Guest guest Posted April 18, 2004 Report Share Posted April 18, 2004 Dorothy, Is it possible that maybe it is allergy related? esp. of it is worse after being at the zoo? I know snores at two different times 1) when she has a cold 2) when she is reallyyyyyy tired. If she is completely exhausted she will snore at a horrible level. I do think that some suffer sleep problems (apnea etc) which I think snoring can be a symptom of. Have you done a sleep study? I hope you figure it out, but with all mito stuff, you just might not. If he doesn't seem to be affected daily, maybe it is not something to worry about. Who knows. Good luck. Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2004 Report Share Posted April 18, 2004 Dorothy, Is it possible that maybe it is allergy related? esp. of it is worse after being at the zoo? I know snores at two different times 1) when she has a cold 2) when she is reallyyyyyy tired. If she is completely exhausted she will snore at a horrible level. I do think that some suffer sleep problems (apnea etc) which I think snoring can be a symptom of. Have you done a sleep study? I hope you figure it out, but with all mito stuff, you just might not. If he doesn't seem to be affected daily, maybe it is not something to worry about. Who knows. Good luck. Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2004 Report Share Posted April 18, 2004 Dorothy, Is it possible that maybe it is allergy related? esp. of it is worse after being at the zoo? I know snores at two different times 1) when she has a cold 2) when she is reallyyyyyy tired. If she is completely exhausted she will snore at a horrible level. I do think that some suffer sleep problems (apnea etc) which I think snoring can be a symptom of. Have you done a sleep study? I hope you figure it out, but with all mito stuff, you just might not. If he doesn't seem to be affected daily, maybe it is not something to worry about. Who knows. Good luck. Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2004 Report Share Posted April 18, 2004 Dorothy; Your question isn't strange!!! It is legitimate and is one that adults have discussed as commonly occurring! Obstructive sleep apnea is common in the adults with Mito because the musculature at the back of the oral cavity has become weaker and the airway gets obstructed during sleep when the muscles relax. This causes snoring ...or, at least, is ONE cause of snoring. In obstructive sleep apnea, when the airway becomes blocked, the level of oxygen in the blood falls ... and, as a consequence, the availability of oxygen to fuel the energy-making function of the mitochondria, during their restorative time during sleep, is severly hampered! This causes even more daytime sleepiness. A sleep study is a possibility ... but a simpler at home test using the finger clamp attached to a machine which monitors blood oxygen levels and respiration all night long is a good place to start since it is patient friendly! The machine will supply the doctor with a print out of the night-long blood oxygen and respirations and will document the "events" of low blood oxygen .... and even waking! You may have to go to a pulmonologist for help. Good luck! Getting the oxygen to the mitochondria is important! I use a CPAP (Continuous Pulmonary Air Pressure) machine at night. I wear a mask attached with a tube to a machine, which takes the outside air and blows it through my nose and *physically* bipasses the obstruction at the back of the throat. Some others use a BiPAP. The BiPAP blows air and then stops thereby allowing weakened lungs to expel the air. This bipasses the obstruction AND encourages a breathing pattern. This is why it is called "Bi" PAP! Hope this info helps. If I can answer more questions, please ask. Jean Dorothy Lincoln wrote: Ok...I know it's a strange question... but I have to ask... As it just started happening... and it's getting worse. Over the past 3 months, has started snoring VERY LOUDLY!! It never happened before... The only other time I can recall her snoring is... when she was ill with a SERIOUS cold. She's NOT sick. She doesn't have a cold or anything. She seems to be in perfect health (for her) I know not everything has to be MITO related but I was wondering... Does anyone else have these problems? She never snored before... Now it's EVERY night. Yes, sometimes, it's louder than other nights. We went to the zoo yesterday and last night was one of her worst nights... Makes me wonder... Is it possible to have problems breathing at night that would cause a snore after a very busy day the day before?? And should I be concerned and have her checked? The doctors is going to look at me like I am crazy... but oh well, they always do That's the MITO curse I think. I figured I would bounce it off the group before I took her in. I'm looking forward to some feedback. D Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2004 Report Share Posted April 18, 2004 Dorothy; Your question isn't strange!!! It is legitimate and is one that adults have discussed as commonly occurring! Obstructive sleep apnea is common in the adults with Mito because the musculature at the back of the oral cavity has become weaker and the airway gets obstructed during sleep when the muscles relax. This causes snoring ...or, at least, is ONE cause of snoring. In obstructive sleep apnea, when the airway becomes blocked, the level of oxygen in the blood falls ... and, as a consequence, the availability of oxygen to fuel the energy-making function of the mitochondria, during their restorative time during sleep, is severly hampered! This causes even more daytime sleepiness. A sleep study is a possibility ... but a simpler at home test using the finger clamp attached to a machine which monitors blood oxygen levels and respiration all night long is a good place to start since it is patient friendly! The machine will supply the doctor with a print out of the night-long blood oxygen and respirations and will document the "events" of low blood oxygen .... and even waking! You may have to go to a pulmonologist for help. Good luck! Getting the oxygen to the mitochondria is important! I use a CPAP (Continuous Pulmonary Air Pressure) machine at night. I wear a mask attached with a tube to a machine, which takes the outside air and blows it through my nose and *physically* bipasses the obstruction at the back of the throat. Some others use a BiPAP. The BiPAP blows air and then stops thereby allowing weakened lungs to expel the air. This bipasses the obstruction AND encourages a breathing pattern. This is why it is called "Bi" PAP! Hope this info helps. If I can answer more questions, please ask. Jean Dorothy Lincoln wrote: Ok...I know it's a strange question... but I have to ask... As it just started happening... and it's getting worse. Over the past 3 months, has started snoring VERY LOUDLY!! It never happened before... The only other time I can recall her snoring is... when she was ill with a SERIOUS cold. She's NOT sick. She doesn't have a cold or anything. She seems to be in perfect health (for her) I know not everything has to be MITO related but I was wondering... Does anyone else have these problems? She never snored before... Now it's EVERY night. Yes, sometimes, it's louder than other nights. We went to the zoo yesterday and last night was one of her worst nights... Makes me wonder... Is it possible to have problems breathing at night that would cause a snore after a very busy day the day before?? And should I be concerned and have her checked? The doctors is going to look at me like I am crazy... but oh well, they always do That's the MITO curse I think. I figured I would bounce it off the group before I took her in. I'm looking forward to some feedback. D Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2004 Report Share Posted April 18, 2004 Dorothy; Your question isn't strange!!! It is legitimate and is one that adults have discussed as commonly occurring! Obstructive sleep apnea is common in the adults with Mito because the musculature at the back of the oral cavity has become weaker and the airway gets obstructed during sleep when the muscles relax. This causes snoring ...or, at least, is ONE cause of snoring. In obstructive sleep apnea, when the airway becomes blocked, the level of oxygen in the blood falls ... and, as a consequence, the availability of oxygen to fuel the energy-making function of the mitochondria, during their restorative time during sleep, is severly hampered! This causes even more daytime sleepiness. A sleep study is a possibility ... but a simpler at home test using the finger clamp attached to a machine which monitors blood oxygen levels and respiration all night long is a good place to start since it is patient friendly! The machine will supply the doctor with a print out of the night-long blood oxygen and respirations and will document the "events" of low blood oxygen .... and even waking! You may have to go to a pulmonologist for help. Good luck! Getting the oxygen to the mitochondria is important! I use a CPAP (Continuous Pulmonary Air Pressure) machine at night. I wear a mask attached with a tube to a machine, which takes the outside air and blows it through my nose and *physically* bipasses the obstruction at the back of the throat. Some others use a BiPAP. The BiPAP blows air and then stops thereby allowing weakened lungs to expel the air. This bipasses the obstruction AND encourages a breathing pattern. This is why it is called "Bi" PAP! Hope this info helps. If I can answer more questions, please ask. Jean Dorothy Lincoln wrote: Ok...I know it's a strange question... but I have to ask... As it just started happening... and it's getting worse. Over the past 3 months, has started snoring VERY LOUDLY!! It never happened before... The only other time I can recall her snoring is... when she was ill with a SERIOUS cold. She's NOT sick. She doesn't have a cold or anything. She seems to be in perfect health (for her) I know not everything has to be MITO related but I was wondering... Does anyone else have these problems? She never snored before... Now it's EVERY night. Yes, sometimes, it's louder than other nights. We went to the zoo yesterday and last night was one of her worst nights... Makes me wonder... Is it possible to have problems breathing at night that would cause a snore after a very busy day the day before?? And should I be concerned and have her checked? The doctors is going to look at me like I am crazy... but oh well, they always do That's the MITO curse I think. I figured I would bounce it off the group before I took her in. I'm looking forward to some feedback. D Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2004 Report Share Posted April 18, 2004 Hi Dorothy: I'm only use to being ask if Leah snores because she had a cleft palate. So there must be some relation to the cleft palate, and breathing and snoring. Leah doesn't snore so they say that is good. You may want to bring it up out of curiousity. Let us know what you find out. Nerenhausen mom to Leah Dorothy Lincoln wrote: > Ok...I know it's a strange question... but I have to ask... > > As it just started happening... and it's getting worse. Over the past 3 > months, has started snoring VERY LOUDLY!! It never happened before... > The only other time I can recall her snoring is... when she was ill with a > SERIOUS cold. > > She's NOT sick. She doesn't have a cold or anything. She seems to be in > perfect health (for her) I know not everything has to be MITO related but I > was wondering... Does anyone else have these problems? She never snored > before... Now it's EVERY night. Yes, sometimes, it's louder than other > nights. We went to the zoo yesterday and last night was one of her worst > nights... Makes me wonder... Is it possible to have problems breathing at > night that would cause a snore after a very busy day the day before?? And > should I be concerned and have her checked? > > The doctors is going to look at me like I am crazy... but oh well, they > always do That's the MITO curse I think. I figured I would bounce it off > the group before I took her in. > > I'm looking forward to some feedback. > D > > > Please contact mito-owner with any problems or questions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2004 Report Share Posted April 18, 2004 Hi Dorothy: I'm only use to being ask if Leah snores because she had a cleft palate. So there must be some relation to the cleft palate, and breathing and snoring. Leah doesn't snore so they say that is good. You may want to bring it up out of curiousity. Let us know what you find out. Nerenhausen mom to Leah Dorothy Lincoln wrote: > Ok...I know it's a strange question... but I have to ask... > > As it just started happening... and it's getting worse. Over the past 3 > months, has started snoring VERY LOUDLY!! It never happened before... > The only other time I can recall her snoring is... when she was ill with a > SERIOUS cold. > > She's NOT sick. She doesn't have a cold or anything. She seems to be in > perfect health (for her) I know not everything has to be MITO related but I > was wondering... Does anyone else have these problems? She never snored > before... Now it's EVERY night. Yes, sometimes, it's louder than other > nights. We went to the zoo yesterday and last night was one of her worst > nights... Makes me wonder... Is it possible to have problems breathing at > night that would cause a snore after a very busy day the day before?? And > should I be concerned and have her checked? > > The doctors is going to look at me like I am crazy... but oh well, they > always do That's the MITO curse I think. I figured I would bounce it off > the group before I took her in. > > I'm looking forward to some feedback. > D > > > Please contact mito-owner with any problems or questions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2004 Report Share Posted April 18, 2004 Hi Dorothy: I'm only use to being ask if Leah snores because she had a cleft palate. So there must be some relation to the cleft palate, and breathing and snoring. Leah doesn't snore so they say that is good. You may want to bring it up out of curiousity. Let us know what you find out. Nerenhausen mom to Leah Dorothy Lincoln wrote: > Ok...I know it's a strange question... but I have to ask... > > As it just started happening... and it's getting worse. Over the past 3 > months, has started snoring VERY LOUDLY!! It never happened before... > The only other time I can recall her snoring is... when she was ill with a > SERIOUS cold. > > She's NOT sick. She doesn't have a cold or anything. She seems to be in > perfect health (for her) I know not everything has to be MITO related but I > was wondering... Does anyone else have these problems? She never snored > before... Now it's EVERY night. Yes, sometimes, it's louder than other > nights. We went to the zoo yesterday and last night was one of her worst > nights... Makes me wonder... Is it possible to have problems breathing at > night that would cause a snore after a very busy day the day before?? And > should I be concerned and have her checked? > > The doctors is going to look at me like I am crazy... but oh well, they > always do That's the MITO curse I think. I figured I would bounce it off > the group before I took her in. > > I'm looking forward to some feedback. > D > > > Please contact mito-owner with any problems or questions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2004 Report Share Posted April 20, 2004 D, I see you have already gotten great responses to this ?. My daughter was dx'd with obstructive sleep apnea via sleep study 4yrs ago. At the time of the 1st study, her tonsils were also found to be slightly enlarged (+2 on a scale of -5 to +5), but it was assumed that her soft palette was the main problem. She has very low tone and her soft palette collapses during sleep. She was also quite a snorer. Last summer, she came down with mono and her tonsils swelled with the throat infection, her apnea significantly worsened and she was even 'snoring' while awake! Her ped, ENT, and pulm wanted them out asap, so she had a T & A at the end of the summer. Her breathing has improved quite a bit from the T & A, she actually seems to have an easier time managing her secretions (she also has severe aspiration issues). I no longer hear her snore while sleeping, unless she is very congested or has had a seizure. I just got her most recent sleep study results, she had one in march. It still shows she is snoring at a level of 3 on a scale of 0-5, which is what all of her other studies show. So when I see her pulm next month, I will be asking him about this, why I don't hear the snoring, but the study still says she snores with the same intensity. If your daughter does not already see a pulmonologist, it might be worth a referral just to get an expert opinion. HTH e, Chelsea's mom(nonspecific mito) Quote Link to comment Share on other sites More sharing options...
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