Re: [Neurosarcoidosis EYE PAIN!!!!!!!!!

[Guest guest]

Clair,

Thanks for the recipe. I have been at the hospital with my neice and I

will write more later. Missing all of you.

Terri

> >

> > Sorry to butt in but optic neuritis can cause very bad pain when you

> have granulomas on the nerve but they cant really tell if there are

> granulomas because of the general swelling. This really is something

> that really concerns me because I have lost my vision in my right eye

> because it wasnt just assumed it was 'normal' optic neuritis and so I

> didnt get treatment quick enough and I have very nearly lost it in my

> left eye 4 times !

> >

> > Re: [Neurosarcoidosis EYE PAIN!!!!!!!!!

> >

> > Matt,

> >

> > I'm concerned about the eye pain. I know that your MD's are watching

> your glaucoma--so I'm assuming the glaucoma is under control. Has your

> Ophthalmologist done a " Serial Tonometry " where they have you come in

> and check your eye pressure in the morning, late morning, mid

afternoon

> and then late afternoon.

> > This is important as just like the rest of our bodies, eye pressure

> can flucuate during the day.

> > Optic neuritis generally doesn't cause pain--neither does

> glaucoma--unless it's sky high.

> > To wait until you're feeling like you've lost more vision is going

to

> be too late-- that vision loss may become permanent.

> > Do you have access to a Neuro-ophthalmologist in Seattle at the

> medical school. I'd be asking for a referral from the Ophthalmologist.

> > Is there any changes in your Visual Field tests? This test has

several

> different ways to read the brain function in regards to vision and any

> possible blockages in the way the signal goes to the visual cortex. If

> there is changes- it could signal that you've got a problem with the

> sarc granulomas or with vasculitis interferring with your vision.

> > How's the blood pressure--do you run high? Is that under control?

> > Do you have any photophobia? (Light sensitivity). This again is a

sign

> of iritis (inflammation of the iris or uveal tract.) Remember that

these

> are signs of both inflammation of the eyes, and the structures that

keep

> the intra-ocular pressure down--and keeps you out of an acute glaucoma

> attack.

> > (Remember that if you feel like you've got the flu- but no fever and

> all the other signs, eye pain, headache, nausea-- it's a huge sign

that

> your eye pressure is up.)

> > To have your ophthalmologist blow off the eye pain with your history

> is warning to me that you need another type of ophthalmologist that

will

> look at the sarc history along with the fact that you've had the Yag

> laser to reduce eye pressure-- should send RED flags for him to look

> further.

> >

> > Hope this helps,

> > Tracie

> > NS Co-owner/moderator

> >

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