Re: [Neurosarcoidosis EYE PAIN!!!!!!!!!

[Guest guest]

Matt,

I'm concerned about the eye pain. I know that your MD's are watching your glaucoma--so I'm assuming the glaucoma is under control. Has your Ophthalmologist done a "Serial Tonometry" where they have you come in and check your eye pressure in the morning, late morning, mid afternoon and then late afternoon.

This is important as just like the rest of our bodies, eye pressure can flucuate during the day.

Optic neuritis generally doesn't cause pain--neither does glaucoma--unless it's sky high.

To wait until you're feeling like you've lost more vision is going to be too late-- that vision loss may become permanent.

Do you have access to a Neuro-ophthalmologist in Seattle at the medical school. I'd be asking for a referral from the Ophthalmologist.

Is there any changes in your Visual Field tests? This test has several different ways to read the brain function in regards to vision and any possible blockages in the way the signal goes to the visual cortex. If there is changes- it could signal that you've got a problem with the sarc granulomas or with vasculitis interferring with your vision.

How's the blood pressure--do you run high? Is that under control?

Do you have any photophobia? (Light sensitivity). This again is a sign of iritis (inflammation of the iris or uveal tract.) Remember that these are signs of both inflammation of the eyes, and the structures that keep the intra-ocular pressure down--and keeps you out of an acute glaucoma attack.

(Remember that if you feel like you've got the flu- but no fever and all the other signs, eye pain, headache, nausea-- it's a huge sign that your eye pressure is up.)

To have your ophthalmologist blow off the eye pain with your history is warning to me that you need another type of ophthalmologist that will look at the sarc history along with the fact that you've had the Yag laser to reduce eye pressure-- should send RED flags for him to look further.

Hope this helps,

Tracie

NS Co-owner/moderator

[Guest guest]

Matt,

I'm concerned about the eye pain. I know that your MD's are watching your glaucoma--so I'm assuming the glaucoma is under control. Has your Ophthalmologist done a "Serial Tonometry" where they have you come in and check your eye pressure in the morning, late morning, mid afternoon and then late afternoon.

This is important as just like the rest of our bodies, eye pressure can flucuate during the day.

Optic neuritis generally doesn't cause pain--neither does glaucoma--unless it's sky high.

To wait until you're feeling like you've lost more vision is going to be too late-- that vision loss may become permanent.

Do you have access to a Neuro-ophthalmologist in Seattle at the medical school. I'd be asking for a referral from the Ophthalmologist.

Is there any changes in your Visual Field tests? This test has several different ways to read the brain function in regards to vision and any possible blockages in the way the signal goes to the visual cortex. If there is changes- it could signal that you've got a problem with the sarc granulomas or with vasculitis interferring with your vision.

How's the blood pressure--do you run high? Is that under control?

Do you have any photophobia? (Light sensitivity). This again is a sign of iritis (inflammation of the iris or uveal tract.) Remember that these are signs of both inflammation of the eyes, and the structures that keep the intra-ocular pressure down--and keeps you out of an acute glaucoma attack.

(Remember that if you feel like you've got the flu- but no fever and all the other signs, eye pain, headache, nausea-- it's a huge sign that your eye pressure is up.)

To have your ophthalmologist blow off the eye pain with your history is warning to me that you need another type of ophthalmologist that will look at the sarc history along with the fact that you've had the Yag laser to reduce eye pressure-- should send RED flags for him to look further.

Hope this helps,

Tracie

NS Co-owner/moderator

[Guest guest]

Matt,

I'm concerned about the eye pain. I know that your MD's are watching your glaucoma--so I'm assuming the glaucoma is under control. Has your Ophthalmologist done a "Serial Tonometry" where they have you come in and check your eye pressure in the morning, late morning, mid afternoon and then late afternoon.

This is important as just like the rest of our bodies, eye pressure can flucuate during the day.

Optic neuritis generally doesn't cause pain--neither does glaucoma--unless it's sky high.

To wait until you're feeling like you've lost more vision is going to be too late-- that vision loss may become permanent.

Do you have access to a Neuro-ophthalmologist in Seattle at the medical school. I'd be asking for a referral from the Ophthalmologist.

Is there any changes in your Visual Field tests? This test has several different ways to read the brain function in regards to vision and any possible blockages in the way the signal goes to the visual cortex. If there is changes- it could signal that you've got a problem with the sarc granulomas or with vasculitis interferring with your vision.

How's the blood pressure--do you run high? Is that under control?

Do you have any photophobia? (Light sensitivity). This again is a sign of iritis (inflammation of the iris or uveal tract.) Remember that these are signs of both inflammation of the eyes, and the structures that keep the intra-ocular pressure down--and keeps you out of an acute glaucoma attack.

(Remember that if you feel like you've got the flu- but no fever and all the other signs, eye pain, headache, nausea-- it's a huge sign that your eye pressure is up.)

To have your ophthalmologist blow off the eye pain with your history is warning to me that you need another type of ophthalmologist that will look at the sarc history along with the fact that you've had the Yag laser to reduce eye pressure-- should send RED flags for him to look further.

Hope this helps,

Tracie

NS Co-owner/moderator

[Guest guest]

Hi Tracie- They have checked my eye pressure on a

regular basis and it has always been low- This is the

eye that i have no vision in already and they are

doing the Glaucoma surgery just so the eye wont

explode as the doctor put it plus the very slight

chance that some sight may be restored= they told me

today that it may be a neck problem and that

sometimes neck injuries manifest themselves in your

eyes-

My blood pressures have been great, 120 over 80 is

about as high as i go- I do have confidence in my eye

doctor and figure i will wait until after my surgery

to see if the pain is still there - if so and hey

still cant diagnose it i will seek another opinion.

Thanks for the info MATT

--- tiodaat@... wrote:

> Matt,

>

> I'm concerned about the eye pain. I know that your

> MD's are watching your

> glaucoma--so I'm assuming the glaucoma is under

> control. Has your

> Ophthalmologist done a " Serial Tonometry " where they

> have you come in and check your eye

> pressure in the morning, late morning, mid afternoon

> and then late afternoon.

> This is important as just like the rest of our

> bodies, eye pressure can

> flucuate during the day.

> Optic neuritis generally doesn't cause pain--neither

> does glaucoma--unless

> it's sky high.

> To wait until you're feeling like you've lost more

> vision is going to be too

> late-- that vision loss may become permanent.

> Do you have access to a Neuro-ophthalmologist in

> Seattle at the medical

> school. I'd be asking for a referral from the

> Ophthalmologist.

> Is there any changes in your Visual Field tests?

> This test has several

> different ways to read the brain function in regards

> to vision and any possible

> blockages in the way the signal goes to the visual

> cortex. If there is changes-

> it could signal that you've got a problem with the

> sarc granulomas or with

> vasculitis interferring with your vision.

> How's the blood pressure--do you run high? Is that

> under control?

> Do you have any photophobia? (Light sensitivity).

> This again is a sign of

> iritis (inflammation of the iris or uveal tract.)

> Remember that these are signs

> of both inflammation of the eyes, and the structures

> that keep the

> intra-ocular pressure down--and keeps you out of an

> acute glaucoma attack.

> (Remember that if you feel like you've got the flu-

> but no fever and all the

> other signs, eye pain, headache, nausea-- it's a

> huge sign that your eye

> pressure is up.)

> To have your ophthalmologist blow off the eye pain

> with your history is

> warning to me that you need another type of

> ophthalmologist that will look at the

> sarc history along with the fact that you've had the

> Yag laser to reduce eye

> pressure-- should send RED flags for him to look

> further.

>

> Hope this helps,

> Tracie

> NS Co-owner/moderator

>

__________________________________________________

[Guest guest]

Hi Tracie- They have checked my eye pressure on a

regular basis and it has always been low- This is the

eye that i have no vision in already and they are

doing the Glaucoma surgery just so the eye wont

explode as the doctor put it plus the very slight

chance that some sight may be restored= they told me

today that it may be a neck problem and that

sometimes neck injuries manifest themselves in your

eyes-

My blood pressures have been great, 120 over 80 is

about as high as i go- I do have confidence in my eye

doctor and figure i will wait until after my surgery

to see if the pain is still there - if so and hey

still cant diagnose it i will seek another opinion.

Thanks for the info MATT

--- tiodaat@... wrote:

> Matt,

>

> I'm concerned about the eye pain. I know that your

> MD's are watching your

> glaucoma--so I'm assuming the glaucoma is under

> control. Has your

> Ophthalmologist done a " Serial Tonometry " where they

> have you come in and check your eye

> pressure in the morning, late morning, mid afternoon

> and then late afternoon.

> This is important as just like the rest of our

> bodies, eye pressure can

> flucuate during the day.

> Optic neuritis generally doesn't cause pain--neither

> does glaucoma--unless

> it's sky high.

> To wait until you're feeling like you've lost more

> vision is going to be too

> late-- that vision loss may become permanent.

> Do you have access to a Neuro-ophthalmologist in

> Seattle at the medical

> school. I'd be asking for a referral from the

> Ophthalmologist.

> Is there any changes in your Visual Field tests?

> This test has several

> different ways to read the brain function in regards

> to vision and any possible

> blockages in the way the signal goes to the visual

> cortex. If there is changes-

> it could signal that you've got a problem with the

> sarc granulomas or with

> vasculitis interferring with your vision.

> How's the blood pressure--do you run high? Is that

> under control?

> Do you have any photophobia? (Light sensitivity).

> This again is a sign of

> iritis (inflammation of the iris or uveal tract.)

> Remember that these are signs

> of both inflammation of the eyes, and the structures

> that keep the

> intra-ocular pressure down--and keeps you out of an

> acute glaucoma attack.

> (Remember that if you feel like you've got the flu-

> but no fever and all the

> other signs, eye pain, headache, nausea-- it's a

> huge sign that your eye

> pressure is up.)

> To have your ophthalmologist blow off the eye pain

> with your history is

> warning to me that you need another type of

> ophthalmologist that will look at the

> sarc history along with the fact that you've had the

> Yag laser to reduce eye

> pressure-- should send RED flags for him to look

> further.

>

> Hope this helps,

> Tracie

> NS Co-owner/moderator

>

__________________________________________________

[Guest guest]

Hi Tracie- They have checked my eye pressure on a

regular basis and it has always been low- This is the

eye that i have no vision in already and they are

doing the Glaucoma surgery just so the eye wont

explode as the doctor put it plus the very slight

chance that some sight may be restored= they told me

today that it may be a neck problem and that

sometimes neck injuries manifest themselves in your

eyes-

My blood pressures have been great, 120 over 80 is

about as high as i go- I do have confidence in my eye

doctor and figure i will wait until after my surgery

to see if the pain is still there - if so and hey

still cant diagnose it i will seek another opinion.

Thanks for the info MATT

--- tiodaat@... wrote:

> Matt,

>

> I'm concerned about the eye pain. I know that your

> MD's are watching your

> glaucoma--so I'm assuming the glaucoma is under

> control. Has your

> Ophthalmologist done a " Serial Tonometry " where they

> have you come in and check your eye

> pressure in the morning, late morning, mid afternoon

> and then late afternoon.

> This is important as just like the rest of our

> bodies, eye pressure can

> flucuate during the day.

> Optic neuritis generally doesn't cause pain--neither

> does glaucoma--unless

> it's sky high.

> To wait until you're feeling like you've lost more

> vision is going to be too

> late-- that vision loss may become permanent.

> Do you have access to a Neuro-ophthalmologist in

> Seattle at the medical

> school. I'd be asking for a referral from the

> Ophthalmologist.

> Is there any changes in your Visual Field tests?

> This test has several

> different ways to read the brain function in regards

> to vision and any possible

> blockages in the way the signal goes to the visual

> cortex. If there is changes-

> it could signal that you've got a problem with the

> sarc granulomas or with

> vasculitis interferring with your vision.

> How's the blood pressure--do you run high? Is that

> under control?

> Do you have any photophobia? (Light sensitivity).

> This again is a sign of

> iritis (inflammation of the iris or uveal tract.)

> Remember that these are signs

> of both inflammation of the eyes, and the structures

> that keep the

> intra-ocular pressure down--and keeps you out of an

> acute glaucoma attack.

> (Remember that if you feel like you've got the flu-

> but no fever and all the

> other signs, eye pain, headache, nausea-- it's a

> huge sign that your eye

> pressure is up.)

> To have your ophthalmologist blow off the eye pain

> with your history is

> warning to me that you need another type of

> ophthalmologist that will look at the

> sarc history along with the fact that you've had the

> Yag laser to reduce eye

> pressure-- should send RED flags for him to look

> further.

>

> Hope this helps,

> Tracie

> NS Co-owner/moderator

>

__________________________________________________

[Guest guest]

Hi Connie you are so right- every time i have a

medical problem they say it most likely is not the

sarc but say they dont know what the problem is- MATT

--- Connie Griffis conaugusta@...> wrote:

> Why is it that when we go to the doctor, none of

> them want to associate anything going on with us to

> our sarc, then when they do the testing and there it

> sits it's like....duhhhhhhhhhhhh!. Grief, bad dog

> - no biscuit. Connie

>

> Cohen belltown_mac@...> wrote: Hi

> Tracie- They have checked my eye pressure on a

> regular basis and it has always been low- This is

> the

> eye that i have no vision in already and they are

> doing the Glaucoma surgery just so the eye wont

> explode as the doctor put it plus the very slight

> chance that some sight may be restored= they told me

> today that it may be a neck problem and that

> sometimes neck injuries manifest themselves in your

> eyes-

> My blood pressures have been great, 120 over 80 is

> about as high as i go- I do have confidence in my

> eye

> doctor and figure i will wait until after my

> surgery

> to see if the pain is still there - if so and hey

> still cant diagnose it i will seek another opinion.

> Thanks for the info MATT

> --- tiodaat@... wrote:

>

> > Matt,

> >

> > I'm concerned about the eye pain. I know that

> your

> > MD's are watching your

> > glaucoma--so I'm assuming the glaucoma is under

> > control. Has your

> > Ophthalmologist done a " Serial Tonometry " where

> they

> > have you come in and check your eye

> > pressure in the morning, late morning, mid

> afternoon

> > and then late afternoon.

> > This is important as just like the rest of our

> > bodies, eye pressure can

> > flucuate during the day.

> > Optic neuritis generally doesn't cause

> pain--neither

> > does glaucoma--unless

> > it's sky high.

> > To wait until you're feeling like you've lost more

> > vision is going to be too

> > late-- that vision loss may become permanent.

> > Do you have access to a Neuro-ophthalmologist in

> > Seattle at the medical

> > school. I'd be asking for a referral from the

> > Ophthalmologist.

> > Is there any changes in your Visual Field tests?

> > This test has several

> > different ways to read the brain function in

> regards

> > to vision and any possible

> > blockages in the way the signal goes to the visual

> > cortex. If there is changes-

> > it could signal that you've got a problem with the

> > sarc granulomas or with

> > vasculitis interferring with your vision.

> > How's the blood pressure--do you run high? Is

> that

> > under control?

> > Do you have any photophobia? (Light sensitivity).

> > This again is a sign of

> > iritis (inflammation of the iris or uveal tract.)

> > Remember that these are signs

> > of both inflammation of the eyes, and the

> structures

> > that keep the

> > intra-ocular pressure down--and keeps you out of

> an

> > acute glaucoma attack.

> > (Remember that if you feel like you've got the

> flu-

> > but no fever and all the

> > other signs, eye pain, headache, nausea-- it's a

> > huge sign that your eye

> > pressure is up.)

> > To have your ophthalmologist blow off the eye pain

> > with your history is

> > warning to me that you need another type of

> > ophthalmologist that will look at the

> > sarc history along with the fact that you've had

> the

> > Yag laser to reduce eye

> > pressure-- should send RED flags for him to look

> > further.

> >

> > Hope this helps,

> > Tracie

> > NS Co-owner/moderator

> >

>

>

> __________________________________________________

>

[Guest guest]

Sorry to butt in but optic neuritis can cause very bad pain when you have granulomas on the nerve but they cant really tell if there are granulomas because of the general swelling. This really is something that really concerns me because I have lost my vision in my right eye because it wasnt just assumed it was 'normal' optic neuritis and so I didnt get treatment quick enough and I have very nearly lost it in my left eye 4 times ! Re: [Neurosarcoidosis EYE PAIN!!!!!!!!!Matt,I'm concerned about the eye pain. I know that your MD's are watching your glaucoma--so I'm assuming the glaucoma is under control. Has your Ophthalmologist done a "Serial Tonometry" where they have you come in and check your eye

pressure in the morning, late morning, mid afternoon and then late afternoon. This is important as just like the rest of our bodies, eye pressure can flucuate during the day. Optic neuritis generally doesn't cause pain--neither does glaucoma--unless it's sky high. To wait until you're feeling like you've lost more vision is going to be too late-- that vision loss may become permanent. Do you have access to a Neuro-ophthalmologist in Seattle at the medical school. I'd be asking for a referral from the Ophthalmologist. Is there any changes in your Visual Field tests? This test has several different ways to read the brain function in regards to vision and any possible blockages in the way the signal goes to the visual cortex. If there is changes- it could signal that you've got a problem with the sarc granulomas or with vasculitis interferring with your vision. How's the blood pressure--do you run

high? Is that under control?Do you have any photophobia? (Light sensitivity). This again is a sign of iritis (inflammation of the iris or uveal tract.) Remember that these are signs of both inflammation of the eyes, and the structures that keep the intra-ocular pressure down--and keeps you out of an acute glaucoma attack.(Remember that if you feel like you've got the flu- but no fever and all the other signs, eye pain, headache, nausea-- it's a huge sign that your eye pressure is up.)To have your ophthalmologist blow off the eye pain with your history is warning to me that you need another type of ophthalmologist that will look at the sarc history along with the fact that you've had the Yag laser to reduce eye pressure-- should send RED flags for him to look further.Hope this helps,TracieNS Co-owner/moderator ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled

for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Sorry to butt in but optic neuritis can cause very bad pain when you have granulomas on the nerve but they cant really tell if there are granulomas because of the general swelling. This really is something that really concerns me because I have lost my vision in my right eye because it wasnt just assumed it was 'normal' optic neuritis and so I didnt get treatment quick enough and I have very nearly lost it in my left eye 4 times ! Re: [Neurosarcoidosis EYE PAIN!!!!!!!!!Matt,I'm concerned about the eye pain. I know that your MD's are watching your glaucoma--so I'm assuming the glaucoma is under control. Has your Ophthalmologist done a "Serial Tonometry" where they have you come in and check your eye

pressure in the morning, late morning, mid afternoon and then late afternoon. This is important as just like the rest of our bodies, eye pressure can flucuate during the day. Optic neuritis generally doesn't cause pain--neither does glaucoma--unless it's sky high. To wait until you're feeling like you've lost more vision is going to be too late-- that vision loss may become permanent. Do you have access to a Neuro-ophthalmologist in Seattle at the medical school. I'd be asking for a referral from the Ophthalmologist. Is there any changes in your Visual Field tests? This test has several different ways to read the brain function in regards to vision and any possible blockages in the way the signal goes to the visual cortex. If there is changes- it could signal that you've got a problem with the sarc granulomas or with vasculitis interferring with your vision. How's the blood pressure--do you run

high? Is that under control?Do you have any photophobia? (Light sensitivity). This again is a sign of iritis (inflammation of the iris or uveal tract.) Remember that these are signs of both inflammation of the eyes, and the structures that keep the intra-ocular pressure down--and keeps you out of an acute glaucoma attack.(Remember that if you feel like you've got the flu- but no fever and all the other signs, eye pain, headache, nausea-- it's a huge sign that your eye pressure is up.)To have your ophthalmologist blow off the eye pain with your history is warning to me that you need another type of ophthalmologist that will look at the sarc history along with the fact that you've had the Yag laser to reduce eye pressure-- should send RED flags for him to look further.Hope this helps,TracieNS Co-owner/moderator ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled

for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Sorry to butt in but optic neuritis can cause very bad pain when you have granulomas on the nerve but they cant really tell if there are granulomas because of the general swelling. This really is something that really concerns me because I have lost my vision in my right eye because it wasnt just assumed it was 'normal' optic neuritis and so I didnt get treatment quick enough and I have very nearly lost it in my left eye 4 times ! Re: [Neurosarcoidosis EYE PAIN!!!!!!!!!Matt,I'm concerned about the eye pain. I know that your MD's are watching your glaucoma--so I'm assuming the glaucoma is under control. Has your Ophthalmologist done a "Serial Tonometry" where they have you come in and check your eye

pressure in the morning, late morning, mid afternoon and then late afternoon. This is important as just like the rest of our bodies, eye pressure can flucuate during the day. Optic neuritis generally doesn't cause pain--neither does glaucoma--unless it's sky high. To wait until you're feeling like you've lost more vision is going to be too late-- that vision loss may become permanent. Do you have access to a Neuro-ophthalmologist in Seattle at the medical school. I'd be asking for a referral from the Ophthalmologist. Is there any changes in your Visual Field tests? This test has several different ways to read the brain function in regards to vision and any possible blockages in the way the signal goes to the visual cortex. If there is changes- it could signal that you've got a problem with the sarc granulomas or with vasculitis interferring with your vision. How's the blood pressure--do you run

high? Is that under control?Do you have any photophobia? (Light sensitivity). This again is a sign of iritis (inflammation of the iris or uveal tract.) Remember that these are signs of both inflammation of the eyes, and the structures that keep the intra-ocular pressure down--and keeps you out of an acute glaucoma attack.(Remember that if you feel like you've got the flu- but no fever and all the other signs, eye pain, headache, nausea-- it's a huge sign that your eye pressure is up.)To have your ophthalmologist blow off the eye pain with your history is warning to me that you need another type of ophthalmologist that will look at the sarc history along with the fact that you've had the Yag laser to reduce eye pressure-- should send RED flags for him to look further.Hope this helps,TracieNS Co-owner/moderator ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled

for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Clair,

When I had optic neuritis they didn't treatment because my vision wasn't

bad enough. Can you imagine?

Well, on to another subject. I know your girlfriend was having a hard

time with you illness. How are things now? Still ok?

Also, do you eat scones? Do you by chance have a recipe? Medina, who

owns our local coffee shop just sold it to stay home because she is

pregant. No more home made scones for me. She always made cinnamon and

blueberry. (She is British). If not, I might go into scone

withdrawals. Hee Hee. They are my treat to myself once a week on my

Weight Watchers diet.

Well take care of yourself.

Terri G.

>

> Sorry to butt in but optic neuritis can cause very bad pain when you

have granulomas on the nerve but they cant really tell if there are

granulomas because of the general swelling. This really is something

that really concerns me because I have lost my vision in my right eye

because it wasnt just assumed it was 'normal' optic neuritis and so I

didnt get treatment quick enough and I have very nearly lost it in my

left eye 4 times !

>

> Re: [Neurosarcoidosis EYE PAIN!!!!!!!!!

>

> Matt,

>

> I'm concerned about the eye pain. I know that your MD's are watching

your glaucoma--so I'm assuming the glaucoma is under control. Has your

Ophthalmologist done a " Serial Tonometry " where they have you come in

and check your eye pressure in the morning, late morning, mid afternoon

and then late afternoon.

> This is important as just like the rest of our bodies, eye pressure

can flucuate during the day.

> Optic neuritis generally doesn't cause pain--neither does

glaucoma--unless it's sky high.

> To wait until you're feeling like you've lost more vision is going to

be too late-- that vision loss may become permanent.

> Do you have access to a Neuro-ophthalmologist in Seattle at the

medical school. I'd be asking for a referral from the Ophthalmologist.

> Is there any changes in your Visual Field tests? This test has several

different ways to read the brain function in regards to vision and any

possible blockages in the way the signal goes to the visual cortex. If

there is changes- it could signal that you've got a problem with the

sarc granulomas or with vasculitis interferring with your vision.

> How's the blood pressure--do you run high? Is that under control?

> Do you have any photophobia? (Light sensitivity). This again is a sign

of iritis (inflammation of the iris or uveal tract.) Remember that these

are signs of both inflammation of the eyes, and the structures that keep

the intra-ocular pressure down--and keeps you out of an acute glaucoma

attack.

> (Remember that if you feel like you've got the flu- but no fever and

all the other signs, eye pain, headache, nausea-- it's a huge sign that

your eye pressure is up.)

> To have your ophthalmologist blow off the eye pain with your history

is warning to me that you need another type of ophthalmologist that will

look at the sarc history along with the fact that you've had the Yag

laser to reduce eye pressure-- should send RED flags for him to look

further.

>

> Hope this helps,

> Tracie

> NS Co-owner/moderator

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

> NS CHAT:- Has been cancelled for now.

>

> Message Archives:-

> http://groups.yahoo.com/group/Neurosarcoidosis/messages

>

> Members Database:-

> Listings of locations, phone numbers, and instant messengers.

> http://groups.yahoo.com/group/Neurosarcoidosis/database

>

>

[Guest guest]

Clair,

When I had optic neuritis they didn't treatment because my vision wasn't

bad enough. Can you imagine?

Well, on to another subject. I know your girlfriend was having a hard

time with you illness. How are things now? Still ok?

Also, do you eat scones? Do you by chance have a recipe? Medina, who

owns our local coffee shop just sold it to stay home because she is

pregant. No more home made scones for me. She always made cinnamon and

blueberry. (She is British). If not, I might go into scone

withdrawals. Hee Hee. They are my treat to myself once a week on my

Weight Watchers diet.

Well take care of yourself.

Terri G.

>

> Sorry to butt in but optic neuritis can cause very bad pain when you

have granulomas on the nerve but they cant really tell if there are

granulomas because of the general swelling. This really is something

that really concerns me because I have lost my vision in my right eye

because it wasnt just assumed it was 'normal' optic neuritis and so I

didnt get treatment quick enough and I have very nearly lost it in my

left eye 4 times !

>

> Re: [Neurosarcoidosis EYE PAIN!!!!!!!!!

>

> Matt,

>

> I'm concerned about the eye pain. I know that your MD's are watching

your glaucoma--so I'm assuming the glaucoma is under control. Has your

Ophthalmologist done a " Serial Tonometry " where they have you come in

and check your eye pressure in the morning, late morning, mid afternoon

and then late afternoon.

> This is important as just like the rest of our bodies, eye pressure

can flucuate during the day.

> Optic neuritis generally doesn't cause pain--neither does

glaucoma--unless it's sky high.

> To wait until you're feeling like you've lost more vision is going to

be too late-- that vision loss may become permanent.

> Do you have access to a Neuro-ophthalmologist in Seattle at the

medical school. I'd be asking for a referral from the Ophthalmologist.

> Is there any changes in your Visual Field tests? This test has several

different ways to read the brain function in regards to vision and any

possible blockages in the way the signal goes to the visual cortex. If

there is changes- it could signal that you've got a problem with the

sarc granulomas or with vasculitis interferring with your vision.

> How's the blood pressure--do you run high? Is that under control?

> Do you have any photophobia? (Light sensitivity). This again is a sign

of iritis (inflammation of the iris or uveal tract.) Remember that these

are signs of both inflammation of the eyes, and the structures that keep

the intra-ocular pressure down--and keeps you out of an acute glaucoma

attack.

> (Remember that if you feel like you've got the flu- but no fever and

all the other signs, eye pain, headache, nausea-- it's a huge sign that

your eye pressure is up.)

> To have your ophthalmologist blow off the eye pain with your history

is warning to me that you need another type of ophthalmologist that will

look at the sarc history along with the fact that you've had the Yag

laser to reduce eye pressure-- should send RED flags for him to look

further.

>

> Hope this helps,

> Tracie

> NS Co-owner/moderator

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

> NS CHAT:- Has been cancelled for now.

>

> Message Archives:-

> http://groups.yahoo.com/group/Neurosarcoidosis/messages

>

> Members Database:-

> Listings of locations, phone numbers, and instant messengers.

> http://groups.yahoo.com/group/Neurosarcoidosis/database

>

>

[Guest guest]

Clair,

When I had optic neuritis they didn't treatment because my vision wasn't

bad enough. Can you imagine?

Well, on to another subject. I know your girlfriend was having a hard

time with you illness. How are things now? Still ok?

Also, do you eat scones? Do you by chance have a recipe? Medina, who

owns our local coffee shop just sold it to stay home because she is

pregant. No more home made scones for me. She always made cinnamon and

blueberry. (She is British). If not, I might go into scone

withdrawals. Hee Hee. They are my treat to myself once a week on my

Weight Watchers diet.

Well take care of yourself.

Terri G.

>

> Sorry to butt in but optic neuritis can cause very bad pain when you

have granulomas on the nerve but they cant really tell if there are

granulomas because of the general swelling. This really is something

that really concerns me because I have lost my vision in my right eye

because it wasnt just assumed it was 'normal' optic neuritis and so I

didnt get treatment quick enough and I have very nearly lost it in my

left eye 4 times !

>

> Re: [Neurosarcoidosis EYE PAIN!!!!!!!!!

>

> Matt,

>

> I'm concerned about the eye pain. I know that your MD's are watching

your glaucoma--so I'm assuming the glaucoma is under control. Has your

Ophthalmologist done a " Serial Tonometry " where they have you come in

and check your eye pressure in the morning, late morning, mid afternoon

and then late afternoon.

> This is important as just like the rest of our bodies, eye pressure

can flucuate during the day.

> Optic neuritis generally doesn't cause pain--neither does

glaucoma--unless it's sky high.

> To wait until you're feeling like you've lost more vision is going to

be too late-- that vision loss may become permanent.

> Do you have access to a Neuro-ophthalmologist in Seattle at the

medical school. I'd be asking for a referral from the Ophthalmologist.

> Is there any changes in your Visual Field tests? This test has several

different ways to read the brain function in regards to vision and any

possible blockages in the way the signal goes to the visual cortex. If

there is changes- it could signal that you've got a problem with the

sarc granulomas or with vasculitis interferring with your vision.

> How's the blood pressure--do you run high? Is that under control?

> Do you have any photophobia? (Light sensitivity). This again is a sign

of iritis (inflammation of the iris or uveal tract.) Remember that these

are signs of both inflammation of the eyes, and the structures that keep

the intra-ocular pressure down--and keeps you out of an acute glaucoma

attack.

> (Remember that if you feel like you've got the flu- but no fever and

all the other signs, eye pain, headache, nausea-- it's a huge sign that

your eye pressure is up.)

> To have your ophthalmologist blow off the eye pain with your history

is warning to me that you need another type of ophthalmologist that will

look at the sarc history along with the fact that you've had the Yag

laser to reduce eye pressure-- should send RED flags for him to look

further.

>

> Hope this helps,

> Tracie

> NS Co-owner/moderator

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

> NS CHAT:- Has been cancelled for now.

>

> Message Archives:-

> http://groups.yahoo.com/group/Neurosarcoidosis/messages

>

> Members Database:-

> Listings of locations, phone numbers, and instant messengers.

> http://groups.yahoo.com/group/Neurosarcoidosis/database

>

>

[Guest guest]

Tracie,

What about eye pain all by itself? I continue to have the intermittent pain but without any other symptoms such as blurry vision, etc. This is not mild pain either. It is a severe stabbing pain that will bring you to your knees. Maybe a neuropathy? What do you think?

I do have a visual field done once a year to look for blind areas because I have depth perception issues also and have had blurred vision in the past. I appreciate your opinion and am not sure what to tell the ophthalmologist and what not to.

Thanks.

Terri G. >> > > > > optic neuritis can cause very bad pain when you have granulomas on the > > nerve but they cant really tell if there are granulomas because of the general > > swelling. This really is something that really concerns me because I have lost > > my vision in my right eye because it wasnt just assumed it was 'normal' optic > > neuritis and so I didnt get treatment quick enough and I have very nearly > > lost it in my left eye 4 times !> > > > This is what I'm saying--if you have pain-- get in and get it checked out. > Eye pain is a sign something is wrong. > The problem with the eyes is that generally the serious stuff-- optic > neuritis, glaucoma, iritis and uveitis don't cause pain--so they go undetected. But > when the pain hits-- it is a sign that something is wrong.> > We've all had the "behind the eye pain" of a sinus infection, or the headachy > pain of dry eyes, but if it comes with blurred vision, blank spots or a > curtain veil effect, or loss of central vision or color/contrast, or with light > sensitivity--demand to see the ophthalmologist.> > If caught early enough--we don't need to lose our vision.> > Sincerely,> Tracie> NS Co-owner/moderator>

[Guest guest]

Tracie,

What about eye pain all by itself? I continue to have the intermittent pain but without any other symptoms such as blurry vision, etc. This is not mild pain either. It is a severe stabbing pain that will bring you to your knees. Maybe a neuropathy? What do you think?

I do have a visual field done once a year to look for blind areas because I have depth perception issues also and have had blurred vision in the past. I appreciate your opinion and am not sure what to tell the ophthalmologist and what not to.

Thanks.

Terri G. >> > > > > optic neuritis can cause very bad pain when you have granulomas on the > > nerve but they cant really tell if there are granulomas because of the general > > swelling. This really is something that really concerns me because I have lost > > my vision in my right eye because it wasnt just assumed it was 'normal' optic > > neuritis and so I didnt get treatment quick enough and I have very nearly > > lost it in my left eye 4 times !> > > > This is what I'm saying--if you have pain-- get in and get it checked out. > Eye pain is a sign something is wrong. > The problem with the eyes is that generally the serious stuff-- optic > neuritis, glaucoma, iritis and uveitis don't cause pain--so they go undetected. But > when the pain hits-- it is a sign that something is wrong.> > We've all had the "behind the eye pain" of a sinus infection, or the headachy > pain of dry eyes, but if it comes with blurred vision, blank spots or a > curtain veil effect, or loss of central vision or color/contrast, or with light > sensitivity--demand to see the ophthalmologist.> > If caught early enough--we don't need to lose our vision.> > Sincerely,> Tracie> NS Co-owner/moderator>

[Guest guest]

What about eye pain all by itself? I continue to have the intermittent pain but without any other symptoms such as blurry vision, etc. This is not mild pain either. It is a severe stabbing pain that will bring you to your knees. Maybe a neuropathy? What do you think?

[Guest guest]

What about eye pain all by itself? I continue to have the intermittent pain but without any other symptoms such as blurry vision, etc. This is not mild pain either. It is a severe stabbing pain that will bring you to your knees. Maybe a neuropathy? What do you think?

When the pain is this intense, you need to call and get into the Ophthalmologist that day. Eye pain this severe would be a sign of Narrow-angle Closure Glaucoma.

It could be a temporary spike in eye pressure-- or it could be a migraine headache-- but it needs to be addressed.

Many of the meds we take have glaucoma as a side effect. However, if the spike does permanent damage to the retina of the eye-- you lose that vision--forever.

Glaucoma is the number one thief of vision. It happens because even our regular MD's have forgotten that the eye pain and the nausea, etc-- is not always the flu-- but needs to be addressed especially when we're so sensitive to sarcoid iritis and uveitis.

You may have to tell the receiptionist that you are more susceptible to glaucoma because of the meds you're on-- and because of your history with sarcoidosis.

If they refuse to schedule you that day-- have them have the MD call you back-- (he'll refuse and tell them to get you in--now.)

When I trained my recieptionists on what was emergent--this and foreign bodies in the eyes were at the top of the list.

Hope this helps,

Tracie

NS Co-owner/moderator

[Guest guest]

What about eye pain all by itself? I continue to have the intermittent pain but without any other symptoms such as blurry vision, etc. This is not mild pain either. It is a severe stabbing pain that will bring you to your knees. Maybe a neuropathy? What do you think?

When the pain is this intense, you need to call and get into the Ophthalmologist that day. Eye pain this severe would be a sign of Narrow-angle Closure Glaucoma.

It could be a temporary spike in eye pressure-- or it could be a migraine headache-- but it needs to be addressed.

Many of the meds we take have glaucoma as a side effect. However, if the spike does permanent damage to the retina of the eye-- you lose that vision--forever.

Glaucoma is the number one thief of vision. It happens because even our regular MD's have forgotten that the eye pain and the nausea, etc-- is not always the flu-- but needs to be addressed especially when we're so sensitive to sarcoid iritis and uveitis.

You may have to tell the receiptionist that you are more susceptible to glaucoma because of the meds you're on-- and because of your history with sarcoidosis.

If they refuse to schedule you that day-- have them have the MD call you back-- (he'll refuse and tell them to get you in--now.)

When I trained my recieptionists on what was emergent--this and foreign bodies in the eyes were at the top of the list.

Hope this helps,

Tracie

NS Co-owner/moderator

[Guest guest]

What about eye pain all by itself? I continue to have the intermittent pain but without any other symptoms such as blurry vision, etc. This is not mild pain either. It is a severe stabbing pain that will bring you to your knees. Maybe a neuropathy? What do you think?

When the pain is this intense, you need to call and get into the Ophthalmologist that day. Eye pain this severe would be a sign of Narrow-angle Closure Glaucoma.

It could be a temporary spike in eye pressure-- or it could be a migraine headache-- but it needs to be addressed.

Many of the meds we take have glaucoma as a side effect. However, if the spike does permanent damage to the retina of the eye-- you lose that vision--forever.

Glaucoma is the number one thief of vision. It happens because even our regular MD's have forgotten that the eye pain and the nausea, etc-- is not always the flu-- but needs to be addressed especially when we're so sensitive to sarcoid iritis and uveitis.

You may have to tell the receiptionist that you are more susceptible to glaucoma because of the meds you're on-- and because of your history with sarcoidosis.

If they refuse to schedule you that day-- have them have the MD call you back-- (he'll refuse and tell them to get you in--now.)

When I trained my recieptionists on what was emergent--this and foreign bodies in the eyes were at the top of the list.

Hope this helps,

Tracie

NS Co-owner/moderator

[Guest guest]

Hey Terri

Things are settling down, im feeling better and started back at work, im still having pain and odd things happening but hey its just part of it I suppose, although Ive got an appointment with a dematologist tommorrow about the stretch marks the steroids have given me - I doube they can do anything but im hoping to get a referal to a plastic surgon and I have to see a hematologist on Friday about my consistantly raised white blood cell count (I hope they dont want to do a bone marrow biopy urrg).

Ive pulled out my recipe book for you so heres they recipe for scones:

225g/8oz self raising flour

pinch of salt

50g/2oz butter or margaringe (cut into small pieces)

1 1/2 tablespoons caster sugar

1 egg

5 tablespoons of milk or sour milk

beaten egg or milk to glaze - if you want

1. grease a backing tray or dredge itliberaly with flour

2. sift the flour and salt into a bowl. add the butter and rub in until it resembles bread crumbs ( you can do this in a food processer blasting in short bursts)

3. stir in the sugar. add the egg and enough milk to mix a fairly soft dough using a pallete knife or spatula

4. turn out onto a lightly floured suface and gently flatten the dough to about 2-2.5cm

5. using a well floured plain or fluted cutter of about 4-5cm or an upturned glass stamp out the scone, re-roll the patry and cut out more

6. place on the baling tray so they arte just youching (this will give soft sides), brush with beaten egg, milk or sifted flour

7. bake in a hot oven (230c/450f/gas mark 8) for 12=15 minutes or until well risen, golden brown and just firm. turn on to a wire rack and leave to cool

You can make many variations so just add some blueberries and cinnamon to make your favorite ones. we usually have ours with butter and jam (jelly to you) or cream and jam, with a nice cup of tea !

Happy Baking Re: [Neurosarcoidosis EYE PAIN!!!!!!!!!>> Matt,>> I'm concerned about the eye pain. I know that your MD's are watchingyour glaucoma--so I'm

assuming the glaucoma is under control. Has yourOphthalmologist done a "Serial Tonometry" where they have you come inand check your eye pressure in the morning, late morning, mid afternoonand then late afternoon.> This is important as just like the rest of our bodies, eye pressurecan flucuate during the day.> Optic neuritis generally doesn't cause pain--neither doesglaucoma--unless it's sky high.> To wait until you're feeling like you've lost more vision is going tobe too late-- that vision loss may become permanent.> Do you have access to a Neuro-ophthalmologist in Seattle at themedical school. I'd be asking for a referral from the Ophthalmologist.> Is there any changes in your Visual Field tests? This test has severaldifferent ways to read the brain function in regards to vision and anypossible blockages in the way the signal goes to the visual cortex. Ifthere is changes- it could signal that

you've got a problem with thesarc granulomas or with vasculitis interferring with your vision.> How's the blood pressure--do you run high? Is that under control?> Do you have any photophobia? (Light sensitivity). This again is a signof iritis (inflammation of the iris or uveal tract.) Remember that theseare signs of both inflammation of the eyes, and the structures that keepthe intra-ocular pressure down--and keeps you out of an acute glaucomaattack.> (Remember that if you feel like you've got the flu- but no fever andall the other signs, eye pain, headache, nausea-- it's a huge sign thatyour eye pressure is up.)> To have your ophthalmologist blow off the eye pain with your historyis warning to me that you need another type of ophthalmologist that willlook at the sarc history along with the fact that you've had the Yaglaser to reduce eye pressure-- should send RED flags for him to

lookfurther.>> Hope this helps,> Tracie> NS Co-owner/moderator>> ~~~~ *** ~~~ *** ~~~ *** ~~~~> The Neurosarcoidosis Community>> NS CHAT:- Has been cancelled for now.>> Message Archives:-> http://groups.yahoo.com/group/Neurosarcoidosis/messages>> Members Database:-> Listings of locations, phone numbers, and instant messengers.> http://groups.yahoo.com/group/Neurosarcoidosis/database>>

[Guest guest]

Hey Terri

Things are settling down, im feeling better and started back at work, im still having pain and odd things happening but hey its just part of it I suppose, although Ive got an appointment with a dematologist tommorrow about the stretch marks the steroids have given me - I doube they can do anything but im hoping to get a referal to a plastic surgon and I have to see a hematologist on Friday about my consistantly raised white blood cell count (I hope they dont want to do a bone marrow biopy urrg).

Ive pulled out my recipe book for you so heres they recipe for scones:

225g/8oz self raising flour

pinch of salt

50g/2oz butter or margaringe (cut into small pieces)

1 1/2 tablespoons caster sugar

1 egg

5 tablespoons of milk or sour milk

beaten egg or milk to glaze - if you want

1. grease a backing tray or dredge itliberaly with flour

2. sift the flour and salt into a bowl. add the butter and rub in until it resembles bread crumbs ( you can do this in a food processer blasting in short bursts)

3. stir in the sugar. add the egg and enough milk to mix a fairly soft dough using a pallete knife or spatula

4. turn out onto a lightly floured suface and gently flatten the dough to about 2-2.5cm

5. using a well floured plain or fluted cutter of about 4-5cm or an upturned glass stamp out the scone, re-roll the patry and cut out more

6. place on the baling tray so they arte just youching (this will give soft sides), brush with beaten egg, milk or sifted flour

7. bake in a hot oven (230c/450f/gas mark 8) for 12=15 minutes or until well risen, golden brown and just firm. turn on to a wire rack and leave to cool

You can make many variations so just add some blueberries and cinnamon to make your favorite ones. we usually have ours with butter and jam (jelly to you) or cream and jam, with a nice cup of tea !

Happy Baking Re: [Neurosarcoidosis EYE PAIN!!!!!!!!!>> Matt,>> I'm concerned about the eye pain. I know that your MD's are watchingyour glaucoma--so I'm

assuming the glaucoma is under control. Has yourOphthalmologist done a "Serial Tonometry" where they have you come inand check your eye pressure in the morning, late morning, mid afternoonand then late afternoon.> This is important as just like the rest of our bodies, eye pressurecan flucuate during the day.> Optic neuritis generally doesn't cause pain--neither doesglaucoma--unless it's sky high.> To wait until you're feeling like you've lost more vision is going tobe too late-- that vision loss may become permanent.> Do you have access to a Neuro-ophthalmologist in Seattle at themedical school. I'd be asking for a referral from the Ophthalmologist.> Is there any changes in your Visual Field tests? This test has severaldifferent ways to read the brain function in regards to vision and anypossible blockages in the way the signal goes to the visual cortex. Ifthere is changes- it could signal that

you've got a problem with thesarc granulomas or with vasculitis interferring with your vision.> How's the blood pressure--do you run high? Is that under control?> Do you have any photophobia? (Light sensitivity). This again is a signof iritis (inflammation of the iris or uveal tract.) Remember that theseare signs of both inflammation of the eyes, and the structures that keepthe intra-ocular pressure down--and keeps you out of an acute glaucomaattack.> (Remember that if you feel like you've got the flu- but no fever andall the other signs, eye pain, headache, nausea-- it's a huge sign thatyour eye pressure is up.)> To have your ophthalmologist blow off the eye pain with your historyis warning to me that you need another type of ophthalmologist that willlook at the sarc history along with the fact that you've had the Yaglaser to reduce eye pressure-- should send RED flags for him to

lookfurther.>> Hope this helps,> Tracie> NS Co-owner/moderator>> ~~~~ *** ~~~ *** ~~~ *** ~~~~> The Neurosarcoidosis Community>> NS CHAT:- Has been cancelled for now.>> Message Archives:-> http://groups.yahoo.com/group/Neurosarcoidosis/messages>> Members Database:-> Listings of locations, phone numbers, and instant messengers.> http://groups.yahoo.com/group/Neurosarcoidosis/database>>

[Guest guest]

Hey Terri

Things are settling down, im feeling better and started back at work, im still having pain and odd things happening but hey its just part of it I suppose, although Ive got an appointment with a dematologist tommorrow about the stretch marks the steroids have given me - I doube they can do anything but im hoping to get a referal to a plastic surgon and I have to see a hematologist on Friday about my consistantly raised white blood cell count (I hope they dont want to do a bone marrow biopy urrg).

Ive pulled out my recipe book for you so heres they recipe for scones:

225g/8oz self raising flour

pinch of salt

50g/2oz butter or margaringe (cut into small pieces)

1 1/2 tablespoons caster sugar

1 egg

5 tablespoons of milk or sour milk

beaten egg or milk to glaze - if you want

1. grease a backing tray or dredge itliberaly with flour

2. sift the flour and salt into a bowl. add the butter and rub in until it resembles bread crumbs ( you can do this in a food processer blasting in short bursts)

3. stir in the sugar. add the egg and enough milk to mix a fairly soft dough using a pallete knife or spatula

4. turn out onto a lightly floured suface and gently flatten the dough to about 2-2.5cm

5. using a well floured plain or fluted cutter of about 4-5cm or an upturned glass stamp out the scone, re-roll the patry and cut out more

6. place on the baling tray so they arte just youching (this will give soft sides), brush with beaten egg, milk or sifted flour

7. bake in a hot oven (230c/450f/gas mark 8) for 12=15 minutes or until well risen, golden brown and just firm. turn on to a wire rack and leave to cool

You can make many variations so just add some blueberries and cinnamon to make your favorite ones. we usually have ours with butter and jam (jelly to you) or cream and jam, with a nice cup of tea !

Happy Baking Re: [Neurosarcoidosis EYE PAIN!!!!!!!!!>> Matt,>> I'm concerned about the eye pain. I know that your MD's are watchingyour glaucoma--so I'm

assuming the glaucoma is under control. Has yourOphthalmologist done a "Serial Tonometry" where they have you come inand check your eye pressure in the morning, late morning, mid afternoonand then late afternoon.> This is important as just like the rest of our bodies, eye pressurecan flucuate during the day.> Optic neuritis generally doesn't cause pain--neither doesglaucoma--unless it's sky high.> To wait until you're feeling like you've lost more vision is going tobe too late-- that vision loss may become permanent.> Do you have access to a Neuro-ophthalmologist in Seattle at themedical school. I'd be asking for a referral from the Ophthalmologist.> Is there any changes in your Visual Field tests? This test has severaldifferent ways to read the brain function in regards to vision and anypossible blockages in the way the signal goes to the visual cortex. Ifthere is changes- it could signal that

you've got a problem with thesarc granulomas or with vasculitis interferring with your vision.> How's the blood pressure--do you run high? Is that under control?> Do you have any photophobia? (Light sensitivity). This again is a signof iritis (inflammation of the iris or uveal tract.) Remember that theseare signs of both inflammation of the eyes, and the structures that keepthe intra-ocular pressure down--and keeps you out of an acute glaucomaattack.> (Remember that if you feel like you've got the flu- but no fever andall the other signs, eye pain, headache, nausea-- it's a huge sign thatyour eye pressure is up.)> To have your ophthalmologist blow off the eye pain with your historyis warning to me that you need another type of ophthalmologist that willlook at the sarc history along with the fact that you've had the Yaglaser to reduce eye pressure-- should send RED flags for him to

lookfurther.>> Hope this helps,> Tracie> NS Co-owner/moderator>> ~~~~ *** ~~~ *** ~~~ *** ~~~~> The Neurosarcoidosis Community>> NS CHAT:- Has been cancelled for now.>> Message Archives:-> http://groups.yahoo.com/group/Neurosarcoidosis/messages>> Members Database:-> Listings of locations, phone numbers, and instant messengers.> http://groups.yahoo.com/group/Neurosarcoidosis/database>>

[Guest guest]

Clair,

Thanks for the recipe. I have been at the hospital with my neice and I

will write more later. Missing all of you.

Terri

> >

> > Sorry to butt in but optic neuritis can cause very bad pain when you

> have granulomas on the nerve but they cant really tell if there are

> granulomas because of the general swelling. This really is something

> that really concerns me because I have lost my vision in my right eye

> because it wasnt just assumed it was 'normal' optic neuritis and so I

> didnt get treatment quick enough and I have very nearly lost it in my

> left eye 4 times !

> >

> > Re: [Neurosarcoidosis EYE PAIN!!!!!!!!!

> >

> > Matt,

> >

> > I'm concerned about the eye pain. I know that your MD's are watching

> your glaucoma--so I'm assuming the glaucoma is under control. Has your

> Ophthalmologist done a " Serial Tonometry " where they have you come in

> and check your eye pressure in the morning, late morning, mid

afternoon

> and then late afternoon.

> > This is important as just like the rest of our bodies, eye pressure

> can flucuate during the day.

> > Optic neuritis generally doesn't cause pain--neither does

> glaucoma--unless it's sky high.

> > To wait until you're feeling like you've lost more vision is going

to

> be too late-- that vision loss may become permanent.

> > Do you have access to a Neuro-ophthalmologist in Seattle at the

> medical school. I'd be asking for a referral from the Ophthalmologist.

> > Is there any changes in your Visual Field tests? This test has

several

> different ways to read the brain function in regards to vision and any

> possible blockages in the way the signal goes to the visual cortex. If

> there is changes- it could signal that you've got a problem with the

> sarc granulomas or with vasculitis interferring with your vision.

> > How's the blood pressure--do you run high? Is that under control?

> > Do you have any photophobia? (Light sensitivity). This again is a

sign

> of iritis (inflammation of the iris or uveal tract.) Remember that

these

> are signs of both inflammation of the eyes, and the structures that

keep

> the intra-ocular pressure down--and keeps you out of an acute glaucoma

> attack.

> > (Remember that if you feel like you've got the flu- but no fever and

> all the other signs, eye pain, headache, nausea-- it's a huge sign

that

> your eye pressure is up.)

> > To have your ophthalmologist blow off the eye pain with your history

> is warning to me that you need another type of ophthalmologist that

will

> look at the sarc history along with the fact that you've had the Yag

> laser to reduce eye pressure-- should send RED flags for him to look

> further.

> >

> > Hope this helps,

> > Tracie

> > NS Co-owner/moderator

> >

> > ~~~~ *** ~~~ *** ~~~ *** ~~~~

> > The Neurosarcoidosis Community

> >

> > NS CHAT:- Has been cancelled for now.

> >

> > Message Archives:-

> > http://groups.yahoo.com/group/Neurosarcoidosis/messages

> >

> > Members Database:-

> > Listings of locations, phone numbers, and instant messengers.

> > http://groups.yahoo.com/group/Neurosarcoidosis/database

> >

> >

[Guest guest]

Terri, I must have missed something. What's going on with your niece? Nothing serious, I hope. Hugs to both of you!

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: [Neurosarcoidosis EYE PAIN!!!!!!!!!Date: Mon, 22 May 2006 13:47:15 -0000Clair,Thanks for the recipe. I have been at the hospital with my neice and Iwill write more later. Missing all of you.Terri> >> > Sorry to butt in but optic neuritis can cause very bad pain when you> have granulomas on the nerve but they cant really tell if there are> granulomas because of the general swelling. This really is something> that really concerns me because I have lost my vision in my right eye> because it wasnt just assumed it was 'normal' optic neuritis and so I> didnt get treatment quick enough and I have very nearly lost it in my> left eye 4 times !> >> > Re: [Neurosarcoidosis EYE PAIN!!!!!!!!!> >> > Matt,> >> > I'm concerned about the eye pain. I know that your MD's are watching> your glaucoma--so I'm assuming the glaucoma is under control. Has your> Ophthalmologist done a "Serial Tonometry" where they have you come in> and check your eye pressure in the morning, late morning, midafternoon> and then late afternoon.> > This is important as just like the rest of our bodies, eye pressure> can flucuate during the day.> > Optic neuritis generally doesn't cause pain--neither does> glaucoma--unless it's sky high.> > To wait until you're feeling like you've lost more vision is goingto> be too late-- that vision loss may become permanent.> > Do you have access to a Neuro-ophthalmologist in Seattle at the> medical school. I'd be asking for a referral from the Ophthalmologist.> > Is there any changes in your Visual Field tests? This test hasseveral> different ways to read the brain function in regards to vision and any> possible blockages in the way the signal goes to the visual cortex. If> there is changes- it could signal that you've got a problem with the> sarc granulomas or with vasculitis interferring with your vision.> > How's the blood pressure--do you run high? Is that under control?> > Do you have any photophobia? (Light sensitivity). This again is asign> of iritis (inflammation of the iris or uveal tract.) Remember thatthese> are signs of both inflammation of the eyes, and the structures thatkeep> the intra-ocular pressure down--and keeps you out of an acute glaucoma> attack.> > (Remember that if you feel like you've got the flu- but no fever and> all the other signs, eye pain, headache, nausea-- it's a huge signthat> your eye pressure is up.)> > To have your ophthalmologist blow off the eye pain with your history> is warning to me that you need another type of ophthalmologist thatwill> look at the sarc history along with the fact that you've had the Yag> laser to reduce eye pressure-- should send RED flags for him to look> further.> >> > Hope this helps,> > Tracie> > NS Co-owner/moderator> >> > ~~~~ *** ~~~ *** ~~~ *** ~~~~> > The Neurosarcoidosis Community> >> > NS CHAT:- Has been cancelled for now.> >> > Message Archives:-> > http://groups.yahoo.com/group/Neurosarcoidosis/messages> >> > Members Database:-> > Listings of locations, phone numbers, and instant messengers.> > http://groups.yahoo.com/group/Neurosarcoidosis/database> >> >

[Guest guest]

Terri, I must have missed something. What's going on with your niece? Nothing serious, I hope. Hugs to both of you!

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: [Neurosarcoidosis EYE PAIN!!!!!!!!!Date: Mon, 22 May 2006 13:47:15 -0000Clair,Thanks for the recipe. I have been at the hospital with my neice and Iwill write more later. Missing all of you.Terri> >> > Sorry to butt in but optic neuritis can cause very bad pain when you> have granulomas on the nerve but they cant really tell if there are> granulomas because of the general swelling. This really is something> that really concerns me because I have lost my vision in my right eye> because it wasnt just assumed it was 'normal' optic neuritis and so I> didnt get treatment quick enough and I have very nearly lost it in my> left eye 4 times !> >> > Re: [Neurosarcoidosis EYE PAIN!!!!!!!!!> >> > Matt,> >> > I'm concerned about the eye pain. I know that your MD's are watching> your glaucoma--so I'm assuming the glaucoma is under control. Has your> Ophthalmologist done a "Serial Tonometry" where they have you come in> and check your eye pressure in the morning, late morning, midafternoon> and then late afternoon.> > This is important as just like the rest of our bodies, eye pressure> can flucuate during the day.> > Optic neuritis generally doesn't cause pain--neither does> glaucoma--unless it's sky high.> > To wait until you're feeling like you've lost more vision is goingto> be too late-- that vision loss may become permanent.> > Do you have access to a Neuro-ophthalmologist in Seattle at the> medical school. I'd be asking for a referral from the Ophthalmologist.> > Is there any changes in your Visual Field tests? This test hasseveral> different ways to read the brain function in regards to vision and any> possible blockages in the way the signal goes to the visual cortex. If> there is changes- it could signal that you've got a problem with the> sarc granulomas or with vasculitis interferring with your vision.> > How's the blood pressure--do you run high? Is that under control?> > Do you have any photophobia? (Light sensitivity). This again is asign> of iritis (inflammation of the iris or uveal tract.) Remember thatthese> are signs of both inflammation of the eyes, and the structures thatkeep> the intra-ocular pressure down--and keeps you out of an acute glaucoma> attack.> > (Remember that if you feel like you've got the flu- but no fever and> all the other signs, eye pain, headache, nausea-- it's a huge signthat> your eye pressure is up.)> > To have your ophthalmologist blow off the eye pain with your history> is warning to me that you need another type of ophthalmologist thatwill> look at the sarc history along with the fact that you've had the Yag> laser to reduce eye pressure-- should send RED flags for him to look> further.> >> > Hope this helps,> > Tracie> > NS Co-owner/moderator> >> > ~~~~ *** ~~~ *** ~~~ *** ~~~~> > The Neurosarcoidosis Community> >> > NS CHAT:- Has been cancelled for now.> >> > Message Archives:-> > http://groups.yahoo.com/group/Neurosarcoidosis/messages> >> > Members Database:-> > Listings of locations, phone numbers, and instant messengers.> > http://groups.yahoo.com/group/Neurosarcoidosis/database> >> >