Guest guest Posted August 7, 2006 Report Share Posted August 7, 2006 .. I took a loan out to pay for three months of humira and it worked wonderfully but due to lack of funds I had to quit and within a year I have gotten worse. My doc orginally wanted me to try remicade but that scares me because he said you can have severe allergic reactions. I hope it works for you. It sound like it is. I'll keep fighting insurance. Do you qualify for any of the assistance programs? Try this website: http://www.needymeds.com/company_list.taf?_function=name & program_id=323 Also, if you search by "humira Patient Assistance Program" you'll get multiple hits, and there are numerous sites that may be able to help you get the medication. Do search it out-- they do have waivers for people that have insurance, but the insurance won't cover the meds they need. It's worth a shot. (No pun intended :-) Tracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2006 Report Share Posted August 7, 2006 Hi Angie, Nice to meet you. I was reading your posting and was wondering if you had tried the site NeedyMeds. When insurance won't pay for a product sometimes you can get it through this site. Just a thought...Connie fm Florida --- cytochic tagildow@...> wrote: > --Hi Tracie, > Thanks for emailing back. Its so nice to talk to > someone about my > condition that doesn't just have a blank look on > their face. I will > check out the web site you gave me. I tried last > year to appeal the > insurance and even though I had taken all the other > medication and > they no longer worked, they still denied me. I took > a loan out to > pay for three months of humira and it worked > wonderfully but due to > lack of funds I had to quit and within a year I have > gotten worse. > My doc orginally wanted me to try remicade but that > scares me > because he said you can have severe allergic > reactions. I hope it > works for you. It sound like it is. I'll keep > fighting insurance. > I can't keep taking loans out. Thanks for > listening. Angie > - In Neurosarcoidosis , tiodaat@... > wrote: > > > > Hi angie, > > > > I'm sorry that you haven't had much of a response > today. Right > now, all of > > the moderator's and our owners are in flare, so > we're doing a " tag- > team " > > getting the emails answered. > > > > You said your MD is trying to get approval for > Humira. If he will > document > > that you've been on the Methotrexate, Imuran, and > Prednisone-- > along with > > whatever else you've been on, and that the disease > is still > progressing-- that > > should get you thru the Appeals process. > > > > Humira, Enbrel and Remicade are all showing some > progress with > slowing the > > disease process. Here is a good site that talks > about the BRM's > (Biological > > Response Modifiers) and what the stats are finally > beginning to > show. > > > > > http://www.medicinenet.com/script/main/art.asp?articlekey=40225 > > > > I have been on Remicade now for about 15 months > out of the last 2 > yrs. I > > went thru the clinical trial and had received the > drug. The > primary side effect > > has been an increasing exhaustion-fatigue with > each infusion. It > now takes me > > the better part of a week to recover following > each infusion (I > get them every > > 4 wks). > > > > Darlene, our co-owner of the group- is in serious > condition with > > Histoplasmosis-- which is basically systemic > candidis (yeast) > infection throughout her > > body. This does concern me, as I am getting yeast > infections > following each > > infusion-- so it's Diflucan chaser time for me. > > > > The upside is that my brain function is higher, my > lungs are > working a bit > > better and I'm not having to be on oxygen 24/7 (I > still have to > have it at > > night, and if I go up in elevation). > > > > With any of the BRM's, you have to take > Methotrexate or Prednisone > with it, > > so that you don't build anti-bodies against the > BRM. You also > must take Folic > > Acid so that your B12 does not end up depleted. > > > > For me, it's been a cocktail of Remicade, > Methotrexate and > Plaquenil that has > > me maintained. > > > > I have multi-system sarc, eyes, sinuses, lungs, > lymphs, bones and > brain. > > Prednisone was basically feeding my sarc, and the > side effects > were no longer > > acceptable. > > > > Anyway, know that you are with a group of sarcies, > and that at 410 > members, > > we have a wealth of information. Our ARCHIVES and > our LINKS have > sites and > > references that you can print out and take to your > MD's. > > > > Also, know that we are here for you, and even if > it takes a day or > so - > > someone will get back to you and help with your > questions or > concerns. > > > > Sincerely, > > Tracie > > NS Co-owner/moderator > > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2006 Report Share Posted August 7, 2006 Hi Angie, Nice to meet you. I was reading your posting and was wondering if you had tried the site NeedyMeds. When insurance won't pay for a product sometimes you can get it through this site. Just a thought...Connie fm Florida --- cytochic tagildow@...> wrote: > --Hi Tracie, > Thanks for emailing back. Its so nice to talk to > someone about my > condition that doesn't just have a blank look on > their face. I will > check out the web site you gave me. I tried last > year to appeal the > insurance and even though I had taken all the other > medication and > they no longer worked, they still denied me. I took > a loan out to > pay for three months of humira and it worked > wonderfully but due to > lack of funds I had to quit and within a year I have > gotten worse. > My doc orginally wanted me to try remicade but that > scares me > because he said you can have severe allergic > reactions. I hope it > works for you. It sound like it is. I'll keep > fighting insurance. > I can't keep taking loans out. Thanks for > listening. Angie > - In Neurosarcoidosis , tiodaat@... > wrote: > > > > Hi angie, > > > > I'm sorry that you haven't had much of a response > today. Right > now, all of > > the moderator's and our owners are in flare, so > we're doing a " tag- > team " > > getting the emails answered. > > > > You said your MD is trying to get approval for > Humira. If he will > document > > that you've been on the Methotrexate, Imuran, and > Prednisone-- > along with > > whatever else you've been on, and that the disease > is still > progressing-- that > > should get you thru the Appeals process. > > > > Humira, Enbrel and Remicade are all showing some > progress with > slowing the > > disease process. Here is a good site that talks > about the BRM's > (Biological > > Response Modifiers) and what the stats are finally > beginning to > show. > > > > > http://www.medicinenet.com/script/main/art.asp?articlekey=40225 > > > > I have been on Remicade now for about 15 months > out of the last 2 > yrs. I > > went thru the clinical trial and had received the > drug. The > primary side effect > > has been an increasing exhaustion-fatigue with > each infusion. It > now takes me > > the better part of a week to recover following > each infusion (I > get them every > > 4 wks). > > > > Darlene, our co-owner of the group- is in serious > condition with > > Histoplasmosis-- which is basically systemic > candidis (yeast) > infection throughout her > > body. This does concern me, as I am getting yeast > infections > following each > > infusion-- so it's Diflucan chaser time for me. > > > > The upside is that my brain function is higher, my > lungs are > working a bit > > better and I'm not having to be on oxygen 24/7 (I > still have to > have it at > > night, and if I go up in elevation). > > > > With any of the BRM's, you have to take > Methotrexate or Prednisone > with it, > > so that you don't build anti-bodies against the > BRM. You also > must take Folic > > Acid so that your B12 does not end up depleted. > > > > For me, it's been a cocktail of Remicade, > Methotrexate and > Plaquenil that has > > me maintained. > > > > I have multi-system sarc, eyes, sinuses, lungs, > lymphs, bones and > brain. > > Prednisone was basically feeding my sarc, and the > side effects > were no longer > > acceptable. > > > > Anyway, know that you are with a group of sarcies, > and that at 410 > members, > > we have a wealth of information. Our ARCHIVES and > our LINKS have > sites and > > references that you can print out and take to your > MD's. > > > > Also, know that we are here for you, and even if > it takes a day or > so - > > someone will get back to you and help with your > questions or > concerns. > > > > Sincerely, > > Tracie > > NS Co-owner/moderator > > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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