Just cause you all understand

[Guest guest]

Hello all

I don't post - usually just read to see everyones experience, but I am

hopping mad and you all understand. My husband is having a " flare " I

guess, still on eyedrops for uveitis, but not breathing well - so I

take him to primary Dr. (can't get in to pulmonary til March 12!!!)

Ask Dr to take some blood test - His ACE is 254, along w/ 3 other

liver related high #'s. He is not currently on any meds so I call

back and push my way through to Pulm's secretary and she says she can

squeeze him in Feb 22. Still not good enough so I am hoing for a call

from him after faxing over lab results. I hate to be so pushy - not

my nature - but they leave you no choice. My husband is content to

curl up and let the sarc take over, but we have 2 little girls and it

is not okay with me. Wish he would read here and see he is not alone,

but the Dr. says every case of sarc is different so he is convinced no

one else suffers like he does. I know my story is nothing new, but

helps to vent - thanks