Re: remicade infusion today - another one bites the dust i guess

[Guest guest]

Dear Kim -- I am so sorry this happened.......I know you must have been so scared. I am really worried about my allergies also, but we will see. My first infusion will be on

Thursday April 6th. I was so hoping this would be the answer you need but I guess

it was not meant to be. Hopefully they will find something else to try.......DO NOT

GIVE UP HOPE! We need you here to help us and we love you, so .........you

stay focused on finding another medicine and know that we love you and are sending

good thoughts, prayers, and lots and lots of hugs and love............

Hang in there.......

Love ya,

Darlene

NS Co-Owner/Moderator

remicade infusion today - another one bites the dust i guess

Well - so is my luck. I had my second remicade infusion today, or tried to have it. Within 15 minutes of starting the infusion I had a really bad allergic reaction to it. It started with severe pain in my chest and shortness of breath and lungs wouldnt move at all then the pounding heart and the awful taste in my mouth and severe chills and some shivering. They did at least act very quickly because at least I was talking to the nurse at the very moment it happened thank god for that. But the thing is they administered whatever they did to make it okay and after 40 minutes or so the team of neuros, against the ers drs insistance, decided to try and give me the remicade again with a higher dose of iv steroids to see if it would help me tolerate the medication. within a couple minutes the heavy heavy awful chest pain started again and the terrible taste in my mouth and the stopped the medication infusion immediately. it was a terrifying event. i thought i was going to die to be honest. i dont think i have ever been more frightened.

i still feel horrid and have some troubles. things didnt go well with the drs either. long sotry im not up for telling.

and now i dont know what i will do for medication.......... back to square one.

love to you all,

kim

nsmoderator

Yahoo! Messenger with Voice. PC-to-Phone calls for ridiculously low rates.

[Guest guest]

Kim,

I am sorry to hear what happened. You had to fight soooo hard just to

get the remicade and they you react to it - twice. Dear Kim, I am so

sorry you are having such a problem. Please know that I think about you

and pray for you. What does not kill us just makes us stronger....or so

I have been told. What do you think.

Well, I am sending lots of love and healing your way.

Terri G.

>

> Well - so is my luck. I had my second remicade infusion today, or

tried to have it. Within 15 minutes of starting the infusion I had a

really bad allergic reaction to it. It started with severe pain in my

chest and shortness of breath and lungs wouldnt move at all then the

pounding heart and the awful taste in my mouth and severe chills and

some shivering. They did at least act very quickly because at least I

was talking to the nurse at the very moment it happened thank god for

that. But the thing is they administered whatever they did to make it

okay and after 40 minutes or so the team of neuros, against the ers drs

insistance, decided to try and give me the remicade again with a higher

dose of iv steroids to see if it would help me tolerate the medication.

within a couple minutes the heavy heavy awful chest pain started again

and the terrible taste in my mouth and the stopped the medication

infusion immediately. it was a terrifying event. i thought i was going

to

> die to be honest. i dont think i have ever been more frightened.

>

> i still feel horrid and have some troubles. things didnt go well with

the drs either. long sotry im not up for telling.

>

> and now i dont know what i will do for medication.......... back to

square one.

>

> love to you all,

> kim

> nsmoderator

>

>

> ---------------------------------

> Yahoo! Messenger with Voice. PC-to-Phone calls for ridiculously low

rates.

>

[Guest guest]

Kim,

I am sorry to hear what happened. You had to fight soooo hard just to

get the remicade and they you react to it - twice. Dear Kim, I am so

sorry you are having such a problem. Please know that I think about you

and pray for you. What does not kill us just makes us stronger....or so

I have been told. What do you think.

Well, I am sending lots of love and healing your way.

Terri G.

>

> Well - so is my luck. I had my second remicade infusion today, or

tried to have it. Within 15 minutes of starting the infusion I had a

really bad allergic reaction to it. It started with severe pain in my

chest and shortness of breath and lungs wouldnt move at all then the

pounding heart and the awful taste in my mouth and severe chills and

some shivering. They did at least act very quickly because at least I

was talking to the nurse at the very moment it happened thank god for

that. But the thing is they administered whatever they did to make it

okay and after 40 minutes or so the team of neuros, against the ers drs

insistance, decided to try and give me the remicade again with a higher

dose of iv steroids to see if it would help me tolerate the medication.

within a couple minutes the heavy heavy awful chest pain started again

and the terrible taste in my mouth and the stopped the medication

infusion immediately. it was a terrifying event. i thought i was going

to

> die to be honest. i dont think i have ever been more frightened.

>

> i still feel horrid and have some troubles. things didnt go well with

the drs either. long sotry im not up for telling.

>

> and now i dont know what i will do for medication.......... back to

square one.

>

> love to you all,

> kim

> nsmoderator

>

>

> ---------------------------------

> Yahoo! Messenger with Voice. PC-to-Phone calls for ridiculously low

rates.

>

[Guest guest]

Kim....my prayers are with you and you are in my thoughts. It is so

sad that we have to put such potient drugs into our bodies to try to

stop this illness! Keep in touch! Love n prayers Ruth

>

> Well - so is my luck. I had my second remicade infusion today, or

tried to have it. Within 15 minutes of starting the infusion I had

a really bad allergic reaction to it. It started with severe pain

in my chest and shortness of breath and lungs wouldnt move at all

then the pounding heart and the awful taste in my mouth and severe

chills and some shivering. They did at least act very quickly

because at least I was talking to the nurse at the very moment it

happened thank god for that. But the thing is they administered

whatever they did to make it okay and after 40 minutes or so the

team of neuros, against the ers drs insistance, decided to try and

give me the remicade again with a higher dose of iv steroids to see

if it would help me tolerate the medication. within a couple

minutes the heavy heavy awful chest pain started again and the

terrible taste in my mouth and the stopped the medication infusion

immediately. it was a terrifying event. i thought i was going to

> die to be honest. i dont think i have ever been more frightened.

>

> i still feel horrid and have some troubles. things didnt go well

with the drs either. long sotry im not up for telling.

>

> and now i dont know what i will do for medication.......... back

to square one.

>

> love to you all,

> kim

> nsmoderator

>

>

> ---------------------------------

> Yahoo! Messenger with Voice. PC-to-Phone calls for ridiculously

low rates.

>

[Guest guest]

Kim....my prayers are with you and you are in my thoughts. It is so

sad that we have to put such potient drugs into our bodies to try to

stop this illness! Keep in touch! Love n prayers Ruth

>

> Well - so is my luck. I had my second remicade infusion today, or

tried to have it. Within 15 minutes of starting the infusion I had

a really bad allergic reaction to it. It started with severe pain

in my chest and shortness of breath and lungs wouldnt move at all

then the pounding heart and the awful taste in my mouth and severe

chills and some shivering. They did at least act very quickly

because at least I was talking to the nurse at the very moment it

happened thank god for that. But the thing is they administered

whatever they did to make it okay and after 40 minutes or so the

team of neuros, against the ers drs insistance, decided to try and

give me the remicade again with a higher dose of iv steroids to see

if it would help me tolerate the medication. within a couple

minutes the heavy heavy awful chest pain started again and the

terrible taste in my mouth and the stopped the medication infusion

immediately. it was a terrifying event. i thought i was going to

> die to be honest. i dont think i have ever been more frightened.

>

> i still feel horrid and have some troubles. things didnt go well

with the drs either. long sotry im not up for telling.

>

> and now i dont know what i will do for medication.......... back

to square one.

>

> love to you all,

> kim

> nsmoderator

>

>

> ---------------------------------

> Yahoo! Messenger with Voice. PC-to-Phone calls for ridiculously

low rates.

>