RE: Re Matt Eye Questions

[Guest guest]

Ruth, I developed cataracts in both eyes from taking oral Pred for two years. It actually was a good thing in my case. I had terrible eyesight, legally blind; I think 20/400 in one eye & 20/300 in the other. I hate wearing glasses all the time. I used extended wear contacts for 15 years, leaving them in for up to a month at a time without any problems. Then I started having trouble getting them out; I now believe that the sarc was affecting them. Anyway, I had to quit wearing the contacts & back to glasses. But after the cataract surgery, all I needed was reading glasses! For the first time in my life, I could read the clock when I woke up, see well when swimming, etc. One eye is 20/20, the other 20/30. Of course, every surgery carries risks, but cataract surgery is one of the modern miracles in medicine, in my humble opinion.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re Matt Eye QuestionsDate: Wed, 05 Apr 2006 04:53:13 -0000Hi Matt, I hope you don't mind my asking about your eye surgery. I found out today I have a cataract on my left eye and eye doctor says it may be from the steriod drops I have been using. Is this what happened to you? He talked about surgery and having to do surgery on the right eye too to coordinate my vision. I feel as though Sarcoid has won yet another round! Thanks for any info you can give me!Ruth>> Hi- Went to the eye doc on Fri- said my surgery went well but that they now feel that they > need to do my right eye as the pressure keeps going up and down- they want to do it > sometime next week-everything else is going ok- my mom and i are replaning our trip to > California , we hope to go in June now- am also not going to move in wiht my moms house > right now either- doctor feels that since u have to take a ferry back and forth and they dont > run late nite that if there was an emergency it would be a problem-right now u have to have > a helicopter pick u up off the island in an emergency and bring u to Seattle when the ferry > isnt running->~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Ruth, for me they used "conscious sedation," where you are given meds to relax & sedate you. I also had a portable CD player that they provided and I listened to Elvis going in & waking up. I don't remember a thing after they started pushing the cart to the O.R. I had no pain afterward. I had the surgeries a month apart & it was the same both times. I think the music really helped; ask if they provide CD players & if not, if you bring your own. At my hospital they use music therapy a lot.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: Re Matt Eye QuestionsDate: Thu, 06 Apr 2006 05:54:56 -0000I thought the doc told me he would be able to correct my vision so that I wouldn't need reading glasses but it would be great if he could fix them. My vision is really bad without my glasses and I had to give up contact several years ago. He said I would need thinner lenses I know. And I JUST bought new glasses! I am going to get a hand held recorder for a memory backup!! It kind of freeks me out that you are awake for this. I sure wish the Lord didn't think I was so strong! Thanks for the info!L & PRUth~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Hi Ruth- they are not sure what caused my eye problems

I am sure it was te sarcoid but everytime i ask about

what caused a medical problem they say they dont know

but that it could have been the ns- I also took/take

steroid drops and they never told me that that may be

the problem so i am intrested that u were told that-

many times i find out more info from others on the NS

line then the doctors tell me-it does make sense about

the drops because i started using them in my blind

eye which i was having no problems with and then i

suddenly devoloped glacoma in it. this is how my left

eye started out first glacoma then a few months later

cateracts- te one nice thing sbout it is that the

surgery is not that bad- a little scary the first

trime but i had no proplems and easy the secound time

as i knew what to expect-the one nice thing is i can

see w/o glasses for the first time in 40 years -

Matt

--- olehomepla olehomepla@...> wrote:

> Hi Matt, I hope you don't mind my asking about your

> eye surgery. I

> found out today I have a cataract on my left eye and

> eye doctor says

> it may be from the steriod drops I have been using.

> Is this what

> happened to you? He talked about surgery and

> having to do

> surgery on the right eye too to coordinate my

> vision. I feel as

> though Sarcoid has won yet another round! Thanks

> for any info you

> can give me!

>

> Ruth

>

>

> >

> > Hi- Went to the eye doc on Fri- said my surgery

> went well but that

> they now feel that they

> > need to do my right eye as the pressure keeps

> going up and down-

> they want to do it

> > sometime next week-everything else is going ok- my

> mom and i are

> replaning our trip to

> > California , we hope to go in June now- am also

> not going to

> move in wiht my moms house

> > right now either- doctor feels that since u have

> to take a ferry

> back and forth and they dont

> > run late nite that if there was an emergency it

> would be a

> problem-right now u have to have

> > a helicopter pick u up off the island in an

> emergency and bring u

> to Seattle when the ferry

> > isnt running-

> >

>

>

>

>

>

>

>

>

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