Guest guest Posted August 8, 2006 Report Share Posted August 8, 2006 With the sarcoid in my brain and eyes both being in remission my Doctor and I had decided that I should try and come off the steroids, cutting them by 1mg every 2 months. I have had a great year so far until my last drop of 4mg to 3mg (which he said could happen) and then I started getting problems again. A couple of weeks ago my legs got a little painful and found it difficult to walk again, balance was off slightly too. Fatigue has hit me again and I have noticed my eyes going blurry again. I'm a little frustrated because I really wanted to come off the steroids, but I also don't want to come off them and then have to go back on 80mg again. I have an appointment next month with my Doctor who will document any problems and will advise what he thinks I should do? Has anybody else had problems with coming off of steroids? or have to stay on steroids long term. This has been my second course over 3 and a half years (with a 9 month break in between). I would be interested to hear any stories. Becky UK _________________________________________________________________ Windows Live™ Messenger has arrived. Click here to download it for free! http://imagine-msn.com/messenger/launch80/?locale=en-gb Quote Link to comment Share on other sites More sharing options...
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