Zipporrah (IH-waiver) and seizure issue

February 7, 2004

We were told that the 20 minute EEG revealed nothing abnormal. Not sure about the background yet though. When I talked to her therapist she said she still thinks Porrah has seizures. When we first saw her Porrah had major shaking, especially in her arms when lying on her back. We have also noticed nodding of the head, tongue sucking, and lip smacking. These happen every few days and often are followed by sleepiness. I wish we could have had an episode happen when she was doing the test to see if it really is seizure activity. The therapist thought it reasonable to assume that she is having seizures since she has had a stroke episode already. I guess I will just keep an eye on her and if they continue or get worse, talk to Dr. Whiteman about them again. Another thing I am wondering about is the Ill and Handicapped Waiver. The Brain Injury Waiver case worker Asenath has said we should try to get Zipporrah on it. I am worried it may be too soon for her to be accepted. She has had damage and blood test revealing probable Mito, but wonder if the Waiver people will think it premature to apply. What do you guys think? Has anyone else applied this early for their kids? We waited so long to apply for Asenath because we didn't know we could, so we thought it wise to begin with Porrah early since it looks like she may need it. What do you think? Darla: mommy to Asenath, Zipporrah, and the gang Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com

February 8, 2004

We applied for Ill and Handicapped Waiver when was 6 months old and

got on when she was 11 months old. It is NEVER too early to apply, go for it.

Good Luck

Janelle McGuire

February 8, 2004

We applied for Ill and Handicapped Waiver when was 6 months old and

got on when she was 11 months old. It is NEVER too early to apply, go for it.

Good Luck

Janelle McGuire

February 8, 2004

Darla:

Apply. We applied for the Beckett program when Leah was

about 6 months old; and that was before we knew what we were dealing with.

So no, it's not too early to apply. Just think of all you can save

with doctor visits and any help in the medical field. So yes apply

and don't feel like it's too early. All it means is that you are

now aware of what is going on and staying on top of things before they

get worse.

Nerenhausen

mom to Leah

Darla Klein wrote:

We were told that

the 20 minute EEG revealed nothing abnormal. Not sure about the background

yet though. When I talked to her therapist she said she still thinks

Porrah has seizures. When we first saw her Porrah had major shaking,

especially in her arms when lying on her back. We have also noticed

nodding of the head, tongue sucking, and lip smacking. These happen

every few days and often are followed by sleepiness. I wish we could

have had an episode happen when she was doing the test to see if it really

is seizure activity. The therapist thought it reasonable to assume

that she is having seizures since she has had a stroke episode already.

I guess I will just keep an eye on her and if they continue or get worse,

talk to Dr. Whiteman about them again. Another

thing I am wondering about is the Ill and Handicapped Waiver. The

Brain Injury Waiver case worker ! Asenath has said we should try to get

Zipporrah on it. I am worried it may be too soon for her to be accepted.

She has had damage and blood test revealing probable Mito, but wonder if

the Waiver people will think it premature to apply. What do you guys

think? Has anyone else applied this early for their kids? We

waited so long to apply for Asenath because we didn't know we could, so

we thought it wise to begin with Porrah early since it looks like she may

need it. What do you think? Darla: mommy to Asenath, Zipporrah,

and the gang

Please contact mito-owner with any problems or questions.

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February 8, 2004