Re: Dr's visit

[Guest guest]

Robin,

I see a Neurologist for FM. I definitely think he has a better grasp on it than

my rhuemie does. He was the 1st one to suggest trigger point injections, first

1 to check for MS. His wife and daughter both have FM so he has a vested

interest in learning all he can about it. I'm glad you finally found a doctor

that is helping you. I was also passed around doctors for a long time and it's

very defeating to the soul when no one can help you.

anne

Dr's Visit

Well I had my follow up appt with my dr. I got the 2 weeks off with

a diagonis of Stress, depression and fatigue. My doc is leary of

actually saying yes you have CFS. I am wondering if she even believes

in it. I have an appt with my nuerologist tomorrow and was thinking

of asking him about CFS adnd FMS. I really like him and feel more

comfotable with him. When I had so many problems with headaches and

dizzness last year he was the only one that knew what was going on.

I had ct scan and mri's and went to an ENT and blood test after blood

test etc. but I went to him and he knew right away. Does anyone see

a nuerologist for CFS or FMS? Thanks for listening.

Robin

[Guest guest]

Robin,

I see a Neurologist for FM. I definitely think he has a better grasp on it than

my rhuemie does. He was the 1st one to suggest trigger point injections, first

1 to check for MS. His wife and daughter both have FM so he has a vested

interest in learning all he can about it. I'm glad you finally found a doctor

that is helping you. I was also passed around doctors for a long time and it's

very defeating to the soul when no one can help you.

anne

Dr's Visit

Well I had my follow up appt with my dr. I got the 2 weeks off with

a diagonis of Stress, depression and fatigue. My doc is leary of

actually saying yes you have CFS. I am wondering if she even believes

in it. I have an appt with my nuerologist tomorrow and was thinking

of asking him about CFS adnd FMS. I really like him and feel more

comfotable with him. When I had so many problems with headaches and

dizzness last year he was the only one that knew what was going on.

I had ct scan and mri's and went to an ENT and blood test after blood

test etc. but I went to him and he knew right away. Does anyone see

a nuerologist for CFS or FMS? Thanks for listening.

Robin

[Guest guest]

Robin,

I see a Neurologist for FM. I definitely think he has a better grasp on it than

my rhuemie does. He was the 1st one to suggest trigger point injections, first

1 to check for MS. His wife and daughter both have FM so he has a vested

interest in learning all he can about it. I'm glad you finally found a doctor

that is helping you. I was also passed around doctors for a long time and it's

very defeating to the soul when no one can help you.

anne

Dr's Visit

Well I had my follow up appt with my dr. I got the 2 weeks off with

a diagonis of Stress, depression and fatigue. My doc is leary of

actually saying yes you have CFS. I am wondering if she even believes

in it. I have an appt with my nuerologist tomorrow and was thinking

of asking him about CFS adnd FMS. I really like him and feel more

comfotable with him. When I had so many problems with headaches and

dizzness last year he was the only one that knew what was going on.

I had ct scan and mri's and went to an ENT and blood test after blood

test etc. but I went to him and he knew right away. Does anyone see

a nuerologist for CFS or FMS? Thanks for listening.

Robin

[Guest guest]

My neurologist is the only doc that I have found

that is willing to help me at all! I cant ever get in

touch with my gp and I can't find a rheumy on my

insurance that anyone can recommend as being fibro

friendly..

HTH

Mandy

-- Re: Dr's Visit

Robin,

I see a Neurologist for FM. I definitely think he has a better grasp on it

than my rhuemie does. He was the 1st one to suggest trigger point

injections, first 1 to check for MS. His wife and daughter both have FM so

he has a vested interest in learning all he can about it. I'm glad you

finally found a doctor that is helping you. I was also passed around

doctors for a long time and it's very defeating to the soul when no one can

help you.

anne

Dr's Visit

Well I had my follow up appt with my dr. I got the 2 weeks off with

a diagonis of Stress, depression and fatigue. My doc is leary of

actually saying yes you have CFS. I am wondering if she even believes

in it. I have an appt with my nuerologist tomorrow and was thinking

of asking him about CFS adnd FMS. I really like him and feel more

comfotable with him. When I had so many problems with headaches and

dizzness last year he was the only one that knew what was going on.

I had ct scan and mri's and went to an ENT and blood test after blood

test etc. but I went to him and he knew right away. Does anyone see

a nuerologist for CFS or FMS? Thanks for listening.

Robin

[Guest guest]

My neurologist is the only doc that I have found

that is willing to help me at all! I cant ever get in

touch with my gp and I can't find a rheumy on my

insurance that anyone can recommend as being fibro

friendly..

HTH

Mandy

-- Re: Dr's Visit

Robin,

I see a Neurologist for FM. I definitely think he has a better grasp on it

than my rhuemie does. He was the 1st one to suggest trigger point

injections, first 1 to check for MS. His wife and daughter both have FM so

he has a vested interest in learning all he can about it. I'm glad you

finally found a doctor that is helping you. I was also passed around

doctors for a long time and it's very defeating to the soul when no one can

help you.

anne

Dr's Visit

Well I had my follow up appt with my dr. I got the 2 weeks off with

a diagonis of Stress, depression and fatigue. My doc is leary of

actually saying yes you have CFS. I am wondering if she even believes

in it. I have an appt with my nuerologist tomorrow and was thinking

of asking him about CFS adnd FMS. I really like him and feel more

comfotable with him. When I had so many problems with headaches and

dizzness last year he was the only one that knew what was going on.

I had ct scan and mri's and went to an ENT and blood test after blood

test etc. but I went to him and he knew right away. Does anyone see

a nuerologist for CFS or FMS? Thanks for listening.

Robin

[Guest guest]

My neurologist is the only doc that I have found

that is willing to help me at all! I cant ever get in

touch with my gp and I can't find a rheumy on my

insurance that anyone can recommend as being fibro

friendly..

HTH

Mandy

-- Re: Dr's Visit

Robin,

I see a Neurologist for FM. I definitely think he has a better grasp on it

than my rhuemie does. He was the 1st one to suggest trigger point

injections, first 1 to check for MS. His wife and daughter both have FM so

he has a vested interest in learning all he can about it. I'm glad you

finally found a doctor that is helping you. I was also passed around

doctors for a long time and it's very defeating to the soul when no one can

help you.

anne

Dr's Visit

Well I had my follow up appt with my dr. I got the 2 weeks off with

a diagonis of Stress, depression and fatigue. My doc is leary of

actually saying yes you have CFS. I am wondering if she even believes

in it. I have an appt with my nuerologist tomorrow and was thinking

of asking him about CFS adnd FMS. I really like him and feel more

comfotable with him. When I had so many problems with headaches and

dizzness last year he was the only one that knew what was going on.

I had ct scan and mri's and went to an ENT and blood test after blood

test etc. but I went to him and he knew right away. Does anyone see

a nuerologist for CFS or FMS? Thanks for listening.

Robin

[Guest guest]

,

Your MD may be a sweetie, but she knows jack about sarc! Those tumors are the result of your body thinking it needs to send cells to attack something, and then it doesn't clear out, and yes, fatty tumors form- (they'll harden over time)--and keratosis--the pathologist doesn't know shit either.

It could be a form of keratosis-- we get alot more different kinds of skin problems other than just EN. The only way to get this under control is to find an MD that knows sarc, get your slides from the pathologist, and insist on a second opinion.

Damn, Damn, Damn. .

It's time for Cytoxen or Remicade or Enbrel or Humira. What have you been on over the last year? Pred's not gonna help-- or at least would only help for a short time. Take it away, and it's back to purgatory.

Love ya,

Tracie

[Guest guest]

,

I haven't felt like talking since going to Duke but your post touched a nerve so here I am. I know how it feels to have things diagnosed as depression or emotions; I go through that with everyone I see. While I have symptoms that in no way be caused by emotions, everything else is being blamed on it though. So you can tell me about how you feel all you want. I am at the point right now that I am going to do all of my follow ups that I have scheduled but after that my PCP is going to be the only one I go to. He can communicate with the specialists. Dr. Skeen at Duke is very nice but there was nothing they can do for me. I have very brisk reflexes, a neurogenic bladder, balance issues, ......but I looked him straight in the eye and asked him if he thought my problems were caused by emotions. And he said some of them were. Let's face it; if we are sick and we are women we are depressed and our problems are made worse by it. Chronic illness is difficult and the stress can make our symptoms worse but they are not caused by it. My urologist told me one time that doctors are more comfortable telling you that you's are depressed or that you have emotional problems than saying they don't know what it is wrong with you. So don't take all of that to heart.

If you are depressed as we all are, please be sure to deal with it but just remember that you are not making it up. My family and friends see me on a daily basis and see what is happening to me and cannot believe that I am being just left on my own - but I know that the reason for all of this will be shown to me by God in his own time. Don't get me wrong, I get mad at Him and I question him but then I go back and apologize and cry. Do what it takes to make you feel better and keep on keepin' on girlfriend.

Well, that is enough of my mind and my problems, but anytime you want to talk, let me know.

Terri G. >> I have never been so disappointed in a doctor's visit as I was yesterday. I> have a young female medical doctor that is the sweetest thing. And> yesterday seemed to be a day of doctor visits for a few of us. I had the> biopsies of the lesions on my shins and a granuloma in my R side on Monday> of last week and she got the reports to me, I don't know if they were the> final reports or not, but she informed me that I didn't have Erythema> nodosum but Keratosis, that just happens to be on both of my shins, and when> they started I had horrid bone pain associated with them. Then the> granuloma's that cover my abdomen are not granuloma's but fatty tumors,> which she said was benign. While this is good news I am somewhat shocked as> my physical condition seems to be worsening daily. I go Monday for the> Endoscopy and Colonoscopy, and after that is done my young doctor told me> that there really wasn't anything she could do for me. She thinks I'm> depressed, which I guess is true, but I'm mostly scared that no one is> taking my problems as anything but depression. I really don't want> depression listed as one of my diagnosis, because I don't feel that they> will believe me when I say my back is killing me or that I can't stand> longer than 10 minutes without having horrible tremors and near falls. And> to top it off when the doctor left my room, I got dressed started out the> door and became totally confused as to where I was. I knew I was in the> doctor's office but I didn't know how to get out to the lobby. I guess I> was imagining that too. > > Elodia, I think Dr Baughman might be in my future. I just don't know who> now I would have him call if he thought I was still suffering from NS or> something else. I have worked as a nurse for 25 years before getting sick,> and I've never known depression to make you unable to walk, why would I want> that? Anyway, put me into the rant category and play a little Jimmy Buffet> for me.. OK? > > t>

[Guest guest]

,

I haven't felt like talking since going to Duke but your post touched a nerve so here I am. I know how it feels to have things diagnosed as depression or emotions; I go through that with everyone I see. While I have symptoms that in no way be caused by emotions, everything else is being blamed on it though. So you can tell me about how you feel all you want. I am at the point right now that I am going to do all of my follow ups that I have scheduled but after that my PCP is going to be the only one I go to. He can communicate with the specialists. Dr. Skeen at Duke is very nice but there was nothing they can do for me. I have very brisk reflexes, a neurogenic bladder, balance issues, ......but I looked him straight in the eye and asked him if he thought my problems were caused by emotions. And he said some of them were. Let's face it; if we are sick and we are women we are depressed and our problems are made worse by it. Chronic illness is difficult and the stress can make our symptoms worse but they are not caused by it. My urologist told me one time that doctors are more comfortable telling you that you's are depressed or that you have emotional problems than saying they don't know what it is wrong with you. So don't take all of that to heart.

If you are depressed as we all are, please be sure to deal with it but just remember that you are not making it up. My family and friends see me on a daily basis and see what is happening to me and cannot believe that I am being just left on my own - but I know that the reason for all of this will be shown to me by God in his own time. Don't get me wrong, I get mad at Him and I question him but then I go back and apologize and cry. Do what it takes to make you feel better and keep on keepin' on girlfriend.

Well, that is enough of my mind and my problems, but anytime you want to talk, let me know.

Terri G. >> I have never been so disappointed in a doctor's visit as I was yesterday. I> have a young female medical doctor that is the sweetest thing. And> yesterday seemed to be a day of doctor visits for a few of us. I had the> biopsies of the lesions on my shins and a granuloma in my R side on Monday> of last week and she got the reports to me, I don't know if they were the> final reports or not, but she informed me that I didn't have Erythema> nodosum but Keratosis, that just happens to be on both of my shins, and when> they started I had horrid bone pain associated with them. Then the> granuloma's that cover my abdomen are not granuloma's but fatty tumors,> which she said was benign. While this is good news I am somewhat shocked as> my physical condition seems to be worsening daily. I go Monday for the> Endoscopy and Colonoscopy, and after that is done my young doctor told me> that there really wasn't anything she could do for me. She thinks I'm> depressed, which I guess is true, but I'm mostly scared that no one is> taking my problems as anything but depression. I really don't want> depression listed as one of my diagnosis, because I don't feel that they> will believe me when I say my back is killing me or that I can't stand> longer than 10 minutes without having horrible tremors and near falls. And> to top it off when the doctor left my room, I got dressed started out the> door and became totally confused as to where I was. I knew I was in the> doctor's office but I didn't know how to get out to the lobby. I guess I> was imagining that too. > > Elodia, I think Dr Baughman might be in my future. I just don't know who> now I would have him call if he thought I was still suffering from NS or> something else. I have worked as a nurse for 25 years before getting sick,> and I've never known depression to make you unable to walk, why would I want> that? Anyway, put me into the rant category and play a little Jimmy Buffet> for me.. OK? > > t>

[Guest guest]

,

I haven't felt like talking since going to Duke but your post touched a nerve so here I am. I know how it feels to have things diagnosed as depression or emotions; I go through that with everyone I see. While I have symptoms that in no way be caused by emotions, everything else is being blamed on it though. So you can tell me about how you feel all you want. I am at the point right now that I am going to do all of my follow ups that I have scheduled but after that my PCP is going to be the only one I go to. He can communicate with the specialists. Dr. Skeen at Duke is very nice but there was nothing they can do for me. I have very brisk reflexes, a neurogenic bladder, balance issues, ......but I looked him straight in the eye and asked him if he thought my problems were caused by emotions. And he said some of them were. Let's face it; if we are sick and we are women we are depressed and our problems are made worse by it. Chronic illness is difficult and the stress can make our symptoms worse but they are not caused by it. My urologist told me one time that doctors are more comfortable telling you that you's are depressed or that you have emotional problems than saying they don't know what it is wrong with you. So don't take all of that to heart.

If you are depressed as we all are, please be sure to deal with it but just remember that you are not making it up. My family and friends see me on a daily basis and see what is happening to me and cannot believe that I am being just left on my own - but I know that the reason for all of this will be shown to me by God in his own time. Don't get me wrong, I get mad at Him and I question him but then I go back and apologize and cry. Do what it takes to make you feel better and keep on keepin' on girlfriend.

Well, that is enough of my mind and my problems, but anytime you want to talk, let me know.

Terri G. >> I have never been so disappointed in a doctor's visit as I was yesterday. I> have a young female medical doctor that is the sweetest thing. And> yesterday seemed to be a day of doctor visits for a few of us. I had the> biopsies of the lesions on my shins and a granuloma in my R side on Monday> of last week and she got the reports to me, I don't know if they were the> final reports or not, but she informed me that I didn't have Erythema> nodosum but Keratosis, that just happens to be on both of my shins, and when> they started I had horrid bone pain associated with them. Then the> granuloma's that cover my abdomen are not granuloma's but fatty tumors,> which she said was benign. While this is good news I am somewhat shocked as> my physical condition seems to be worsening daily. I go Monday for the> Endoscopy and Colonoscopy, and after that is done my young doctor told me> that there really wasn't anything she could do for me. She thinks I'm> depressed, which I guess is true, but I'm mostly scared that no one is> taking my problems as anything but depression. I really don't want> depression listed as one of my diagnosis, because I don't feel that they> will believe me when I say my back is killing me or that I can't stand> longer than 10 minutes without having horrible tremors and near falls. And> to top it off when the doctor left my room, I got dressed started out the> door and became totally confused as to where I was. I knew I was in the> doctor's office but I didn't know how to get out to the lobby. I guess I> was imagining that too. > > Elodia, I think Dr Baughman might be in my future. I just don't know who> now I would have him call if he thought I was still suffering from NS or> something else. I have worked as a nurse for 25 years before getting sick,> and I've never known depression to make you unable to walk, why would I want> that? Anyway, put me into the rant category and play a little Jimmy Buffet> for me.. OK? > > t>

[Guest guest]

Hi , I have seen about 15 doctors and specialists in 3 years , and you wouldn't believe how many of them have told me I was depressed. It's their "fall back" diagnosis when they don't know what's wrong with you and/or they don't want to find out. That's what I believe , anyway. Don't mind me, I have a very bitter attitude toward doctors in general. As Marla had said, of course you are depressed when you aren't feeling good or you can't walk and you don't know why. I understand how you feel completely. I am sorry you had such a bad experience yesterday. Hugs, Debbie wrote: I have never been so disappointed in a doctor's visit as I was yesterday. I have a young female medical doctor that is the sweetest thing. And yesterday seemed to be a day of doctor visits for a few of us. I had the biopsies of the lesions on my shins and a granuloma in my R side on Monday of last week and she got the reports to me, I don't know if they were the final reports or not, but she informed me that I didn't have Erythema nodosum but Keratosis, that just happens to be on both of my shins, and when they started I had horrid bone pain associated with them. Then the granuloma's that cover my abdomen are not granuloma's but fatty tumors, which she said was benign. While this is good news I am somewhat shocked as my

physical condition seems to be worsening daily. I go Monday for the Endoscopy and Colonoscopy, and after that is done my young doctor told me that there really wasn't anything she could do for me. She thinks I'm depressed, which I guess is true, but I'm mostly scared that no one is taking my problems as anything but depression. I really don't want depression listed as one of my diagnosis, because I don't feel that they will believe me when I say my back is killing me or that I can't stand longer than 10 minutes without having horrible tremors and near falls. And to top it off when the doctor left my room, I got dressed started out the door and became totally confused as to where I was. I knew I was in the doctor's office but I didn't know how to get out to the lobby. I guess I was imagining that too. Elodia, I think Dr

Baughman might be in my future. I just don't know who now I would have him call if he thought I was still suffering from NS or something else. I have worked as a nurse for 25 years before getting sick, and I've never known depression to make you unable to walk, why would I want that? Anyway, put me into the rant category and play a little Jimmy Buffet for me.. OK? t

Yahoo! Mail Use Photomail to share photos without annoying attachments.

[Guest guest]

Hi , I have seen about 15 doctors and specialists in 3 years , and you wouldn't believe how many of them have told me I was depressed. It's their "fall back" diagnosis when they don't know what's wrong with you and/or they don't want to find out. That's what I believe , anyway. Don't mind me, I have a very bitter attitude toward doctors in general. As Marla had said, of course you are depressed when you aren't feeling good or you can't walk and you don't know why. I understand how you feel completely. I am sorry you had such a bad experience yesterday. Hugs, Debbie wrote: I have never been so disappointed in a doctor's visit as I was yesterday. I have a young female medical doctor that is the sweetest thing. And yesterday seemed to be a day of doctor visits for a few of us. I had the biopsies of the lesions on my shins and a granuloma in my R side on Monday of last week and she got the reports to me, I don't know if they were the final reports or not, but she informed me that I didn't have Erythema nodosum but Keratosis, that just happens to be on both of my shins, and when they started I had horrid bone pain associated with them. Then the granuloma's that cover my abdomen are not granuloma's but fatty tumors, which she said was benign. While this is good news I am somewhat shocked as my

physical condition seems to be worsening daily. I go Monday for the Endoscopy and Colonoscopy, and after that is done my young doctor told me that there really wasn't anything she could do for me. She thinks I'm depressed, which I guess is true, but I'm mostly scared that no one is taking my problems as anything but depression. I really don't want depression listed as one of my diagnosis, because I don't feel that they will believe me when I say my back is killing me or that I can't stand longer than 10 minutes without having horrible tremors and near falls. And to top it off when the doctor left my room, I got dressed started out the door and became totally confused as to where I was. I knew I was in the doctor's office but I didn't know how to get out to the lobby. I guess I was imagining that too. Elodia, I think Dr

Baughman might be in my future. I just don't know who now I would have him call if he thought I was still suffering from NS or something else. I have worked as a nurse for 25 years before getting sick, and I've never known depression to make you unable to walk, why would I want that? Anyway, put me into the rant category and play a little Jimmy Buffet for me.. OK? t

Yahoo! Mail Use Photomail to share photos without annoying attachments.

[Guest guest]

Hi , I have seen about 15 doctors and specialists in 3 years , and you wouldn't believe how many of them have told me I was depressed. It's their "fall back" diagnosis when they don't know what's wrong with you and/or they don't want to find out. That's what I believe , anyway. Don't mind me, I have a very bitter attitude toward doctors in general. As Marla had said, of course you are depressed when you aren't feeling good or you can't walk and you don't know why. I understand how you feel completely. I am sorry you had such a bad experience yesterday. Hugs, Debbie wrote: I have never been so disappointed in a doctor's visit as I was yesterday. I have a young female medical doctor that is the sweetest thing. And yesterday seemed to be a day of doctor visits for a few of us. I had the biopsies of the lesions on my shins and a granuloma in my R side on Monday of last week and she got the reports to me, I don't know if they were the final reports or not, but she informed me that I didn't have Erythema nodosum but Keratosis, that just happens to be on both of my shins, and when they started I had horrid bone pain associated with them. Then the granuloma's that cover my abdomen are not granuloma's but fatty tumors, which she said was benign. While this is good news I am somewhat shocked as my

physical condition seems to be worsening daily. I go Monday for the Endoscopy and Colonoscopy, and after that is done my young doctor told me that there really wasn't anything she could do for me. She thinks I'm depressed, which I guess is true, but I'm mostly scared that no one is taking my problems as anything but depression. I really don't want depression listed as one of my diagnosis, because I don't feel that they will believe me when I say my back is killing me or that I can't stand longer than 10 minutes without having horrible tremors and near falls. And to top it off when the doctor left my room, I got dressed started out the door and became totally confused as to where I was. I knew I was in the doctor's office but I didn't know how to get out to the lobby. I guess I was imagining that too. Elodia, I think Dr

Baughman might be in my future. I just don't know who now I would have him call if he thought I was still suffering from NS or something else. I have worked as a nurse for 25 years before getting sick, and I've never known depression to make you unable to walk, why would I want that? Anyway, put me into the rant category and play a little Jimmy Buffet for me.. OK? t

Yahoo! Mail Use Photomail to share photos without annoying attachments.

[Guest guest]

I had a doctor tell me that I was just depressed too, well I have been

there and knew that I wasn't depressed at this time. My psych eval

suggested NeuroSarc, but of course put down they couldn't rule out

depression, duh, don't you think that have neuroSarc might be a

"little" depressing. But the bottom line was that I had NeuroSarc, and

the doc was trying to blow it off on just depression, don't let them

get away with that. I was getting lost too, I would have to pull over

when driving because I didn't know where I was, and I have lived here

for 20 years! OK, maybe some depression, but not the getting lost

part.

Hang in there and don't give up on you! You deserve better!

Hugs and blessings,

Marla

I have never been so disappointed in a

doctor's visit as I was yesterday. I have a young female medical

doctor that is the sweetest thing. And yesterday seemed to be a day of

doctor visits for a few of us. I had the biopsies of the lesions on my

shins and a granuloma in my R side on Monday of last week and she got

the reports to me, I don't know if they were the final reports or not,

but she informed me that I didn't have Erythema nodosum but Keratosis, that just happens to be on both of my

shins, and when they started I had horrid bone pain associated with

them. Then the granuloma's that cover my abdomen are not granuloma's

but fatty tumors, which she said was benign. While this is good news I

am somewhat shocked as my physical condition seems to be worsening

daily. I go Monday for the Endoscopy and Colonoscopy, and after that is

done my young doctor told me that there really wasn't anything she

could do for me. She thinks I'm depressed, which I guess is true, but

I'm mostly scared that no one is taking my problems as anything but

depression. I really don't want depression listed as one of my

diagnosis, because I don't feel that they will believe me when I say my

back is killing me or that I can't stand longer than 10 minutes without

having horrible tremors and near falls. And to top it off when the

doctor left my room, I got dressed started out the door and became

totally confused as to where I was. I knew I was in the doctor's

office but I didn't know how to get out to the lobby. I guess I was

imagining that too.

Elodia, I think Dr

Baughman might be in my future. I just don't know who now I would have

him call if he thought I was still suffering from NS or something else.

I have worked as a nurse for 25 years before getting sick, and I've

never known depression to make you unable to walk, why would I want

that? Anyway, put me into the rant category and play a little Jimmy

Buffet for me.. OK?

t

-- The Lord bless you and keep you:

The Lord make his face to shine upon you, and be gracious to you:

The Lord lift up his countenance upon you and give you peace.

Numbers 6:24-26

Attachment: vcard [not shown]

[Guest guest]

I had a doctor tell me that I was just depressed too, well I have been

there and knew that I wasn't depressed at this time. My psych eval

suggested NeuroSarc, but of course put down they couldn't rule out

depression, duh, don't you think that have neuroSarc might be a

"little" depressing. But the bottom line was that I had NeuroSarc, and

the doc was trying to blow it off on just depression, don't let them

get away with that. I was getting lost too, I would have to pull over

when driving because I didn't know where I was, and I have lived here

for 20 years! OK, maybe some depression, but not the getting lost

part.

Hang in there and don't give up on you! You deserve better!

Hugs and blessings,

Marla

I have never been so disappointed in a

doctor's visit as I was yesterday. I have a young female medical

doctor that is the sweetest thing. And yesterday seemed to be a day of

doctor visits for a few of us. I had the biopsies of the lesions on my

shins and a granuloma in my R side on Monday of last week and she got

the reports to me, I don't know if they were the final reports or not,

but she informed me that I didn't have Erythema nodosum but Keratosis, that just happens to be on both of my

shins, and when they started I had horrid bone pain associated with

them. Then the granuloma's that cover my abdomen are not granuloma's

but fatty tumors, which she said was benign. While this is good news I

am somewhat shocked as my physical condition seems to be worsening

daily. I go Monday for the Endoscopy and Colonoscopy, and after that is

done my young doctor told me that there really wasn't anything she

could do for me. She thinks I'm depressed, which I guess is true, but

I'm mostly scared that no one is taking my problems as anything but

depression. I really don't want depression listed as one of my

diagnosis, because I don't feel that they will believe me when I say my

back is killing me or that I can't stand longer than 10 minutes without

having horrible tremors and near falls. And to top it off when the

doctor left my room, I got dressed started out the door and became

totally confused as to where I was. I knew I was in the doctor's

office but I didn't know how to get out to the lobby. I guess I was

imagining that too.

Elodia, I think Dr

Baughman might be in my future. I just don't know who now I would have

him call if he thought I was still suffering from NS or something else.

I have worked as a nurse for 25 years before getting sick, and I've

never known depression to make you unable to walk, why would I want

that? Anyway, put me into the rant category and play a little Jimmy

Buffet for me.. OK?

t

-- The Lord bless you and keep you:

The Lord make his face to shine upon you, and be gracious to you:

The Lord lift up his countenance upon you and give you peace.

Numbers 6:24-26

Attachment: vcard [not shown]

[Guest guest]

I had a doctor tell me that I was just depressed too, well I have been

there and knew that I wasn't depressed at this time. My psych eval

suggested NeuroSarc, but of course put down they couldn't rule out

depression, duh, don't you think that have neuroSarc might be a

"little" depressing. But the bottom line was that I had NeuroSarc, and

the doc was trying to blow it off on just depression, don't let them

get away with that. I was getting lost too, I would have to pull over

when driving because I didn't know where I was, and I have lived here

for 20 years! OK, maybe some depression, but not the getting lost

part.

Hang in there and don't give up on you! You deserve better!

Hugs and blessings,

Marla

I have never been so disappointed in a

doctor's visit as I was yesterday. I have a young female medical

doctor that is the sweetest thing. And yesterday seemed to be a day of

doctor visits for a few of us. I had the biopsies of the lesions on my

shins and a granuloma in my R side on Monday of last week and she got

the reports to me, I don't know if they were the final reports or not,

but she informed me that I didn't have Erythema nodosum but Keratosis, that just happens to be on both of my

shins, and when they started I had horrid bone pain associated with

them. Then the granuloma's that cover my abdomen are not granuloma's

but fatty tumors, which she said was benign. While this is good news I

am somewhat shocked as my physical condition seems to be worsening

daily. I go Monday for the Endoscopy and Colonoscopy, and after that is

done my young doctor told me that there really wasn't anything she

could do for me. She thinks I'm depressed, which I guess is true, but

I'm mostly scared that no one is taking my problems as anything but

depression. I really don't want depression listed as one of my

diagnosis, because I don't feel that they will believe me when I say my

back is killing me or that I can't stand longer than 10 minutes without

having horrible tremors and near falls. And to top it off when the

doctor left my room, I got dressed started out the door and became

totally confused as to where I was. I knew I was in the doctor's

office but I didn't know how to get out to the lobby. I guess I was

imagining that too.

Elodia, I think Dr

Baughman might be in my future. I just don't know who now I would have

him call if he thought I was still suffering from NS or something else.

I have worked as a nurse for 25 years before getting sick, and I've

never known depression to make you unable to walk, why would I want

that? Anyway, put me into the rant category and play a little Jimmy

Buffet for me.. OK?

t

-- The Lord bless you and keep you:

The Lord make his face to shine upon you, and be gracious to you:

The Lord lift up his countenance upon you and give you peace.

Numbers 6:24-26

Attachment: vcard [not shown]

[Guest guest]

Yeah, Tracie I agree. There just isn't anyone in this area that has a clue as to what to do, and she actually told me she didn't have a clue. Which I appreciate I guess, but what to do from here? I have these knots all over my stomach and chest area's and dang if I was a "skinny woman" instead of a full figured "coughs" I would be called lumpy. lol I'm not sure that she had the pathology results or the dermatologist notes as that's what the dermatologist thought just by looking that's what it was. I plan to call and get the results faxed to me, didn't think about getting the actual slides but that's a good idea. I know in the past they have told me that nothing showed up in reports and as time has gone on, like 6 months would pass and then they told me that my ultrasound showed that the sarc had moved to my liver, and spleen, that doesn't quite add up to nothing to me, does it you?

I've been taking Imuran for the last 2 years, and have actually done ok on it till I fell back in April breaking my shoulder. When I started falling around and started having this myoclonic twitches everywhere in my body they put me on a very small dose of prednisone, for a very short amount of time, and even then, I had 3-4+ pitting edema in both lower extremities. 2 weeks of that and I was ready for the loony bin for sure.

Cincinatti (sp) is like 600 miles for me, and like I said before, the doctors at Vanderbilt think they have all the answers as its a teaching hospital too. But they have sure failed me. You know, I really want to see my son grown, through college, and with a wife and family, but the rate things are going here, I'm not sure that's gonna happen. Maybe, I have a reason to be depressed.. Don't we all?

t

-- Re: Dr's visit

,Your MD may be a sweetie, but she knows jack about sarc! Those tumors are the result of your body thinking it needs to send cells to attack something, and then it doesn't clear out, and yes, fatty tumors form- (they'll harden over time)--and keratosis--the pathologist doesn't know shit either. It could be a form of keratosis-- we get alot more different kinds of skin problems other than just EN. The only way to get this under control is to find an MD that knows sarc, get your slides from the pathologist, and insist on a second opinion. Damn, Damn, Damn. .It's time for Cytoxen or Remicade or Enbrel or Humira. What have you been on over the last year? Pred's not gonna help-- or at least would only help for a short time. Take it away, and it's back to purgatory.Love ya,Tracie

[Guest guest]

Yeah, Tracie I agree. There just isn't anyone in this area that has a clue as to what to do, and she actually told me she didn't have a clue. Which I appreciate I guess, but what to do from here? I have these knots all over my stomach and chest area's and dang if I was a "skinny woman" instead of a full figured "coughs" I would be called lumpy. lol I'm not sure that she had the pathology results or the dermatologist notes as that's what the dermatologist thought just by looking that's what it was. I plan to call and get the results faxed to me, didn't think about getting the actual slides but that's a good idea. I know in the past they have told me that nothing showed up in reports and as time has gone on, like 6 months would pass and then they told me that my ultrasound showed that the sarc had moved to my liver, and spleen, that doesn't quite add up to nothing to me, does it you?

I've been taking Imuran for the last 2 years, and have actually done ok on it till I fell back in April breaking my shoulder. When I started falling around and started having this myoclonic twitches everywhere in my body they put me on a very small dose of prednisone, for a very short amount of time, and even then, I had 3-4+ pitting edema in both lower extremities. 2 weeks of that and I was ready for the loony bin for sure.

Cincinatti (sp) is like 600 miles for me, and like I said before, the doctors at Vanderbilt think they have all the answers as its a teaching hospital too. But they have sure failed me. You know, I really want to see my son grown, through college, and with a wife and family, but the rate things are going here, I'm not sure that's gonna happen. Maybe, I have a reason to be depressed.. Don't we all?

t

-- Re: Dr's visit

,Your MD may be a sweetie, but she knows jack about sarc! Those tumors are the result of your body thinking it needs to send cells to attack something, and then it doesn't clear out, and yes, fatty tumors form- (they'll harden over time)--and keratosis--the pathologist doesn't know shit either. It could be a form of keratosis-- we get alot more different kinds of skin problems other than just EN. The only way to get this under control is to find an MD that knows sarc, get your slides from the pathologist, and insist on a second opinion. Damn, Damn, Damn. .It's time for Cytoxen or Remicade or Enbrel or Humira. What have you been on over the last year? Pred's not gonna help-- or at least would only help for a short time. Take it away, and it's back to purgatory.Love ya,Tracie

[Guest guest]

Yeah, Tracie I agree. There just isn't anyone in this area that has a clue as to what to do, and she actually told me she didn't have a clue. Which I appreciate I guess, but what to do from here? I have these knots all over my stomach and chest area's and dang if I was a "skinny woman" instead of a full figured "coughs" I would be called lumpy. lol I'm not sure that she had the pathology results or the dermatologist notes as that's what the dermatologist thought just by looking that's what it was. I plan to call and get the results faxed to me, didn't think about getting the actual slides but that's a good idea. I know in the past they have told me that nothing showed up in reports and as time has gone on, like 6 months would pass and then they told me that my ultrasound showed that the sarc had moved to my liver, and spleen, that doesn't quite add up to nothing to me, does it you?

I've been taking Imuran for the last 2 years, and have actually done ok on it till I fell back in April breaking my shoulder. When I started falling around and started having this myoclonic twitches everywhere in my body they put me on a very small dose of prednisone, for a very short amount of time, and even then, I had 3-4+ pitting edema in both lower extremities. 2 weeks of that and I was ready for the loony bin for sure.

Cincinatti (sp) is like 600 miles for me, and like I said before, the doctors at Vanderbilt think they have all the answers as its a teaching hospital too. But they have sure failed me. You know, I really want to see my son grown, through college, and with a wife and family, but the rate things are going here, I'm not sure that's gonna happen. Maybe, I have a reason to be depressed.. Don't we all?

t

-- Re: Dr's visit

,Your MD may be a sweetie, but she knows jack about sarc! Those tumors are the result of your body thinking it needs to send cells to attack something, and then it doesn't clear out, and yes, fatty tumors form- (they'll harden over time)--and keratosis--the pathologist doesn't know shit either. It could be a form of keratosis-- we get alot more different kinds of skin problems other than just EN. The only way to get this under control is to find an MD that knows sarc, get your slides from the pathologist, and insist on a second opinion. Damn, Damn, Damn. .It's time for Cytoxen or Remicade or Enbrel or Humira. What have you been on over the last year? Pred's not gonna help-- or at least would only help for a short time. Take it away, and it's back to purgatory.Love ya,Tracie

[Guest guest]

,

I am so sorry to hear about your Doctor visit.........it seems like

they ALL think we are just depressed! That is the first thing many of

my Doctors have said to me also.......naturally, when we are so sick and

have had to give up so much, then we ARE depressed........but that is not

what is causing our illness or symptoms........it does not seem fair that

we have to fight the disease AND the Doctors.......but that often seems to

be the case.

You take care and keep looking for the " right " Doctor......most of us

are still looking.

Sending lots of hugs and prayers...

Darlene

> I have never been so disappointed in a doctor's visit as I was yesterday.

[Guest guest]

,

I am so sorry to hear about your Doctor visit.........it seems like

they ALL think we are just depressed! That is the first thing many of

my Doctors have said to me also.......naturally, when we are so sick and

have had to give up so much, then we ARE depressed........but that is not

what is causing our illness or symptoms........it does not seem fair that

we have to fight the disease AND the Doctors.......but that often seems to

be the case.

You take care and keep looking for the " right " Doctor......most of us

are still looking.

Sending lots of hugs and prayers...

Darlene

> I have never been so disappointed in a doctor's visit as I was yesterday.

[Guest guest]

,

I am so sorry to hear about your Doctor visit.........it seems like

they ALL think we are just depressed! That is the first thing many of

my Doctors have said to me also.......naturally, when we are so sick and

have had to give up so much, then we ARE depressed........but that is not

what is causing our illness or symptoms........it does not seem fair that

we have to fight the disease AND the Doctors.......but that often seems to

be the case.

You take care and keep looking for the " right " Doctor......most of us

are still looking.

Sending lots of hugs and prayers...

Darlene

> I have never been so disappointed in a doctor's visit as I was yesterday.

[Guest guest]

Thanks Darlene, I came home defeated, but you guys have seemed to ignite that fight in me again, I'll have to say I really was ready to give in.

t

-- Re: Dr's visit

, I am so sorry to hear about your Doctor visit.........it seems likethey ALL think we are just depressed! That is the first thing many ofmy Doctors have said to me also.......naturally, when we are so sick andhave had to give up so much, then we ARE depressed........but that is notwhat is causing our illness or symptoms........it does not seem fair thatwe have to fight the disease AND the Doctors.......but that often seems tobe the case. You take care and keep looking for the "right" Doctor......most of usare still looking.Sending lots of hugs and prayers...Darlene> I have never been so disappointed in a doctor's visit as I was yesterday.

[Guest guest]

Thanks Darlene, I came home defeated, but you guys have seemed to ignite that fight in me again, I'll have to say I really was ready to give in.

t

-- Re: Dr's visit

, I am so sorry to hear about your Doctor visit.........it seems likethey ALL think we are just depressed! That is the first thing many ofmy Doctors have said to me also.......naturally, when we are so sick andhave had to give up so much, then we ARE depressed........but that is notwhat is causing our illness or symptoms........it does not seem fair thatwe have to fight the disease AND the Doctors.......but that often seems tobe the case. You take care and keep looking for the "right" Doctor......most of usare still looking.Sending lots of hugs and prayers...Darlene> I have never been so disappointed in a doctor's visit as I was yesterday.

[Guest guest]

Thanks Darlene, I came home defeated, but you guys have seemed to ignite that fight in me again, I'll have to say I really was ready to give in.

t

-- Re: Dr's visit

, I am so sorry to hear about your Doctor visit.........it seems likethey ALL think we are just depressed! That is the first thing many ofmy Doctors have said to me also.......naturally, when we are so sick andhave had to give up so much, then we ARE depressed........but that is notwhat is causing our illness or symptoms........it does not seem fair thatwe have to fight the disease AND the Doctors.......but that often seems tobe the case. You take care and keep looking for the "right" Doctor......most of usare still looking.Sending lots of hugs and prayers...Darlene> I have never been so disappointed in a doctor's visit as I was yesterday.