Re: From Camping to the Hospital

[Guest guest]

Diane,

Welcome back home..sorry to hear your trip ended so badly! I know what its like to make trips to the Er.

I don't have the Ns in my stomach ... " yet " but the way its been working its way around my body.. we will see.

rest rest rest... and Good luck on the biopsy

Blessings and hugs and a pain free day

in pa

[Guest guest]

Diane,

Welcome back home..sorry to hear your trip ended so badly! I know what its like to make trips to the Er.

I don't have the Ns in my stomach ... " yet " but the way its been working its way around my body.. we will see.

rest rest rest... and Good luck on the biopsy

Blessings and hugs and a pain free day

in pa

[Guest guest]

Diane,

Take care of yourself. You have to listen to your body....

Terri G.

>

> Diane,

>

> I am so sorry to hear this, I keep saying you have to pay to play, but

that

> sure does not sound fair, or fun. I don't have many stomach problems.

But

> have you tied eating small meals, like 6 small meals instead of 3

larger

> ones.

>

> I know this whole thing is depressing, just stay home and take it

easy,

> don't push. See what the biopsy has to say. My prayers are with you.

>

> Marla

>

>

>

>

>

> _____

>

> From: Neurosarcoidosis

> [mailto:Neurosarcoidosis ] On Behalf Of Diane Aja

> Sent: Thursday, August 03, 2006 9:17 AM

> To: Neurosarcoidosis

> Subject: From Camping to the Hospital

>

>

>

> Hi All,

>

> Just letting you know that I just got home from the hospital. I went

on my

> camping trip last Friday and had fun until we were on our way home on

Sunday

> around lunch time. I was good and stayed in the RV with air most of

the

> time and kept myself cool. Everything was going great until we headed

home

> on Sunday. I had one of my pain attacks and it was horrendous and

long. I

> ended up in the back seat of our Yukon XL writhing in pain until my

husband

> could get me here into town to the ER. I've never had him take me to

the ER

> before, but this time it was different. I had to go. I needed morphine

or

> something strong because the pain and nausea was not letting up after

over a

> half hour. Needless to say, it's Thursday morning and I just got home!

> First they said I had pancreatis because my lipase(sp) numbers were

way

> high. Then the CT scan of pancreas showed nothing changed from May,

except

> my spleen is bigger and a weirder shape than ever, and they said with

> everything taken under consideration, it was NOT pancreatis. Yesterday

> morning I had a biopsy of my stomach and small intestine. No results

yet,

> but doc said my stomach lining was red and inflamed and I had bile in

there

> (not supposed to). My intestine looked o.k. They think the

inflammation is

> probably sarcoid and the bile is from movement problems caused by the

sarc.

> Anyone else have sarc in the stomach or intestines? This is the area

where

> these pain attacks have been killing me so much. So it makes sense to

me.

> I am just so tired of all this. They just tell me " well there is

nothing we

> can do about it if it is the sarc, we're sorry. " I am very depressed

right

> now. Please tell me I have the strength to fight this thing that is

taking

> me over so quickly. I ask God for strength everyday, but I'm not doing

very

> good. I haven't had real food since Saturday and I've gained 5 pounds.

Go

> figure. It's all that I.V. cocktail! Yum, Yum!!! ha-ha!!! I'm going to

go

> make myself a piece of toast and boy it sounds sooooo good right now.

Hope

> I can keep it down. I've had enough broth and jello to last a

lifetime. I

> won't be on the computer much, and I came home to over 400 emails so

if I

> missed anyone's, I'm sorry

> http://www.smileycentral.com/?partner=ZSzeb001_ZNxmk572YYUS> Blushy

>

>

>

> Blessings and love to all,

>

> Diane who is so happy to be home!

>

>

>

> http://www.smileycentral.com/?partner=ZSzeb001_ZNxmk572YYUS> Spaz

>

>

>

>

>

>

>

> http://www.smileycentral.com/?partner=ZSzeb068_ZNxmk572YYUS>

>

[Guest guest]

Diane,

Take care of yourself. You have to listen to your body....

Terri G.

>

> Diane,

>

> I am so sorry to hear this, I keep saying you have to pay to play, but

that

> sure does not sound fair, or fun. I don't have many stomach problems.

But

> have you tied eating small meals, like 6 small meals instead of 3

larger

> ones.

>

> I know this whole thing is depressing, just stay home and take it

easy,

> don't push. See what the biopsy has to say. My prayers are with you.

>

> Marla

>

>

>

>

>

> _____

>

> From: Neurosarcoidosis

> [mailto:Neurosarcoidosis ] On Behalf Of Diane Aja

> Sent: Thursday, August 03, 2006 9:17 AM

> To: Neurosarcoidosis

> Subject: From Camping to the Hospital

>

>

>

> Hi All,

>

> Just letting you know that I just got home from the hospital. I went

on my

> camping trip last Friday and had fun until we were on our way home on

Sunday

> around lunch time. I was good and stayed in the RV with air most of

the

> time and kept myself cool. Everything was going great until we headed

home

> on Sunday. I had one of my pain attacks and it was horrendous and

long. I

> ended up in the back seat of our Yukon XL writhing in pain until my

husband

> could get me here into town to the ER. I've never had him take me to

the ER

> before, but this time it was different. I had to go. I needed morphine

or

> something strong because the pain and nausea was not letting up after

over a

> half hour. Needless to say, it's Thursday morning and I just got home!

> First they said I had pancreatis because my lipase(sp) numbers were

way

> high. Then the CT scan of pancreas showed nothing changed from May,

except

> my spleen is bigger and a weirder shape than ever, and they said with

> everything taken under consideration, it was NOT pancreatis. Yesterday

> morning I had a biopsy of my stomach and small intestine. No results

yet,

> but doc said my stomach lining was red and inflamed and I had bile in

there

> (not supposed to). My intestine looked o.k. They think the

inflammation is

> probably sarcoid and the bile is from movement problems caused by the

sarc.

> Anyone else have sarc in the stomach or intestines? This is the area

where

> these pain attacks have been killing me so much. So it makes sense to

me.

> I am just so tired of all this. They just tell me " well there is

nothing we

> can do about it if it is the sarc, we're sorry. " I am very depressed

right

> now. Please tell me I have the strength to fight this thing that is

taking

> me over so quickly. I ask God for strength everyday, but I'm not doing

very

> good. I haven't had real food since Saturday and I've gained 5 pounds.

Go

> figure. It's all that I.V. cocktail! Yum, Yum!!! ha-ha!!! I'm going to

go

> make myself a piece of toast and boy it sounds sooooo good right now.

Hope

> I can keep it down. I've had enough broth and jello to last a

lifetime. I

> won't be on the computer much, and I came home to over 400 emails so

if I

> missed anyone's, I'm sorry

> http://www.smileycentral.com/?partner=ZSzeb001_ZNxmk572YYUS> Blushy

>

>

>

> Blessings and love to all,

>

> Diane who is so happy to be home!

>

>

>

> http://www.smileycentral.com/?partner=ZSzeb001_ZNxmk572YYUS> Spaz

>

>

>

>

>

>

>

> http://www.smileycentral.com/?partner=ZSzeb068_ZNxmk572YYUS>

>

[Guest guest]

Diane,

Take care of yourself. You have to listen to your body....

Terri G.

>

> Diane,

>

> I am so sorry to hear this, I keep saying you have to pay to play, but

that

> sure does not sound fair, or fun. I don't have many stomach problems.

But

> have you tied eating small meals, like 6 small meals instead of 3

larger

> ones.

>

> I know this whole thing is depressing, just stay home and take it

easy,

> don't push. See what the biopsy has to say. My prayers are with you.

>

> Marla

>

>

>

>

>

> _____

>

> From: Neurosarcoidosis

> [mailto:Neurosarcoidosis ] On Behalf Of Diane Aja

> Sent: Thursday, August 03, 2006 9:17 AM

> To: Neurosarcoidosis

> Subject: From Camping to the Hospital

>

>

>

> Hi All,

>

> Just letting you know that I just got home from the hospital. I went

on my

> camping trip last Friday and had fun until we were on our way home on

Sunday

> around lunch time. I was good and stayed in the RV with air most of

the

> time and kept myself cool. Everything was going great until we headed

home

> on Sunday. I had one of my pain attacks and it was horrendous and

long. I

> ended up in the back seat of our Yukon XL writhing in pain until my

husband

> could get me here into town to the ER. I've never had him take me to

the ER

> before, but this time it was different. I had to go. I needed morphine

or

> something strong because the pain and nausea was not letting up after

over a

> half hour. Needless to say, it's Thursday morning and I just got home!

> First they said I had pancreatis because my lipase(sp) numbers were

way

> high. Then the CT scan of pancreas showed nothing changed from May,

except

> my spleen is bigger and a weirder shape than ever, and they said with

> everything taken under consideration, it was NOT pancreatis. Yesterday

> morning I had a biopsy of my stomach and small intestine. No results

yet,

> but doc said my stomach lining was red and inflamed and I had bile in

there

> (not supposed to). My intestine looked o.k. They think the

inflammation is

> probably sarcoid and the bile is from movement problems caused by the

sarc.

> Anyone else have sarc in the stomach or intestines? This is the area

where

> these pain attacks have been killing me so much. So it makes sense to

me.

> I am just so tired of all this. They just tell me " well there is

nothing we

> can do about it if it is the sarc, we're sorry. " I am very depressed

right

> now. Please tell me I have the strength to fight this thing that is

taking

> me over so quickly. I ask God for strength everyday, but I'm not doing

very

> good. I haven't had real food since Saturday and I've gained 5 pounds.

Go

> figure. It's all that I.V. cocktail! Yum, Yum!!! ha-ha!!! I'm going to

go

> make myself a piece of toast and boy it sounds sooooo good right now.

Hope

> I can keep it down. I've had enough broth and jello to last a

lifetime. I

> won't be on the computer much, and I came home to over 400 emails so

if I

> missed anyone's, I'm sorry

> http://www.smileycentral.com/?partner=ZSzeb001_ZNxmk572YYUS> Blushy

>

>

>

> Blessings and love to all,

>

> Diane who is so happy to be home!

>

>

>

> http://www.smileycentral.com/?partner=ZSzeb001_ZNxmk572YYUS> Spaz

>

>

>

>

>

>

>

> http://www.smileycentral.com/?partner=ZSzeb068_ZNxmk572YYUS>

>

[Guest guest]

Diane,

I am so

sorry to hear this, I keep saying you have to pay to play, but that sure does not

sound fair, or fun. I don’t have many stomach problems. But have you

tied eating small meals, like 6 small meals instead of 3 larger ones.

I know

this whole thing is depressing, just stay home and take it easy, don’t

push. See what the biopsy has to say. My prayers are with you.

Marla

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Diane Aja

Sent: Thursday, August 03, 2006

9:17 AM

To: Neurosarcoidosis

Subject: From

Camping to the Hospital

Hi All,

Just letting you know that I just got home from the

hospital. I went on my camping trip last Friday and had fun until we were

on our way home on Sunday around lunch time. I was good and stayed in the

RV with air most of the time and kept myself cool. Everything was going

great until we headed home on Sunday. I had one of my pain attacks and it

was horrendous and long. I ended up in the back seat of our Yukon XL

writhing in pain until my husband could get me here into town to the ER.

I've never had him take me to the ER before, but this time it was

different. I had to go. I needed morphine or something strong

because the pain and nausea was not letting up after over a half hour.

Needless to say, it's Thursday morning and I just got home! First they

said I had pancreatis because my lipase(sp) numbers were way high. Then

the CT scan of pancreas showed nothing changed from May, except my spleen is

bigger and a weirder shape than ever, and they said with everything taken under

consideration, it was NOT pancreatis. Yesterday morning I had a biopsy of

my stomach and small intestine. No results yet, but doc said my stomach

lining was red and inflamed and I had bile in there (not supposed to). My

intestine looked o.k. They think the inflammation is probably sarcoid and

the bile is from movement problems caused by the sarc. Anyone else have

sarc in the stomach or intestines? This is the area where these pain

attacks have been killing me so much. So it makes sense to me. I am

just so tired of all this. They just tell me " well there is nothing

we can do about it if it is the sarc, we're sorry. " I am very

depressed right now. Please tell me I have the strength to fight this

thing that is taking me over so quickly. I ask God for strength everyday,

but I'm not doing very good. I haven't had real food since Saturday and

I've gained 5 pounds. Go figure. It's all that I.V. cocktail!

Yum, Yum!!! ha-ha!!! I'm going to go make myself a piece of toast and boy

it sounds sooooo good right now. Hope I can keep it down. I've had

enough broth and jello to last a lifetime. I won't be on the computer

much, and I came home to over 400 emails so if I missed anyone's, I'm

sorry

Blessings and love to all,

Diane who is so happy to be home!

[Guest guest]

Diane,

Bless your heart. Girlfriend your a rock, pain I can

stand; nausea I'm a woose. You can do this, and if

they figure out how to fix your stomach so you quick

hurting maybe a little good came out of it. Terrible

way to have to figure it out though.

Lots of prayers, good thoughts and southern hugs

coming your way....Connie

--- Diane Aja dianeaja@...> wrote:

> Hi All,

> Just letting you know that I just got home from the

> hospital. I went on my camping trip last Friday and

> had fun until we were on our way home on Sunday

> around lunch time. I was good and stayed in the RV

> with air most of the time and kept myself cool.

> Everything was going great until we headed home on

> Sunday. I had one of my pain attacks and it was

> horrendous and long. I ended up in the back seat of

> our Yukon XL writhing in pain until my husband could

> get me here into town to the ER. I've never had him

> take me to the ER before, but this time it was

> different. I had to go. I needed morphine or

> something strong because the pain and nausea was not

> letting up after over a half hour. Needless to say,

> it's Thursday morning and I just got home! First

> they said I had pancreatis because my lipase(sp)

> numbers were way high. Then the CT scan of pancreas

> showed nothing changed from May, except my spleen is

> bigger and a weirder shape than ever, and they said

> with everything taken under consideration, it was

> NOT pancreatis. Yesterday morning I had a biopsy of

> my stomach and small intestine. No results yet, but

> doc said my stomach lining was red and inflamed and

> I had bile in there (not supposed to). My intestine

> looked o.k. They think the inflammation is probably

> sarcoid and the bile is from movement problems

> caused by the sarc. Anyone else have sarc in the

> stomach or intestines? This is the area where these

> pain attacks have been killing me so much. So it

> makes sense to me. I am just so tired of all this.

> They just tell me " well there is nothing we can do

> about it if it is the sarc, we're sorry. " I am very

> depressed right now. Please tell me I have the

> strength to fight this thing that is taking me over

> so quickly. I ask God for strength everyday, but

> I'm not doing very good. I haven't had real food

> since Saturday and I've gained 5 pounds. Go figure.

> It's all that I.V. cocktail! Yum, Yum!!! ha-ha!!!

> I'm going to go make myself a piece of toast and boy

> it sounds sooooo good right now. Hope I can keep it

> down. I've had enough broth and jello to last a

> lifetime. I won't be on the computer much, and I

> came home to over 400 emails so if I missed

> anyone's, I'm sorry

>

> Blessings and love to all,

> Diane who is so happy to be home!

>

>

>

>

>

>

>

>

>

__________________________________________________