update

April 15, 2001

>>>>>>>>What kind of chewable vitamin and chewable calcium do you take ? Do they taste okay, or are they bitter/too sweet ? <<<<<<<<

I take One Source for Active Kids, the taste is not too good.

Caltrate 600 Plus Chewables, the taste is pleasant.

I start to chew the vitamin and get it almost chewed up then chew the Caltrate and it gets rid of the taste.

I am starting on ADEK's next week in addition to the vitamin and calcium I am also going back to regular vitamins and they are called VM2000. Water soluable (dissolves in 5 minutes in cold water). You can find more information about these high potency vitamins at www.solgar.com . Just type VM2000 in the search bar.

Viau, 325 lbs lost 9 lbs before surgeryswitched 3/29/01 weighed in at 3164/14/01 weighed in at 297 total of 28 pounds gone foreverhttp://www.angelfire.com/on/wannabemagic/WLS.html

Dr Ren, NYUMC http://www.med.nyu.edu/bariatric/

April 15, 2001

>>>>>>>>What kind of chewable vitamin and chewable calcium do you take ? Do they taste okay, or are they bitter/too sweet ? <<<<<<<<

I take One Source for Active Kids, the taste is not too good.

Caltrate 600 Plus Chewables, the taste is pleasant.

I start to chew the vitamin and get it almost chewed up then chew the Caltrate and it gets rid of the taste.

I am starting on ADEK's next week in addition to the vitamin and calcium I am also going back to regular vitamins and they are called VM2000. Water soluable (dissolves in 5 minutes in cold water). You can find more information about these high potency vitamins at www.solgar.com . Just type VM2000 in the search bar.

Viau, 325 lbs lost 9 lbs before surgeryswitched 3/29/01 weighed in at 3164/14/01 weighed in at 297 total of 28 pounds gone foreverhttp://www.angelfire.com/on/wannabemagic/WLS.html

Dr Ren, NYUMC http://www.med.nyu.edu/bariatric/

April 15, 2001

>>>>>>>>What kind of chewable vitamin and chewable calcium do you take ? Do they taste okay, or are they bitter/too sweet ? <<<<<<<<

I take One Source for Active Kids, the taste is not too good.

Caltrate 600 Plus Chewables, the taste is pleasant.

I start to chew the vitamin and get it almost chewed up then chew the Caltrate and it gets rid of the taste.

I am starting on ADEK's next week in addition to the vitamin and calcium I am also going back to regular vitamins and they are called VM2000. Water soluable (dissolves in 5 minutes in cold water). You can find more information about these high potency vitamins at www.solgar.com . Just type VM2000 in the search bar.

Viau, 325 lbs lost 9 lbs before surgeryswitched 3/29/01 weighed in at 3164/14/01 weighed in at 297 total of 28 pounds gone foreverhttp://www.angelfire.com/on/wannabemagic/WLS.html

Dr Ren, NYUMC http://www.med.nyu.edu/bariatric/

April 27, 2001

Hi Marty,

Thanks for the chicken swingin. What's an inventory #?

I'll be lucky to get anywhere with the insurance co

with the little I know about the terms used! Good luck

on your own quest. Angel

--- Marty Kanter shadow44@...> wrote:

> Good luck to you, Angel! I just found out from Cigna

> that I finally have an

> inventory # and they'll be calling me to let me know

> the current status of

> my " quest. " I'll be swinging that chicken for you

> with thanks that you're

> doing some groundbreaking for the rest of us Cigna

> people.

> Marcia

>

> > Update

> >

> > HI All,

> > Just an update on what's going on with my " quest

> for approval " . I

> > made my " check-up " calls today. Here's what I

> found out:

> > 1. Riverside Hospital (the place where I had my

> gastric stapling in

> > 1980) has gone back into the archives and finally

> found my surgical

> > records and I should have them in a day or two.

> > 2. I called my contact, Tammy, at Cigna Ins. Co.

> and she told me that

> > the Medical Director was sending Dr. Hess' report

> and my letters,

> > pictures etc.,to (I think she called it), a

> Medical Review Board. She

> > said it would be about a week before I would get a

> determination and

> > she would call me first thing she heard. Does

> anyone know what this

> > means (maybe just a reason to back up a no?) Or

> maybe it could mean

> > that they are taking my request seriously (and the

> increasing

> > requests of others)for the BPD/DS surgery.

> > 3. My doctor has agreed to sign a letter I wrote

> (thanks to a sweet

> > soul, LeeAnn, whose letter to her insurance co.

> she let me use as a

> > basis for mine). She even thanked me for typing it

> up for her. She

> > said she'd have her secretary type it up again on

> their letterhead

> > and sent it to me so I could have it for my

> consult.

> > 4. The cardiologist said he had heard of the DS

> and was glad to give

> > me a letter for the insurance co. requesting I be

> approved for the DS.

> > 5. I will be lining up the Doctor who does my

> sleep apnea test and my

> > nephrologist to also write up a letter of

> recommentation. So with Dr.

> > Hess' letter, that's 1 Dr. and 4 specialist who

> are willing to

> > recommend I have the BPD/DS. Surely the insurance

> co. can't ingnore

> > all 5!

> > 6. And last but best of all, my consult has been

> moved up to May 24th

> > (from June 28th)! YEAH! Only I'll be seeing Dr.

> Oakley instead of Dr.

> > Hess. Dr. Oakley has just recently joined Dr.

> Hess' office if I

> > understand it correctly. Has anyone had surgery

> with Dr. Oakley? I'm

> > sure if he's in with Dr. Hess he must be a very

> good surgeon.

> > Anyway, I feel like slowly but surely I'm getting

> somewhere. I'll

> > feel a heck of a whole lot better though when I

> have that final

> > approval from Cigna! Keep it in your prayers,

> they've been heard

> > before and I feel confident they'll be heard

> again! Thanks to all!

> >

> Cautiously excited, Angel

> >

>

----------------------------------------------------------------------

> >

July 26, 2005

O.K. Honey

Have you been to www.vitalady.com She has all protein snack bars and soy treats if you feel the need than at least try her stuff. I have some of the protein bars yum-Soo good. And her stuff is all digestible protein WLS patients can digest.she has sample box also.Hope this help honey I think if you keep satisfied with the protein it will help you.

Big Hugs

Caryl

I work in a child care center.....these types of foods...pb and crackers, salsa and chips are stuff the kids get for snack. I try to tell myself Im only having the fruit and wind up eating the other stuff.Sigh> > > Hi ,> Are you worried about something? Why is the bad food still in the house?> You need house cleaning until you get the Carb. Out of your system. once you > start thinking protein only you will be surprised by what you can find out > there.> Big Hugs> Caryl> > > Ok, Im doing fairly well getting back on track. But, I am still having > some problem controlling my grazing. Its gettin better but still a > problem. What the heck is wrong with me!!?? Why cant I pass a bowl of > crackers, chips, whatever...and just say no. Why do I mindlessly pop > one into my mouth!!! And then another?! Where do I draw on the > strength to just shrug my shoulders and abstain?! Why cant I beat > this!!!> > Sigh.............> > Huggles> > > > > > > > > Caryl DeHerrera> _www.Fantasyinart.net_ (http://www.fantasyinart.net/)

July 26, 2005

O.K. Honey

Have you been to www.vitalady.com She has all protein snack bars and soy treats if you feel the need than at least try her stuff. I have some of the protein bars yum-Soo good. And her stuff is all digestible protein WLS patients can digest.she has sample box also.Hope this help honey I think if you keep satisfied with the protein it will help you.

Big Hugs

Caryl

I work in a child care center.....these types of foods...pb and crackers, salsa and chips are stuff the kids get for snack. I try to tell myself Im only having the fruit and wind up eating the other stuff.Sigh> > > Hi ,> Are you worried about something? Why is the bad food still in the house?> You need house cleaning until you get the Carb. Out of your system. once you > start thinking protein only you will be surprised by what you can find out > there.> Big Hugs> Caryl> > > Ok, Im doing fairly well getting back on track. But, I am still having > some problem controlling my grazing. Its gettin better but still a > problem. What the heck is wrong with me!!?? Why cant I pass a bowl of > crackers, chips, whatever...and just say no. Why do I mindlessly pop > one into my mouth!!! And then another?! Where do I draw on the > strength to just shrug my shoulders and abstain?! Why cant I beat > this!!!> > Sigh.............> > Huggles> > > > > > > > > Caryl DeHerrera> _www.Fantasyinart.net_ (http://www.fantasyinart.net/)

July 26, 2005

we have other family members who can have these carbs and i do not expect them to not eat them just because i can not , so i have them in my house and my friends abd relatives have these things at their homes also it is up to me to not eat them , it is something we have to learn to control for the rest of our lifes.. take care

shirley socalbczion13@... wrote:

Hi ,

Are you worried about something? Why is the bad food still in the house?

You need house cleaning until you get the Carb. Out of your system. once you start thinking protein only you will be surprised by what you can find out there.

Big Hugs

Caryl

Ok, Im doing fairly well getting back on track. But, I am still having some problem controlling my grazing. Its gettin better but still a problem. What the heck is wrong with me!!?? Why cant I pass a bowl of crackers, chips, whatever...and just say no. Why do I mindlessly pop one into my mouth!!! And then another?! Where do I draw on the strength to just shrug my shoulders and abstain?! Why cant I beat this!!!Sigh.............Huggles

Caryl DeHerrerawww.Fantasyinart.net

July 26, 2005

we have other family members who can have these carbs and i do not expect them to not eat them just because i can not , so i have them in my house and my friends abd relatives have these things at their homes also it is up to me to not eat them , it is something we have to learn to control for the rest of our lifes.. take care

shirley socalbczion13@... wrote:

Hi ,

Are you worried about something? Why is the bad food still in the house?

You need house cleaning until you get the Carb. Out of your system. once you start thinking protein only you will be surprised by what you can find out there.

Big Hugs

Caryl

Ok, Im doing fairly well getting back on track. But, I am still having some problem controlling my grazing. Its gettin better but still a problem. What the heck is wrong with me!!?? Why cant I pass a bowl of crackers, chips, whatever...and just say no. Why do I mindlessly pop one into my mouth!!! And then another?! Where do I draw on the strength to just shrug my shoulders and abstain?! Why cant I beat this!!!Sigh.............Huggles

Caryl DeHerrerawww.Fantasyinart.net

July 26, 2005

we have other family members who can have these carbs and i do not expect them to not eat them just because i can not , so i have them in my house and my friends abd relatives have these things at their homes also it is up to me to not eat them , it is something we have to learn to control for the rest of our lifes.. take care

shirley socalbczion13@... wrote:

Hi ,

Are you worried about something? Why is the bad food still in the house?

You need house cleaning until you get the Carb. Out of your system. once you start thinking protein only you will be surprised by what you can find out there.

Big Hugs

Caryl

Ok, Im doing fairly well getting back on track. But, I am still having some problem controlling my grazing. Its gettin better but still a problem. What the heck is wrong with me!!?? Why cant I pass a bowl of crackers, chips, whatever...and just say no. Why do I mindlessly pop one into my mouth!!! And then another?! Where do I draw on the strength to just shrug my shoulders and abstain?! Why cant I beat this!!!Sigh.............Huggles

Caryl DeHerrerawww.Fantasyinart.net

June 8, 2006

Hello Everyone!

I just wanted you all to know that my niece went home yesterday. Thanks

to all for the prayers and good thoughts and wishes. She will need some

therapy for awhile on an outpatient basis but it looks like her head

injury may completely heal with no lasting affects.

To all of you that I have missed I hope everything is ok. I know some

people have started infusions, new meds, etc. and I will pray those

things work well for you. I miss the comaradarie and hope to be back on

a regular schedule now. I did go to the chat room and register so I can

chat with yall in real time.

I think it was Connie who asked about my holding pattern so here goes.

My PCP is now blowing me off. I am not getting schedule for the biopsy

of the lymph node on my chest wall under the collar bone. My urologist

wrote him a letter about finding the cause of my neurogenic bladder (you

cannot fake that) and he blew that off. I was having problems with my

bladder medication and the PCP gave me something new which made me very

sick. I am back on the old stuff and if I walk around I pee. Woo hoo.

I have called the urologist for something else but he is on vacation all

week. I have been very depressed. I did try to change PCP's but the

one I wanted to go to cannot take any more patients at this time.

I am just dragging bottom physically and emotionally and spiritually. I

don't know what the answer is going to be for me; I am at the mercy of

the PCP. He thinks it is all in my head. My urologist told me that

doctors say that when they can't figure out what is wrong. I have asked

the PCP to call my therapist and he still has not. I have called his

office twice this week and he still has not done it. My therapist has

treated people that have Somatoform Disorder (your symptoms are all in

your head) and I am not that type of person. He has been a God send;

otherwise I would be ready to off myself.

I want to go back to work, have my life back, visit family and friends

when I want too.....I don't want this shit. Please, please send me your

good thoughts and prayers. I don't know what I am going to do....I just

can't live like this anymore. I need a doctor who is going to be my

advocate and one I can trust.

Love to all of you and don't worry, I am not going to hurt myself. Let

me know if there are any new chats coming up during the day - I am a

morning person and more alert at that time.

Terri G.

June 13, 2006

Thanks for the blanket Rose, I will send it on to Tracie for her niece. Take Care, ConnieRose wrote: Connie, that's great about your niece. What a relief for your family, despite the hard work ahead for her.About your PCP, maybe your urologist (after vacation) would be willing to call the one you want & ask him/her to take you on as a patient. That's how I got into the internist I wanted to see. My neuro called him. Right now it sounds like your urologist is basically providing primary care for you, so

it would be to his advantage to help you change to a better qualified doctor. You might want to approach him that way, saying something about how appreciative you are of his efforts on your behalf, how frustrating it is that he is doing things that are really the PCP's responsibility, and life would probably be a lot easier for both of you if you could see Dr. Welby. Don't lay it on too thick, but it's the truth! Love and virtual hugs, RoseP.S. I'm sending one of Tracie's virtual blankets by Special Delivery. These are the softest, warmest, most comforting blankets in the world. Have a real cup of tea & snuggle away in your blanket, which should be arriving just about . . . . . . . . NOW! >> > Hello Everyone!> > I just wanted

you all to know that my niece went home yesterday. Thanks> to all for the prayers and good thoughts and wishes. She will need some> therapy for awhile on an outpatient basis but it looks like her head> injury may completely heal with no lasting affects.> > To all of you that I have missed I hope everything is ok. I know some> people have started infusions, new meds, etc. and I will pray those> things work well for you. I miss the comaradarie and hope to be back on> a regular schedule now. I did go to the chat room and register so I can> chat with yall in real time.> > I think it was Connie who asked about my holding pattern so here goes. > My PCP is now blowing me off. I am not getting schedule for the biopsy> of the lymph node on my chest wall under the collar bone. My urologist> wrote him a letter about finding the cause of my neurogenic

bladder (you> cannot fake that) and he blew that off. I was having problems with my> bladder medication and the PCP gave me something new which made me very> sick. I am back on the old stuff and if I walk around I pee. Woo hoo. > I have called the urologist for something else but he is on vacation all> week. I have been very depressed. I did try to change PCP's but the> one I wanted to go to cannot take any more patients at this time.> > I am just dragging bottom physically and emotionally and spiritually. I> don't know what the answer is going to be for me; I am at the mercy of> the PCP. He thinks it is all in my head. My urologist told me that> doctors say that when they can't figure out what is wrong. I have asked> the PCP to call my therapist and he still has not. I have called his> office twice this week and he still has not done it. My

therapist has> treated people that have Somatoform Disorder (your symptoms are all in> your head) and I am not that type of person. He has been a God send;> otherwise I would be ready to off myself.> > I want to go back to work, have my life back, visit family and friends> when I want too.....I don't want this shit. Please, please send me your> good thoughts and prayers. I don't know what I am going to do....I just> can't live like this anymore. I need a doctor who is going to be my> advocate and one I can trust.> > Love to all of you and don't worry, I am not going to hurt myself. Let> me know if there are any new chats coming up during the day - I am a> morning person and more alert at that time.> > Terri G.> __________________________________________________

June 13, 2006

Thanks for the blanket Rose, I will send it on to Tracie for her niece. Take Care, ConnieRose wrote: Connie, that's great about your niece. What a relief for your family, despite the hard work ahead for her.About your PCP, maybe your urologist (after vacation) would be willing to call the one you want & ask him/her to take you on as a patient. That's how I got into the internist I wanted to see. My neuro called him. Right now it sounds like your urologist is basically providing primary care for you, so

it would be to his advantage to help you change to a better qualified doctor. You might want to approach him that way, saying something about how appreciative you are of his efforts on your behalf, how frustrating it is that he is doing things that are really the PCP's responsibility, and life would probably be a lot easier for both of you if you could see Dr. Welby. Don't lay it on too thick, but it's the truth! Love and virtual hugs, RoseP.S. I'm sending one of Tracie's virtual blankets by Special Delivery. These are the softest, warmest, most comforting blankets in the world. Have a real cup of tea & snuggle away in your blanket, which should be arriving just about . . . . . . . . NOW! >> > Hello Everyone!> > I just wanted

you all to know that my niece went home yesterday. Thanks> to all for the prayers and good thoughts and wishes. She will need some> therapy for awhile on an outpatient basis but it looks like her head> injury may completely heal with no lasting affects.> > To all of you that I have missed I hope everything is ok. I know some> people have started infusions, new meds, etc. and I will pray those> things work well for you. I miss the comaradarie and hope to be back on> a regular schedule now. I did go to the chat room and register so I can> chat with yall in real time.> > I think it was Connie who asked about my holding pattern so here goes. > My PCP is now blowing me off. I am not getting schedule for the biopsy> of the lymph node on my chest wall under the collar bone. My urologist> wrote him a letter about finding the cause of my neurogenic

bladder (you> cannot fake that) and he blew that off. I was having problems with my> bladder medication and the PCP gave me something new which made me very> sick. I am back on the old stuff and if I walk around I pee. Woo hoo. > I have called the urologist for something else but he is on vacation all> week. I have been very depressed. I did try to change PCP's but the> one I wanted to go to cannot take any more patients at this time.> > I am just dragging bottom physically and emotionally and spiritually. I> don't know what the answer is going to be for me; I am at the mercy of> the PCP. He thinks it is all in my head. My urologist told me that> doctors say that when they can't figure out what is wrong. I have asked> the PCP to call my therapist and he still has not. I have called his> office twice this week and he still has not done it. My

therapist has> treated people that have Somatoform Disorder (your symptoms are all in> your head) and I am not that type of person. He has been a God send;> otherwise I would be ready to off myself.> > I want to go back to work, have my life back, visit family and friends> when I want too.....I don't want this shit. Please, please send me your> good thoughts and prayers. I don't know what I am going to do....I just> can't live like this anymore. I need a doctor who is going to be my> advocate and one I can trust.> > Love to all of you and don't worry, I am not going to hurt myself. Let> me know if there are any new chats coming up during the day - I am a> morning person and more alert at that time.> > Terri G.> __________________________________________________

June 13, 2006

Thanks for the blanket Rose, I will send it on to Tracie for her niece. Take Care, ConnieRose wrote: Connie, that's great about your niece. What a relief for your family, despite the hard work ahead for her.About your PCP, maybe your urologist (after vacation) would be willing to call the one you want & ask him/her to take you on as a patient. That's how I got into the internist I wanted to see. My neuro called him. Right now it sounds like your urologist is basically providing primary care for you, so

it would be to his advantage to help you change to a better qualified doctor. You might want to approach him that way, saying something about how appreciative you are of his efforts on your behalf, how frustrating it is that he is doing things that are really the PCP's responsibility, and life would probably be a lot easier for both of you if you could see Dr. Welby. Don't lay it on too thick, but it's the truth! Love and virtual hugs, RoseP.S. I'm sending one of Tracie's virtual blankets by Special Delivery. These are the softest, warmest, most comforting blankets in the world. Have a real cup of tea & snuggle away in your blanket, which should be arriving just about . . . . . . . . NOW! >> > Hello Everyone!> > I just wanted

you all to know that my niece went home yesterday. Thanks> to all for the prayers and good thoughts and wishes. She will need some> therapy for awhile on an outpatient basis but it looks like her head> injury may completely heal with no lasting affects.> > To all of you that I have missed I hope everything is ok. I know some> people have started infusions, new meds, etc. and I will pray those> things work well for you. I miss the comaradarie and hope to be back on> a regular schedule now. I did go to the chat room and register so I can> chat with yall in real time.> > I think it was Connie who asked about my holding pattern so here goes. > My PCP is now blowing me off. I am not getting schedule for the biopsy> of the lymph node on my chest wall under the collar bone. My urologist> wrote him a letter about finding the cause of my neurogenic

bladder (you> cannot fake that) and he blew that off. I was having problems with my> bladder medication and the PCP gave me something new which made me very> sick. I am back on the old stuff and if I walk around I pee. Woo hoo. > I have called the urologist for something else but he is on vacation all> week. I have been very depressed. I did try to change PCP's but the> one I wanted to go to cannot take any more patients at this time.> > I am just dragging bottom physically and emotionally and spiritually. I> don't know what the answer is going to be for me; I am at the mercy of> the PCP. He thinks it is all in my head. My urologist told me that> doctors say that when they can't figure out what is wrong. I have asked> the PCP to call my therapist and he still has not. I have called his> office twice this week and he still has not done it. My

therapist has> treated people that have Somatoform Disorder (your symptoms are all in> your head) and I am not that type of person. He has been a God send;> otherwise I would be ready to off myself.> > I want to go back to work, have my life back, visit family and friends> when I want too.....I don't want this shit. Please, please send me your> good thoughts and prayers. I don't know what I am going to do....I just> can't live like this anymore. I need a doctor who is going to be my> advocate and one I can trust.> > Love to all of you and don't worry, I am not going to hurt myself. Let> me know if there are any new chats coming up during the day - I am a> morning person and more alert at that time.> > Terri G.> __________________________________________________

June 13, 2006

Connie, I meant to write it to Terri, and I guess she figured it

out! If you have any nieces, I hope they are well. LOL. Rose

> >

> > Hello Everyone!

> >

> > I just wanted you all to know that my niece went home yesterday.

> Thanks

> > to all for the prayers and good thoughts and wishes. She will

need

> some

> > therapy for awhile on an outpatient basis but it looks like her

head

> > injury may completely heal with no lasting affects.

> >

> > To all of you that I have missed I hope everything is ok. I know

> some

> > people have started infusions, new meds, etc. and I will pray

those

> > things work well for you. I miss the comaradarie and hope to be

> back on

> > a regular schedule now. I did go to the chat room and register so

> I can

> > chat with yall in real time.

> >

> > I think it was Connie who asked about my holding pattern so here

> goes.

> > My PCP is now blowing me off. I am not getting schedule for the

> biopsy

> > of the lymph node on my chest wall under the collar bone. My

> urologist

> > wrote him a letter about finding the cause of my neurogenic

bladder

> (you

> > cannot fake that) and he blew that off. I was having problems

with

> my

> > bladder medication and the PCP gave me something new which made

me

> very

> > sick. I am back on the old stuff and if I walk around I pee. Woo

> hoo.

> > I have called the urologist for something else but he is on

> vacation all

> > week. I have been very depressed. I did try to change PCP's but

> the

> > one I wanted to go to cannot take any more patients at this time.

> >

> > I am just dragging bottom physically and emotionally and

> spiritually. I

> > don't know what the answer is going to be for me; I am at the

mercy

> of

> > the PCP. He thinks it is all in my head. My urologist told me that

> > doctors say that when they can't figure out what is wrong. I have

> asked

> > the PCP to call my therapist and he still has not. I have called

> his

> > office twice this week and he still has not done it. My therapist

> has

> > treated people that have Somatoform Disorder (your symptoms are

all

> in

> > your head) and I am not that type of person. He has been a God

> send;

> > otherwise I would be ready to off myself.

> >

> > I want to go back to work, have my life back, visit family and

> friends

> > when I want too.....I don't want this shit. Please, please send

me

> your

> > good thoughts and prayers. I don't know what I am going to

do....I

> just

> > can't live like this anymore. I need a doctor who is going to be

my

> > advocate and one I can trust.

> >

> > Love to all of you and don't worry, I am not going to hurt

myself.

> Let

> > me know if there are any new chats coming up during the day - I

am a

> > morning person and more alert at that time.

> >

> > Terri G.

> >

>

> __________________________________________________

>

June 13, 2006

Connie, I meant to write it to Terri, and I guess she figured it

out! If you have any nieces, I hope they are well. LOL. Rose

> >

> > Hello Everyone!

> >

> > I just wanted you all to know that my niece went home yesterday.

> Thanks

> > to all for the prayers and good thoughts and wishes. She will

need

> some

> > therapy for awhile on an outpatient basis but it looks like her

head

> > injury may completely heal with no lasting affects.

> >

> > To all of you that I have missed I hope everything is ok. I know

> some

> > people have started infusions, new meds, etc. and I will pray

those

> > things work well for you. I miss the comaradarie and hope to be

> back on

> > a regular schedule now. I did go to the chat room and register so

> I can

> > chat with yall in real time.

> >

> > I think it was Connie who asked about my holding pattern so here

> goes.

> > My PCP is now blowing me off. I am not getting schedule for the

> biopsy

> > of the lymph node on my chest wall under the collar bone. My

> urologist

> > wrote him a letter about finding the cause of my neurogenic

bladder

> (you

> > cannot fake that) and he blew that off. I was having problems

with

> my

> > bladder medication and the PCP gave me something new which made

me

> very

> > sick. I am back on the old stuff and if I walk around I pee. Woo

> hoo.

> > I have called the urologist for something else but he is on

> vacation all

> > week. I have been very depressed. I did try to change PCP's but

> the

> > one I wanted to go to cannot take any more patients at this time.

> >

> > I am just dragging bottom physically and emotionally and

> spiritually. I

> > don't know what the answer is going to be for me; I am at the

mercy

> of

> > the PCP. He thinks it is all in my head. My urologist told me that

> > doctors say that when they can't figure out what is wrong. I have

> asked

> > the PCP to call my therapist and he still has not. I have called

> his

> > office twice this week and he still has not done it. My therapist

> has

> > treated people that have Somatoform Disorder (your symptoms are

all

> in

> > your head) and I am not that type of person. He has been a God

> send;

> > otherwise I would be ready to off myself.

> >

> > I want to go back to work, have my life back, visit family and

> friends

> > when I want too.....I don't want this shit. Please, please send

me

> your

> > good thoughts and prayers. I don't know what I am going to

do....I

> just

> > can't live like this anymore. I need a doctor who is going to be

my

> > advocate and one I can trust.

> >

> > Love to all of you and don't worry, I am not going to hurt

myself.

> Let

> > me know if there are any new chats coming up during the day - I

am a

> > morning person and more alert at that time.

> >

> > Terri G.

> >

>

> __________________________________________________

>

June 13, 2006

Connie, I meant to write it to Terri, and I guess she figured it

out! If you have any nieces, I hope they are well. LOL. Rose

> >

> > Hello Everyone!

> >

> > I just wanted you all to know that my niece went home yesterday.

> Thanks

> > to all for the prayers and good thoughts and wishes. She will

need

> some

> > therapy for awhile on an outpatient basis but it looks like her

head

> > injury may completely heal with no lasting affects.

> >

> > To all of you that I have missed I hope everything is ok. I know

> some

> > people have started infusions, new meds, etc. and I will pray

those

> > things work well for you. I miss the comaradarie and hope to be

> back on

> > a regular schedule now. I did go to the chat room and register so

> I can

> > chat with yall in real time.

> >

> > I think it was Connie who asked about my holding pattern so here

> goes.

> > My PCP is now blowing me off. I am not getting schedule for the

> biopsy

> > of the lymph node on my chest wall under the collar bone. My

> urologist

> > wrote him a letter about finding the cause of my neurogenic

bladder

> (you

> > cannot fake that) and he blew that off. I was having problems

with

> my

> > bladder medication and the PCP gave me something new which made

me

> very

> > sick. I am back on the old stuff and if I walk around I pee. Woo

> hoo.

> > I have called the urologist for something else but he is on

> vacation all

> > week. I have been very depressed. I did try to change PCP's but

> the

> > one I wanted to go to cannot take any more patients at this time.

> >

> > I am just dragging bottom physically and emotionally and

> spiritually. I

> > don't know what the answer is going to be for me; I am at the

mercy

> of

> > the PCP. He thinks it is all in my head. My urologist told me that

> > doctors say that when they can't figure out what is wrong. I have

> asked

> > the PCP to call my therapist and he still has not. I have called

> his

> > office twice this week and he still has not done it. My therapist

> has

> > treated people that have Somatoform Disorder (your symptoms are

all

> in

> > your head) and I am not that type of person. He has been a God

> send;

> > otherwise I would be ready to off myself.

> >

> > I want to go back to work, have my life back, visit family and

> friends

> > when I want too.....I don't want this shit. Please, please send

me

> your

> > good thoughts and prayers. I don't know what I am going to

do....I

> just

> > can't live like this anymore. I need a doctor who is going to be

my

> > advocate and one I can trust.

> >

> > Love to all of you and don't worry, I am not going to hurt

myself.

> Let

> > me know if there are any new chats coming up during the day - I

am a

> > morning person and more alert at that time.

> >

> > Terri G.

> >

>

> __________________________________________________

>

August 18, 2009

you go girl!!!!!!!!

eileen 19 months scd

>

> I just came back from 5 days at a lake house in Georgia, and my diet

> did not suffer! Yay! I'm proud to say that the entire time I was

> there, all I ate were:

>

> Chicken soup

> zucchini soup

> yogurt

> honey

> eggs

> pecan-honey squares

> almond butter

> bananas

> butter

> salt

> pepper

> homemade meatballs

>

> Woot! I am proud of myself. And not once did I cry or get super

> depressed over all the delicious looking food around me. And let me

> tell you, with 30 people there, most of them overweight, there was a

> LOT of food goin' on. =)

>

> I must confess that on the 6 hour drive home, though, I ate 3

> questionable fruit leathers. The ingredients were good, but you know

> you can never trust these things. No adverse reactions so far, but I

> am wishing I had more self control. But they tasted SOOO good =)

>

> I think I could've avoided them except for the fact that my car

> food, a smoothie, was actually a lumpie, and every swallow contained

> at least one banana lump that made me gag. Ug! I'm so used to my

> blentec that all other blenders seem very inferior in comparison, and

> I was cursing this one the whole lump-filled ride home. Ah well, worse

> things have happened!

>

> And some more good news: Saturday is my last day on prednisone!!! Woot!

>

> And I just weighed myself and I'm 95 lbs!!! WOOT!

>

> Unfortunately, my throat has more white pus, and my mom said that if

> it's not strep again it could be yeast. I'm hoping for a virus. I'll

> probably have it checked tomorrow. Fingers crossed!

>

> Pour Dieu, pour terre,

> Alyssa 15

> UC April 2008, diagnosed Sept 2008

> SCD June 2009 (restarted)

> 20mg Prednisone 1x daily ugh

>

August 19, 2009

So glad you are doing well

PJ

> >

> > I just came back from 5 days at a lake house in Georgia, and my diet

> > did not suffer! Yay! I'm proud to say that the entire time I was

> > there, all I ate were:

> >

> > Chicken soup

> > zucchini soup

> > yogurt

> > honey

> > eggs

> > pecan-honey squares

> > almond butter

> > bananas

> > butter

> > salt

> > pepper

> > homemade meatballs

> >

> > Woot! I am proud of myself. And not once did I cry or get super

> > depressed over all the delicious looking food around me. And let me

> > tell you, with 30 people there, most of them overweight, there was a

> > LOT of food goin' on. =)

> >

> > I must confess that on the 6 hour drive home, though, I ate 3

> > questionable fruit leathers. The ingredients were good, but you know

> > you can never trust these things. No adverse reactions so far, but I

> > am wishing I had more self control. But they tasted SOOO good =)

> >

> > I think I could've avoided them except for the fact that my car

> > food, a smoothie, was actually a lumpie, and every swallow contained

> > at least one banana lump that made me gag. Ug! I'm so used to my

> > blentec that all other blenders seem very inferior in comparison, and

> > I was cursing this one the whole lump-filled ride home. Ah well, worse

> > things have happened!

> >

> > And some more good news: Saturday is my last day on prednisone!!! Woot!

> >

> > And I just weighed myself and I'm 95 lbs!!! WOOT!

> >

> > Unfortunately, my throat has more white pus, and my mom said that if

> > it's not strep again it could be yeast. I'm hoping for a virus. I'll

> > probably have it checked tomorrow. Fingers crossed!

> >

> > Pour Dieu, pour terre,

> > Alyssa 15

> > UC April 2008, diagnosed Sept 2008

> > SCD June 2009 (restarted)

> > 20mg Prednisone 1x daily ugh

> >

>

August 19, 2009

Very nicely done Alyssa! Glad to see you are doing well –

hang in there!

Carol

CD 21 yrs SCD 4.5 yrs

From:

BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of Alyssa

Luck

I just came back from 5 days at a lake house in

Georgia, and my diet

did not suffer! Yay! I'm proud to say that the entire time I was

there, all I ate were:

August 19, 2009

Alyssa:

Congrats to you for staying SCD and gaining weight!!!!

Even though the fruit leathers might have been " legal " , you might not be able to

tolerate them. If you have ill effects from eating them, use it as a learning

experience. You can't change what you've done, but you can do something about

your future actions. I think you do great!!!! And, I'm so proud of you for

taking this step to have your health in your hands. Oh, and self control is like

a whole nother language to me. I have so little.

I just got over a really bad throat infection. It wasn't strep or tonsilitis.

Doc said it was a virus. The Amoxicillan kicked my butt though.

Hope your throat gets better soon.

Misty Kimble

CD - no meds

SCD - 19 months

> I just came back from 5 days at a lake house in Georgia, and my diet did not

suffer! Yay! I'm proud to say that the entire time I was there, all I ate were:

> Woot! I am proud of myself. And not once did I cry or get super depressed over

all the delicious looking food around me. And let me tell you, with 30 people

there, most of them overweight, there was a LOT of food goin' on. =)

> I must confess that on the 6 hour drive home, though, I ate 3 questionable

fruit leathers. The ingredients were good, but you know you can never trust

these things. No adverse reactions so far, but I am wishing I had more self

control. But they tasted SOOO good =)

> And I just weighed myself and I'm 95 lbs!!! WOOT!

> Unfortunately, my throat has more white pus, and my mom said that if it's not

strep again it could be yeast. I'm hoping for a virus. I'll probably have it

checked tomorrow. Fingers crossed!

> Pour Dieu, pour terre,

> Alyssa 15

> UC April 2008, diagnosed Sept 2008

> SCD June 2009 (restarted)

> 20mg Prednisone 1x daily ugh

August 19, 2009