Guest guest Posted January 30, 2004 Report Share Posted January 30, 2004 They also did a photosensitivity test and they seized during that too. Kim, Were these also myoclonics or another type of seizure? My daughter did not show photosensitivity on her EEG, but she definatly is now. If you have any ?'s, let me know. Glad you are getting some answers! e, Chelsea's mom(nonspecific mito) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2004 Report Share Posted January 30, 2004 Kim, Sorry I didn't get a chance to meet up with you or even call. I had conferences both Monday and Wed. of this week along with taking the kids to music class on Tuesday. By Thursday I was fried. And today our PCA called in sick. It is never ending. Hopefully the Klonipin will start to help. I'm glad they were able to give you some answers. Geri-Anne > Hello all. We had our 24 hour video EEG for and Lindsey and found out that we are seeing all myoclonic seizures. They also did a photosensitivity test and they seized during that too. They are having a large number of myoclonics in their sleep in addition to what we see during the day. I guess this answers our question if the episodes are myoclonus or seizures. We started Klonipin tonight and are hoping this will be the answer to our prayers. > > Kim - Mom to and Lindsey - (2) Partial Complex I Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2004 Report Share Posted January 30, 2004 Kim, Sorry I didn't get a chance to meet up with you or even call. I had conferences both Monday and Wed. of this week along with taking the kids to music class on Tuesday. By Thursday I was fried. And today our PCA called in sick. It is never ending. Hopefully the Klonipin will start to help. I'm glad they were able to give you some answers. Geri-Anne > Hello all. We had our 24 hour video EEG for and Lindsey and found out that we are seeing all myoclonic seizures. They also did a photosensitivity test and they seized during that too. They are having a large number of myoclonics in their sleep in addition to what we see during the day. I guess this answers our question if the episodes are myoclonus or seizures. We started Klonipin tonight and are hoping this will be the answer to our prayers. > > Kim - Mom to and Lindsey - (2) Partial Complex I Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2004 Report Share Posted January 30, 2004 Kim, Sorry I didn't get a chance to meet up with you or even call. I had conferences both Monday and Wed. of this week along with taking the kids to music class on Tuesday. By Thursday I was fried. And today our PCA called in sick. It is never ending. Hopefully the Klonipin will start to help. I'm glad they were able to give you some answers. Geri-Anne > Hello all. We had our 24 hour video EEG for and Lindsey and found out that we are seeing all myoclonic seizures. They also did a photosensitivity test and they seized during that too. They are having a large number of myoclonics in their sleep in addition to what we see during the day. I guess this answers our question if the episodes are myoclonus or seizures. We started Klonipin tonight and are hoping this will be the answer to our prayers. > > Kim - Mom to and Lindsey - (2) Partial Complex I Quote Link to comment Share on other sites More sharing options...
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