far I've been happy with him & his staff. Good luck! Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Good Doctor in MN? I am desperate!Date: Wed, 10 May 2006 00:50:29 -0000Hi everyone, I hope this email finds everyone in good health. As some of you know, I was only recently diagnosed with Sarc, neurosarc diagnosis pending. Being just recently diagnosed, I have been very dependent on my doctors for information and treatments. However, I now realize, I cannot depend on the doctors for information, as I have found more information from this group than any doctor I have seen. I have been "abandoned" by every doctor I have seen thus far. I don't even have a GP.

Finally, I found a Pulmonary doctor who seemed to be interested in helping me, and after having to fill out FMLA info and doctors notes for my absences from work, her nurse called today and suggested I seek the care of a GP because this was not the "job" of pulmonary specialists. Well... that's fine, except, 2 of 2 GPs have turned me away too. I am SOOO frustrated. I am sure many of you know this feeling. I thought I was lucky to live only an hour away from the Mayo clinic, but go figure, my insurance won't cover it. If anyone knows of a good GP in MN, I will drive where ever I need to in MN to find a good one. Thank you for taking the time to read my "vent" session here, and in advance for any doctors you may know about in MN. Kim ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for

now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Thanks Rose. I appreciate you taking the time to email me. I am starting to feel this is like a match.com kind of thing... only with doctors and patients. They have to have the knowledge, but personality and family (being the nurses) are also very important factors. How absurd that we should pay so much money to find a doctor to take on our case though. I'll keep trying. Someone, somewhere must have at least enough curiosity to take me on... :)Rose wrote: Kim, I'm afraid I don't know anybody in Minnesota. Hopefully someone else will have some suggestions. One thing to consider is an internist/internal medicine specialist. They do primary care. I switched from a family medicine clinic

because the only provider there that I really trusted was the nurse-practitioner, and I couldn't always get an appt with her. The first internal med guy I tried was a dud. He was knowledgeable enough, but no personality, no sense of humor, his office staff & nurses were on the rude side. I bombarded my neuro with guilt trips and pressure until he personally called the doctor that I really wanted & convinced him to take me, even though he wasn't taking any new patients. So far I've been happy with him & his staff. Good luck! Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Good Doctor in MN? I am desperate!Date: Wed, 10 May 2006 00:50:29 -0000Hi everyone, I hope this email finds everyone in good health. As some of you know, I was only recently diagnosed with Sarc, neurosarc diagnosis pending. Being just recently diagnosed, I have been very dependent on my doctors for information and treatments. However, I now realize, I cannot depend on the doctors for information, as I have found more information from this group than any doctor I have seen. I have been "abandoned" by every doctor I have seen thus far. I don't even have a GP.

Finally, I found a Pulmonary doctor who seemed to be interested in helping me, and after having to fill out FMLA info and doctors notes for my absences from work, her nurse called today and suggested I seek the care of a GP because this was not the "job" of pulmonary specialists. Well... that's fine, except, 2 of 2 GPs have turned me away too. I am SOOO frustrated. I am sure many of you know this feeling. I thought I was lucky to live only an hour away from the Mayo clinic, but go figure, my insurance won't cover it. If anyone knows of a good GP in MN, I will drive where ever I need to in MN to find a good one. Thank you for taking the time to read my "vent" session here, and in advance for any doctors you may know about in MN. Kim ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for

now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Hi Kim, Unfortunately, I am from New England so I don't know of any doctors in your area, but I can sympathize with doctors that can't and won't help you. I have been through about twelve doctors in my time and its been a tough journey. You just have to keep plodding along until you find the right one to help you. I finally found a PCP who is very good and understanding and has referred me to some good specialists who have helped me as well. I wish you good luck and hope you find the same in the future. Hang in there, Hugs, Debbiekimpellett wrote: Hi everyone, I hope this email finds everyone in good health. As some of you know, I was only recently diagnosed with Sarc, neurosarc diagnosis pending. Being

just recently diagnosed, I have been very dependent on my doctors for information and treatments. However, I now realize, I cannot depend on the doctors for information, as I have found more information from this group than any doctor I have seen. I have been "abandoned" by every doctor I have seen thus far. I don't even have a GP. Finally, I found a Pulmonary doctor who seemed to be interested in helping me, and after having to fill out FMLA info and doctors notes for my absences from work, her nurse called today and suggested I seek the care of a GP because this was not the "job" of pulmonary specialists. Well... that's fine, except, 2 of 2 GPs have turned me away too. I am SOOO frustrated. I am sure many of you know this feeling. I thought I was lucky to live only an hour away from the Mayo clinic, but go figure, my insurance won't cover it. If anyone knows of a good GP in MN, I will drive where

ever I need to in MN to find a good one. Thank you for taking the time to read my "vent" session here, and in advance for any doctors you may know about in MN. Kim

[Guest guest]

Kim, I can deal with some rudeness, but these people were snotty to me about stuff that was part of my illness! They threatened to drop me after I was late to 3 appts. I tried to explain how difficult it is for me to remember the appt to start with, get ready on time, get a ride on time. During this time I was not driving & had to depend on other transportation. When I go to an appt, I have my tote bag with my little fan (very necessary), my water bottle, my camp stool to elevate my feet, usually a pillow for my back, and something to read. So when it's my turn it takes a little while to gather everything up. The main nurse would stand there sighing, never offer to help. Most of my other docs, dentist, etc. call me the day before, even the morning of the appt. And they are very nice about it. The other thing this nurse did was act very annoyed that I didn't hear my name called. She knew I was hard of hearing! Instead of coming over to me, she just stood at the door, regally, waiting until I would look up in confusion & ask if she had called my name. Now I know anybody can have an off day, but this was over 2 years. And the doctor seemed to be annoyed about everything I reported. Lots of big sighs. I'm glad I found another PCP.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: RE: Good Doctor in MN? I am desperate!Date: Tue, 9 May 2006 22:40:30 -0700 (PDT)

Thanks Rose. I appreciate you taking the time to email me. I am starting to feel this is like a match.com kind of thing... only with doctors and patients. They have to have the knowledge, but personality and family (being the nurses) are also very important factors. How absurd that we should pay so much money to find a doctor to take on our case though.

I'll keep trying. Someone, somewhere must have at least enough curiosity to take me on... :)Rose wrote:

Kim, I'm afraid I don't know anybody in Minnesota. Hopefully someone else will have some suggestions. One thing to consider is an internist/internal medicine specialist. They do primary care. I switched from a family medicine clinic because the only provider there that I really trusted was the nurse-practitioner, and I couldn't always get an appt with her. The first internal med guy I tried was a dud. He was knowledgeable enough, but no personality, no sense of humor, his office staff & nurses were on the rude side. I bombarded my neuro with guilt trips and pressure until he personally called the doctor that I really wanted & convinced him to take me, even though he wasn't taking any new patients. So far I've been happy with him & his staff. Good luck!

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Good Doctor in MN? I am desperate!Date: Wed, 10 May 2006 00:50:29 -0000Hi everyone, I hope this email finds everyone in good health. As some of you know, I was only recently diagnosed with Sarc, neurosarc diagnosis pending. Being just recently diagnosed, I have been very dependent on my doctors for information and treatments. However, I now realize, I cannot depend on the doctors for information, as I have found more information from this group than any doctor I have seen. I have been "abandoned" by every doctor I have seen thus far. I don't even have a GP. Finally, I found a Pulmonary doctor who seemed to be interested in helping me, and after having to fill out FMLA info and doctors notes for my absences from work, her nurse called today and suggested I seek the care of a GP because this was not the "job" of pulmonary specialists. Well... that's fine, except, 2 of 2 GPs have turned me away too. I am SOOO frustrated. I am sure many of you know this feeling. I thought I was lucky to live only an hour away from the Mayo clinic, but go figure, my insurance won't cover it. If anyone knows of a good GP in MN, I will drive where ever I need to in MN to find a good one. Thank you for taking the time to read my "vent" session here, and in advance for any doctors you may know about in MN. Kim ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Kim, I can deal with some rudeness, but these people were snotty to me about stuff that was part of my illness! They threatened to drop me after I was late to 3 appts. I tried to explain how difficult it is for me to remember the appt to start with, get ready on time, get a ride on time. During this time I was not driving & had to depend on other transportation. When I go to an appt, I have my tote bag with my little fan (very necessary), my water bottle, my camp stool to elevate my feet, usually a pillow for my back, and something to read. So when it's my turn it takes a little while to gather everything up. The main nurse would stand there sighing, never offer to help. Most of my other docs, dentist, etc. call me the day before, even the morning of the appt. And they are very nice about it. The other thing this nurse did was act very annoyed that I didn't hear my name called. She knew I was hard of hearing! Instead of coming over to me, she just stood at the door, regally, waiting until I would look up in confusion & ask if she had called my name. Now I know anybody can have an off day, but this was over 2 years. And the doctor seemed to be annoyed about everything I reported. Lots of big sighs. I'm glad I found another PCP.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: RE: Good Doctor in MN? I am desperate!Date: Tue, 9 May 2006 22:40:30 -0700 (PDT)

Thanks Rose. I appreciate you taking the time to email me. I am starting to feel this is like a match.com kind of thing... only with doctors and patients. They have to have the knowledge, but personality and family (being the nurses) are also very important factors. How absurd that we should pay so much money to find a doctor to take on our case though.

I'll keep trying. Someone, somewhere must have at least enough curiosity to take me on... :)Rose wrote:

Kim, I'm afraid I don't know anybody in Minnesota. Hopefully someone else will have some suggestions. One thing to consider is an internist/internal medicine specialist. They do primary care. I switched from a family medicine clinic because the only provider there that I really trusted was the nurse-practitioner, and I couldn't always get an appt with her. The first internal med guy I tried was a dud. He was knowledgeable enough, but no personality, no sense of humor, his office staff & nurses were on the rude side. I bombarded my neuro with guilt trips and pressure until he personally called the doctor that I really wanted & convinced him to take me, even though he wasn't taking any new patients. So far I've been happy with him & his staff. Good luck!

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Good Doctor in MN? I am desperate!Date: Wed, 10 May 2006 00:50:29 -0000Hi everyone, I hope this email finds everyone in good health. As some of you know, I was only recently diagnosed with Sarc, neurosarc diagnosis pending. Being just recently diagnosed, I have been very dependent on my doctors for information and treatments. However, I now realize, I cannot depend on the doctors for information, as I have found more information from this group than any doctor I have seen. I have been "abandoned" by every doctor I have seen thus far. I don't even have a GP. Finally, I found a Pulmonary doctor who seemed to be interested in helping me, and after having to fill out FMLA info and doctors notes for my absences from work, her nurse called today and suggested I seek the care of a GP because this was not the "job" of pulmonary specialists. Well... that's fine, except, 2 of 2 GPs have turned me away too. I am SOOO frustrated. I am sure many of you know this feeling. I thought I was lucky to live only an hour away from the Mayo clinic, but go figure, my insurance won't cover it. If anyone knows of a good GP in MN, I will drive where ever I need to in MN to find a good one. Thank you for taking the time to read my "vent" session here, and in advance for any doctors you may know about in MN. Kim ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Connie, I love your expression "been there, done that, bought a t-shirt." I hope I can remember it when the occasion arises!

Ramblin' Rose

Moderator Get MSN Messenger with FREE Video Conversation - the next best thing to being there!

[Guest guest]

Hi Debbie, Thank you for your email. I have an appointment on Tuesday with a new doctor at a new clinic. Believe it or not, I picked by name. I liked the name, it was outside the clinic that probably has notes to the effect of "she's crazy" in their files, so I picked it. I'm keeping my fingers crossed!! Thanks again, Kim Debbie wrote: Hi Kim, Unfortunately, I am from New England so I don't know of any doctors in your area, but I can sympathize with doctors that can't and won't help you. I have been through about twelve doctors in my time and its been a tough journey. You just have to keep plodding along until you find the right one to help you. I finally found a

PCP who is very good and understanding and has referred me to some good specialists who have helped me as well. I wish you good luck and hope you find the same in the future. Hang in there, Hugs, Debbiekimpellett wrote: Hi everyone, I hope this email finds everyone in good health. As some of you know, I was only recently diagnosed with Sarc, neurosarc diagnosis pending. Being just recently diagnosed, I have been very dependent on my doctors for information and treatments. However, I now realize, I cannot depend on the doctors for information, as I have found more information from this group than any doctor I have seen. I have been "abandoned" by every doctor I have seen thus far. I don't even have a GP. Finally, I found a Pulmonary doctor

who seemed to be interested in helping me, and after having to fill out FMLA info and doctors notes for my absences from work, her nurse called today and suggested I seek the care of a GP because this was not the "job" of pulmonary specialists. Well... that's fine, except, 2 of 2 GPs have turned me away too. I am SOOO frustrated. I am sure many of you know this feeling. I thought I was lucky to live only an hour away from the Mayo clinic, but go figure, my insurance won't cover it. If anyone knows of a good GP in MN, I will drive where ever I need to in MN to find a good one. Thank you for taking the time to read my "vent" session here, and in advance for any doctors you may know about in MN. Kim

[Guest guest]

Hi Debbie, Thank you for your email. I have an appointment on Tuesday with a new doctor at a new clinic. Believe it or not, I picked by name. I liked the name, it was outside the clinic that probably has notes to the effect of "she's crazy" in their files, so I picked it. I'm keeping my fingers crossed!! Thanks again, Kim Debbie wrote: Hi Kim, Unfortunately, I am from New England so I don't know of any doctors in your area, but I can sympathize with doctors that can't and won't help you. I have been through about twelve doctors in my time and its been a tough journey. You just have to keep plodding along until you find the right one to help you. I finally found a

PCP who is very good and understanding and has referred me to some good specialists who have helped me as well. I wish you good luck and hope you find the same in the future. Hang in there, Hugs, Debbiekimpellett wrote: Hi everyone, I hope this email finds everyone in good health. As some of you know, I was only recently diagnosed with Sarc, neurosarc diagnosis pending. Being just recently diagnosed, I have been very dependent on my doctors for information and treatments. However, I now realize, I cannot depend on the doctors for information, as I have found more information from this group than any doctor I have seen. I have been "abandoned" by every doctor I have seen thus far. I don't even have a GP. Finally, I found a Pulmonary doctor

who seemed to be interested in helping me, and after having to fill out FMLA info and doctors notes for my absences from work, her nurse called today and suggested I seek the care of a GP because this was not the "job" of pulmonary specialists. Well... that's fine, except, 2 of 2 GPs have turned me away too. I am SOOO frustrated. I am sure many of you know this feeling. I thought I was lucky to live only an hour away from the Mayo clinic, but go figure, my insurance won't cover it. If anyone knows of a good GP in MN, I will drive where ever I need to in MN to find a good one. Thank you for taking the time to read my "vent" session here, and in advance for any doctors you may know about in MN. Kim