Guest guest Posted February 21, 2004 Report Share Posted February 21, 2004 Sharon I echo Jean's concern here about posting in a place where it can be publicly accessed...it would be fairly easy for CPS to get a hold of what you posted and past posts as well. I am just praying the truth will be out and as always, praying that more people will be educated about mito along the way...thats always a good thing! deb...mom to three great adopted kids... (07.04.96-05.26.03) with Mitochondrial Disease, Gaige age 5 with High Functioning Autism & dysfluency and Bliss age 2 with very very mild Cerebral Palsy.www.HeartLiftersGallery.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2004 Report Share Posted February 21, 2004 Sharon I echo Jean's concern here about posting in a place where it can be publicly accessed...it would be fairly easy for CPS to get a hold of what you posted and past posts as well. I am just praying the truth will be out and as always, praying that more people will be educated about mito along the way...thats always a good thing! deb...mom to three great adopted kids... (07.04.96-05.26.03) with Mitochondrial Disease, Gaige age 5 with High Functioning Autism & dysfluency and Bliss age 2 with very very mild Cerebral Palsy.www.HeartLiftersGallery.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2004 Report Share Posted February 21, 2004 Sharon I echo Jean's concern here about posting in a place where it can be publicly accessed...it would be fairly easy for CPS to get a hold of what you posted and past posts as well. I am just praying the truth will be out and as always, praying that more people will be educated about mito along the way...thats always a good thing! deb...mom to three great adopted kids... (07.04.96-05.26.03) with Mitochondrial Disease, Gaige age 5 with High Functioning Autism & dysfluency and Bliss age 2 with very very mild Cerebral Palsy.www.HeartLiftersGallery.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2004 Report Share Posted February 21, 2004 Sharon, Please know that we are keeping you in our prayers. You are so correct none of us are Mauna to this type of parental abuse. I just wish there was recourse for us the parents when we are falsely accused. Hang in there! HUGS! O and crew - Kira,, and Krisalynn Mitochondrial Myopathy-MIDS Maternally Inherited Dysautonomia and dad Enrique Visit our web page: WWW. caringbridge.org/ca/mitooggo Help support my sister in her new business at : Come and see what's NEW! http://www.youravon.com/elleenmiller Your AVON representative (Sign in passcode: ElleensAVON if you are signing in for the first time :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2004 Report Share Posted February 21, 2004 Sharon, Please know that we are keeping you in our prayers. You are so correct none of us are Mauna to this type of parental abuse. I just wish there was recourse for us the parents when we are falsely accused. Hang in there! HUGS! O and crew - Kira,, and Krisalynn Mitochondrial Myopathy-MIDS Maternally Inherited Dysautonomia and dad Enrique Visit our web page: WWW. caringbridge.org/ca/mitooggo Help support my sister in her new business at : Come and see what's NEW! http://www.youravon.com/elleenmiller Your AVON representative (Sign in passcode: ElleensAVON if you are signing in for the first time :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2004 Report Share Posted February 21, 2004 Sharon, Please know that we are keeping you in our prayers. You are so correct none of us are Mauna to this type of parental abuse. I just wish there was recourse for us the parents when we are falsely accused. Hang in there! HUGS! O and crew - Kira,, and Krisalynn Mitochondrial Myopathy-MIDS Maternally Inherited Dysautonomia and dad Enrique Visit our web page: WWW. caringbridge.org/ca/mitooggo Help support my sister in her new business at : Come and see what's NEW! http://www.youravon.com/elleenmiller Your AVON representative (Sign in passcode: ElleensAVON if you are signing in for the first time :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2004 Report Share Posted February 21, 2004 Sharon, I am so sorry that this is happening to you and your family. I can totally see this happening though because this mito is so hard to understand. I have been going through a divorce and trying to get non- medical people to understand this is a nightmare. My soon to be ex cannot get a grip on it. I am fighting for my diagnosed child and two yet to be diagnosed children. I swear they must think that I am making this stuff up just to keep them away from their dad. They just need to be cared for so carefully, and he won't do it. Like you can make up lab results etc. They just don't take the time to get it. It's things that happen to others so why should they become educated. My thoughts are with you...Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2004 Report Share Posted February 21, 2004 Sharon, I am so sorry that this is happening to you and your family. I can totally see this happening though because this mito is so hard to understand. I have been going through a divorce and trying to get non- medical people to understand this is a nightmare. My soon to be ex cannot get a grip on it. I am fighting for my diagnosed child and two yet to be diagnosed children. I swear they must think that I am making this stuff up just to keep them away from their dad. They just need to be cared for so carefully, and he won't do it. Like you can make up lab results etc. They just don't take the time to get it. It's things that happen to others so why should they become educated. My thoughts are with you...Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2004 Report Share Posted February 21, 2004 sharon, what a nightmare.......do you know who reported you? was it the insurance company??? and if so, how do they know you are on a support chat room? i hope things get cleared up soon for you and your family, including all of the insurance denials. bethany > Well, I haven't been on this list for quite some time but recent > events made me feel the need to share with all of you. Last week we > found out that our nursing care hours were not being renewed because > the insurance company decided that nursing was no longer medically > neccesary. A couple hours after I found that out I found out that > our insurance company denied a g-tube placement for my son saying it > too was not medically neccesary. (Our genetics doctor and > pediatrician are helping us " educate " the insurance company) But the > real kicker was that I was charged with child abuse. Thankfully I > knew that this had happened to others so I knew that it was a > possibility but it still hurt. The alligations included many things > that were SOOO wrong but I am still being investigated anyway. The > charges said that I made the kids sick in order to get nursing care > and since my nursing hours were about to end they feared that I would > do it again. According to these charges when we had nurses in the > home the children were perfectly fine and only got sick after they > left. Of course both of our nurses were furious at these charges and > are willing to talk to CPS since they have seen the kids get sick > even when I am not around, go figure. The charges also said that I > was getting our baby a g-button against the advice of our > pediatrician and gastroenterologist in order to make him qualify for > medicaid. First off Jake doesn't see a GI and he already has > medicaid. Secondly, if my pediatrician were against it why would she > and Dr. Whiteman being fighting for us? There were even aligations > that included all of you so that is the main reason I am sharing. > Supposidly there is some family on this list that posts frequently > and I am reading their postings and putting the symptoms on my > children. Also, our baby had a seizure recently and according to the > charges his EEG was normal and I was the only one with him when > it " supposadly " happened. Well, yes, his EEG was normal but when it > happened we were at a resteraunt celebrating his birthday with my > husband and a really good friend. Of all the things that my kids > have been through that was the scarriest ever and the thought that I > am being accused of making it up just breaks my heart. I know that > many of you like me think that this will never happen but it could so > remember a couple of things I learned. 1) Don't EVER let CPS into > your home unless they have a search warrent. No matter what they > tell you you are not leagally obligated to do this. 2) When you go > to meet with them for the first time don't take your kids and take > someone such a pastor or friend with you 3) Meet at a neutral > place. 4) No matter how wrong the charges are make sure you contact > a lawyer and know your rights. Protect your kids and protect > yourself. They say I should hear back from them in about a month on > how they are going to rule in my case. I keep telling myself that > they can't rule against the truth but I am still scared. Luckily my > pediatrician has been very reasurring as has our neurologist. I pray > that nothing like this happens to anyone else but if it does know > that you are not alone. > > Sharon > mom to Isabelle (5) Rebekah (3) and Jakob (1) (unspecified mito) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2004 Report Share Posted February 21, 2004 sharon, what a nightmare.......do you know who reported you? was it the insurance company??? and if so, how do they know you are on a support chat room? i hope things get cleared up soon for you and your family, including all of the insurance denials. bethany > Well, I haven't been on this list for quite some time but recent > events made me feel the need to share with all of you. Last week we > found out that our nursing care hours were not being renewed because > the insurance company decided that nursing was no longer medically > neccesary. A couple hours after I found that out I found out that > our insurance company denied a g-tube placement for my son saying it > too was not medically neccesary. (Our genetics doctor and > pediatrician are helping us " educate " the insurance company) But the > real kicker was that I was charged with child abuse. Thankfully I > knew that this had happened to others so I knew that it was a > possibility but it still hurt. The alligations included many things > that were SOOO wrong but I am still being investigated anyway. The > charges said that I made the kids sick in order to get nursing care > and since my nursing hours were about to end they feared that I would > do it again. According to these charges when we had nurses in the > home the children were perfectly fine and only got sick after they > left. Of course both of our nurses were furious at these charges and > are willing to talk to CPS since they have seen the kids get sick > even when I am not around, go figure. The charges also said that I > was getting our baby a g-button against the advice of our > pediatrician and gastroenterologist in order to make him qualify for > medicaid. First off Jake doesn't see a GI and he already has > medicaid. Secondly, if my pediatrician were against it why would she > and Dr. Whiteman being fighting for us? There were even aligations > that included all of you so that is the main reason I am sharing. > Supposidly there is some family on this list that posts frequently > and I am reading their postings and putting the symptoms on my > children. Also, our baby had a seizure recently and according to the > charges his EEG was normal and I was the only one with him when > it " supposadly " happened. Well, yes, his EEG was normal but when it > happened we were at a resteraunt celebrating his birthday with my > husband and a really good friend. Of all the things that my kids > have been through that was the scarriest ever and the thought that I > am being accused of making it up just breaks my heart. I know that > many of you like me think that this will never happen but it could so > remember a couple of things I learned. 1) Don't EVER let CPS into > your home unless they have a search warrent. No matter what they > tell you you are not leagally obligated to do this. 2) When you go > to meet with them for the first time don't take your kids and take > someone such a pastor or friend with you 3) Meet at a neutral > place. 4) No matter how wrong the charges are make sure you contact > a lawyer and know your rights. Protect your kids and protect > yourself. They say I should hear back from them in about a month on > how they are going to rule in my case. I keep telling myself that > they can't rule against the truth but I am still scared. Luckily my > pediatrician has been very reasurring as has our neurologist. I pray > that nothing like this happens to anyone else but if it does know > that you are not alone. > > Sharon > mom to Isabelle (5) Rebekah (3) and Jakob (1) (unspecified mito) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2004 Report Share Posted February 21, 2004 Sharon, I am so sorry to hear you are having to deal with garbage like this. I will be praying for you and yours. Remember it might take time and even if it takes a while for the truth to come out it will and when it does it will be the perfect time. I was in a situation with 's school years ago when she was still able to attend. The school people lied, stole and even forged my signiature. It took five years but the truth did come out and alot of heads rolled to say the least. So be strong and keep fighting for what you know is true and right. Dont be discouraged it might seem that they are winning for a moment but only a short moment you will win the fight and truth and richeousness will prevail! You go girl and know that I am praying for you. Horsley ******Tell them they had better watch out or the MOM PATROL will land in thier back yard! It happened to me! Well, I haven't been on this list for quite some time but recent events made me feel the need to share with all of you. Last week we found out that our nursing care hours were not being renewed because the insurance company decided that nursing was no longer medically neccesary. A couple hours after I found that out I found out that our insurance company denied a g-tube placement for my son saying it too was not medically neccesary. (Our genetics doctor and pediatrician are helping us "educate" the insurance company) But the real kicker was that I was charged with child abuse. Thankfully I knew that this had happened to others so I knew that it was a possibility but it still hurt. The alligations included many things that were SOOO wrong but I am still being investigated anyway. The charges said that I made the kids sick in order to get nursing care and since my nursing hours were about to end they feared that I would do it again. According to these charges when we had nurses in the home the children were perfectly fine and only got sick after they left. Of course both of our nurses were furious at these charges and are willing to talk to CPS since they have seen the kids get sick even when I am not around, go figure. The charges also said that I was getting our baby a g-button against the advice of our pediatrician and gastroenterologist in order to make him qualify for medicaid. First off Jake doesn't see a GI and he already has medicaid. Secondly, if my pediatrician were against it why would she and Dr. Whiteman being fighting for us? There were even aligations that included all of you so that is the main reason I am sharing. Supposidly there is some family on this list that posts frequently and I am reading their postings and putting the symptoms on my children. Also, our baby had a seizure recently and according to the charges his EEG was normal and I was the only one with him when it "supposadly" happened. Well, yes, his EEG was normal but when it happened we were at a resteraunt celebrating his birthday with my husband and a really good friend. Of all the things that my kids have been through that was the scarriest ever and the thought that I am being accused of making it up just breaks my heart. I know that many of you like me think that this will never happen but it could so remember a couple of things I learned. 1) Don't EVER let CPS into your home unless they have a search warrent. No matter what they tell you you are not leagally obligated to do this. 2) When you go to meet with them for the first time don't take your kids and take someone such a pastor or friend with you 3) Meet at a neutral place. 4) No matter how wrong the charges are make sure you contact a lawyer and know your rights. Protect your kids and protect yourself. They say I should hear back from them in about a month on how they are going to rule in my case. I keep telling myself that they can't rule against the truth but I am still scared. Luckily my pediatrician has been very reasurring as has our neurologist. I pray that nothing like this happens to anyone else but if it does know that you are not alone.Sharonmom to Isabelle (5) Rebekah (3) and Jakob (1) (unspecified mito) Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2004 Report Share Posted February 21, 2004 Sharon; You probably know that you are not the first Mito parents to be charged with abuse or even Munchausen's by Proxy! It is a sad and cruel thing to do to parents who already have enough on their plate! Have you sent Dr Whiteman a copy of the charges and asked him if he can help to make it clear that Jake's problems are directly caused by Mito? I am particularly disturbed by the piece I have clipped from your post and I would be asking them for proof. That being said, we have had discussions on this issue on this list before. Since the access to this list is open to anyone who has joined Yahoo ... AND the archives are also open, what has been said on this list is public and can be brought up by people skilled in the use of search engines! So ... it is entirely possible that what they are claiming is true! I am sorry to tell you this .... but you should ask them to produce documentation of their claim! What a <expletives deleted> tragedy for you and all the other parents who have had to deal with such a travesty! My heart goes out to you! Jean tyandsharon1997 wrote: Well, I haven't been on this list for quite some time but recent events made me feel the need to share with all of you. Last week we found out that our nursing care hours were not being renewed because the insurance company decided that nursing was no longer medically neccesary. A couple hours after I found that out I found out that our insurance company denied a g-tube placement for my son saying it too was not medically neccesary. (Our genetics doctor and pediatrician are helping us "educate" the insurance company) But the real kicker was that I was charged with child abuse. Thankfully I knew that this had happened to others so I knew that it was a possibility but it still hurt. The alligations included many things that were SOOO wrong but I am still being investigated anyway. The charges said that I made the kids sick in order to get nursing care and since my nursing hours were about to end they feared that I would do it again. According to these charges when we had nurses in the home the children were perfectly fine and only got sick after they left. Of course both of our nurses were furious at these charges and are willing to talk to CPS since they have seen the kids get sick even when I am not around, go figure. The charges also said that I was getting our baby a g-button against the advice of our pediatrician and gastroenterologist in order to make him qualify for medicaid. First off Jake doesn't see a GI and he already has medicaid. Secondly, if my pediatrician were against it why would she and Dr. Whiteman being fighting for us? There were even aligations that included all of you so that is the main reason I am sharing. Supposidly there is some family on this list that posts frequently and I am reading their postings and putting the symptoms on my children. Also, our baby had a seizure recently and according to the charges his EEG was normal and I was the only one with him when it "supposadly" happened. Well, yes, his EEG was normal but when it happened we were at a resteraunt celebrating his birthday with my husband and a really good friend. Of all the things that my kids have been through that was the scarriest ever and the thought that I am being accused of making it up just breaks my heart. I know that many of you like me think that this will never happen but it could so remember a couple of things I learned. 1) Don't EVER let CPS into your home unless they have a search warrent. No matter what they tell you you are not leagally obligated to do this. 2) When you go to meet with them for the first time don't take your kids and take someone such a pastor or friend with you 3) Meet at a neutral place. 4) No matter how wrong the charges are make sure you contact a lawyer and know your rights. Protect your kids and protect yourself. They say I should hear back from them in about a month on how they are going to rule in my case. I keep telling myself that they can't rule against the truth but I am still scared. Luckily my pediatrician has been very reasurring as has our neurologist. I pray that nothing like this happens to anyone else but if it does know that you are not alone. Sharon mom to Isabelle (5) Rebekah (3) and Jakob (1) (unspecified mito) Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2004 Report Share Posted February 25, 2004 Hello, I wanted to respond to the advice you are giving about dealing with CYS. We too are going through a similar situation (NOT with our child with mito but our son). Your advice to not cooperate is very troubling. If you truly have nothing to hide.. why hide? Children and Youth have the right to remove your children without proof if they suspect they are in danger. By NOT allowing them into your house.. NOT allowing them access to your children you are giving the message that you ARE hiding something from them. We have had years of experience with CYS being foster parents.. so on the other end of this... the typical response to a claim of abuse/neglect.. is for the caseworker to interview the entire family. First parents together, then each child individually. If you hinder that process you are in essence asking for them to remove the children. If you allow them complete access to your home.. your children.. you... every scrap of paperwork ever written on all children involved... all therapists.. nurses.. ect... then you are saying come on in.. we have nothing to hide. No one is saying every family is perfect. They are simply bound by law to investigate all claims. If they investigate the claim and dont assign it a number because you cooperate then it will never even be an open case against you. If however you force their hand by resisting their efforts to investigate they are then forced to open a full investigation and it will forever be on your records. You will never be able to work with children again. It will always come up as a full investigation against you for child abuse. My advice to anyone that this happens to... open your house... open your lives.. give anything and MORE than they have asked for. Allow them free access to any and all Drs and Medical reports and allow them to interview your children and you as many times as they like. It is the one and only way to prove you have nothing to hide.. have done nothing wrong. If there is a question on something that came up in the investigation.. you then have a working relationship WITH the caseworker involved and you can explain the situation and why or how something happened. Mind you we get along with some Drs and not with others... and I will be the first to admit that when it comes to my kids I will fight to the end to get what's best for them and Drs dont like that most of the time. However to tell CYS that they can not speak to the anyone ... even the ones that I despise and have had words with.. would give the impression that I am hiding things. CYS has 60 days to investigate a claim... not a fun 60 days mind you for the family.. (we are living it now) but still if you cooperate you have the best chance to NOT loose you children. Even if in the end you would get them back the damage of being taken from their home.. their parents... schools.. is done. No one can undo that damage to the child. To anyone that might go through an investigation... it happens... people disagree especially when dealing with high medical needs children and their care. Mito kids are difficult to understand even for the best of Drs... our situation being a bit different as this is not our mito child involved but our trached/dev delayed/tube fed/multiple congential anomolies child. Also a medical mystery so very difficult to handle and know what to do for him. Our views on life are different than the Drs.. the Drs see our children for minutes in a year whereas we live with them. Document everything.. even if you feel it could never happen to you. Video tape things and record things that happen.. seizures at home.. ect. It is the best proof you can have. Good luck with your investigation and I hope for your childrens sake that it resolves soon. Kimberley Quote Link to comment Share on other sites More sharing options...
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