Testing & other things

[Guest guest]

Hi Guys,

My neurologist had contacted Dr. Stearns and he had

suggested that my neuro run certain tests to try and

determine if my sarc has decided to expand it's

territory to neuro. My insurance didn't have a

neuro-sarc on board so my complex case manager found

one. He was extremely nice and knowledgeable. When

we finished he went over the results of the tests and

talked to me about them. He let me know things would

get worse over time, but that I was working around the

problems well right now. He also gave me the name of

a resource to try and help combat the memory problems.

I didn't want anything else to be wrong, but I knew

something was wrong & I couldn't seem to get the

doctors to understand. I can deal with absolutely

anything that is explained to me, I meet it headon and

get on with my business. From what I understand right

now the cognitive testing shows problems with my

memory, my right hand, etc. Hopefully this will give

my neuro what he needs to do something about the

problems I have been having, as they are getting

worse.

I am typing this with one beaut of a headache (which

is something I never used to have) and hurting so bad

in other places I want to be sick. At the present the

only thing they are treating me with is pred and my

heart meds. I had the spinal tap about a week or two

ago but I don't know the results yet. I go back to my

neurologist the 16th for the outcome of everything.

My cardiologist had wanted me to come off one of my

heart meds, but that was a joke. I tried it for a few

days and even with the pacemaker my heart went nuts.

I went back on my cardizem. Between it and my Coreg I

function OK.

Well enough griping from my end. I appreciate you all

very much, please take care.....Connie

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