Re: KJ/all- Trachea ring/ER visit

[Guest guest]

Wouldn't Dr. Whiteman have called me and prescribed a med for acidosis if the ammonia suggests it? Her lactic acid was 1.4 so thankfully it was ok at the time. My other daughter tends to stay in a metabolic acidotic state (mildly with meds) and he has been watching Porrah for it so this confuses me. Dr. Whiteman's secretary told me that he got the lab results (or at least she said she thought so). Zipporrah does seem a little better today. She is cranky and still coughing a bunch but didn't sleep all day like yesterday. She needs lots of comforting and doesn't want to play yet, but she also has been cutting her two front teeth amongst all of this. Darla: mommy to Asenath, Zipporrah, and the other 7 kiddos Re: Trachea ring/ER visit Hi Darla, Bunch of stuff jumps out at me: high amonia levels and other labs means she is in acidosis already, don't know if they checked lactic acid but I'd hydrate her the best I can and DEFINITELY give her ibuprophen to get that fever down ASAP as fever is extremely dangerous for mito kids, even a low grade fever. I'd also get her in to see the neurologist if yours is nearby (whoever treats the mito). Sponge the fever down if need be. The tracheal thing: my kid (and her mito brother) both had "tracheal malacia" as young babies/children till about age 5, which is a condition of softened tracheal rings which cause or at least allow the trachea to collapse under stress. I never related it to the mito and my daughter did outgrow it (her brother didn't survive but didn't die from mito at age 4) but it was touch and go on many occasions. I'm sorry you have to go through all this with so little support from the doctors who are supposed to be helping you. My prayers are with you for courage and strength.kjmom to De-Arbra age 16 Please contact mito-owner with any problems or questions. Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com