Rheumatologist and Ophthalmologist Ok Remicade!!!!!!!!!!!!!!!!!!

[Guest guest]

WOW....there are answered prayers! I haven't been posting because

I'd just given up getting any help. When I went to see

Rheumotologist I was worried that the Ophthalmologist had not gotten

a letter written to him in time for my appt and it would be the same

old SSDD. But he came through not by writing a letter but he

called the Rheumatologist and spoke with him. FINIALLY...SOME

VALIDATION! Rheumatologist even said he'd also spoken with

an " expert " on Sarcoid here in the Midwest. I was in too much shock

to ask who. Even more shocking was he is even considering that I

have NS. 5 months ago he thought I was crazy to ask about it. Will

have to await the results of labs and test, but Rheumatologist feels

he can get insurance to ok Remicade. They will make my fist appt if

the TB test checks out ok on Friday.

I NEVER THOUGHT I'D FEEL LIKE HAVING A PARTY BECAUSE OF DRUGS!!

What an invitation that would make! Wish you all could come.

Actually I wish we could all just have Remicade without all the

hassels! Could just see everyone taking over the wing of a hospital

somewhere.

WHAT A PARTY ;) ;) ;) ;)

Thanks for your support!

TTFN

Ruth

[Guest guest]

Ruth,

Thanks for sharing your great news. It gives the rest of us hope to

hold on until we get the same news/validation.

Thanks.

Terri G.

>

>

>

> WOW....there are answered prayers! I haven't been posting because

> I'd just given up getting any help. When I went to see

> Rheumotologist I was worried that the Ophthalmologist had not gotten

> a letter written to him in time for my appt and it would be the same

> old SSDD. But he came through not by writing a letter but he

> called the Rheumatologist and spoke with him. FINIALLY...SOME

> VALIDATION! Rheumatologist even said he'd also spoken with

> an " expert " on Sarcoid here in the Midwest. I was in too much shock

> to ask who. Even more shocking was he is even considering that I

> have NS. 5 months ago he thought I was crazy to ask about it. Will

> have to await the results of labs and test, but Rheumatologist feels

> he can get insurance to ok Remicade. They will make my fist appt if

> the TB test checks out ok on Friday.

>

> I NEVER THOUGHT I'D FEEL LIKE HAVING A PARTY BECAUSE OF DRUGS!!

> What an invitation that would make! Wish you all could come.

> Actually I wish we could all just have Remicade without all the

> hassels! Could just see everyone taking over the wing of a hospital

> somewhere.

>

> WHAT A PARTY ;) ;) ;) ;)

>

> Thanks for your support!

>

> TTFN

>

> Ruth

>

[Guest guest]

I agree about being devastated if this doesn't work. I told a few

friends, but I have decided not to tell too many just in case it

doesn't. Dr gave me a DVD to watch and it is amazing how well it

works in Rheumatoid Arthritis. Just keep those positive thoughts

going!!! Good luck! My thought process is getting so bad I am

afraid I don't make sense sometimes!! I have to reread the messages

just to make sure they are understandable.

TTFN

>

> Hi Ruth,

> Great news! Hang in there..........it took my Rheumi a

year and a half to get

> my insurance and medicae to approve Remicade for me,

but.........he did it!!!! And

> I am to get my first infusion on April 6th! I will be so

devastated if it does not work

> for me, but I am keeping POSITIVE thoughts and I know prayers do

work........

>

> Please keep us updated.

> Hugs,

> Darlene

> NS Co-Owner/Moderator

>

>

>

> Rheumatologist and Ophthalmologist

Ok Remicade!!!!!!!!!!!!!!!!!!

>

>

>

>

> WOW....there are answered prayers! I haven't been posting

because

> I'd just given up getting any help. When I went to see

> Rheumotologist I was worried that the Ophthalmologist had not

gotten

> a letter written to him in time for my appt and it would be the

same

> old SSDD. But he came through not by writing a letter but he

> called the Rheumatologist and spoke with him. FINIALLY...SOME

> VALIDATION! Rheumatologist even said he'd also spoken with

> an " expert " on Sarcoid here in the Midwest. I was in too much

shock

> to ask who. Even more shocking was he is even considering that

I

> have NS. 5 months ago he thought I was crazy to ask about it.

Will

> have to await the results of labs and test, but Rheumatologist

feels

> he can get insurance to ok Remicade. They will make my fist appt

if

> the TB test checks out ok on Friday.

>

> I NEVER THOUGHT I'D FEEL LIKE HAVING A PARTY BECAUSE OF DRUGS!!

> What an invitation that would make! Wish you all could come.

> Actually I wish we could all just have Remicade without all the

> hassels! Could just see everyone taking over the wing of a

hospital

> somewhere.

>

> WHAT A PARTY ;) ;) ;) ;)

>

> Thanks for your support!

>

> TTFN

>

> Ruth

>

>

>

>

>

>

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

> NS CHAT:- Has been cancelled for now.

>

> Message Archives:-

> http://groups.yahoo.com/group/Neurosarcoidosis/messages

>

> Members Database:-

> Listings of locations, phone numbers, and instant messengers.

> http://groups.yahoo.com/group/Neurosarcoidosis/database

>

>

[Guest guest]

I agree about being devastated if this doesn't work. I told a few

friends, but I have decided not to tell too many just in case it

doesn't. Dr gave me a DVD to watch and it is amazing how well it

works in Rheumatoid Arthritis. Just keep those positive thoughts

going!!! Good luck! My thought process is getting so bad I am

afraid I don't make sense sometimes!! I have to reread the messages

just to make sure they are understandable.

TTFN

>

> Hi Ruth,

> Great news! Hang in there..........it took my Rheumi a

year and a half to get

> my insurance and medicae to approve Remicade for me,

but.........he did it!!!! And

> I am to get my first infusion on April 6th! I will be so

devastated if it does not work

> for me, but I am keeping POSITIVE thoughts and I know prayers do

work........

>

> Please keep us updated.

> Hugs,

> Darlene

> NS Co-Owner/Moderator

>

>

>

> Rheumatologist and Ophthalmologist

Ok Remicade!!!!!!!!!!!!!!!!!!

>

>

>

>

> WOW....there are answered prayers! I haven't been posting

because

> I'd just given up getting any help. When I went to see

> Rheumotologist I was worried that the Ophthalmologist had not

gotten

> a letter written to him in time for my appt and it would be the

same

> old SSDD. But he came through not by writing a letter but he

> called the Rheumatologist and spoke with him. FINIALLY...SOME

> VALIDATION! Rheumatologist even said he'd also spoken with

> an " expert " on Sarcoid here in the Midwest. I was in too much

shock

> to ask who. Even more shocking was he is even considering that

I

> have NS. 5 months ago he thought I was crazy to ask about it.

Will

> have to await the results of labs and test, but Rheumatologist

feels

> he can get insurance to ok Remicade. They will make my fist appt

if

> the TB test checks out ok on Friday.

>

> I NEVER THOUGHT I'D FEEL LIKE HAVING A PARTY BECAUSE OF DRUGS!!

> What an invitation that would make! Wish you all could come.

> Actually I wish we could all just have Remicade without all the

> hassels! Could just see everyone taking over the wing of a

hospital

> somewhere.

>

> WHAT A PARTY ;) ;) ;) ;)

>

> Thanks for your support!

>

> TTFN

>

> Ruth

>

>

>

>

>

>

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

> NS CHAT:- Has been cancelled for now.

>

> Message Archives:-

> http://groups.yahoo.com/group/Neurosarcoidosis/messages

>

> Members Database:-

> Listings of locations, phone numbers, and instant messengers.

> http://groups.yahoo.com/group/Neurosarcoidosis/database

>

>

[Guest guest]

I agree about being devastated if this doesn't work. I told a few

friends, but I have decided not to tell too many just in case it

doesn't. Dr gave me a DVD to watch and it is amazing how well it

works in Rheumatoid Arthritis. Just keep those positive thoughts

going!!! Good luck! My thought process is getting so bad I am

afraid I don't make sense sometimes!! I have to reread the messages

just to make sure they are understandable.

TTFN

>

> Hi Ruth,

> Great news! Hang in there..........it took my Rheumi a

year and a half to get

> my insurance and medicae to approve Remicade for me,

but.........he did it!!!! And

> I am to get my first infusion on April 6th! I will be so

devastated if it does not work

> for me, but I am keeping POSITIVE thoughts and I know prayers do

work........

>

> Please keep us updated.

> Hugs,

> Darlene

> NS Co-Owner/Moderator

>

>

>

> Rheumatologist and Ophthalmologist

Ok Remicade!!!!!!!!!!!!!!!!!!

>

>

>

>

> WOW....there are answered prayers! I haven't been posting

because

> I'd just given up getting any help. When I went to see

> Rheumotologist I was worried that the Ophthalmologist had not

gotten

> a letter written to him in time for my appt and it would be the

same

> old SSDD. But he came through not by writing a letter but he

> called the Rheumatologist and spoke with him. FINIALLY...SOME

> VALIDATION! Rheumatologist even said he'd also spoken with

> an " expert " on Sarcoid here in the Midwest. I was in too much

shock

> to ask who. Even more shocking was he is even considering that

I

> have NS. 5 months ago he thought I was crazy to ask about it.

Will

> have to await the results of labs and test, but Rheumatologist

feels

> he can get insurance to ok Remicade. They will make my fist appt

if

> the TB test checks out ok on Friday.

>

> I NEVER THOUGHT I'D FEEL LIKE HAVING A PARTY BECAUSE OF DRUGS!!

> What an invitation that would make! Wish you all could come.

> Actually I wish we could all just have Remicade without all the

> hassels! Could just see everyone taking over the wing of a

hospital

> somewhere.

>

> WHAT A PARTY ;) ;) ;) ;)

>

> Thanks for your support!

>

> TTFN

>

> Ruth

>

>

>

>

>

>

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

> NS CHAT:- Has been cancelled for now.

>

> Message Archives:-

> http://groups.yahoo.com/group/Neurosarcoidosis/messages

>

> Members Database:-

> Listings of locations, phone numbers, and instant messengers.

> http://groups.yahoo.com/group/Neurosarcoidosis/database

>

>

[Guest guest]

Ruth, that's so nice to be getting some validation. And a doctor who actually communicates with another doctor! Astounding. Hope the path continues to get smoother.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Rheumatologist and Ophthalmologist Ok Remicade!!!!!!!!!!!!!!!!!!Date: Thu, 30 Mar 2006 04:17:39 -0000WOW....there are answered prayers! I haven't been posting because I'd just given up getting any help. When I went to see Rheumotologist I was worried that the Ophthalmologist had not gotten a letter written to him in time for my appt and it would be the same old SSDD. But he came through not by writing a letter but he called the Rheumatologist and spoke with him. FINIALLY...SOME VALIDATION! Rheumatologist even said he'd also spoken with an "expert" on Sarcoid here in the Midwest. I was in too much shock to ask who. Even more shocking was he is even considering that I have NS. 5 months ago he thought I was crazy to ask about it. Will have to await the results of labs and test, but Rheumatologist feels he can get insurance to ok Remicade. They will make my fist appt if the TB test checks out ok on Friday.I NEVER THOUGHT I'D FEEL LIKE HAVING A PARTY BECAUSE OF DRUGS!! What an invitation that would make! Wish you all could come. Actually I wish we could all just have Remicade without all the hassels! Could just see everyone taking over the wing of a hospital somewhere. WHAT A PARTY ;) ;) ;) ;)Thanks for your support!TTFNRuth~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Ruth, that's so nice to be getting some validation. And a doctor who actually communicates with another doctor! Astounding. Hope the path continues to get smoother.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Rheumatologist and Ophthalmologist Ok Remicade!!!!!!!!!!!!!!!!!!Date: Thu, 30 Mar 2006 04:17:39 -0000WOW....there are answered prayers! I haven't been posting because I'd just given up getting any help. When I went to see Rheumotologist I was worried that the Ophthalmologist had not gotten a letter written to him in time for my appt and it would be the same old SSDD. But he came through not by writing a letter but he called the Rheumatologist and spoke with him. FINIALLY...SOME VALIDATION! Rheumatologist even said he'd also spoken with an "expert" on Sarcoid here in the Midwest. I was in too much shock to ask who. Even more shocking was he is even considering that I have NS. 5 months ago he thought I was crazy to ask about it. Will have to await the results of labs and test, but Rheumatologist feels he can get insurance to ok Remicade. They will make my fist appt if the TB test checks out ok on Friday.I NEVER THOUGHT I'D FEEL LIKE HAVING A PARTY BECAUSE OF DRUGS!! What an invitation that would make! Wish you all could come. Actually I wish we could all just have Remicade without all the hassels! Could just see everyone taking over the wing of a hospital somewhere. WHAT A PARTY ;) ;) ;) ;)Thanks for your support!TTFNRuth~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database