Re: Energy Foods????

[Guest guest]

I't is so weird to see all of the little ones do the same things Colby did when he was little. Boy, do I wish I would of had a support group to talk to then. Colby, started gaining weight when he was about 7 yrs old, but he didn't stop. He didn't ever grow in length, so his growth is severely stunted and he has a stomach that looks like he is 9 mo pregnant. His thyroid doesn't work at all so he will be on meds, for that, forever. When he was little, he threw up all the time and was so tiny. The idiot E.R. Dr.'s always put failure to thrive, then they would look at me and say well your not very big maybe he just takes after you. SCREAM! Anyway, he always used to get sick on weekends and still does. He still throws up alot, but is just to big in the tummy. Sorry!

mom to Colby,13,COXIV,LCHAD,ACC,ADHD ,hypothroidism and osteopenia. Chad, 16, healthy, Caleb, 10, also healthy>From: Stacey Fleming >Reply-To: Mito >To: Mito >Subject: Re: Energy Foods???? >Date: Wed, 10 Mar 2004 18:48:37 -0500 > >I know this isn't much help but we are having the same problem. >Sheldon hasn't been eating much recently and since he was sick >recently he's lost a pound and a half. He also has his therapies in >the morning and always takes a long time to wake up, he has the most >energy in the evening. He eats very little in the morning, I don't >know if he's too tired to eat or why he doesn't eat in the morning. >I think we need to try high fat foods but since he's been vomiting >we're avoiding foods like that until his stomach is more ready for >them. I never know what to feed him. > > >>We are having a really hard time with getting to eat lately. >>And his energy level is really suffering from it. He has lost >>about >>2 1/2 pounds in a month, I know that is not much, yet it sure is >>not >>normal. Most of his therapies are in the morning, and he is just >>too >>tired to get anything out of it. >>He will be going to Kindergarden next year, so I am really worried. >>Are there certain foods that are considered to be energy foods? >>Is there certain foods that have helped you? >>Any help would be great! >>Tamara(Mommy of 4 year old , unspecific Mito) >> >> >> >>Please contact mito-owner with any problems or >>questions. >> >> >>

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Tamara

Colby is nearly 14 now, but he used to be very tiny. We used to add all kinds of things to his food and formula. There was some kind of sugary powder we used, but I cannot remember what it was. He did start growing in weight not in length, so now he looks like those little old men that have to wear suspenders to keep their pants up! It never ends! Good Luck and ask your doctor if you can speak to a dietician, we worked quite closely with one years ago.

mom to Colby,13,COXIV,LCHAD,ACC,ADHD ,hypothroidism and osteopenia. Chad, 16, healthy, Caleb, 10, also healthy>From: "fairgrovejoe" >Reply-To: Mito >To: Mito >Subject: Energy Foods???? >Date: Wed, 10 Mar 2004 23:41:37 -0000 > >We are having a really hard time with getting to eat lately. >And his energy level is really suffering from it. He has lost about >2 1/2 pounds in a month, I know that is not much, yet it sure is not >normal. Most of his therapies are in the morning, and he is just too >tired to get anything out of it. >He will be going to Kindergarden next year, so I am really worried. >Are there certain foods that are considered to be energy foods? >Is there certain foods that have helped you? >Any help would be great! >Tamara(Mommy of 4 year old , unspecific Mito) > > > >Please contact mito-owner with any problems or questions. >

[Guest guest]

We use Pediasure when Gracie is not eating well. This will usually sustain her while she is not eating. I have noticed adding Carnation Instant Breakfast to her milk works really good, and they just think you are being nice and giving them chocolate milk. Only warning is both of these contains milk, just for allergy sake. We used to have a lot of problems with that. Another suggestion is eggs. Gracie loves scrambled eggs, and eats them well. There are many days where she will eat only eggs or cheese the whole day. We give her what she wants on those days, anything so she eats. Best of luck, I feel your pain.

[Guest guest]

We use Pediasure when Gracie is not eating well. This will usually sustain her while she is not eating. I have noticed adding Carnation Instant Breakfast to her milk works really good, and they just think you are being nice and giving them chocolate milk. Only warning is both of these contains milk, just for allergy sake. We used to have a lot of problems with that. Another suggestion is eggs. Gracie loves scrambled eggs, and eats them well. There are many days where she will eat only eggs or cheese the whole day. We give her what she wants on those days, anything so she eats. Best of luck, I feel your pain.

[Guest guest]

Leah goes through her ups and downs with eating. I believe she gained

a pound this past month. At least it feels that way. Either

that or she is growing and she feels heavier. Any way, we try to

feed Leah many small meals throughout the day; if at all possible.

But please meet with a dietician. They will be able to guide you

in the right direction for good foods. Some kids on this list are

on different diets. If you aren't that is great. We usually cut up

Leah's food small pieces so she can feed herself. But like last night

she had two slices of pizza, half a can of cut green beans, and 1/4 can

of mandarian oranges. She has no eating issues. Now she wants

her pizza in slices instead of cut up. She loves cheese and because

we monitor her fat intake as much as possible, we get low fat cheese.

Like this morning she had 4 oz of rice milk and then about 30 minutes later

she had several slices of cheese, 1/4 can of mandarian oranges and one

slice of lightly buttered bread. So she is back to eating real well.

We get the Gerber baby fruit sauces in those little plastic containers.

One of the mixed fruit has about 100 calories in about 1/4 cup. She

loves applesauce and those are easier to haul around than the jars.

Fruit isa good energy booster. How about bananas. We have gotten

to the point that if Leah does better eating while doing the computer and

me hand feeding her, I will do that just to get food in her. She

loves tv so she watches tv while eating in her high chair. Some times

we let her eat on the couch sitting up. How about yogurt? you

can get those energy drinks, but always check with a dietician before giving

your child any thing like that. The sugary powder that we give Leah

in her rice milk; especially when she is getting ill is called Polycose.

At least that is what we use. And you can mix it with foods, too.

Because we may have to limit Leah's protein also, that is why we discontinued

Pedisure. But that has good vitamins and calories in it. But

try smaller meals through out the day. Find out when he has the most

energy to eat. Can he point or tell you verbally what he would like

to eat. We've held Leah in front of the pantry and have her pick

out her stuff to eat. She recognizes the labels. Even in the

frig we have done that. Good luck and let us know what you find out

and what works for you. It's neat how this group shares and when

we try some thing that some one else suggests its like a lightbulb goes

off in our heads and we can also say, yeah it worked. Thanks.

Nerenhausen

mom to Leah

AReckling@... wrote:

Hi,

I don't know about high energy foods,

I can only say that we've had the same problem with Asher (still undiagnosed,

though) and he just got a g-tube last week. I've already seen an improvement

in his energy with the g-tube and night feedings. Plus, when he won't eat

or drink during the day, I can supplement with Pediasure. He's on Alimentum

at night.

Anne R

Please contact mito-owner

with any problems or questions.

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