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Obstructive airway

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My 4yr old with complex I has recently started having problems with

her airway suddenly obstructing when she cries. She has had mild

sleep apnea for 2 yrs and is going for a follow up sleep study this

week. We're not sure how much sleep apnea is currently happening.

The crying triggered episodes are while she's awake. Her mito doc

thinks it's from muscle fatigue causing spasm and/or collapse. Has

anyone ever experienced anything similar? What kind of treatments

have been tried? Thanks for any info. I'm feeling very lost right

now.

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