RE: Hi everyone -

[Guest guest]

Jeannie,

I'm like Rose, there may be some seizure problems, but

I don't think your going whack city. My cousin used

to have a seizure where she would start standing in

one spot and staring and then she would slide to the

floor. They figured it out and she does everything

any one else would do.

Here's praying they have a good solution. Please try

not to run to far into the unknown yet. It's not time

for that, wait till you know what to worry about.

Take Care.....Connie

--- Rose mamadogrose@...> wrote:

---------------------------------

Hi, Jeannie. I'm glad you wrote. I'm too tired to

think straight, but just wanted to respond so you

would know someone was thinking of you tonight. I

haven't had the experience you've had, but it could

very well be some type of seizure & needs to be

investigated. I understand your fear of losing

driving privileges; I have the same fear but for

different symptoms. I HATE being dependent on others

to take me places, but I don't know how I would live

with the horror of causing injuring or death to

someone because my driving was unsafe. Let's assume

that whatever your weird " spells " are, they are

controllable, allowing you to continue driving.

Right? Right! I'm off to bed now, with Jeannie on my

mind. Isn't that a song? Love & prayers from

Indiana,

Ramblin' Rose

Moderator

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Reply-To: Neurosarcoidosis

To: neurosarcoidosis

Subject: Hi everyone -

Date: Wed, 2 Aug 2006 23:54:42 -0700 (PDT)

Hey there my friends -

I've been out of touch - I'm sorry! There were so

many emails when I logged on a couple of weeks ago

that I gave up and deleted them all.... I hope you're

ok and not mad that I deleted - I honestly do care,

but I couldn't possibly keep up.

Things haven't been ok on my end. Things have been

very strained between my husband and I. It's very

involved, but nothing I want to delve into right now.

I'm very scared. About two months ago I started

having these numb feelings in my head.. They didn't

hurt, they felt comfortable, actually; I'd stare for

a while and then my son or hubby would keep talking to

me until I responded. I can hear everything going on

around me, I'm aware, but I don't care because it

feels so comfortable where I'm at... Is that crazy???

Then a couple of mornings ago, I woke up all confused

in the middle of a conversation with my husband at the

door of our detatched garage... It was dark, I was in

my PJ's and I had no idea how I got there or what the

heck we were talking about. He was a little freaked

out, to say the least. Well, to make a long story

short, tonight (last night) he caught me in yet

another " unresponsive stare, " as he calls it, and he

absolutely freaked out. He is adamant that he's

taking my vehicle from me and wants me to make an

emergency appointment with my PCP for today. He said

he's going to call me in the morning to remind me and

he'll leave early to take me in. He won't let me

drive anywhere, it seems. I am very resentful, but I

guess if the shoe was on the other foot, I'd do the

same. I've had major lapses of memory... I think I

told you about it... He and my son recount stories

that apparently happened when the three of us were

together, but I have absolutely no recollection of

it!!! At first, I thought my husband was making this

stuff up to make me think I was crazy (we've had some

problems, so I was sure he was making me out to be

worse than I was)... but then one incident where my

son got very upset that I didn't remember convinced me

that there is more to it than I had believed...

ANYWAY...

I just spent a little time looking up seizures,

because I am thinking that might be what this is, but

I don't know. If any of you have experienced anything

like this, please share with me... I'm scared. It

doesn't hurt. It's actually quite nice... I know. I

sound nuts, don't I??? I'm afraid I'm slowly losing

my mind or something. I will call the doc in the

morning, but tonight I can't sleep because I'm

worried. My son has also experienced this with me a

number of times, and it has scared him. Earlier today

it happened when one of his friends was over swimming

and he told her, " there goes my Mom again... She'll

be fine. " Ugh... Like I was goofey or something.

Am I going to die? Am I going to go goofey or

something where I can't function? I'm sure my PCP

will run tests if my husband goes with me... What can

expect? Do any of you go through this? Is it

curable? Treatable?

Thanks for putting up with me. I feel so stupid and

so exposed... And I'd be lying if I said I'm not

scared. I'm scared as heck. My grandfather had

Parkinson's... My grandma had poor circulation to her

brain. And I've got neurosarc... Is there anything I

can do to prevent my son from getting this??? Will

they be able to help me so that my life has some

normalcy to it again???

I'm sorry, you all. I suddenly am fearing that

they'll revoke my driving privileges and that I'll be

cooped up at home without a life forever. I know

that's stupid, but I'm really scared. I'm sure the

doctor will laugh it off tomorrow as something simple

to treat... but I'm so scared. I feel like all the

medical professionals out there just want to drug me

and make me go away... and that I just might actually

go away (mentally!)!!!

I hope I am not upsetting anyone. I'm just so scared.

And I know if anyone understands, it's all of you.

Thank you for being my friends. I don't know what I'd

do without you.

Love,

Jeannie

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