update

[Guest guest]

Hello Everyone!

I just wanted you all to know that my niece went home yesterday. Thanks

to all for the prayers and good thoughts and wishes. She will need some

therapy for awhile on an outpatient basis but it looks like her head

injury may completely heal with no lasting affects.

To all of you that I have missed I hope everything is ok. I know some

people have started infusions, new meds, etc. and I will pray those

things work well for you. I miss the comaradarie and hope to be back on

a regular schedule now. I did go to the chat room and register so I can

chat with yall in real time.

I think it was Connie who asked about my holding pattern so here goes.

My PCP is now blowing me off. I am not getting schedule for the biopsy

of the lymph node on my chest wall under the collar bone. My urologist

wrote him a letter about finding the cause of my neurogenic bladder (you

cannot fake that) and he blew that off. I was having problems with my

bladder medication and the PCP gave me something new which made me very

sick. I am back on the old stuff and if I walk around I pee. Woo hoo.

I have called the urologist for something else but he is on vacation all

week. I have been very depressed. I did try to change PCP's but the

one I wanted to go to cannot take any more patients at this time.

I am just dragging bottom physically and emotionally and spiritually. I

don't know what the answer is going to be for me; I am at the mercy of

the PCP. He thinks it is all in my head. My urologist told me that

doctors say that when they can't figure out what is wrong. I have asked

the PCP to call my therapist and he still has not. I have called his

office twice this week and he still has not done it. My therapist has

treated people that have Somatoform Disorder (your symptoms are all in

your head) and I am not that type of person. He has been a God send;

otherwise I would be ready to off myself.

I want to go back to work, have my life back, visit family and friends

when I want too.....I don't want this shit. Please, please send me your

good thoughts and prayers. I don't know what I am going to do....I just

can't live like this anymore. I need a doctor who is going to be my

advocate and one I can trust.

Love to all of you and don't worry, I am not going to hurt myself. Let

me know if there are any new chats coming up during the day - I am a

morning person and more alert at that time.

Terri G.