Guest guest Posted February 28, 2006 Report Share Posted February 28, 2006 , I am sooooo sorry to hear that you still are not well. I will pray for you. Terri G. > > Ive had that before I was at high altitude at our condo in the mountains at about 9,000 feet I had the jerks and I flopped around, I had so councious problems when it happened. its been a couple years but I cant forget it, it all really scared me when it happened. I have also woke up and not been able to lift my arms or legs. Oh I have also been walking along and then my feet feel like they weight 200 pounds each. > > Right now Im just weak from my heart failure I wish there were so way for me to beat this crap. Im up 12 pounds of fluid right now its like a basketball on my tummy cant eat much food. > M > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2006 Report Share Posted March 1, 2006 , you sound so miserable. I know you must be on a diuretic. Does your doctor realize how much fluid you are retaining? I hope & pray that things start improving for you. Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: "neuro sarc group" <neurosarcoidosis >Subject: tremmorsDate: Mon, 27 Feb 2006 22:25:29 -0600 Ive had that before I was at high altitude at our condo in the mountains at about 9,000 feet I had the jerks and I flopped around, I had so councious problems when it happened. its been a couple years but I cant forget it, it all really scared me when it happened. I have also woke up and not been able to lift my arms or legs. Oh I have also been walking along and then my feet feel like they weight 200 pounds each. Right now Im just weak from my heart failure I wish there were so way for me to beat this crap. Im up 12 pounds of fluid right now its like a basketball on my tummy cant eat much food. M~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2006 Report Share Posted March 1, 2006 , you sound so miserable. I know you must be on a diuretic. Does your doctor realize how much fluid you are retaining? I hope & pray that things start improving for you. Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: "neuro sarc group" <neurosarcoidosis >Subject: tremmorsDate: Mon, 27 Feb 2006 22:25:29 -0600 Ive had that before I was at high altitude at our condo in the mountains at about 9,000 feet I had the jerks and I flopped around, I had so councious problems when it happened. its been a couple years but I cant forget it, it all really scared me when it happened. I have also woke up and not been able to lift my arms or legs. Oh I have also been walking along and then my feet feel like they weight 200 pounds each. Right now Im just weak from my heart failure I wish there were so way for me to beat this crap. Im up 12 pounds of fluid right now its like a basketball on my tummy cant eat much food. M~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
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