Re: I am back..........I hope!]

[Guest guest]

Darlene,

Glad to have you back.

Terri

>

> Hi everyone,

> Well, I have been in a BAD flare up but I am back, finally!

> At least I hope so.......I have over 400 messages so I think I

> will just delete them and go from there........

>

> If all goes well, I will be starting my Remicade on April 6th!

> I am really nervous and scared but hope it goes well and it helps me.

I

> have been reserching about it a little bit these last few days.. For

those

> who have used Remicade, I have a question or two---- did you lose your

> hair? If so, did you lose all of it and how quickly did this

happen????

> Also, I have never had an infusion----- how is this done? Will I be

> sitting down or laying down? Could I crochet or anything like that??

> Lots of questions---------can you tell I am worried about it???? :-)

>

> I know several need prayers and good thoughts and I send you these.

> If any of you have asked questions of me, I do apologize for not

> being

> around and answering --- so please resend. I hope to get back to

sending

> birthday cards out and working on the archives. I have done some, but

> not able to do much. I am feeling better though and will be around

> now.

>

> Sending lots of hugs, prayers, and well wishes to all......

> I have really missed all of you!

>

> Hugs,

> Darlene

> NS Co-Owner/Moderator

>

[Guest guest]

Darlene,

Glad to have you back.

Terri

>

> Hi everyone,

> Well, I have been in a BAD flare up but I am back, finally!

> At least I hope so.......I have over 400 messages so I think I

> will just delete them and go from there........

>

> If all goes well, I will be starting my Remicade on April 6th!

> I am really nervous and scared but hope it goes well and it helps me.

I

> have been reserching about it a little bit these last few days.. For

those

> who have used Remicade, I have a question or two---- did you lose your

> hair? If so, did you lose all of it and how quickly did this

happen????

> Also, I have never had an infusion----- how is this done? Will I be

> sitting down or laying down? Could I crochet or anything like that??

> Lots of questions---------can you tell I am worried about it???? :-)

>

> I know several need prayers and good thoughts and I send you these.

> If any of you have asked questions of me, I do apologize for not

> being

> around and answering --- so please resend. I hope to get back to

sending

> birthday cards out and working on the archives. I have done some, but

> not able to do much. I am feeling better though and will be around

> now.

>

> Sending lots of hugs, prayers, and well wishes to all......

> I have really missed all of you!

>

> Hugs,

> Darlene

> NS Co-Owner/Moderator

>

[Guest guest]

Darlene,

Glad to have you back.

Terri

>

> Hi everyone,

> Well, I have been in a BAD flare up but I am back, finally!

> At least I hope so.......I have over 400 messages so I think I

> will just delete them and go from there........

>

> If all goes well, I will be starting my Remicade on April 6th!

> I am really nervous and scared but hope it goes well and it helps me.

I

> have been reserching about it a little bit these last few days.. For

those

> who have used Remicade, I have a question or two---- did you lose your

> hair? If so, did you lose all of it and how quickly did this

happen????

> Also, I have never had an infusion----- how is this done? Will I be

> sitting down or laying down? Could I crochet or anything like that??

> Lots of questions---------can you tell I am worried about it???? :-)

>

> I know several need prayers and good thoughts and I send you these.

> If any of you have asked questions of me, I do apologize for not

> being

> around and answering --- so please resend. I hope to get back to

sending

> birthday cards out and working on the archives. I have done some, but

> not able to do much. I am feeling better though and will be around

> now.

>

> Sending lots of hugs, prayers, and well wishes to all......

> I have really missed all of you!

>

> Hugs,

> Darlene

> NS Co-Owner/Moderator

>

[Guest guest]

Darlene

I'm not on Remicade but I get my Cytoxan by iv.

Unfortunately I can't knit or crochet during the 45

minute treatment because of the needle. I do that

stuff in the waiting room because I have about an hour

first while I wait for my blood test results. They do

the tests before every treatment checking my white

blood cell count. If I remember it right. I also get

to pee in a cup every time too. LOL Where I get mine

done they have a tv in each treatment room & magazines

but most of the time I nap.

grannylunatic@...

__________________________________________________

[Guest guest]

Darlene

I'm not on Remicade but I get my Cytoxan by iv.

Unfortunately I can't knit or crochet during the 45

minute treatment because of the needle. I do that

stuff in the waiting room because I have about an hour

first while I wait for my blood test results. They do

the tests before every treatment checking my white

blood cell count. If I remember it right. I also get

to pee in a cup every time too. LOL Where I get mine

done they have a tv in each treatment room & magazines

but most of the time I nap.

grannylunatic@...

__________________________________________________

[Guest guest]

Darlene

I'm not on Remicade but I get my Cytoxan by iv.

Unfortunately I can't knit or crochet during the 45

minute treatment because of the needle. I do that

stuff in the waiting room because I have about an hour

first while I wait for my blood test results. They do

the tests before every treatment checking my white

blood cell count. If I remember it right. I also get

to pee in a cup every time too. LOL Where I get mine

done they have a tv in each treatment room & magazines

but most of the time I nap.

grannylunatic@...

__________________________________________________

[Guest guest]

Darlene

OOPS hit the wrong key. I haven't been on Remicade yet

but hang in there. The Cytoxan was scary at first but

not too bad after all. You're in my prayers too.

grannylunatic@...

__________________________________________________

[Guest guest]

Darlene

OOPS hit the wrong key. I haven't been on Remicade yet

but hang in there. The Cytoxan was scary at first but

not too bad after all. You're in my prayers too.

grannylunatic@...

__________________________________________________

[Guest guest]

Darlene- really glad u are doing better- hope it lasts

a long time MATT

--- Darlene darlene@...> wrote:

> Hi everyone,

> Well, I have been in a BAD flare up but I am

> back, finally!

> At least I hope so.......I have over 400 messages so

> I think I

> will just delete them and go from there........

>

> If all goes well, I will be starting my

> Remicade on April 6th!

> I am really nervous and scared but hope it goes well

> and it helps me. I

> have been reserching about it a little bit these

> last few days.. For those

> who have used Remicade, I have a question or two----

> did you lose your

> hair? If so, did you lose all of it and how quickly

> did this happen????

> Also, I have never had an infusion----- how is this

> done? Will I be

> sitting down or laying down? Could I crochet or

> anything like that??

> Lots of questions---------can you tell I am worried

> about it???? :-)

>

> I know several need prayers and good thoughts

> and I send you these.

> If any of you have asked questions of me, I do

> apologize for not

> being

> around and answering --- so please resend. I hope

> to get back to sending

> birthday cards out and working on the archives. I

> have done some, but

> not able to do much. I am feeling better though

> and will be around

> now.

>

> Sending lots of hugs, prayers, and well wishes

> to all......

> I have really missed all of you!

>

> Hugs,

> Darlene

> NS Co-Owner/Moderator

>

__________________________________________________

[Guest guest]

Darlene- really glad u are doing better- hope it lasts

a long time MATT

--- Darlene darlene@...> wrote:

> Hi everyone,

> Well, I have been in a BAD flare up but I am

> back, finally!

> At least I hope so.......I have over 400 messages so

> I think I

> will just delete them and go from there........

>

> If all goes well, I will be starting my

> Remicade on April 6th!

> I am really nervous and scared but hope it goes well

> and it helps me. I

> have been reserching about it a little bit these

> last few days.. For those

> who have used Remicade, I have a question or two----

> did you lose your

> hair? If so, did you lose all of it and how quickly

> did this happen????

> Also, I have never had an infusion----- how is this

> done? Will I be

> sitting down or laying down? Could I crochet or

> anything like that??

> Lots of questions---------can you tell I am worried

> about it???? :-)

>

> I know several need prayers and good thoughts

> and I send you these.

> If any of you have asked questions of me, I do

> apologize for not

> being

> around and answering --- so please resend. I hope

> to get back to sending

> birthday cards out and working on the archives. I

> have done some, but

> not able to do much. I am feeling better though

> and will be around

> now.

>

> Sending lots of hugs, prayers, and well wishes

> to all......

> I have really missed all of you!

>

> Hugs,

> Darlene

> NS Co-Owner/Moderator

>

__________________________________________________

[Guest guest]

Darlene- really glad u are doing better- hope it lasts

a long time MATT

--- Darlene darlene@...> wrote:

> Hi everyone,

> Well, I have been in a BAD flare up but I am

> back, finally!

> At least I hope so.......I have over 400 messages so

> I think I

> will just delete them and go from there........

>

> If all goes well, I will be starting my

> Remicade on April 6th!

> I am really nervous and scared but hope it goes well

> and it helps me. I

> have been reserching about it a little bit these

> last few days.. For those

> who have used Remicade, I have a question or two----

> did you lose your

> hair? If so, did you lose all of it and how quickly

> did this happen????

> Also, I have never had an infusion----- how is this

> done? Will I be

> sitting down or laying down? Could I crochet or

> anything like that??

> Lots of questions---------can you tell I am worried

> about it???? :-)

>

> I know several need prayers and good thoughts

> and I send you these.

> If any of you have asked questions of me, I do

> apologize for not

> being

> around and answering --- so please resend. I hope

> to get back to sending

> birthday cards out and working on the archives. I

> have done some, but

> not able to do much. I am feeling better though

> and will be around

> now.

>

> Sending lots of hugs, prayers, and well wishes

> to all......

> I have really missed all of you!

>

> Hugs,

> Darlene

> NS Co-Owner/Moderator

>

__________________________________________________

[Guest guest]

Hello, I am new to all of this so I hope it posts correctly. My Dr.is

also setting up my infusions with Remicade. The only holdup may be if

my heart isn't strong enough. My sarc has affected my heart. Any

information you could pass on as you recieve it would be greatly

appreciated. thanks

>

> > Hi everyone,

> > Well, I have been in a BAD flare up but I am

> > back, finally!

> > At least I hope so.......I have over 400 messages so

> > I think I

> > will just delete them and go from there........

> >

> > If all goes well, I will be starting my

> > Remicade on April 6th!

> > I am really nervous and scared but hope it goes well

> > and it helps me. I

> > have been reserching about it a little bit these

> > last few days.. For those

> > who have used Remicade, I have a question or two----

> > did you lose your

> > hair? If so, did you lose all of it and how quickly

> > did this happen????

> > Also, I have never had an infusion----- how is this

> > done? Will I be

> > sitting down or laying down? Could I crochet or

> > anything like that??

> > Lots of questions---------can you tell I am worried

> > about it???? :-)

> >

> > I know several need prayers and good thoughts

> > and I send you these.

> > If any of you have asked questions of me, I do

> > apologize for not

> > being

> > around and answering --- so please resend. I hope

> > to get back to sending

> > birthday cards out and working on the archives. I

> > have done some, but

> > not able to do much. I am feeling better though

> > and will be around

> > now.

> >

> > Sending lots of hugs, prayers, and well wishes

> > to all......

> > I have really missed all of you!

> >

> > Hugs,

> > Darlene

> > NS Co-Owner/Moderator

> >

>

>

> __________________________________________________

>

[Guest guest]

Hello, I am new to all of this so I hope it posts correctly. My Dr.is

also setting up my infusions with Remicade. The only holdup may be if

my heart isn't strong enough. My sarc has affected my heart. Any

information you could pass on as you recieve it would be greatly

appreciated. thanks

>

> > Hi everyone,

> > Well, I have been in a BAD flare up but I am

> > back, finally!

> > At least I hope so.......I have over 400 messages so

> > I think I

> > will just delete them and go from there........

> >

> > If all goes well, I will be starting my

> > Remicade on April 6th!

> > I am really nervous and scared but hope it goes well

> > and it helps me. I

> > have been reserching about it a little bit these

> > last few days.. For those

> > who have used Remicade, I have a question or two----

> > did you lose your

> > hair? If so, did you lose all of it and how quickly

> > did this happen????

> > Also, I have never had an infusion----- how is this

> > done? Will I be

> > sitting down or laying down? Could I crochet or

> > anything like that??

> > Lots of questions---------can you tell I am worried

> > about it???? :-)

> >

> > I know several need prayers and good thoughts

> > and I send you these.

> > If any of you have asked questions of me, I do

> > apologize for not

> > being

> > around and answering --- so please resend. I hope

> > to get back to sending

> > birthday cards out and working on the archives. I

> > have done some, but

> > not able to do much. I am feeling better though

> > and will be around

> > now.

> >

> > Sending lots of hugs, prayers, and well wishes

> > to all......

> > I have really missed all of you!

> >

> > Hugs,

> > Darlene

> > NS Co-Owner/Moderator

> >

>

>

> __________________________________________________

>

[Guest guest]

Hello, I am new to all of this so I hope it posts correctly. My Dr.is

also setting up my infusions with Remicade. The only holdup may be if

my heart isn't strong enough. My sarc has affected my heart. Any

information you could pass on as you recieve it would be greatly

appreciated. thanks

>

> > Hi everyone,

> > Well, I have been in a BAD flare up but I am

> > back, finally!

> > At least I hope so.......I have over 400 messages so

> > I think I

> > will just delete them and go from there........

> >

> > If all goes well, I will be starting my

> > Remicade on April 6th!

> > I am really nervous and scared but hope it goes well

> > and it helps me. I

> > have been reserching about it a little bit these

> > last few days.. For those

> > who have used Remicade, I have a question or two----

> > did you lose your

> > hair? If so, did you lose all of it and how quickly

> > did this happen????

> > Also, I have never had an infusion----- how is this

> > done? Will I be

> > sitting down or laying down? Could I crochet or

> > anything like that??

> > Lots of questions---------can you tell I am worried

> > about it???? :-)

> >

> > I know several need prayers and good thoughts

> > and I send you these.

> > If any of you have asked questions of me, I do

> > apologize for not

> > being

> > around and answering --- so please resend. I hope

> > to get back to sending

> > birthday cards out and working on the archives. I

> > have done some, but

> > not able to do much. I am feeling better though

> > and will be around

> > now.

> >

> > Sending lots of hugs, prayers, and well wishes

> > to all......

> > I have really missed all of you!

> >

> > Hugs,

> > Darlene

> > NS Co-Owner/Moderator

> >

>

>

> __________________________________________________

>

[Guest guest]

Hello, I am new to all of this so I hope it posts correctly. My Dr.is

also setting up my infusions with Remicade. The only holdup may be if

my heart isn't strong enough. My sarc has affected my heart. Any

information you could pass on as you recieve it would be greatly

appreciated. thanks

>

> > Hi everyone,

> > Well, I have been in a BAD flare up but I am

> > back, finally!

> > At least I hope so.......I have over 400 messages so

> > I think I

> > will just delete them and go from there........

> >

> > If all goes well, I will be starting my

> > Remicade on April 6th!

> > I am really nervous and scared but hope it goes well

> > and it helps me. I

> > have been reserching about it a little bit these

> > last few days.. For those

> > who have used Remicade, I have a question or two----

> > did you lose your

> > hair? If so, did you lose all of it and how quickly

> > did this happen????

> > Also, I have never had an infusion----- how is this

> > done? Will I be

> > sitting down or laying down? Could I crochet or

> > anything like that??

> > Lots of questions---------can you tell I am worried

> > about it???? :-)

> >

> > I know several need prayers and good thoughts

> > and I send you these.

> > If any of you have asked questions of me, I do

> > apologize for not

> > being

> > around and answering --- so please resend. I hope

> > to get back to sending

> > birthday cards out and working on the archives. I

> > have done some, but

> > not able to do much. I am feeling better though

> > and will be around

> > now.

> >

> > Sending lots of hugs, prayers, and well wishes

> > to all......

> > I have really missed all of you!

> >

> > Hugs,

> > Darlene

> > NS Co-Owner/Moderator

> >

>

>

> __________________________________________________

>

[Guest guest]

Hi -- I will be happy to let you and the others know what happens

when I get my first infusion, which will be April 6 if all ges

well......but right now, I know nothing about it except what others

have passed on and I am just full of questions.

Hopefully others will jump in and give you info. We have lots of ]

knowledgeable people on the list and we are nearing 400 members so

there are many who will respond. When are you going to start your

infusions? Please stay on the lsit and keep asking questions. Most

of our people are very willign to share their experiences......

Hugs,

Darlene

NS Co-Owner/Moderator

>

>

>

>

> Hello, I am new to all of this so I hope it posts correctly. My Dr.is

> also setting up my infusions with Remicade. The only holdup may be if

> my heart isn't strong enough. My sarc has affected my heart. Any

> information you could pass on as you recieve it would be greatly

> appreciated. thanks

[Guest guest]

Hi -- I will be happy to let you and the others know what happens

when I get my first infusion, which will be April 6 if all ges

well......but right now, I know nothing about it except what others

have passed on and I am just full of questions.

Hopefully others will jump in and give you info. We have lots of ]

knowledgeable people on the list and we are nearing 400 members so

there are many who will respond. When are you going to start your

infusions? Please stay on the lsit and keep asking questions. Most

of our people are very willign to share their experiences......

Hugs,

Darlene

NS Co-Owner/Moderator

>

>

>

>

> Hello, I am new to all of this so I hope it posts correctly. My Dr.is

> also setting up my infusions with Remicade. The only holdup may be if

> my heart isn't strong enough. My sarc has affected my heart. Any

> information you could pass on as you recieve it would be greatly

> appreciated. thanks

[Guest guest]

Hi -- I will be happy to let you and the others know what happens

when I get my first infusion, which will be April 6 if all ges

well......but right now, I know nothing about it except what others

have passed on and I am just full of questions.

Hopefully others will jump in and give you info. We have lots of ]

knowledgeable people on the list and we are nearing 400 members so

there are many who will respond. When are you going to start your

infusions? Please stay on the lsit and keep asking questions. Most

of our people are very willign to share their experiences......

Hugs,

Darlene

NS Co-Owner/Moderator

>

>

>

>

> Hello, I am new to all of this so I hope it posts correctly. My Dr.is

> also setting up my infusions with Remicade. The only holdup may be if

> my heart isn't strong enough. My sarc has affected my heart. Any

> information you could pass on as you recieve it would be greatly

> appreciated. thanks