kidney disease with mito disease?

[Guest guest]

Do any of your children have kidney disease with the mito disease.

My son has not yet been diagnosed, but the Genetists at CHOP believe

it is a mito disease. His muscles have been affected more and more

each day, his breathing is worse. He still goes to school most days

but is very tired. He also has innercranial calcifications,

including the basal ganglia and some cerebellar atrophy.

Debbi Beck

[Guest guest]

My daughter who we haven't had tested yet had Kidney reflux. You usually get

ideas of this when u have repeated UTI or kidney infections. They can tell

by a test called VCUG whihc is not very pleasant. There are different

grades. She had surgery last year. It is 95% effective. Not sure what kind

of kidney problems u r having but I wish u luck and sorry he is wekaer.

>

>Reply-To: Mito

>To: Mito

>Subject: kidney disease with mito disease?

>Date: Sat, 17 Apr 2004 15:57:58 -0000

>

>Do any of your children have kidney disease with the mito disease.

>My son has not yet been diagnosed, but the Genetists at CHOP believe

>it is a mito disease. His muscles have been affected more and more

>each day, his breathing is worse. He still goes to school most days

>but is very tired. He also has innercranial calcifications,

>including the basal ganglia and some cerebellar atrophy.

>Debbi Beck

>

>

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[Guest guest]

My daughter who we haven't had tested yet had Kidney reflux. You usually get

ideas of this when u have repeated UTI or kidney infections. They can tell

by a test called VCUG whihc is not very pleasant. There are different

grades. She had surgery last year. It is 95% effective. Not sure what kind

of kidney problems u r having but I wish u luck and sorry he is wekaer.

>

>Reply-To: Mito

>To: Mito

>Subject: kidney disease with mito disease?

>Date: Sat, 17 Apr 2004 15:57:58 -0000

>

>Do any of your children have kidney disease with the mito disease.

>My son has not yet been diagnosed, but the Genetists at CHOP believe

>it is a mito disease. His muscles have been affected more and more

>each day, his breathing is worse. He still goes to school most days

>but is very tired. He also has innercranial calcifications,

>including the basal ganglia and some cerebellar atrophy.

>Debbi Beck

>

>

_________________________________________________________________

Is your PC infected? Get a FREE online computer virus scan from McAfee®

Security. http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963

[Guest guest]

My daughter who we haven't had tested yet had Kidney reflux. You usually get

ideas of this when u have repeated UTI or kidney infections. They can tell

by a test called VCUG whihc is not very pleasant. There are different

grades. She had surgery last year. It is 95% effective. Not sure what kind

of kidney problems u r having but I wish u luck and sorry he is wekaer.

>

>Reply-To: Mito

>To: Mito

>Subject: kidney disease with mito disease?

>Date: Sat, 17 Apr 2004 15:57:58 -0000

>

>Do any of your children have kidney disease with the mito disease.

>My son has not yet been diagnosed, but the Genetists at CHOP believe

>it is a mito disease. His muscles have been affected more and more

>each day, his breathing is worse. He still goes to school most days

>but is very tired. He also has innercranial calcifications,

>including the basal ganglia and some cerebellar atrophy.

>Debbi Beck

>

>

_________________________________________________________________

Is your PC infected? Get a FREE online computer virus scan from McAfee®

Security. http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963