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Re: Red face?

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>What is autonomic dysfunction?

It is when the brain does not do a good job regulating the functions that

we don't consciously control--like blood pressure, temperature, and heart

rate. There seem to be a lot of our kids who have problems with

autonomic dysfunction.

-- Mom to:

Emilie (17), mito--complex IV, cp, ld

Kaitlin (17), cp, asthma, a few autonomic symptoms

Ian (22) migraines

....and wife to Tim, who has a heart of gold

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We have been noticing this with Will lately too, the other thing we see is

that his fingernail beds are the same bright red as his cheeks. It's so bad

at times you can see the capillaries in his cheeks.

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We have been noticing this with Will lately too, the other thing we see is

that his fingernail beds are the same bright red as his cheeks. It's so bad

at times you can see the capillaries in his cheeks.

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We have discovered by trial and error that cooling will cause

the red cheeks and ears to return to their normal color. He will be

flushed even with his hands and feet cold to the touch. The doctor

told us that the dysautonomia is usually a problem if it shows up as

gi or heart problems. His oxygen, blood pressure and temperature are

usually near normal during his flushed times. It does increase his

fatigue level very much, which is why we don't just leave him that

way. If we cool him off he can stick with the day a lot better.

Twana

> A couple of my girls have the bright red cheeks. ...> Emilie

goes through cycles of having a flushed face nearly every day for

> weeks. msn.com

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We have discovered by trial and error that cooling will cause

the red cheeks and ears to return to their normal color. He will be

flushed even with his hands and feet cold to the touch. The doctor

told us that the dysautonomia is usually a problem if it shows up as

gi or heart problems. His oxygen, blood pressure and temperature are

usually near normal during his flushed times. It does increase his

fatigue level very much, which is why we don't just leave him that

way. If we cool him off he can stick with the day a lot better.

Twana

> A couple of my girls have the bright red cheeks. ...> Emilie

goes through cycles of having a flushed face nearly every day for

> weeks. msn.com

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We have discovered by trial and error that cooling will cause

the red cheeks and ears to return to their normal color. He will be

flushed even with his hands and feet cold to the touch. The doctor

told us that the dysautonomia is usually a problem if it shows up as

gi or heart problems. His oxygen, blood pressure and temperature are

usually near normal during his flushed times. It does increase his

fatigue level very much, which is why we don't just leave him that

way. If we cool him off he can stick with the day a lot better.

Twana

> A couple of my girls have the bright red cheeks. ...> Emilie

goes through cycles of having a flushed face nearly every day for

> weeks. msn.com

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I see this in Chelsea when she is cutting teeth or has an ear infection. Her cheeks and sometimes her chin are flame red and hot to the touch. It does not seem painful to her, but often, seizures and CNS sensitivity will accompany the redness. I wonder if it is an immune/inflammatory response. None of her drs have given any specific answers.

e, Chelsea's mom(nopnspecific mito)

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