Guest guest Posted January 26, 2004 Report Share Posted January 26, 2004 , I can't remeber where I read it, but Keppra works best for stopping generalized seizures (tonic and tonic clonic). Which Chelsea has. She did have myoclonic jerks during sleep before starting phenobarb, but those disappeared when she started the med and fortunatly have not reappeared now that she is being weaned off. I am sorry to hear that there has been little success with Kirkland and meds. Chelsea is pretty close to the same boat. The phenobarb stopped doing a good job quite awhile ago, and her Keppra has been increased pretty close to the max dose recently. She was having a lot of sezures with illnesses in nov-dec. Fortunatly, they have slowed down and stopped clustering. the neuro who is currently dealing with her meds has talked about adding Topomax (which I have seen is also recommended by Dr Cohen), if her seizures continue to persist. He has said however, the more drugs that are tried with epilepsy, the less successful they are. So he also discussed the possibility of a VNS, if drugs cintinue to fail. I will keep Kirkland in my prayers and hope his seizures are better soon! e, Chelsea's mom(nonspecific mito) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2004 Report Share Posted January 26, 2004 , I can't remeber where I read it, but Keppra works best for stopping generalized seizures (tonic and tonic clonic). Which Chelsea has. She did have myoclonic jerks during sleep before starting phenobarb, but those disappeared when she started the med and fortunatly have not reappeared now that she is being weaned off. I am sorry to hear that there has been little success with Kirkland and meds. Chelsea is pretty close to the same boat. The phenobarb stopped doing a good job quite awhile ago, and her Keppra has been increased pretty close to the max dose recently. She was having a lot of sezures with illnesses in nov-dec. Fortunatly, they have slowed down and stopped clustering. the neuro who is currently dealing with her meds has talked about adding Topomax (which I have seen is also recommended by Dr Cohen), if her seizures continue to persist. He has said however, the more drugs that are tried with epilepsy, the less successful they are. So he also discussed the possibility of a VNS, if drugs cintinue to fail. I will keep Kirkland in my prayers and hope his seizures are better soon! e, Chelsea's mom(nonspecific mito) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2004 Report Share Posted January 26, 2004 , I can't remeber where I read it, but Keppra works best for stopping generalized seizures (tonic and tonic clonic). Which Chelsea has. She did have myoclonic jerks during sleep before starting phenobarb, but those disappeared when she started the med and fortunatly have not reappeared now that she is being weaned off. I am sorry to hear that there has been little success with Kirkland and meds. Chelsea is pretty close to the same boat. The phenobarb stopped doing a good job quite awhile ago, and her Keppra has been increased pretty close to the max dose recently. She was having a lot of sezures with illnesses in nov-dec. Fortunatly, they have slowed down and stopped clustering. the neuro who is currently dealing with her meds has talked about adding Topomax (which I have seen is also recommended by Dr Cohen), if her seizures continue to persist. He has said however, the more drugs that are tried with epilepsy, the less successful they are. So he also discussed the possibility of a VNS, if drugs cintinue to fail. I will keep Kirkland in my prayers and hope his seizures are better soon! e, Chelsea's mom(nonspecific mito) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2004 Report Share Posted January 26, 2004 , I can't remeber where I read it, but Keppra works best for stopping generalized seizures (tonic and tonic clonic). Which Chelsea has. She did have myoclonic jerks during sleep before starting phenobarb, but those disappeared when she started the med and fortunatly have not reappeared now that she is being weaned off. I am sorry to hear that there has been little success with Kirkland and meds. Chelsea is pretty close to the same boat. The phenobarb stopped doing a good job quite awhile ago, and her Keppra has been increased pretty close to the max dose recently. She was having a lot of sezures with illnesses in nov-dec. Fortunatly, they have slowed down and stopped clustering. the neuro who is currently dealing with her meds has talked about adding Topomax (which I have seen is also recommended by Dr Cohen), if her seizures continue to persist. He has said however, the more drugs that are tried with epilepsy, the less successful they are. So he also discussed the possibility of a VNS, if drugs cintinue to fail. I will keep Kirkland in my prayers and hope his seizures are better soon! e, Chelsea's mom(nonspecific mito) Quote Link to comment Share on other sites More sharing options...
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