Re: Re: Diaphragm Disorders

[Guest guest]

How funny to read this! Audrey has slept like this for as long as I can remember. I never connected it to anything other than she just liked to sleep this way. Her sister, unaffected, also sleeps this way and we always thought it was a "family" thing.

Kathy, grandma to Audrey, 31 mos

[Guest guest]

How funny to read this! Audrey has slept like this for as long as I can remember. I never connected it to anything other than she just liked to sleep this way. Her sister, unaffected, also sleeps this way and we always thought it was a "family" thing.

Kathy, grandma to Audrey, 31 mos

[Guest guest]

Funny thing – my son has done this

since birth – in fact I have an ultrasound with his arms above his head.

Sue

Mother to age 2 1/2

Re: Diaphragm

Disorders

Thanks for sharing the article.

Does anyone have a child who sleeps with their

arms raised over their

head? Colin does this at times. It

seems to help with his breathing

perhaps because it raises his rib cage so that it

takes less effort in

breathe in.

Please

contact mito-owner with any problems or questions.

[Guest guest]

Funny thing – my son has done this

since birth – in fact I have an ultrasound with his arms above his head.

Sue

Mother to age 2 1/2

Re: Diaphragm

Disorders

Thanks for sharing the article.

Does anyone have a child who sleeps with their

arms raised over their

head? Colin does this at times. It

seems to help with his breathing

perhaps because it raises his rib cage so that it

takes less effort in

breathe in.

Please

contact mito-owner with any problems or questions.

[Guest guest]

Funny thing – my son has done this

since birth – in fact I have an ultrasound with his arms above his head.

Sue

Mother to age 2 1/2

Re: Diaphragm

Disorders

Thanks for sharing the article.

Does anyone have a child who sleeps with their

arms raised over their

head? Colin does this at times. It

seems to help with his breathing

perhaps because it raises his rib cage so that it

takes less effort in

breathe in.

Please

contact mito-owner with any problems or questions.

[Guest guest]

I thought the article was very interesting also!!

, Madison is notorious for sleeping with her arms above her head

and we often find her with her head hanging over the edge of the bed also,

as if she's instinctually trying to open her airway more. Now knowing

that she and Chance's airways are collapsing, it all makes more sense.

When I was sick I went through a time where I often felt the need to

have my arms above my head also and it really did make it more feasible

to get a deep breath, something I at the time felt like I never could get

without doing this.

-- BIG hugs,

Kass, proud mom to Chance(10-Mito), Madison(7-Mito),

and Abby(6-Mito)

Updates (http://www.caringbridge.org/tx/mitowhat/)

"Life is not measured by the breaths we take, but by the moments

that take our breath away" Unknown

Plant wrote:

Thanks for sharing the article.

Does anyone have a child who sleeps with their arms raised over

their

head? Colin does this at times. It seems to help with

his breathing

perhaps because it raises his rib cage so that it takes less effort

in

breathe in.

[Guest guest]

Kass ... and others;

Adults with Mito have found that having an overnight oximetry testing done

has yielded results of dropping blood oxygen levels from obstruction due

to collapsing airways.

We have benefitted from the use of Pulmonary Air Pressure (either the constant

CPAP or the alternating pressure of the BiPAP). I would think that the

same problem would be common in Mito children!

It is really important that our mitochondria receive the benefit of airborne

oxygen ... and the benefits of having "help" overnight means that we function

better during the day because our systems don't have to fight quite so hard

overnight anymore!!!!!

Jean Shepherd

Kass wrote:

I thought

the article was very interesting also!! , Madison is notorious for sleeping with her arms above her head and we often find her with her head hanging over the edge of the bed also, as if she's instinctually trying to open her airway more. Now knowing that

she and Chance's airways are collapsing, it all makes more sense.

When I was sick I went through a time where I often felt the need to have my arms above my head also and it really did make it more feasible to

get a deep breath, something I at the time felt like I never could get without

doing this.

-- BIG hugs,

Kass, proud mom to Chance(10-Mito), Madison(7-Mito), and Abby(6-Mito)

Updates (http://www.caringbridge.org/tx/mitowhat/)

"Life is not measured by the breaths we take, but by the moments that

take our breath away" Unknown

Plant wrote:

Thanks for sharing the article. Does anyone have a child who sleeps with their arms raised over their

head? Colin does this at times. It seems to help with his breathing

perhaps because it raises his rib cage so that it takes less effort in

breathe in.

Please contact mito-owner with any problems or questions.

[Guest guest]

Kass ... and others;

Adults with Mito have found that having an overnight oximetry testing done

has yielded results of dropping blood oxygen levels from obstruction due

to collapsing airways.

We have benefitted from the use of Pulmonary Air Pressure (either the constant

CPAP or the alternating pressure of the BiPAP). I would think that the

same problem would be common in Mito children!

It is really important that our mitochondria receive the benefit of airborne

oxygen ... and the benefits of having "help" overnight means that we function

better during the day because our systems don't have to fight quite so hard

overnight anymore!!!!!

Jean Shepherd

Kass wrote:

I thought

the article was very interesting also!! , Madison is notorious for sleeping with her arms above her head and we often find her with her head hanging over the edge of the bed also, as if she's instinctually trying to open her airway more. Now knowing that

she and Chance's airways are collapsing, it all makes more sense.

When I was sick I went through a time where I often felt the need to have my arms above my head also and it really did make it more feasible to

get a deep breath, something I at the time felt like I never could get without

doing this.

-- BIG hugs,

Kass, proud mom to Chance(10-Mito), Madison(7-Mito), and Abby(6-Mito)

Updates (http://www.caringbridge.org/tx/mitowhat/)

"Life is not measured by the breaths we take, but by the moments that

take our breath away" Unknown

Plant wrote:

Thanks for sharing the article. Does anyone have a child who sleeps with their arms raised over their

head? Colin does this at times. It seems to help with his breathing

perhaps because it raises his rib cage so that it takes less effort in

breathe in.

Please contact mito-owner with any problems or questions.

[Guest guest]

Kass ... and others;

Adults with Mito have found that having an overnight oximetry testing done

has yielded results of dropping blood oxygen levels from obstruction due

to collapsing airways.

We have benefitted from the use of Pulmonary Air Pressure (either the constant

CPAP or the alternating pressure of the BiPAP). I would think that the

same problem would be common in Mito children!

It is really important that our mitochondria receive the benefit of airborne

oxygen ... and the benefits of having "help" overnight means that we function

better during the day because our systems don't have to fight quite so hard

overnight anymore!!!!!

Jean Shepherd

Kass wrote:

I thought

the article was very interesting also!! , Madison is notorious for sleeping with her arms above her head and we often find her with her head hanging over the edge of the bed also, as if she's instinctually trying to open her airway more. Now knowing that

she and Chance's airways are collapsing, it all makes more sense.

When I was sick I went through a time where I often felt the need to have my arms above my head also and it really did make it more feasible to

get a deep breath, something I at the time felt like I never could get without

doing this.

-- BIG hugs,

Kass, proud mom to Chance(10-Mito), Madison(7-Mito), and Abby(6-Mito)

Updates (http://www.caringbridge.org/tx/mitowhat/)

"Life is not measured by the breaths we take, but by the moments that

take our breath away" Unknown

Plant wrote:

Thanks for sharing the article. Does anyone have a child who sleeps with their arms raised over their

head? Colin does this at times. It seems to help with his breathing

perhaps because it raises his rib cage so that it takes less effort in

breathe in.

Please contact mito-owner with any problems or questions.

[Guest guest]

I do this as well. I have slept with at least one arm above my head at least since I can remember. Several of my kids cannot sleep unless they are quite elevated with several pillows like me. I seem to get stuffed up easily and also have trouble getting good air circulation through my lungs. I never take deep breaths or I get dizzy. Is this common? I have always assumed a lot of this is allergy related but have always been frustrated with the lack of oxygen circulation. Is this a common Mito issue? Darla Re: Re: Diaphragm Disorders I thought the article was very interesting also!! , Madison is notorious for sleeping with her arms above her head and we often find her with her head hanging over the edge of the bed also, as if she's instinctually trying to open her airway more. Now knowing that she and Chance's airways are collapsing, it all makes more sense. When I was sick I went through a time where I often felt the need to have my arms above my head also and it really did make it more feasible to get a deep breath, something I at the time felt like I never could get without doing this. -- BIG hugs, Kass, proud mom to Chance(10-Mito), Madison(7-Mito), and Abby(6-Mito) Updates (http://www.caringbridge.org/tx/mitowhat/) "Life is not measured by the breaths we take, but by the moments that take our breath away" Unknown Plant wrote: Thanks for sharing the article. Does anyone have a child who sleeps with their arms raised over their head? Colin does this at times. It seems to help with his breathing perhaps because it raises his rib cage so that it takes less effort in breathe in. Please contact mito-owner with any problems or questions. Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com