Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 I do not know the name of the cream, sorry. But, I was told one of the first signs of a "too tight" mic-key button was the formation of granulation tissue. Another thing to watch is when his stomach is actually pushed in with the button. You still should be able to tug on it a little and still see the stem of the button. I would call your ped GI. Changing the button is very easy and if they reccomend it, listen to them first. I have noticed alot of surgeons that think they know everything. I know they do know alot, but I trust the specialist in that field first. Best wishes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 I do not know the name of the cream, sorry. But, I was told one of the first signs of a "too tight" mic-key button was the formation of granulation tissue. Another thing to watch is when his stomach is actually pushed in with the button. You still should be able to tug on it a little and still see the stem of the button. I would call your ped GI. Changing the button is very easy and if they reccomend it, listen to them first. I have noticed alot of surgeons that think they know everything. I know they do know alot, but I trust the specialist in that field first. Best wishes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 Anne, We had no granulation tissue before the mic-key. I don't know why it starts after either. I cannot remember the name of the steroid cr. but your surgeon should know what it is- just say steroid cr. Once the button is in for a week or so, some swelling should go down and that will be the true test of it is too small. The area just may be inflammed a little becuase of the switch. They did use the little measure doohicky (technical huh?) too get the size right? If they did, it should be right. Also, if it's not hurting him, then it probably isn't too small. 's fits pretty close to the skin too. When she had the bigger one, it leaked quite a bit. Hope this helps a little. Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 It’s not air inside the balloon but water. The doctor should have given you a special syringe that can be used to take out the water and see how much is in there. I usually keep 5 to 6cc of water in the balloon. If you were not given this – do you have a home health care agency that is supplying you with your g-tube supplies? I always keep a back-up kit in the house. My surgeon said that as long as you can turn the button it’s not too tight. Hope this helps, Sue g-tube feeding, mic-key, and granulation tissue ??? Hi, More questions! You all are my " source " for info and I need more help again. Asher had his g-tube changed to a mic-key button on Monday and, although he doesn't complain of as much pain as he did the first few days, I am seeing granulation tissue develop. There wasn't any granulation tissue with his g-tube - does the mic-key usually create more of this??? Also, what was the steroid cream that worked for the granulation tissue? I heard that it doesn't hurt as much as the silver nitrate. Lastly, I'm caught between two doctors. Our ped gastro who did not do the g-tube procedure or the change to the mickey button (we had the surgeon do it for a variety of reasons, one was the ped gastro's recommendation that the surgeon do it b/c of insurance purposes) saw the mic-key button and felt that it was too tight against Asher's skin and also thought it was too small. So, the ped gastro told me to call the surgeon's office and tell him that. So I did - I called and told the surgeon the ped gastro's opinon and the surgeon said it was not too tight nor too small. The drs seem to have high opinions of each other and there does not seem to be much animosity between them.... so, I'm struggling with who to believe. And, I wonder if any of you have any experience with too tight or too small mic-key buttons? Does that cause more granulation tissue? Also, the button seems to be looser today and I'm worried that the air's going out of the balloon that holds the button in. Any way to check this? Sorry for so many questions, but I'm stuck on this stuff. Thanks, Anne R Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 It’s not air inside the balloon but water. The doctor should have given you a special syringe that can be used to take out the water and see how much is in there. I usually keep 5 to 6cc of water in the balloon. If you were not given this – do you have a home health care agency that is supplying you with your g-tube supplies? I always keep a back-up kit in the house. My surgeon said that as long as you can turn the button it’s not too tight. Hope this helps, Sue g-tube feeding, mic-key, and granulation tissue ??? Hi, More questions! You all are my " source " for info and I need more help again. Asher had his g-tube changed to a mic-key button on Monday and, although he doesn't complain of as much pain as he did the first few days, I am seeing granulation tissue develop. There wasn't any granulation tissue with his g-tube - does the mic-key usually create more of this??? Also, what was the steroid cream that worked for the granulation tissue? I heard that it doesn't hurt as much as the silver nitrate. Lastly, I'm caught between two doctors. Our ped gastro who did not do the g-tube procedure or the change to the mickey button (we had the surgeon do it for a variety of reasons, one was the ped gastro's recommendation that the surgeon do it b/c of insurance purposes) saw the mic-key button and felt that it was too tight against Asher's skin and also thought it was too small. So, the ped gastro told me to call the surgeon's office and tell him that. So I did - I called and told the surgeon the ped gastro's opinon and the surgeon said it was not too tight nor too small. The drs seem to have high opinions of each other and there does not seem to be much animosity between them.... so, I'm struggling with who to believe. And, I wonder if any of you have any experience with too tight or too small mic-key buttons? Does that cause more granulation tissue? Also, the button seems to be looser today and I'm worried that the air's going out of the balloon that holds the button in. Any way to check this? Sorry for so many questions, but I'm stuck on this stuff. Thanks, Anne R Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 It’s not air inside the balloon but water. The doctor should have given you a special syringe that can be used to take out the water and see how much is in there. I usually keep 5 to 6cc of water in the balloon. If you were not given this – do you have a home health care agency that is supplying you with your g-tube supplies? I always keep a back-up kit in the house. My surgeon said that as long as you can turn the button it’s not too tight. Hope this helps, Sue g-tube feeding, mic-key, and granulation tissue ??? Hi, More questions! You all are my " source " for info and I need more help again. Asher had his g-tube changed to a mic-key button on Monday and, although he doesn't complain of as much pain as he did the first few days, I am seeing granulation tissue develop. There wasn't any granulation tissue with his g-tube - does the mic-key usually create more of this??? Also, what was the steroid cream that worked for the granulation tissue? I heard that it doesn't hurt as much as the silver nitrate. Lastly, I'm caught between two doctors. Our ped gastro who did not do the g-tube procedure or the change to the mickey button (we had the surgeon do it for a variety of reasons, one was the ped gastro's recommendation that the surgeon do it b/c of insurance purposes) saw the mic-key button and felt that it was too tight against Asher's skin and also thought it was too small. So, the ped gastro told me to call the surgeon's office and tell him that. So I did - I called and told the surgeon the ped gastro's opinon and the surgeon said it was not too tight nor too small. The drs seem to have high opinions of each other and there does not seem to be much animosity between them.... so, I'm struggling with who to believe. And, I wonder if any of you have any experience with too tight or too small mic-key buttons? Does that cause more granulation tissue? Also, the button seems to be looser today and I'm worried that the air's going out of the balloon that holds the button in. Any way to check this? Sorry for so many questions, but I'm stuck on this stuff. Thanks, Anne R Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 Hi Anne There are ways to check to see how much air is in the balloon, but I was always to chicken to do it. You use a syringe and that's all I remember. It has been at least 7 years. Do you have any instructions with anything they have given to you. They use to give us the box that it came in. I know some parents actually change their tubes at home. We always had a surgeon do it. It was no big deal, it just always came out about 3 months. Colbys, mickey fit tight against his skin and he had the granulation tissue, and oozing and you name it. I think this juct comes with the territory. G-tubes can be a pain but, also a lifesavor! Good luck, I hope I helped you in some way. Take Care mom to Colby,13,COXIV,LCHAD,ACC,ADHD ,hypothroidism and osteopenia. Chad, 16, healthy, Caleb, 10, also healthy>From: AReckling@... >Reply-To: Mito >To: Mito >Subject: g-tube feeding, mic-key, and granulation tissue ??? >Date: Sat, 17 Apr 2004 13:24:28 EDT > >Hi, > >More questions! You all are my "source" for info and I need more help again. >Asher had his g-tube changed to a mic-key button on Monday and, although he >doesn't complain of as much pain as he did the first few days, I am seeing >granulation tissue develop. There wasn't any granulation tissue with his g-tube - >does the mic-key usually create more of this??? > >Also, what was the steroid cream that worked for the granulation tissue? I >heard that it doesn't hurt as much as the silver nitrate. > >Lastly, I'm caught between two doctors. Our ped gastro who did not do the >g-tube procedure or the change to the mickey button (we had the surgeon do it for >a variety of reasons, one was the ped gastro's recommendation that the >surgeon do it b/c of insurance purposes) saw the mic-key button and felt that it was >too tight against Asher's skin and also thought it was too small. So, the ped >gastro told me to call the surgeon's office and tell him that. So I did - I >called and told the surgeon the ped gastro's opinon and the surgeon said it was >not too tight nor too small. The drs seem to have high opinions of each other >and there does not seem to be much animosity between them.... so, I'm >struggling with who to believe. And, I wonder if any of you have any experience with >too tight or too small mic-key buttons? Does that cause more granulation >tissue? Also, the button seems to be looser today and I'm worried that the air's >going out of the balloon that holds the button in. Any way to check this? > >Sorry for so many questions, but I'm stuck on this stuff. > >Thanks, >Anne R Get rid of annoying pop-up ads with the new MSN Toolbar – FREE! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 Hi Anne There are ways to check to see how much air is in the balloon, but I was always to chicken to do it. You use a syringe and that's all I remember. It has been at least 7 years. Do you have any instructions with anything they have given to you. They use to give us the box that it came in. I know some parents actually change their tubes at home. We always had a surgeon do it. It was no big deal, it just always came out about 3 months. Colbys, mickey fit tight against his skin and he had the granulation tissue, and oozing and you name it. I think this juct comes with the territory. G-tubes can be a pain but, also a lifesavor! Good luck, I hope I helped you in some way. Take Care mom to Colby,13,COXIV,LCHAD,ACC,ADHD ,hypothroidism and osteopenia. Chad, 16, healthy, Caleb, 10, also healthy>From: AReckling@... >Reply-To: Mito >To: Mito >Subject: g-tube feeding, mic-key, and granulation tissue ??? >Date: Sat, 17 Apr 2004 13:24:28 EDT > >Hi, > >More questions! You all are my "source" for info and I need more help again. >Asher had his g-tube changed to a mic-key button on Monday and, although he >doesn't complain of as much pain as he did the first few days, I am seeing >granulation tissue develop. There wasn't any granulation tissue with his g-tube - >does the mic-key usually create more of this??? > >Also, what was the steroid cream that worked for the granulation tissue? I >heard that it doesn't hurt as much as the silver nitrate. > >Lastly, I'm caught between two doctors. Our ped gastro who did not do the >g-tube procedure or the change to the mickey button (we had the surgeon do it for >a variety of reasons, one was the ped gastro's recommendation that the >surgeon do it b/c of insurance purposes) saw the mic-key button and felt that it was >too tight against Asher's skin and also thought it was too small. So, the ped >gastro told me to call the surgeon's office and tell him that. So I did - I >called and told the surgeon the ped gastro's opinon and the surgeon said it was >not too tight nor too small. The drs seem to have high opinions of each other >and there does not seem to be much animosity between them.... so, I'm >struggling with who to believe. And, I wonder if any of you have any experience with >too tight or too small mic-key buttons? Does that cause more granulation >tissue? Also, the button seems to be looser today and I'm worried that the air's >going out of the balloon that holds the button in. Any way to check this? > >Sorry for so many questions, but I'm stuck on this stuff. > >Thanks, >Anne R Get rid of annoying pop-up ads with the new MSN Toolbar – FREE! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 Hi Anne There are ways to check to see how much air is in the balloon, but I was always to chicken to do it. You use a syringe and that's all I remember. It has been at least 7 years. Do you have any instructions with anything they have given to you. They use to give us the box that it came in. I know some parents actually change their tubes at home. We always had a surgeon do it. It was no big deal, it just always came out about 3 months. Colbys, mickey fit tight against his skin and he had the granulation tissue, and oozing and you name it. I think this juct comes with the territory. G-tubes can be a pain but, also a lifesavor! Good luck, I hope I helped you in some way. Take Care mom to Colby,13,COXIV,LCHAD,ACC,ADHD ,hypothroidism and osteopenia. Chad, 16, healthy, Caleb, 10, also healthy>From: AReckling@... >Reply-To: Mito >To: Mito >Subject: g-tube feeding, mic-key, and granulation tissue ??? >Date: Sat, 17 Apr 2004 13:24:28 EDT > >Hi, > >More questions! You all are my "source" for info and I need more help again. >Asher had his g-tube changed to a mic-key button on Monday and, although he >doesn't complain of as much pain as he did the first few days, I am seeing >granulation tissue develop. There wasn't any granulation tissue with his g-tube - >does the mic-key usually create more of this??? > >Also, what was the steroid cream that worked for the granulation tissue? I >heard that it doesn't hurt as much as the silver nitrate. > >Lastly, I'm caught between two doctors. Our ped gastro who did not do the >g-tube procedure or the change to the mickey button (we had the surgeon do it for >a variety of reasons, one was the ped gastro's recommendation that the >surgeon do it b/c of insurance purposes) saw the mic-key button and felt that it was >too tight against Asher's skin and also thought it was too small. So, the ped >gastro told me to call the surgeon's office and tell him that. So I did - I >called and told the surgeon the ped gastro's opinon and the surgeon said it was >not too tight nor too small. The drs seem to have high opinions of each other >and there does not seem to be much animosity between them.... so, I'm >struggling with who to believe. And, I wonder if any of you have any experience with >too tight or too small mic-key buttons? Does that cause more granulation >tissue? Also, the button seems to be looser today and I'm worried that the air's >going out of the balloon that holds the button in. Any way to check this? > >Sorry for so many questions, but I'm stuck on this stuff. > >Thanks, >Anne R Get rid of annoying pop-up ads with the new MSN Toolbar – FREE! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2004 Report Share Posted April 18, 2004 Sue We did actually have air in Colby's mickey balloon. mom to Colby,13,COXIV,LCHAD,ACC,ADHD ,hypothroidism and osteopenia. Chad, 16, healthy, Caleb, 10, also healthy> >Reply-To: Mito >To: <Mito > >Subject: RE: g-tube feeding, mic-key, and granulation tissue ??? >Date: Sat, 17 Apr 2004 14:06:57 -0500 > >It's not air inside the balloon but water. The doctor should have given >you a special syringe that can be used to take out the water and see how >much is in there. I usually keep 5 to 6cc of water in the balloon. If >you were not given this - do you have a home health care agency that is >supplying you with your g-tube supplies? I always keep a back-up kit in >the house. > >My surgeon said that as long as you can turn the button it's not too >tight. > >Hope this helps, > >Sue > > g-tube feeding, mic-key, and granulation tissue ??? > >Hi, > >More questions! You all are my "source" for info and I need more help >again. Asher had his g-tube changed to a mic-key button on Monday and, >although he doesn't complain of as much pain as he did the first few >days, I am seeing granulation tissue develop. There wasn't any >granulation tissue with his g-tube - does the mic-key usually create >more of this??? > >Also, what was the steroid cream that worked for the granulation tissue? >I heard that it doesn't hurt as much as the silver nitrate. > >Lastly, I'm caught between two doctors. Our ped gastro who did not do >the g-tube procedure or the change to the mickey button (we had the >surgeon do it for a variety of reasons, one was the ped gastro's >recommendation that the surgeon do it b/c of insurance purposes) saw the >mic-key button and felt that it was too tight against Asher's skin and >also thought it was too small. So, the ped gastro told me to call the >surgeon's office and tell him that. So I did - I called and told the >surgeon the ped gastro's opinon and the surgeon said it was not too >tight nor too small. The drs seem to have high opinions of each other >and there does not seem to be much animosity between them.... so, I'm >struggling with who to believe. And, I wonder if any of you have any >experience with too tight or too small mic-key buttons? Does that cause >more granulation tissue? Also, the button seems to be looser today and >I'm worried that the air's going out of the balloon that holds the >button in. Any way to check this? > >Sorry for so many questions, but I'm stuck on this stuff. > >Thanks, >Anne R > >Please contact mito-owner with any problems or >questions. > > > > _____ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2004 Report Share Posted April 18, 2004 Sue We did actually have air in Colby's mickey balloon. mom to Colby,13,COXIV,LCHAD,ACC,ADHD ,hypothroidism and osteopenia. Chad, 16, healthy, Caleb, 10, also healthy> >Reply-To: Mito >To: <Mito > >Subject: RE: g-tube feeding, mic-key, and granulation tissue ??? >Date: Sat, 17 Apr 2004 14:06:57 -0500 > >It's not air inside the balloon but water. The doctor should have given >you a special syringe that can be used to take out the water and see how >much is in there. I usually keep 5 to 6cc of water in the balloon. If >you were not given this - do you have a home health care agency that is >supplying you with your g-tube supplies? I always keep a back-up kit in >the house. > >My surgeon said that as long as you can turn the button it's not too >tight. > >Hope this helps, > >Sue > > g-tube feeding, mic-key, and granulation tissue ??? > >Hi, > >More questions! You all are my "source" for info and I need more help >again. Asher had his g-tube changed to a mic-key button on Monday and, >although he doesn't complain of as much pain as he did the first few >days, I am seeing granulation tissue develop. There wasn't any >granulation tissue with his g-tube - does the mic-key usually create >more of this??? > >Also, what was the steroid cream that worked for the granulation tissue? >I heard that it doesn't hurt as much as the silver nitrate. > >Lastly, I'm caught between two doctors. Our ped gastro who did not do >the g-tube procedure or the change to the mickey button (we had the >surgeon do it for a variety of reasons, one was the ped gastro's >recommendation that the surgeon do it b/c of insurance purposes) saw the >mic-key button and felt that it was too tight against Asher's skin and >also thought it was too small. So, the ped gastro told me to call the >surgeon's office and tell him that. So I did - I called and told the >surgeon the ped gastro's opinon and the surgeon said it was not too >tight nor too small. The drs seem to have high opinions of each other >and there does not seem to be much animosity between them.... so, I'm >struggling with who to believe. And, I wonder if any of you have any >experience with too tight or too small mic-key buttons? Does that cause >more granulation tissue? Also, the button seems to be looser today and >I'm worried that the air's going out of the balloon that holds the >button in. Any way to check this? > >Sorry for so many questions, but I'm stuck on this stuff. > >Thanks, >Anne R > >Please contact mito-owner with any problems or >questions. > > > > _____ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2004 Report Share Posted April 18, 2004 Sue We did actually have air in Colby's mickey balloon. mom to Colby,13,COXIV,LCHAD,ACC,ADHD ,hypothroidism and osteopenia. Chad, 16, healthy, Caleb, 10, also healthy> >Reply-To: Mito >To: <Mito > >Subject: RE: g-tube feeding, mic-key, and granulation tissue ??? >Date: Sat, 17 Apr 2004 14:06:57 -0500 > >It's not air inside the balloon but water. The doctor should have given >you a special syringe that can be used to take out the water and see how >much is in there. I usually keep 5 to 6cc of water in the balloon. If >you were not given this - do you have a home health care agency that is >supplying you with your g-tube supplies? I always keep a back-up kit in >the house. > >My surgeon said that as long as you can turn the button it's not too >tight. > >Hope this helps, > >Sue > > g-tube feeding, mic-key, and granulation tissue ??? > >Hi, > >More questions! You all are my "source" for info and I need more help >again. Asher had his g-tube changed to a mic-key button on Monday and, >although he doesn't complain of as much pain as he did the first few >days, I am seeing granulation tissue develop. There wasn't any >granulation tissue with his g-tube - does the mic-key usually create >more of this??? > >Also, what was the steroid cream that worked for the granulation tissue? >I heard that it doesn't hurt as much as the silver nitrate. > >Lastly, I'm caught between two doctors. Our ped gastro who did not do >the g-tube procedure or the change to the mickey button (we had the >surgeon do it for a variety of reasons, one was the ped gastro's >recommendation that the surgeon do it b/c of insurance purposes) saw the >mic-key button and felt that it was too tight against Asher's skin and >also thought it was too small. So, the ped gastro told me to call the >surgeon's office and tell him that. So I did - I called and told the >surgeon the ped gastro's opinon and the surgeon said it was not too >tight nor too small. The drs seem to have high opinions of each other >and there does not seem to be much animosity between them.... so, I'm >struggling with who to believe. And, I wonder if any of you have any >experience with too tight or too small mic-key buttons? Does that cause >more granulation tissue? Also, the button seems to be looser today and >I'm worried that the air's going out of the balloon that holds the >button in. Any way to check this? > >Sorry for so many questions, but I'm stuck on this stuff. > >Thanks, >Anne R > >Please contact mito-owner with any problems or >questions. > > > > _____ > > Quote Link to comment Share on other sites More sharing options...
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