How is Dysautonomia treated?

[Guest guest]

>Finally one of the newer things we have tried with a lot of success

Anne,

>if a drug called zonisamide which is an anti seizure med. Our neuro

>suggested it might help with autonomic seizures (acute onset of

>flushing, sweating, limp tone, sleep, nausea, gagging).

Wow! Thanks for this great information! His episodes sound so much like

what Emilie has, but they've never been described to us as autonomic

seizures. Why do they classify them as seizures? I mean, are they

caused in the same way as other seizures, or is the word more descriptive

of the acuteness or of how the episode looks? Does your son have other

times when he has less dramatic versions of the same symptoms, like the

flushing? This is one of the things that confused all of us before

Emilie was diagnosed--she would have little pieces of the acute episodes,

sometimes lasting as little as 30 seconds.

Fortunately, Emilie's symptoms have been less dramatic since starting

CoQ10 and addressing her blood sugar, but it's great to have another

trick up our sleeves--I'll definitely keep the idea of using zonisamide

filed away, just in case.

Thanks!

-- Mom to:

Emilie (17), mito--complex IV, cp, ld

Kaitlin (17), cp, asthma, a few autonomic symptoms

Ian (22) migraines

....and wife to Tim, who has a heart of gold