RE: Good Doctor in MN? I am desperate!

[Guest guest]

Kim, I'm afraid I don't know anybody in Minnesota. Hopefully someone else will have some suggestions. One thing to consider is an internist/internal medicine specialist. They do primary care. I switched from a family medicine clinic because the only provider there that I really trusted was the nurse-practitioner, and I couldn't always get an appt with her. The first internal med guy I tried was a dud. He was knowledgeable enough, but no personality, no sense of humor, his office staff & nurses were on the rude side. I bombarded my neuro with guilt trips and pressure until he personally called the doctor that I really wanted & convinced him to take me, even though he wasn't taking any new patients. So far I've been happy with him & his staff. Good luck!

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Good Doctor in MN? I am desperate!Date: Wed, 10 May 2006 00:50:29 -0000Hi everyone, I hope this email finds everyone in good health. As some of you know, I was only recently diagnosed with Sarc, neurosarc diagnosis pending. Being just recently diagnosed, I have been very dependent on my doctors for information and treatments. However, I now realize, I cannot depend on the doctors for information, as I have found more information from this group than any doctor I have seen. I have been "abandoned" by every doctor I have seen thus far. I don't even have a GP. Finally, I found a Pulmonary doctor who seemed to be interested in helping me, and after having to fill out FMLA info and doctors notes for my absences from work, her nurse called today and suggested I seek the care of a GP because this was not the "job" of pulmonary specialists. Well... that's fine, except, 2 of 2 GPs have turned me away too. I am SOOO frustrated. I am sure many of you know this feeling. I thought I was lucky to live only an hour away from the Mayo clinic, but go figure, my insurance won't cover it. If anyone knows of a good GP in MN, I will drive where ever I need to in MN to find a good one. Thank you for taking the time to read my "vent" session here, and in advance for any doctors you may know about in MN. Kim ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Connie, I love your expression "been there, done that, bought a t-shirt." I hope I can remember it when the occasion arises!

Ramblin' Rose

Moderator Get MSN Messenger with FREE Video Conversation - the next best thing to being there!

[Guest guest]

Hi Debbie, Thank you for your email. I have an appointment on Tuesday with a new doctor at a new clinic. Believe it or not, I picked by name. I liked the name, it was outside the clinic that probably has notes to the effect of "she's crazy" in their files, so I picked it. I'm keeping my fingers crossed!! Thanks again, Kim Debbie wrote: Hi Kim, Unfortunately, I am from New England so I don't know of any doctors in your area, but I can sympathize with doctors that can't and won't help you. I have been through about twelve doctors in my time and its been a tough journey. You just have to keep plodding along until you find the right one to help you. I finally found a

PCP who is very good and understanding and has referred me to some good specialists who have helped me as well. I wish you good luck and hope you find the same in the future. Hang in there, Hugs, Debbiekimpellett wrote: Hi everyone, I hope this email finds everyone in good health. As some of you know, I was only recently diagnosed with Sarc, neurosarc diagnosis pending. Being just recently diagnosed, I have been very dependent on my doctors for information and treatments. However, I now realize, I cannot depend on the doctors for information, as I have found more information from this group than any doctor I have seen. I have been "abandoned" by every doctor I have seen thus far. I don't even have a GP. Finally, I found a Pulmonary doctor

who seemed to be interested in helping me, and after having to fill out FMLA info and doctors notes for my absences from work, her nurse called today and suggested I seek the care of a GP because this was not the "job" of pulmonary specialists. Well... that's fine, except, 2 of 2 GPs have turned me away too. I am SOOO frustrated. I am sure many of you know this feeling. I thought I was lucky to live only an hour away from the Mayo clinic, but go figure, my insurance won't cover it. If anyone knows of a good GP in MN, I will drive where ever I need to in MN to find a good one. Thank you for taking the time to read my "vent" session here, and in advance for any doctors you may know about in MN. Kim

[Guest guest]

Grief reading this made me mad. As bad as I hate to say this, those people better remember.....they aren't dead yet, and I believe how you treat people will come back around and bite you in the back. No one and I mean no one should ever put up with this arrogant, insensitive, treatment. EEEEhhh, don't get me started. I so sorry that you were treated that way Rose///Connie (Kim, don't you dare put up with it//Connie)Rose wrote: Kim, I can deal with some rudeness, but these people were snotty to me about stuff that was part of my illness! They threatened to drop me after I was late to 3 appts. I tried to explain how difficult it is for me to remember the appt to start with, get

ready on time, get a ride on time. During this time I was not driving & had to depend on other transportation. When I go to an appt, I have my tote bag with my little fan (very necessary), my water bottle, my camp stool to elevate my feet, usually a pillow for my back, and something to read. So when it's my turn it takes a little while to gather everything up. The main nurse would stand there sighing, never offer to help. Most of my other docs, dentist, etc. call me the day before, even the morning of the appt. And they are very nice about it. The other thing this nurse did was act very annoyed that I didn't hear my name called. She knew I was hard of hearing! Instead of coming over to me, she just stood at the door, regally, waiting until I would look up in confusion & ask if she had called my name. Now I know anybody can have an off day, but this was over 2 years. And the doctor seemed to be

annoyed about everything I reported. Lots of big sighs. I'm glad I found another PCP. Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: RE: Good Doctor in MN? I am desperate!Date: Tue, 9 May 2006 22:40:30 -0700 (PDT) Thanks Rose. I appreciate you taking the time to

email me. I am starting to feel this is like a match.com kind of thing... only with doctors and patients. They have to have the knowledge, but personality and family (being the nurses) are also very important factors. How absurd that we should pay so much money to find a doctor to take on our case though. I'll keep trying. Someone, somewhere must have at least enough curiosity to take me on... :)Rose wrote: Kim, I'm afraid I don't know anybody in Minnesota. Hopefully someone else will have some suggestions. One thing to consider is an internist/internal medicine specialist. They do primary care. I switched from a family medicine clinic because the only provider there that I really trusted was the

nurse-practitioner, and I couldn't always get an appt with her. The first internal med guy I tried was a dud. He was knowledgeable enough, but no personality, no sense of humor, his office staff & nurses were on the rude side. I bombarded my neuro with guilt trips and pressure until he personally called the doctor that I really wanted & convinced him to take me, even though he wasn't taking any new patients. So far I've been happy with him & his staff. Good luck! Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Good Doctor in MN? I am desperate!Date: Wed, 10 May 2006 00:50:29 -0000Hi everyone, I hope this email finds everyone in good health. As some of you know, I was only recently diagnosed with Sarc, neurosarc diagnosis pending. Being just recently diagnosed, I have been very dependent on my doctors for information and treatments. However, I now realize, I cannot depend on the doctors for information, as I have found more information from this group than any doctor I have seen. I have been "abandoned" by every doctor I have seen thus far. I don't even have a GP. Finally, I found a Pulmonary doctor who seemed to be

interested in helping me, and after having to fill out FMLA info and doctors notes for my absences from work, her nurse called today and suggested I seek the care of a GP because this was not the "job" of pulmonary specialists. Well... that's fine, except, 2 of 2 GPs have turned me away too. I am SOOO frustrated. I am sure many of you know this feeling. I thought I was lucky to live only an hour away from the Mayo clinic, but go figure, my insurance won't cover it. If anyone knows of a good GP in MN, I will drive where ever I need to in MN to find a good one. Thank you for taking the time to read my "vent" session here, and in advance for any doctors you may know about in MN. Kim ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Grief reading this made me mad. As bad as I hate to say this, those people better remember.....they aren't dead yet, and I believe how you treat people will come back around and bite you in the back. No one and I mean no one should ever put up with this arrogant, insensitive, treatment. EEEEhhh, don't get me started. I so sorry that you were treated that way Rose///Connie (Kim, don't you dare put up with it//Connie)Rose wrote: Kim, I can deal with some rudeness, but these people were snotty to me about stuff that was part of my illness! They threatened to drop me after I was late to 3 appts. I tried to explain how difficult it is for me to remember the appt to start with, get

ready on time, get a ride on time. During this time I was not driving & had to depend on other transportation. When I go to an appt, I have my tote bag with my little fan (very necessary), my water bottle, my camp stool to elevate my feet, usually a pillow for my back, and something to read. So when it's my turn it takes a little while to gather everything up. The main nurse would stand there sighing, never offer to help. Most of my other docs, dentist, etc. call me the day before, even the morning of the appt. And they are very nice about it. The other thing this nurse did was act very annoyed that I didn't hear my name called. She knew I was hard of hearing! Instead of coming over to me, she just stood at the door, regally, waiting until I would look up in confusion & ask if she had called my name. Now I know anybody can have an off day, but this was over 2 years. And the doctor seemed to be

annoyed about everything I reported. Lots of big sighs. I'm glad I found another PCP. Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: RE: Good Doctor in MN? I am desperate!Date: Tue, 9 May 2006 22:40:30 -0700 (PDT) Thanks Rose. I appreciate you taking the time to

email me. I am starting to feel this is like a match.com kind of thing... only with doctors and patients. They have to have the knowledge, but personality and family (being the nurses) are also very important factors. How absurd that we should pay so much money to find a doctor to take on our case though. I'll keep trying. Someone, somewhere must have at least enough curiosity to take me on... :)Rose wrote: Kim, I'm afraid I don't know anybody in Minnesota. Hopefully someone else will have some suggestions. One thing to consider is an internist/internal medicine specialist. They do primary care. I switched from a family medicine clinic because the only provider there that I really trusted was the

nurse-practitioner, and I couldn't always get an appt with her. The first internal med guy I tried was a dud. He was knowledgeable enough, but no personality, no sense of humor, his office staff & nurses were on the rude side. I bombarded my neuro with guilt trips and pressure until he personally called the doctor that I really wanted & convinced him to take me, even though he wasn't taking any new patients. So far I've been happy with him & his staff. Good luck! Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Good Doctor in MN? I am desperate!Date: Wed, 10 May 2006 00:50:29 -0000Hi everyone, I hope this email finds everyone in good health. As some of you know, I was only recently diagnosed with Sarc, neurosarc diagnosis pending. Being just recently diagnosed, I have been very dependent on my doctors for information and treatments. However, I now realize, I cannot depend on the doctors for information, as I have found more information from this group than any doctor I have seen. I have been "abandoned" by every doctor I have seen thus far. I don't even have a GP. Finally, I found a Pulmonary doctor who seemed to be

interested in helping me, and after having to fill out FMLA info and doctors notes for my absences from work, her nurse called today and suggested I seek the care of a GP because this was not the "job" of pulmonary specialists. Well... that's fine, except, 2 of 2 GPs have turned me away too. I am SOOO frustrated. I am sure many of you know this feeling. I thought I was lucky to live only an hour away from the Mayo clinic, but go figure, my insurance won't cover it. If anyone knows of a good GP in MN, I will drive where ever I need to in MN to find a good one. Thank you for taking the time to read my "vent" session here, and in advance for any doctors you may know about in MN. Kim ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

How much trouble did they give you when you asked for the notes Debbie? I'm not being sarcastic, I'm sincerely asking///ConnieDebbie wrote: Hi Kim, Another piece of advice, if you aren't doing this already, for each of your appointments ask for a copy of each of the records of notes, lab tests , etc. from each doctor . That way you can keep your on file on yourself from each doctor especially if they give you conflicting diagnosis'. If they don't have them right then and there, ask for them to send you copies as soon as they can. (You may have to call and remind them after a week or so.) I found this helpful because I couldn't remember what each doctor said and the results of each test on my own. Too much information for my

brain!!!!! DebbieKim Pellett wrote: Hi Debbie, Thank you for your email. I have an appointment on Tuesday with a new doctor at a new clinic. Believe it or not, I picked by name. I liked the name, it was outside the clinic that probably has notes to the effect of "she's crazy" in their files, so I picked it. I'm keeping my fingers crossed!! Thanks again, Kim Debbie wrote: Hi Kim, Unfortunately, I am from New England so I don't know of any doctors in your area, but I can sympathize with doctors that

can't and won't help you. I have been through about twelve doctors in my time and its been a tough journey. You just have to keep plodding along until you find the right one to help you. I finally found a PCP who is very good and understanding and has referred me to some good specialists who have helped me as well. I wish you good luck and hope you find the same in the future. Hang in there, Hugs, Debbiekimpellett wrote: Hi everyone, I hope this email finds everyone in good health. As some of you know, I was only recently diagnosed with Sarc, neurosarc diagnosis pending. Being just recently diagnosed, I have been very dependent on my doctors for information and treatments. However, I now realize, I cannot depend on the doctors for

information, as I have found more information from this group than any doctor I have seen. I have been "abandoned" by every doctor I have seen thus far. I don't even have a GP. Finally, I found a Pulmonary doctor who seemed to be interested in helping me, and after having to fill out FMLA info and doctors notes for my absences from work, her nurse called today and suggested I seek the care of a GP because this was not the "job" of pulmonary specialists. Well... that's fine, except, 2 of 2 GPs have turned me away too. I am SOOO frustrated. I am sure many of you know this feeling. I thought I was lucky to live only an hour away from the Mayo clinic, but go figure, my insurance won't cover it. If anyone knows of a good GP in MN, I will drive where ever I need to in MN to find a good one. Thank you for taking the time to read my "vent" session here, and in advance for any doctors you may know about in

MN. Kim

[Guest guest]

Wow Rose, I’m glad you found

a new PCP too. I worked in Doctors offices for years, and would never

even think to be that rude! I did make one guy mad once when I was just

starting out in the Doctors office I was 19, and this pt’s name was “Jesus”

OK now I know how to say Jesus in the Hispanic culture way, like hasus, but not

me I stood there and rather loud said “JESUS”, he was upset

with me, called me dumb etc… Wow that was a long time ago, but good

early lesson to learn, I thought in my mind that is strange that someone would actually

name their kid that??

Life’s little lessons.

Marla

From: Neurosarcoidosis

[mailto:Neurosarcoidosis ] On Behalf Of Connie Griffis

Sent: Thursday, May 11, 2006 10:02 AM

To: Neurosarcoidosis

Subject: RE: Good Doctor in MN? I am desperate!

Grief reading this made me mad. As bad as I hate to

say this, those people better remember.....they aren't dead yet, and I believe

how you treat people will come back around and bite you in the back. No

one and I mean no one should ever put up with this arrogant, insensitive,

treatment. EEEEhhh, don't get me started.

I so sorry that you were treated that way Rose///Connie

(Kim, don't you dare put up with it//Connie)

Rose wrote:

Kim, I can deal with some rudeness, but these people were

snotty to me about stuff that was part of my illness! They threatened to

drop me after I was late to 3 appts. I tried to explain how difficult it

is for me to remember the appt to start with, get ready on time, get a ride on

time. During this time I was not driving & had to depend on other

transportation. When I go to an appt, I have my tote bag with my little

fan (very necessary), my water bottle, my camp stool to elevate my feet,

usually a pillow for my back, and something to read. So when it's my turn

it takes a little while to gather everything up. The main nurse would

stand there sighing, never offer to help. Most of my other docs, dentist,

etc. call me the day before, even the morning of the appt. And they are

very nice about it. The other thing this nurse did was act very annoyed

that I didn't hear my name called. She knew I was hard of hearing!

Instead of coming over to me, she just stood at the door, regally, waiting

until I would look up in confusion & ask if she had called my name.

Now I know anybody can have an off day, but this was over 2 years.

And the doctor seemed to be annoyed about everything I reported. Lots of

big sighs. I'm glad I found another PCP.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis

To: Neurosarcoidosis

Subject: RE: Good Doctor in MN? I am desperate!

Date: Tue, 9 May 2006 22:40:30 -0700 (PDT)

Thanks

Rose. I appreciate you taking the time to email me. I am starting

to feel this is like a match.com kind of thing... only with doctors and

patients. They have to have the knowledge, but personality and family

(being the nurses) are also very important factors. How absurd that

we should pay so much money to find a doctor to take on our case though.

I'll keep

trying. Someone, somewhere must have at least enough curiosity to take me

on...

Rose wrote:

Kim,

I'm afraid I don't know anybody in Minnesota. Hopefully someone else will

have some suggestions. One thing to consider is an internist/internal

medicine specialist. They do primary care. I switched from a family

medicine clinic because the only provider there that I really trusted was the

nurse-practitioner, and I couldn't always get an appt with her. The first

internal med guy I tried was a dud. He was knowledgeable enough, but no

personality, no sense of humor, his office staff & nurses were on the rude

side. I bombarded my neuro with guilt trips and pressure until he

personally called the doctor that I really wanted & convinced him to take

me, even though he wasn't taking any new patients. So far I've been happy

with him & his staff. Good luck!

Ramblin' Rose

Moderator

From: " kimpellett "

Reply-To: Neurosarcoidosis

To: Neurosarcoidosis

Subject: Good Doctor in MN? I am desperate!

Date: Wed, 10 May 2006 00:50:29 -0000

Hi everyone,

I hope this email finds everyone in good health. As some of you

know, I was only recently diagnosed with Sarc, neurosarc diagnosis

pending. Being just recently diagnosed, I have been very dependent

on my doctors for information and treatments. However, I now

realize, I cannot depend on the doctors for information, as I have

found more information from this group than any doctor I have seen.

I have been " abandoned " by every doctor I have seen thus far. I

don't even have a GP. Finally, I found a Pulmonary doctor who

seemed to be interested in helping me, and after having to fill out

FMLA info and doctors notes for my absences from work, her nurse

called today and suggested I seek the care of a GP because this was

not the " job " of pulmonary specialists. Well... that's fine,

except, 2 of 2 GPs have turned me away too.

I am SOOO frustrated. I am sure many of you know this feeling. I

thought I was lucky to live only an hour away from the Mayo clinic,

but go figure, my insurance won't cover it.

If anyone knows of a good GP in MN, I will drive where ever I need

to in MN to find a good one.

Thank you for taking the time to read my " vent " session here, and in

advance for any doctors you may know about in MN.

Kim

~~~~ *** ~~~ *** ~~~ *** ~~~~

The Neurosarcoidosis Community

NS CHAT:- Has been cancelled for now.

Message Archives:-

http://groups.yahoo.com/group/Neurosarcoidosis/messages

Members Database:-

Listings of locations, phone numbers, and instant messengers.

http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Hi Connie, They didn't give me any trouble at all. It is your right to have copies of everything. After you request them, it may take awhile to get them. (The dr has to transcribe and everything), but they send them along usually. (Sometimes you may have to call and remind, of course with drs offices!) Occasionally depending on the dr. they may charge a small fee for if there is a large amount of copies that you are looking for. I only ran across that once though. So good luck if you plan on doing that. DebbieConnie Griffis wrote: How much trouble did they give you when you asked for the notes Debbie? I'm not being sarcastic, I'm sincerely asking///ConnieDebbie wrote: Hi Kim, Another piece of advice, if you aren't doing this already, for each of your appointments ask for a copy of each of the records of notes, lab tests , etc. from each doctor . That way you can keep your on file on yourself from each doctor especially if they give you conflicting diagnosis'. If they don't have them right then and there, ask for them to send you copies as soon as they can. (You may have to call and remind them after a week or so.) I found this helpful because I couldn't remember what each doctor said and the results of each test on my own. Too much information for my brain!!!!! DebbieKim Pellett wrote: Hi Debbie, Thank you for your email. I have an appointment on Tuesday with a new doctor at a new clinic. Believe it or not, I picked by name. I liked the name, it was outside the clinic that probably has notes to the effect of "she's crazy" in their files, so I picked it. I'm keeping my fingers crossed!! Thanks again, Kim Debbie wrote: Hi Kim, Unfortunately, I am from New England so I don't know of any doctors in your area, but I can sympathize with doctors that can't and won't help you. I have been through about twelve doctors in my time and its been a tough journey. You just have to keep plodding along until you find the right

one to help you. I finally found a PCP who is very good and understanding and has referred me to some good specialists who have helped me as well. I wish you good luck and hope you find the same in the future. Hang in there, Hugs, Debbiekimpellett wrote: Hi everyone, I hope this email finds everyone in good health. As some of you know, I was only recently diagnosed with Sarc, neurosarc diagnosis pending. Being just recently diagnosed, I have been very dependent on my doctors for information and treatments. However, I now realize, I cannot depend on the doctors for information, as I have found more information from this group than any doctor I have seen. I have been "abandoned" by every doctor I have seen thus far. I don't even

have a GP. Finally, I found a Pulmonary doctor who seemed to be interested in helping me, and after having to fill out FMLA info and doctors notes for my absences from work, her nurse called today and suggested I seek the care of a GP because this was not the "job" of pulmonary specialists. Well... that's fine, except, 2 of 2 GPs have turned me away too. I am SOOO frustrated. I am sure many of you know this feeling. I thought I was lucky to live only an hour away from the Mayo clinic, but go figure, my insurance won't cover it. If anyone knows of a good GP in MN, I will drive where ever I need to in MN to find a good one. Thank you for taking the time to read my "vent" session here, and in advance for any doctors you may know about in MN. Kim

[Guest guest]

Hi , Thank you for your suggestion. I am in the process of trying to get a referral to May so that my insurance covers it. Thanks again! Kim Solberg wrote: Mayo Clinic is in MN Mommer and Debbie have gone thereRose wrote: Kim, I'm afraid I don't know anybody in Minnesota. Hopefully someone else will have some suggestions. One thing to consider is an internist/internal medicine specialist. They do primary care. I switched from a family medicine clinic because the only provider there that I really

trusted was the nurse-practitioner, and I couldn't always get an appt with her. The first internal med guy I tried was a dud. He was knowledgeable enough, but no personality, no sense of humor, his office staff & nurses were on the rude side. I bombarded my neuro with guilt trips and pressure until he personally called the doctor that I really wanted & convinced him to take me, even though he wasn't taking any new patients. So far I've been happy with him & his staff. Good luck! Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Good Doctor in MN? I am desperate!Date: Wed, 10 May 2006 00:50:29 -0000Hi everyone, I hope this email finds everyone in good health. As some of you know, I was only recently diagnosed with Sarc, neurosarc diagnosis pending. Being just recently diagnosed, I have been very dependent on my doctors for information and treatments. However, I now realize, I cannot depend on the doctors for information, as I have found more information from this group than any doctor I have seen. I have been "abandoned" by every doctor I have seen thus far. I don't even have a GP. Finally, I found a Pulmonary doctor who

seemed to be interested in helping me, and after having to fill out FMLA info and doctors notes for my absences from work, her nurse called today and suggested I seek the care of a GP because this was not the "job" of pulmonary specialists. Well... that's fine, except, 2 of 2 GPs have turned me away too. I am SOOO frustrated. I am sure many of you know this feeling. I thought I was lucky to live only an hour away from the Mayo clinic, but go figure, my insurance won't cover it. If anyone knows of a good GP in MN, I will drive where ever I need to in MN to find a good one. Thank you for taking the time to read my "vent" session here, and in advance for any doctors you may know about in MN. Kim ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database