Re: Mito Depletion Syndrome....

[Guest guest]

Thanks so much for replying to my post . Thanks also for

sharing what you know about it already. I just can't wait to see an

MDA Dr. about this, I'll have to bring a tape recorder because I

can't write fast enough and I've got a ton of questions for him

regarding the DX. My next stop is to UDMF.org looking for

Cristae. Thanks again!!! eileen phelps

> Good question! Problem is I do not know either. Dr. Cohen has

told us that

> there is high evidence of a depletion syndrome in Gracies liver.

We are still

> waiting on the results from the EM on her liver to prove this

theory. From

> what I do kinda know I guess it's almost like an auto immune

disease in the

> mitochondria. We were told that they are suspicious about this

due to lack of

> cristae, umdf site explains the cristae better than I ever could.

Other than

> that I am pretty oblivious about this. He did tell us that he

does not think

> Grace will die from this, he is also pretty confident she will

avoid a liver

> transplant. He usually will not say something unless he is very

confident. I

> think Dr. Cohen will be online sometime soon with the mda chat, he

would be a

> great person to ask about this. If you do find something out,

please post it. I

> would love to find this out too.

>