Re: last pictures of (he doesn't look like he's so sick)

[Guest guest]

Deb,

these pictures took my breath away...he was obviously a happy kid! The second picture of your two boys together was wonderful. You also put it very well when you said people don't think our kids look "sick enough" to be affected by a fatal disorder. I can't tell you how many times i've heard the "she'll be just fine" story about Lexi. And while i pray they are right, i know that looks can certainly be deceiving (especially when she is fighting for breath during one of her desat moments).

ruth

mom to Mitch (nearly 9, back in tae kwon do) and Lexi (nearly 6, with her first school recital this week)--both mito affected, and neither of whom look "sick"

[Guest guest]

Wonderful pictures, Deb! certainly looks happy in them, and I think that is all that matters=)

e, Chelsea's mom (nonspecific mito)