Guest guest Posted June 24, 2006 Report Share Posted June 24, 2006 Jeanne, I'm sorry that you've been having such a rough time. We could start a club. How about the 3P's? Poor, pitiful pinatas? Let's hope that the sun's coming out for awhile. Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Hi everyone -Date: Fri, 23 Jun 2006 21:06:51 -0700 (PDT) I just want to let all of you know that I haven't dropped off the face of the earth. For the past almost two weeks, I've been dealing with intestinal parasites AND contracted strep from my son, God love him. During that time, our son needed meds and breathing stuff, so we couldn't afford to refill my meds, which REALLY threw me for a loop (The doctor's office didn't have samples, but my husband bought them for me last night, so I'm getting better). And I'm having some personal issues with my husband that are absolutely tearing me up. I just feel like a pinata - being hit from every angle. Yuck. The only thing is, if I break, there won't be toys and candy coming out of me... I'm just planning to hold it together, that's all. Anyhow, I am still pretty sick, but I'm well enough to sit up and just drop by to say "hi" and let you know where I've been. I have over 600 emails to catch up with, so it may take a few days before I get to any that anyone may have written to me. I have thought about all of you every day and have missed you so much. I'm still keeping you all in my prayers. May we all have a pain-free, sunny-in-the-heart kind of day today! Hugs,Jeannie Ring'em or ping'em. Make PC-to-phone calls as low as 1¢/min with Yahoo! Messenger with Voice. Be one of the first to try Windows Live Mail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2006 Report Share Posted June 24, 2006 Jeanne, I am glad you are getting better. Try to take it one day at a time. Terri > > I just want to let all of you know that I haven't dropped off the face of the earth. For the past almost two weeks, I've been dealing with intestinal parasites AND contracted strep from my son, God love him. During that time, our son needed meds and breathing stuff, so we couldn't afford to refill my meds, which REALLY threw me for a loop (The doctor's office didn't have samples, but my husband bought them for me last night, so I'm getting better). And I'm having some personal issues with my husband that are absolutely tearing me up. I just feel like a pinata - being hit from every angle. Yuck. The only thing is, if I break, there won't be toys and candy coming out of me... I'm just planning to hold it together, that's all. > > Anyhow, I am still pretty sick, but I'm well enough to sit up and just drop by to say " hi " and let you know where I've been. I have over 600 emails to catch up with, so it may take a few days before I get to any that anyone may have written to me. > > I have thought about all of you every day and have missed you so much. I'm still keeping you all in my prayers. May we all have a pain-free, sunny-in-the-heart kind of day today! > > Hugs, > > Jeannie > > > > > --------------------------------- > Ring'em or ping'em. Make PC-to-phone calls as low as 1¢/min with Yahoo! Messenger with Voice. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2006 Report Share Posted June 24, 2006 Jeanne, I am glad you are getting better. Try to take it one day at a time. Terri > > I just want to let all of you know that I haven't dropped off the face of the earth. For the past almost two weeks, I've been dealing with intestinal parasites AND contracted strep from my son, God love him. During that time, our son needed meds and breathing stuff, so we couldn't afford to refill my meds, which REALLY threw me for a loop (The doctor's office didn't have samples, but my husband bought them for me last night, so I'm getting better). And I'm having some personal issues with my husband that are absolutely tearing me up. I just feel like a pinata - being hit from every angle. Yuck. The only thing is, if I break, there won't be toys and candy coming out of me... I'm just planning to hold it together, that's all. > > Anyhow, I am still pretty sick, but I'm well enough to sit up and just drop by to say " hi " and let you know where I've been. I have over 600 emails to catch up with, so it may take a few days before I get to any that anyone may have written to me. > > I have thought about all of you every day and have missed you so much. I'm still keeping you all in my prayers. May we all have a pain-free, sunny-in-the-heart kind of day today! > > Hugs, > > Jeannie > > > > > --------------------------------- > Ring'em or ping'em. Make PC-to-phone calls as low as 1¢/min with Yahoo! Messenger with Voice. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2006 Report Share Posted June 24, 2006 Jeannie...My thoughts and prayers are with you as they are with all of you during the rough ups and down of this crazy disease! Ruth > > I just want to let all of you know that I haven't dropped off the face of the earth. For the past almost two weeks, I've been dealing with intestinal parasites AND contracted strep from my son, God love him. During that time, our son needed meds and breathing stuff, so we couldn't afford to refill my meds, which REALLY threw me for a loop (The doctor's office didn't have samples, but my husband bought them for me last night, so I'm getting better). And I'm having some personal issues with my husband that are absolutely tearing me up. I just feel like a pinata - being hit from every angle. Yuck. The only thing is, if I break, there won't be toys and candy coming out of me... I'm just planning to hold it together, that's all. > > Anyhow, I am still pretty sick, but I'm well enough to sit up and just drop by to say " hi " and let you know where I've been. I have over 600 emails to catch up with, so it may take a few days before I get to any that anyone may have written to me. > > I have thought about all of you every day and have missed you so much. I'm still keeping you all in my prayers. May we all have a pain-free, sunny-in-the-heart kind of day today! > > Hugs, > > Jeannie > > > > > --------------------------------- > Ring'em or ping'em. Make PC-to-phone calls as low as 1¢/min with Yahoo! Messenger with Voice. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2006 Report Share Posted June 24, 2006 Jeannie...My thoughts and prayers are with you as they are with all of you during the rough ups and down of this crazy disease! Ruth > > I just want to let all of you know that I haven't dropped off the face of the earth. For the past almost two weeks, I've been dealing with intestinal parasites AND contracted strep from my son, God love him. During that time, our son needed meds and breathing stuff, so we couldn't afford to refill my meds, which REALLY threw me for a loop (The doctor's office didn't have samples, but my husband bought them for me last night, so I'm getting better). And I'm having some personal issues with my husband that are absolutely tearing me up. I just feel like a pinata - being hit from every angle. Yuck. The only thing is, if I break, there won't be toys and candy coming out of me... I'm just planning to hold it together, that's all. > > Anyhow, I am still pretty sick, but I'm well enough to sit up and just drop by to say " hi " and let you know where I've been. I have over 600 emails to catch up with, so it may take a few days before I get to any that anyone may have written to me. > > I have thought about all of you every day and have missed you so much. I'm still keeping you all in my prayers. May we all have a pain-free, sunny-in-the-heart kind of day today! > > Hugs, > > Jeannie > > > > > --------------------------------- > Ring'em or ping'em. Make PC-to-phone calls as low as 1¢/min with Yahoo! Messenger with Voice. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 Jeanne, I wish I had a way to make things better, bless your heart you've been through the mill the last couple of weeks. I will do the only thing I can do to help, I will be praying. Take care of Jeanne, she's a sweetheart////ConnieJeanne Betters wrote: I just want to let all of you know that I haven't dropped off the face of the earth. For the past almost two weeks, I've been dealing with intestinal parasites AND contracted strep from my son, God love him. During that time, our son needed meds and breathing stuff, so we couldn't afford to refill my meds, which REALLY threw me for a loop (The doctor's office didn't have samples, but my husband bought them for me last night, so I'm getting better). And I'm having some personal issues with my husband that are absolutely tearing me up. I just feel like a pinata - being hit from every angle. Yuck. The only thing is, if I break, there won't be toys and candy coming out of me... I'm just planning to hold it together, that's all. Anyhow, I am still pretty sick, but I'm well enough to sit up and just drop by to say "hi" and let you know where I've been. I have over 600 emails to catch up with, so it may take a few days before I get to any that anyone may have written to me. I have thought about all of you every day and have missed you so much. I'm still keeping you all in my prayers. May we all have a pain-free, sunny-in-the-heart kind of day today! Hugs,Jeannie Ring'em or ping'em. Make PC-to-phone calls as low as 1¢/min with Yahoo! Messenger with Voice. Yahoo! Messenger with Voice. PC-to-Phone calls for ridiculously low rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 I have a better 3 P's for us.....PRECIOUS POWERFUL PRECOCIOUS..... ConnieRose wrote: Jeanne, I'm sorry that you've been having such a rough time. We could start a club. How about the 3P's? Poor, pitiful pinatas? Let's hope that the sun's coming out for awhile. Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Hi everyone -Date: Fri, 23 Jun 2006 21:06:51 -0700 (PDT) I just want to let all of you know that I haven't dropped off the face of the earth. For the past almost two weeks, I've been dealing with intestinal parasites AND contracted strep from my son, God love him. During that time, our son needed meds and breathing stuff, so we couldn't afford to refill my meds, which REALLY threw me for a loop (The doctor's office didn't have samples, but my husband bought them for me last night, so I'm getting better). And I'm having some personal issues with my husband that are absolutely tearing me up. I just feel like a pinata - being hit from every angle. Yuck. The only thing is, if I break, there won't be toys and candy coming out of me... I'm just planning to hold it together, that's all. Anyhow, I am still pretty sick, but I'm well enough to sit up and just drop by to say "hi" and let you know where I've been. I have over 600 emails to catch up with, so it may take a few days before I get to any that anyone may have written to me. I have thought about all of you every day and have missed you so much. I'm still keeping you all in my prayers. May we all have a pain-free, sunny-in-the-heart kind of day today! Hugs,Jeannie Ring'em or ping'em. Make PC-to-phone calls as low as 1¢/min with Yahoo! Messenger with Voice. Be one of the first to try Windows Live Mail Want to be your own boss? Learn how on Yahoo! Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2006 Report Share Posted August 3, 2006 Jeannie I zone out alot of times too. I know you'd hate not being able to drive but on the bright side we passengers get to watch the beautiful scenery while the drivers have to watch the asphalt & the aspholes...LOL Hang in there kiddo & go see the doc!grannylunatic@... Yahoo! Music Unlimited - Access over 1 million songs. Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2006 Report Share Posted August 4, 2006 Hello everyone - - Madonna here and doing better with each day, glad to be alive but that pinata anaology I love it - being hit from all sides but not candy coming out - - LOL that is hillarious! We all need to vent especially with sarc taking over our systems, but God is good and oh well, pinata time! LOL again. My goodness I don't want to crack open, because with all the drugs I take, who knows what would fall out!! Have a good weekend everyone and you are all in my prayers. Madonna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2006 Report Share Posted August 7, 2006 Jeannie, I'm like Rose, there may be some seizure problems, but I don't think your going whack city. My cousin used to have a seizure where she would start standing in one spot and staring and then she would slide to the floor. They figured it out and she does everything any one else would do. Here's praying they have a good solution. Please try not to run to far into the unknown yet. It's not time for that, wait till you know what to worry about. Take Care.....Connie --- Rose mamadogrose@...> wrote: --------------------------------- Hi, Jeannie. I'm glad you wrote. I'm too tired to think straight, but just wanted to respond so you would know someone was thinking of you tonight. I haven't had the experience you've had, but it could very well be some type of seizure & needs to be investigated. I understand your fear of losing driving privileges; I have the same fear but for different symptoms. I HATE being dependent on others to take me places, but I don't know how I would live with the horror of causing injuring or death to someone because my driving was unsafe. Let's assume that whatever your weird " spells " are, they are controllable, allowing you to continue driving. Right? Right! I'm off to bed now, with Jeannie on my mind. Isn't that a song? Love & prayers from Indiana, Ramblin' Rose Moderator --------------------------------- Reply-To: Neurosarcoidosis To: neurosarcoidosis Subject: Hi everyone - Date: Wed, 2 Aug 2006 23:54:42 -0700 (PDT) Hey there my friends - I've been out of touch - I'm sorry! There were so many emails when I logged on a couple of weeks ago that I gave up and deleted them all.... I hope you're ok and not mad that I deleted - I honestly do care, but I couldn't possibly keep up. Things haven't been ok on my end. Things have been very strained between my husband and I. It's very involved, but nothing I want to delve into right now. I'm very scared. About two months ago I started having these numb feelings in my head.. They didn't hurt, they felt comfortable, actually; I'd stare for a while and then my son or hubby would keep talking to me until I responded. I can hear everything going on around me, I'm aware, but I don't care because it feels so comfortable where I'm at... Is that crazy??? Then a couple of mornings ago, I woke up all confused in the middle of a conversation with my husband at the door of our detatched garage... It was dark, I was in my PJ's and I had no idea how I got there or what the heck we were talking about. He was a little freaked out, to say the least. Well, to make a long story short, tonight (last night) he caught me in yet another " unresponsive stare, " as he calls it, and he absolutely freaked out. He is adamant that he's taking my vehicle from me and wants me to make an emergency appointment with my PCP for today. He said he's going to call me in the morning to remind me and he'll leave early to take me in. He won't let me drive anywhere, it seems. I am very resentful, but I guess if the shoe was on the other foot, I'd do the same. I've had major lapses of memory... I think I told you about it... He and my son recount stories that apparently happened when the three of us were together, but I have absolutely no recollection of it!!! At first, I thought my husband was making this stuff up to make me think I was crazy (we've had some problems, so I was sure he was making me out to be worse than I was)... but then one incident where my son got very upset that I didn't remember convinced me that there is more to it than I had believed... ANYWAY... I just spent a little time looking up seizures, because I am thinking that might be what this is, but I don't know. If any of you have experienced anything like this, please share with me... I'm scared. It doesn't hurt. It's actually quite nice... I know. I sound nuts, don't I??? I'm afraid I'm slowly losing my mind or something. I will call the doc in the morning, but tonight I can't sleep because I'm worried. My son has also experienced this with me a number of times, and it has scared him. Earlier today it happened when one of his friends was over swimming and he told her, " there goes my Mom again... She'll be fine. " Ugh... Like I was goofey or something. Am I going to die? Am I going to go goofey or something where I can't function? I'm sure my PCP will run tests if my husband goes with me... What can expect? Do any of you go through this? Is it curable? Treatable? Thanks for putting up with me. I feel so stupid and so exposed... And I'd be lying if I said I'm not scared. I'm scared as heck. My grandfather had Parkinson's... My grandma had poor circulation to her brain. And I've got neurosarc... Is there anything I can do to prevent my son from getting this??? Will they be able to help me so that my life has some normalcy to it again??? I'm sorry, you all. I suddenly am fearing that they'll revoke my driving privileges and that I'll be cooped up at home without a life forever. I know that's stupid, but I'm really scared. I'm sure the doctor will laugh it off tomorrow as something simple to treat... but I'm so scared. I feel like all the medical professionals out there just want to drug me and make me go away... and that I just might actually go away (mentally!)!!! I hope I am not upsetting anyone. I'm just so scared. And I know if anyone understands, it's all of you. Thank you for being my friends. I don't know what I'd do without you. Love, Jeannie --------------------------------- Do you Yahoo!? Get on board. You're invited to try the new Yahoo! 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