Re: Word recalling - Forgetting Names of Things

[Guest guest]

Marla, How do you know you have said the names three times. By that time I have forgotton why I was reciting names. LOL BarbMarla wrote: Diane, Yea, we need some rain up here in Colorado too, it’s been and still going to be in the 100’s which is hot for us! And so dry around here, but oh those terrible fires in Calif. That is really bad, my brother lives just west of those fires! I’m only 48, so I know my forgetting words is not my age too, in fact I can forget names of people I have know forever too, I teach part time, and tell my students they have to pick a seat and stay in it all year long, so I can at least try to learn their names, and still by the end of the semester if I see them out and about I can’t remember there names. I even try the say there name 3 times when you first meet them, ha, doesn’t work. Smiles J Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Diane AjaSent: Friday, July 14, 2006 6:03 PMTo: Neurosarcoidosis Subject: Re: Word recalling - Forgetting Names of Things Marla and Connie, I happen to see you are talking about forgetting the word you're trying to say. I was just explaining that to one of my best friends this afternoon as I sat at her table and forgot at least five words out of a two minute

conversation! I was telling her how over the past two months my word recall has become horrible. This has been on the decline since I was diagnosed originally with Transverse Myelitis (really Sarc) back in 2000. It tapered off for a long time and since my sarc has been full blown lately, my memory recall is REALLY bad. I can look right at something and not be able to tell you what it is! I'm only 44 years old and I know it's because of the sarc, not old age. Some of you may disagree, but I'd like to know how many others are having the same problem without even having brain involvement? I do have tremendous hearing loss though which I just realized must be from the sarc and nobody has ever agreed with me about that either. All of a sudden I just started to go deaf for no reason. Don't think so. And Marla, I too, feel really stupid when I can't spit out a word when I'm having a conversation with people I don't

know very well, but I just start laughing and let them know that this lovely thing I have must be stealing my brain cells from me and I wish it would give them back! Would someone please turn on the rain down here in Texas? ha-ha Diane Aja RE: Re: Just back online.. missed

everyone Connie, I have trouble with word recalling when I’m talking too, some days I feel down right stupid, but when I say anything about this, I’m told “I have that too, it’s called getting older†however, I do not believe this is the getting older type of forgetting words, not being able

to say what’s on your mind, or the worse for me, is not being able to say word properly, like a word I’ve said all my life, now I can’t remember how to say that word?? I don’t believe that is getting older? Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Connie GriffisSent: Thursday, July 13, 2006 3:02 PMTo: Neurosarcoidosis Subject: Re: Re: Just back online.. missed everyone Rose, The neurologist called and asked to see me. There was a glitch at his office and the tests he had wanted ordered had not been, it worked out though. Since the last time he had seen me he got hold of Dr. Stearns and Dr. Stearns sent some recommendations to him re me. He is going to do the cognitive tests, blood work and also wants to do a spinal tap. The symptoms have increased as far as my balance and headaches are concerned, and now I have this wierd thing where I will look at a word but it is not together in my head, i.e. together may look like tog et her, I have to keep looking at the word until it makes since and becomes together. I told the dr and he explained there is a part of your brain near the

back that controls this and if it is being bothered it will cause this problem. My speech is still not right, but it's kind of holding it's own (or i'm getting used to it). Hopefully, we will get this figured out soon, I have to say it does get annoying at times. Enough of updating. Are you doing any better? I certainly hope so, everyone here crosses my mind so often, and I try to say a prayer when that happens. Please take care, southern hugs///Connie Rose wrote: Connie, MRSA stands for Methicillin resistant staph aureus. Staph aureus is a common skin bug we all carry, but if it gets in through a break in the skin, all hell can break loose. We used to just see the resistant strain in the hospital or nursing homes, but now they are seeing CA-MRSA (community-acquired). It's becoming common among athletic

teams because of the close contact & skin breaks. In the past MRSA was sensitive to Vancomycin, which as Tracie (I think it was Tracie?) wrote, can be very toxic itself. There are now strains of staph aureus that are resistant to Vancomycin, called VRSA. Having MRSA doesn't mean than you are totally hopeless. There can still be antibiotics that will cover it, but you need a culture & sensitivity to know, and then you must be absolutely meticulous about taking it correctly. I was always taught that you needed IV treatment also, but they are apparently treating it with some oral antibiotics. There is some controversy over a prevention measure, using an antibiotic ointment in the nostrils, which is the most common entry point. Bactroban is the ointment, which has to be applied several times a day for weeks. Many infectious disease specialists feel that the use of Bactroban will just help develop more antibiotic-resistant

organisms. This is an important topic that everyone needs to be aware of. You can help by not badgering your doctor into giving you antibiotics just to get you out of the office & if antibiotics are indicated, take the entire course correctly, even if you begin to feel better. The two biggest contributors to the problem of drug-resistant bacteria are unnecessary prescribing of antibiotics (like for the common cold, etc.) and patients only taking part of the prescription, stopping when they feel better. They've killed enough bugs to feel better, but the survivors can become immune to the antibiotic. Over & out. Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: Re: Just back online.. missed everyoneDate: Tue, 11 Jul 2006 20:11:03 -0700 (PDT) Terri, Here comes the DUH moment. I do not recognize the initials....what is MRSA. Thanks, Conniemosaicgirl1 wrote: ,Sorry to hear you are sick. MRSA is a pretty bad infection so just takecare of yourself. Don't overdo it.Terri G.>> I just wanted to leave you all know i have been down with MARSA, i hadsuch> infection in my mouth, throat, and on my breasts and abdomen. i havethese> huge open sores all over my stomach.> I am on Cefeclor, & doxocyclene..(spelling) had fever of 101.7 formost> time. since friday.finally today i feel sorta human, im waiting tohear back from> the IDS from the main hospital my family dr is conntacting them andthe> neuro.about stopping the imuran untill i get over this infection.. ihave been> holding out on going in the hospital... oh i hate that place !!! itold them if> i get to the point i need IV meds to bring them to the house.. i don'twant> to go near a hospital and get somthing else.>> i think of you all daily ..

hugs and blessings>> in pa> Do you Yahoo!?Everyone is raving about the all-new Yahoo! Mail Beta. Check the weather anywhere, anytime - just type "weather" from MSN Search Do you Yahoo!?Next-gen email? Have it all with the all-new Yahoo! Mail Beta. __________________________________________________

[Guest guest]

Marla, How do you know you have said the names three times. By that time I have forgotton why I was reciting names. LOL BarbMarla wrote: Diane, Yea, we need some rain up here in Colorado too, it’s been and still going to be in the 100’s which is hot for us! And so dry around here, but oh those terrible fires in Calif. That is really bad, my brother lives just west of those fires! I’m only 48, so I know my forgetting words is not my age too, in fact I can forget names of people I have know forever too, I teach part time, and tell my students they have to pick a seat and stay in it all year long, so I can at least try to learn their names, and still by the end of the semester if I see them out and about I can’t remember there names. I even try the say there name 3 times when you first meet them, ha, doesn’t work. Smiles J Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Diane AjaSent: Friday, July 14, 2006 6:03 PMTo: Neurosarcoidosis Subject: Re: Word recalling - Forgetting Names of Things Marla and Connie, I happen to see you are talking about forgetting the word you're trying to say. I was just explaining that to one of my best friends this afternoon as I sat at her table and forgot at least five words out of a two minute

conversation! I was telling her how over the past two months my word recall has become horrible. This has been on the decline since I was diagnosed originally with Transverse Myelitis (really Sarc) back in 2000. It tapered off for a long time and since my sarc has been full blown lately, my memory recall is REALLY bad. I can look right at something and not be able to tell you what it is! I'm only 44 years old and I know it's because of the sarc, not old age. Some of you may disagree, but I'd like to know how many others are having the same problem without even having brain involvement? I do have tremendous hearing loss though which I just realized must be from the sarc and nobody has ever agreed with me about that either. All of a sudden I just started to go deaf for no reason. Don't think so. And Marla, I too, feel really stupid when I can't spit out a word when I'm having a conversation with people I don't

know very well, but I just start laughing and let them know that this lovely thing I have must be stealing my brain cells from me and I wish it would give them back! Would someone please turn on the rain down here in Texas? ha-ha Diane Aja RE: Re: Just back online.. missed

everyone Connie, I have trouble with word recalling when I’m talking too, some days I feel down right stupid, but when I say anything about this, I’m told “I have that too, it’s called getting older†however, I do not believe this is the getting older type of forgetting words, not being able

to say what’s on your mind, or the worse for me, is not being able to say word properly, like a word I’ve said all my life, now I can’t remember how to say that word?? I don’t believe that is getting older? Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Connie GriffisSent: Thursday, July 13, 2006 3:02 PMTo: Neurosarcoidosis Subject: Re: Re: Just back online.. missed everyone Rose, The neurologist called and asked to see me. There was a glitch at his office and the tests he had wanted ordered had not been, it worked out though. Since the last time he had seen me he got hold of Dr. Stearns and Dr. Stearns sent some recommendations to him re me. He is going to do the cognitive tests, blood work and also wants to do a spinal tap. The symptoms have increased as far as my balance and headaches are concerned, and now I have this wierd thing where I will look at a word but it is not together in my head, i.e. together may look like tog et her, I have to keep looking at the word until it makes since and becomes together. I told the dr and he explained there is a part of your brain near the

back that controls this and if it is being bothered it will cause this problem. My speech is still not right, but it's kind of holding it's own (or i'm getting used to it). Hopefully, we will get this figured out soon, I have to say it does get annoying at times. Enough of updating. Are you doing any better? I certainly hope so, everyone here crosses my mind so often, and I try to say a prayer when that happens. Please take care, southern hugs///Connie Rose wrote: Connie, MRSA stands for Methicillin resistant staph aureus. Staph aureus is a common skin bug we all carry, but if it gets in through a break in the skin, all hell can break loose. We used to just see the resistant strain in the hospital or nursing homes, but now they are seeing CA-MRSA (community-acquired). It's becoming common among athletic

teams because of the close contact & skin breaks. In the past MRSA was sensitive to Vancomycin, which as Tracie (I think it was Tracie?) wrote, can be very toxic itself. There are now strains of staph aureus that are resistant to Vancomycin, called VRSA. Having MRSA doesn't mean than you are totally hopeless. There can still be antibiotics that will cover it, but you need a culture & sensitivity to know, and then you must be absolutely meticulous about taking it correctly. I was always taught that you needed IV treatment also, but they are apparently treating it with some oral antibiotics. There is some controversy over a prevention measure, using an antibiotic ointment in the nostrils, which is the most common entry point. Bactroban is the ointment, which has to be applied several times a day for weeks. Many infectious disease specialists feel that the use of Bactroban will just help develop more antibiotic-resistant

organisms. This is an important topic that everyone needs to be aware of. You can help by not badgering your doctor into giving you antibiotics just to get you out of the office & if antibiotics are indicated, take the entire course correctly, even if you begin to feel better. The two biggest contributors to the problem of drug-resistant bacteria are unnecessary prescribing of antibiotics (like for the common cold, etc.) and patients only taking part of the prescription, stopping when they feel better. They've killed enough bugs to feel better, but the survivors can become immune to the antibiotic. Over & out. Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: Re: Just back online.. missed everyoneDate: Tue, 11 Jul 2006 20:11:03 -0700 (PDT) Terri, Here comes the DUH moment. I do not recognize the initials....what is MRSA. Thanks, Conniemosaicgirl1 wrote: ,Sorry to hear you are sick. MRSA is a pretty bad infection so just takecare of yourself. Don't overdo it.Terri G.>> I just wanted to leave you all know i have been down with MARSA, i hadsuch> infection in my mouth, throat, and on my breasts and abdomen. i havethese> huge open sores all over my stomach.> I am on Cefeclor, & doxocyclene..(spelling) had fever of 101.7 formost> time. since friday.finally today i feel sorta human, im waiting tohear back from> the IDS from the main hospital my family dr is conntacting them andthe> neuro.about stopping the imuran untill i get over this infection.. ihave been> holding out on going in the hospital... oh i hate that place !!! itold them if> i get to the point i need IV meds to bring them to the house.. i don'twant> to go near a hospital and get somthing else.>> i think of you all daily ..

hugs and blessings>> in pa> Do you Yahoo!?Everyone is raving about the all-new Yahoo! Mail Beta. Check the weather anywhere, anytime - just type "weather" from MSN Search Do you Yahoo!?Next-gen email? Have it all with the all-new Yahoo! Mail Beta. __________________________________________________

[Guest guest]

Marla, How do you know you have said the names three times. By that time I have forgotton why I was reciting names. LOL BarbMarla wrote: Diane, Yea, we need some rain up here in Colorado too, it’s been and still going to be in the 100’s which is hot for us! And so dry around here, but oh those terrible fires in Calif. That is really bad, my brother lives just west of those fires! I’m only 48, so I know my forgetting words is not my age too, in fact I can forget names of people I have know forever too, I teach part time, and tell my students they have to pick a seat and stay in it all year long, so I can at least try to learn their names, and still by the end of the semester if I see them out and about I can’t remember there names. I even try the say there name 3 times when you first meet them, ha, doesn’t work. Smiles J Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Diane AjaSent: Friday, July 14, 2006 6:03 PMTo: Neurosarcoidosis Subject: Re: Word recalling - Forgetting Names of Things Marla and Connie, I happen to see you are talking about forgetting the word you're trying to say. I was just explaining that to one of my best friends this afternoon as I sat at her table and forgot at least five words out of a two minute

conversation! I was telling her how over the past two months my word recall has become horrible. This has been on the decline since I was diagnosed originally with Transverse Myelitis (really Sarc) back in 2000. It tapered off for a long time and since my sarc has been full blown lately, my memory recall is REALLY bad. I can look right at something and not be able to tell you what it is! I'm only 44 years old and I know it's because of the sarc, not old age. Some of you may disagree, but I'd like to know how many others are having the same problem without even having brain involvement? I do have tremendous hearing loss though which I just realized must be from the sarc and nobody has ever agreed with me about that either. All of a sudden I just started to go deaf for no reason. Don't think so. And Marla, I too, feel really stupid when I can't spit out a word when I'm having a conversation with people I don't

know very well, but I just start laughing and let them know that this lovely thing I have must be stealing my brain cells from me and I wish it would give them back! Would someone please turn on the rain down here in Texas? ha-ha Diane Aja RE: Re: Just back online.. missed

everyone Connie, I have trouble with word recalling when I’m talking too, some days I feel down right stupid, but when I say anything about this, I’m told “I have that too, it’s called getting older†however, I do not believe this is the getting older type of forgetting words, not being able

to say what’s on your mind, or the worse for me, is not being able to say word properly, like a word I’ve said all my life, now I can’t remember how to say that word?? I don’t believe that is getting older? Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Connie GriffisSent: Thursday, July 13, 2006 3:02 PMTo: Neurosarcoidosis Subject: Re: Re: Just back online.. missed everyone Rose, The neurologist called and asked to see me. There was a glitch at his office and the tests he had wanted ordered had not been, it worked out though. Since the last time he had seen me he got hold of Dr. Stearns and Dr. Stearns sent some recommendations to him re me. He is going to do the cognitive tests, blood work and also wants to do a spinal tap. The symptoms have increased as far as my balance and headaches are concerned, and now I have this wierd thing where I will look at a word but it is not together in my head, i.e. together may look like tog et her, I have to keep looking at the word until it makes since and becomes together. I told the dr and he explained there is a part of your brain near the

back that controls this and if it is being bothered it will cause this problem. My speech is still not right, but it's kind of holding it's own (or i'm getting used to it). Hopefully, we will get this figured out soon, I have to say it does get annoying at times. Enough of updating. Are you doing any better? I certainly hope so, everyone here crosses my mind so often, and I try to say a prayer when that happens. Please take care, southern hugs///Connie Rose wrote: Connie, MRSA stands for Methicillin resistant staph aureus. Staph aureus is a common skin bug we all carry, but if it gets in through a break in the skin, all hell can break loose. We used to just see the resistant strain in the hospital or nursing homes, but now they are seeing CA-MRSA (community-acquired). It's becoming common among athletic

teams because of the close contact & skin breaks. In the past MRSA was sensitive to Vancomycin, which as Tracie (I think it was Tracie?) wrote, can be very toxic itself. There are now strains of staph aureus that are resistant to Vancomycin, called VRSA. Having MRSA doesn't mean than you are totally hopeless. There can still be antibiotics that will cover it, but you need a culture & sensitivity to know, and then you must be absolutely meticulous about taking it correctly. I was always taught that you needed IV treatment also, but they are apparently treating it with some oral antibiotics. There is some controversy over a prevention measure, using an antibiotic ointment in the nostrils, which is the most common entry point. Bactroban is the ointment, which has to be applied several times a day for weeks. Many infectious disease specialists feel that the use of Bactroban will just help develop more antibiotic-resistant

organisms. This is an important topic that everyone needs to be aware of. You can help by not badgering your doctor into giving you antibiotics just to get you out of the office & if antibiotics are indicated, take the entire course correctly, even if you begin to feel better. The two biggest contributors to the problem of drug-resistant bacteria are unnecessary prescribing of antibiotics (like for the common cold, etc.) and patients only taking part of the prescription, stopping when they feel better. They've killed enough bugs to feel better, but the survivors can become immune to the antibiotic. Over & out. Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: Re: Just back online.. missed everyoneDate: Tue, 11 Jul 2006 20:11:03 -0700 (PDT) Terri, Here comes the DUH moment. I do not recognize the initials....what is MRSA. Thanks, Conniemosaicgirl1 wrote: ,Sorry to hear you are sick. MRSA is a pretty bad infection so just takecare of yourself. Don't overdo it.Terri G.>> I just wanted to leave you all know i have been down with MARSA, i hadsuch> infection in my mouth, throat, and on my breasts and abdomen. i havethese> huge open sores all over my stomach.> I am on Cefeclor, & doxocyclene..(spelling) had fever of 101.7 formost> time. since friday.finally today i feel sorta human, im waiting tohear back from> the IDS from the main hospital my family dr is conntacting them andthe> neuro.about stopping the imuran untill i get over this infection.. ihave been> holding out on going in the hospital... oh i hate that place !!! itold them if> i get to the point i need IV meds to bring them to the house.. i don'twant> to go near a hospital and get somthing else.>> i think of you all daily ..

hugs and blessings>> in pa> Do you Yahoo!?Everyone is raving about the all-new Yahoo! Mail Beta. Check the weather anywhere, anytime - just type "weather" from MSN Search Do you Yahoo!?Next-gen email? Have it all with the all-new Yahoo! Mail Beta. __________________________________________________

[Guest guest]

This is where the Neuropsych testing should come in. Our MD's fall on that "you're getting older" bs too, and shrug it off. But for us, it's a true dementia issue caused by our brains being hit with the sarc in the area of the Right Frontal Lobe--where all the "executive functions" happen.

Recall, short-term memory, problem solving, personality, sexuality, temper, multi-tasking are all in this part of the brain.

The different tasks that you do with Neuropsych tests require a different area of the brain to complete, so if you're getting signals that are shorting out -- you won't be able to do all the task requires. It can be the one set of tests that can confirm NS when there are no "granulomas or white spots" on the brain Ct's and such.

If they work it with the EEG (brain wave study) and the EMG's (muscle studys) it can really show where signals aren't getting from the brain to your legs and feet, or hands, and it can verify that complaint that "Yes, this is why you can't hold that coffee cup, or why your fork does summersaults in your hand when you're eating spaghetti. (and wearing a white blouse.)

The neuropsych testing along with the other two tests, can really help to pull the diagnosis out of the hat. It was what confirmed my NS and got my SSDI approved.

Take care,

Tracie

NS Co-owner/moderator

[Guest guest]

This is where the Neuropsych testing should come in. Our MD's fall on that "you're getting older" bs too, and shrug it off. But for us, it's a true dementia issue caused by our brains being hit with the sarc in the area of the Right Frontal Lobe--where all the "executive functions" happen.

Recall, short-term memory, problem solving, personality, sexuality, temper, multi-tasking are all in this part of the brain.

The different tasks that you do with Neuropsych tests require a different area of the brain to complete, so if you're getting signals that are shorting out -- you won't be able to do all the task requires. It can be the one set of tests that can confirm NS when there are no "granulomas or white spots" on the brain Ct's and such.

If they work it with the EEG (brain wave study) and the EMG's (muscle studys) it can really show where signals aren't getting from the brain to your legs and feet, or hands, and it can verify that complaint that "Yes, this is why you can't hold that coffee cup, or why your fork does summersaults in your hand when you're eating spaghetti. (and wearing a white blouse.)

The neuropsych testing along with the other two tests, can really help to pull the diagnosis out of the hat. It was what confirmed my NS and got my SSDI approved.

Take care,

Tracie

NS Co-owner/moderator

[Guest guest]

This is where the Neuropsych testing should come in. Our MD's fall on that "you're getting older" bs too, and shrug it off. But for us, it's a true dementia issue caused by our brains being hit with the sarc in the area of the Right Frontal Lobe--where all the "executive functions" happen.

Recall, short-term memory, problem solving, personality, sexuality, temper, multi-tasking are all in this part of the brain.

The different tasks that you do with Neuropsych tests require a different area of the brain to complete, so if you're getting signals that are shorting out -- you won't be able to do all the task requires. It can be the one set of tests that can confirm NS when there are no "granulomas or white spots" on the brain Ct's and such.

If they work it with the EEG (brain wave study) and the EMG's (muscle studys) it can really show where signals aren't getting from the brain to your legs and feet, or hands, and it can verify that complaint that "Yes, this is why you can't hold that coffee cup, or why your fork does summersaults in your hand when you're eating spaghetti. (and wearing a white blouse.)

The neuropsych testing along with the other two tests, can really help to pull the diagnosis out of the hat. It was what confirmed my NS and got my SSDI approved.

Take care,

Tracie

NS Co-owner/moderator

[Guest guest]

....My husband took me out for my 50th b-day today and some other members of my family were also invited. One of my good friends stopped by too. I panicked when I knew i had to introduce her and remember her name and all their names. But I did it! What a funny/sad thing to be happy about. People have no idea what we go through do they... I got excited and proud that I could remember my own family's names....lol. ...then again it's kinda sad. Maybe it was that strawberry daiguirie(sp?) I had. Yeah, Tracie, I took extra milk thistle when I got home....lol. Somebody gave me a journal today, too. They are finally getting me stuff that's ME. At least three people asked me how I felt about turning 50...one person said it's all down hill. I said...Hey, I woke up yesterday(my real b-day) and thought Hey, I made it! I made it

to see 50! I had a big frickin smile on my face all day. The last decade has been pretty bad... so I was just glad I made it this far. My comments kinda shocked and surprised them but it's all the truth now ain't it..... Despite the fact that it was nearly 100 here I felt great. It's so nice to have a really great day....it kinda makes up for the zillion that sucked. hugs S.tiodaat@... wrote: This is where the Neuropsych testing should come in. Our MD's fall on that "you're getting older" bs too, and shrug it off. But for us, it's a true dementia issue caused by our brains being hit with the sarc in the area of the Right Frontal Lobe--where all the "executive functions" happen. Recall, short-term memory, problem solving, personality, sexuality, temper, multi-tasking are all in this part of the brain.The different tasks that you do with Neuropsych tests require a different area of the brain to complete, so if you're getting signals that are shorting out -- you won't be able to do all the task requires. It can be the one set of tests that can confirm NS when there are no "granulomas or white spots" on the brain Ct's and such. If they work it with the EEG (brain wave study) and the EMG's (muscle studys) it can really show where signals aren't getting from

the brain to your legs and feet, or hands, and it can verify that complaint that "Yes, this is why you can't hold that coffee cup, or why your fork does summersaults in your hand when you're eating spaghetti. (and wearing a white blouse.) The neuropsych testing along with the other two tests, can really help to pull the diagnosis out of the hat. It was what confirmed my NS and got my SSDI approved. Take care,TracieNS Co-owner/moderator

How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates.

[Guest guest]

....My husband took me out for my 50th b-day today and some other members of my family were also invited. One of my good friends stopped by too. I panicked when I knew i had to introduce her and remember her name and all their names. But I did it! What a funny/sad thing to be happy about. People have no idea what we go through do they... I got excited and proud that I could remember my own family's names....lol. ...then again it's kinda sad. Maybe it was that strawberry daiguirie(sp?) I had. Yeah, Tracie, I took extra milk thistle when I got home....lol. Somebody gave me a journal today, too. They are finally getting me stuff that's ME. At least three people asked me how I felt about turning 50...one person said it's all down hill. I said...Hey, I woke up yesterday(my real b-day) and thought Hey, I made it! I made it

to see 50! I had a big frickin smile on my face all day. The last decade has been pretty bad... so I was just glad I made it this far. My comments kinda shocked and surprised them but it's all the truth now ain't it..... Despite the fact that it was nearly 100 here I felt great. It's so nice to have a really great day....it kinda makes up for the zillion that sucked. hugs S.tiodaat@... wrote: This is where the Neuropsych testing should come in. Our MD's fall on that "you're getting older" bs too, and shrug it off. But for us, it's a true dementia issue caused by our brains being hit with the sarc in the area of the Right Frontal Lobe--where all the "executive functions" happen. Recall, short-term memory, problem solving, personality, sexuality, temper, multi-tasking are all in this part of the brain.The different tasks that you do with Neuropsych tests require a different area of the brain to complete, so if you're getting signals that are shorting out -- you won't be able to do all the task requires. It can be the one set of tests that can confirm NS when there are no "granulomas or white spots" on the brain Ct's and such. If they work it with the EEG (brain wave study) and the EMG's (muscle studys) it can really show where signals aren't getting from

the brain to your legs and feet, or hands, and it can verify that complaint that "Yes, this is why you can't hold that coffee cup, or why your fork does summersaults in your hand when you're eating spaghetti. (and wearing a white blouse.) The neuropsych testing along with the other two tests, can really help to pull the diagnosis out of the hat. It was what confirmed my NS and got my SSDI approved. Take care,TracieNS Co-owner/moderator

How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates.

[Guest guest]

I know what your going through, i go to cognititve theraphy every 3 months for 2-3 hrs. I have a very hard time getting out what want to say, and when someone talkes to me its like what they are saying they are filtering through malasses.i have severe perment short term memory loss also.

Its funny i belong to CNSV support group also. since i have CNSV secondary, and i see more of the cognitive problems than with the NS support group.

I think the worst thing that happend to me , i was driving down a street i've known since i was little and all of a sudden i ddin't know where i was.. i didn't reconize anything.

huggs and blessings and a pain free day

in pa

[Guest guest]

I know what your going through, i go to cognititve theraphy every 3 months for 2-3 hrs. I have a very hard time getting out what want to say, and when someone talkes to me its like what they are saying they are filtering through malasses.i have severe perment short term memory loss also.

Its funny i belong to CNSV support group also. since i have CNSV secondary, and i see more of the cognitive problems than with the NS support group.

I think the worst thing that happend to me , i was driving down a street i've known since i was little and all of a sudden i ddin't know where i was.. i didn't reconize anything.

huggs and blessings and a pain free day

in pa

[Guest guest]

I know what your going through, i go to cognititve theraphy every 3 months for 2-3 hrs. I have a very hard time getting out what want to say, and when someone talkes to me its like what they are saying they are filtering through malasses.i have severe perment short term memory loss also.

Its funny i belong to CNSV support group also. since i have CNSV secondary, and i see more of the cognitive problems than with the NS support group.

I think the worst thing that happend to me , i was driving down a street i've known since i was little and all of a sudden i ddin't know where i was.. i didn't reconize anything.

huggs and blessings and a pain free day

in pa

[Guest guest]

Yes that

too can be a problem Barb J

Marla

From: Neurosarcoidosis

[mailto:Neurosarcoidosis ] On

Behalf Of barb J.

Sent: Sunday, July 16, 2006 6:58

PM

To:

Neurosarcoidosis

Subject: RE:

Word recalling - Forgetting Names of Things

Marla,

How do you know you have said the names three times. By that time I

have forgotton why I was reciting names. LOL

Barb

Marla

wrote:

Diane,

Yea, we

need some rain up here in Colorado too,

it’s been and still going to be in the 100’s which

is hot for us! And so dry around here, but oh those terrible fires in Calif.

That is really bad, my brother lives just west of those fires!

I’m

only 48, so I know my forgetting words is not my age too, in fact I can

forget names of people I have know forever too, I teach part time, and tell my

students they have to pick a seat and stay in it all year long, so I can at

least try to learn their names, and still by the end of the semester if I see

them out and about I can’t remember there names.

I even

try the say there name 3 times when you first meet them, ha,

doesn’t work.

Smiles J

Marla

From: Neurosarcoidosis

[mailto:Neurosarcoidosis ] On Behalf Of Diane Aja

Sent: Friday, July 14, 2006 6:03

PM

To: Neurosarcoidosis

Subject: Re:

Word recalling - Forgetting Names of Things

Marla and Connie,

I happen to see you are talking about forgetting the word

you're trying to say. I was just explaining that to one of my best

friends this afternoon as I sat at her table and forgot at least five words out

of a two minute conversation! I was telling her how over the past two

months my word recall has become horrible. This has been on the decline

since I was diagnosed originally with Transverse Myelitis (really Sarc) back in

2000. It tapered off for a long time and since my sarc has been full

blown lately, my memory recall is REALLY bad. I can look right at

something and not be able to tell you what it is! I'm only 44 years old

and I know it's because of the sarc, not old age. Some of you may

disagree, but I'd like to know how many others are having the same problem

without even having brain involvement? I do have tremendous hearing loss

though which I just realized must be from the sarc and nobody has ever agreed

with me about that either. All of a sudden I just started to go deaf for

no reason. Don't think so. And Marla, I too, feel really stupid

when I can't spit out a word when I'm having a conversation with people I

don't know very well, but I just start laughing and let them know that this

lovely thing I have must be stealing my brain cells from me and I wish it would

give them back!

Would someone please turn on the rain down here in Texas?

ha-ha

Diane Aja

Re: Re: Just

back online.. missed everyone

Date: Tue, 11 Jul 2006 20:11:03 -0700 (PDT)

Terri,

Here comes the DUH moment. I do not recognize

the initials....what is MRSA.

Thanks, Connie

mosaicgirl1

wrote:

,

Sorry to hear you are sick. MRSA is a pretty bad infection so just take

care of yourself. Don't overdo it.

Terri G.

>

> I just wanted to leave you all know i have been down with MARSA, i had

such

> infection in my mouth, throat, and on my breasts and abdomen. i have

these

> huge open sores all over my stomach.

> I am on Cefeclor, & doxocyclene..(spelling) had fever of 101.7

for

most

> time. since friday.finally today i feel sorta human, im waiting to

hear back from

> the IDS from the main hospital my family dr is conntacting them and

the

> neuro.about stopping the imuran untill i get over this infection.. i

have been

> holding out on going in the hospital... oh i hate that place !!! i

told them if

> i get to the point i need IV meds to bring them to the house.. i don't

want

> to go near a hospital and get somthing else.

>

> i think of you all daily .. hugs and blessings

>

> in pa

>

Do you Yahoo!?

Everyone is raving about the all-new

Yahoo! Mail Beta.

Check

the weather anywhere, anytime - just type " weather " from MSN Search

Do you Yahoo!?

Next-gen email? Have it all with the all-new

Yahoo! Mail Beta.

 __________________________________________________

[Guest guest]

Yes that

too can be a problem Barb J

Marla

From: Neurosarcoidosis

[mailto:Neurosarcoidosis ] On

Behalf Of barb J.

Sent: Sunday, July 16, 2006 6:58

PM

To:

Neurosarcoidosis

Subject: RE:

Word recalling - Forgetting Names of Things

Marla,

How do you know you have said the names three times. By that time I

have forgotton why I was reciting names. LOL

Barb

Marla

wrote:

Diane,

Yea, we

need some rain up here in Colorado too,

it’s been and still going to be in the 100’s which

is hot for us! And so dry around here, but oh those terrible fires in Calif.

That is really bad, my brother lives just west of those fires!

I’m

only 48, so I know my forgetting words is not my age too, in fact I can

forget names of people I have know forever too, I teach part time, and tell my

students they have to pick a seat and stay in it all year long, so I can at

least try to learn their names, and still by the end of the semester if I see

them out and about I can’t remember there names.

I even

try the say there name 3 times when you first meet them, ha,

doesn’t work.

Smiles J

Marla

From: Neurosarcoidosis

[mailto:Neurosarcoidosis ] On Behalf Of Diane Aja

Sent: Friday, July 14, 2006 6:03

PM

To: Neurosarcoidosis

Subject: Re:

Word recalling - Forgetting Names of Things

Marla and Connie,

I happen to see you are talking about forgetting the word

you're trying to say. I was just explaining that to one of my best

friends this afternoon as I sat at her table and forgot at least five words out

of a two minute conversation! I was telling her how over the past two

months my word recall has become horrible. This has been on the decline

since I was diagnosed originally with Transverse Myelitis (really Sarc) back in

2000. It tapered off for a long time and since my sarc has been full

blown lately, my memory recall is REALLY bad. I can look right at

something and not be able to tell you what it is! I'm only 44 years old

and I know it's because of the sarc, not old age. Some of you may

disagree, but I'd like to know how many others are having the same problem

without even having brain involvement? I do have tremendous hearing loss

though which I just realized must be from the sarc and nobody has ever agreed

with me about that either. All of a sudden I just started to go deaf for

no reason. Don't think so. And Marla, I too, feel really stupid

when I can't spit out a word when I'm having a conversation with people I

don't know very well, but I just start laughing and let them know that this

lovely thing I have must be stealing my brain cells from me and I wish it would

give them back!

Would someone please turn on the rain down here in Texas?

ha-ha

Diane Aja

Re: Re: Just

back online.. missed everyone

Date: Tue, 11 Jul 2006 20:11:03 -0700 (PDT)

Terri,

Here comes the DUH moment. I do not recognize

the initials....what is MRSA.

Thanks, Connie

mosaicgirl1

wrote:

,

Sorry to hear you are sick. MRSA is a pretty bad infection so just take

care of yourself. Don't overdo it.

Terri G.

>

> I just wanted to leave you all know i have been down with MARSA, i had

such

> infection in my mouth, throat, and on my breasts and abdomen. i have

these

> huge open sores all over my stomach.

> I am on Cefeclor, & doxocyclene..(spelling) had fever of 101.7

for

most

> time. since friday.finally today i feel sorta human, im waiting to

hear back from

> the IDS from the main hospital my family dr is conntacting them and

the

> neuro.about stopping the imuran untill i get over this infection.. i

have been

> holding out on going in the hospital... oh i hate that place !!! i

told them if

> i get to the point i need IV meds to bring them to the house.. i don't

want

> to go near a hospital and get somthing else.

>

> i think of you all daily .. hugs and blessings

>

> in pa

>

Do you Yahoo!?

Everyone is raving about the all-new

Yahoo! Mail Beta.

Check

the weather anywhere, anytime - just type " weather " from MSN Search

Do you Yahoo!?

Next-gen email? Have it all with the all-new

Yahoo! Mail Beta.

 __________________________________________________

[Guest guest]

Yes that

too can be a problem Barb J

Marla

From: Neurosarcoidosis

[mailto:Neurosarcoidosis ] On

Behalf Of barb J.

Sent: Sunday, July 16, 2006 6:58

PM

To:

Neurosarcoidosis

Subject: RE:

Word recalling - Forgetting Names of Things

Marla,

How do you know you have said the names three times. By that time I

have forgotton why I was reciting names. LOL

Barb

Marla

wrote:

Diane,

Yea, we

need some rain up here in Colorado too,

it’s been and still going to be in the 100’s which

is hot for us! And so dry around here, but oh those terrible fires in Calif.

That is really bad, my brother lives just west of those fires!

I’m

only 48, so I know my forgetting words is not my age too, in fact I can

forget names of people I have know forever too, I teach part time, and tell my

students they have to pick a seat and stay in it all year long, so I can at

least try to learn their names, and still by the end of the semester if I see

them out and about I can’t remember there names.

I even

try the say there name 3 times when you first meet them, ha,

doesn’t work.

Smiles J

Marla

From: Neurosarcoidosis

[mailto:Neurosarcoidosis ] On Behalf Of Diane Aja

Sent: Friday, July 14, 2006 6:03

PM

To: Neurosarcoidosis

Subject: Re:

Word recalling - Forgetting Names of Things

Marla and Connie,

I happen to see you are talking about forgetting the word

you're trying to say. I was just explaining that to one of my best

friends this afternoon as I sat at her table and forgot at least five words out

of a two minute conversation! I was telling her how over the past two

months my word recall has become horrible. This has been on the decline

since I was diagnosed originally with Transverse Myelitis (really Sarc) back in

2000. It tapered off for a long time and since my sarc has been full

blown lately, my memory recall is REALLY bad. I can look right at

something and not be able to tell you what it is! I'm only 44 years old

and I know it's because of the sarc, not old age. Some of you may

disagree, but I'd like to know how many others are having the same problem

without even having brain involvement? I do have tremendous hearing loss

though which I just realized must be from the sarc and nobody has ever agreed

with me about that either. All of a sudden I just started to go deaf for

no reason. Don't think so. And Marla, I too, feel really stupid

when I can't spit out a word when I'm having a conversation with people I

don't know very well, but I just start laughing and let them know that this

lovely thing I have must be stealing my brain cells from me and I wish it would

give them back!

Would someone please turn on the rain down here in Texas?

ha-ha

Diane Aja

Re: Re: Just

back online.. missed everyone

Date: Tue, 11 Jul 2006 20:11:03 -0700 (PDT)

Terri,

Here comes the DUH moment. I do not recognize

the initials....what is MRSA.

Thanks, Connie

mosaicgirl1

wrote:

,

Sorry to hear you are sick. MRSA is a pretty bad infection so just take

care of yourself. Don't overdo it.

Terri G.

>

> I just wanted to leave you all know i have been down with MARSA, i had

such

> infection in my mouth, throat, and on my breasts and abdomen. i have

these

> huge open sores all over my stomach.

> I am on Cefeclor, & doxocyclene..(spelling) had fever of 101.7

for

most

> time. since friday.finally today i feel sorta human, im waiting to

hear back from

> the IDS from the main hospital my family dr is conntacting them and

the

> neuro.about stopping the imuran untill i get over this infection.. i

have been

> holding out on going in the hospital... oh i hate that place !!! i

told them if

> i get to the point i need IV meds to bring them to the house.. i don't

want

> to go near a hospital and get somthing else.

>

> i think of you all daily .. hugs and blessings

>

> in pa

>

Do you Yahoo!?

Everyone is raving about the all-new

Yahoo! Mail Beta.

Check

the weather anywhere, anytime - just type " weather " from MSN Search

Do you Yahoo!?

Next-gen email? Have it all with the all-new

Yahoo! Mail Beta.

 __________________________________________________

[Guest guest]

.. I don't visit friends because #1. I forget to call, #2. I can find nothing to talk about. I can think of two or three things and then I am stumped. So, I find my whole world getting smaller and smaller.

[Guest guest]

.. I don't visit friends because #1. I forget to call, #2. I can find nothing to talk about. I can think of two or three things and then I am stumped. So, I find my whole world getting smaller and smaller.

[Guest guest]

.. I don't visit friends because #1. I forget to call, #2. I can find nothing to talk about. I can think of two or three things and then I am stumped. So, I find my whole world getting smaller and smaller.

[Guest guest]

Hey , I'm with you!!! I will turn 50 this coming Janurary, and that is a mile stone. I like you are just simply glad I made it.. well that is if I do.. Happy Birthday by the way!!!

-- Re: Word recalling - Forgetting Names of Things

....My husband took me out for my 50th b-day today and some other members of my family were also invited. One of my good friends stopped by too. I panicked when I knew i had to introduce her and remember her name and all their names. But I did it! What a funny/sad thing to be happy about. People have no idea what we go through do they... I got excited and proud that I could remember my own family's names....lol. ...then again it's kinda sad. Maybe it was that strawberry daiguirie(sp?) I had. Yeah, Tracie, I took extra milk thistle when I got home....lol. Somebody gave me a journal today, too. They are finally getting me stuff that's ME. At least three people asked me how I felt about turning 50...one person said it's all down hill. I said...Hey, I woke up yesterday(my real b-day) and thought Hey, I made it! I made it to see 50! I had a big frickin smile on my face all day. The last decade has been pretty bad... so I was just glad I made it this far. My comments kinda shocked and surprised them but it's all the truth now ain't it..... Despite the fact that it was nearly 100 here I felt great. It's so nice to have a really great day....it kinda makes up for the zillion that sucked. hugs S.tiodaat@... wrote:

This is where the Neuropsych testing should come in. Our MD's fall on that "you're getting older" bs too, and shrug it off. But for us, it's a true dementia issue caused by our brains being hit with the sarc in the area of the Right Frontal Lobe--where all the "executive functions" happen. Recall, short-term memory, problem solving, personality, sexuality, temper, multi-tasking are all in this part of the brain.The different tasks that you do with Neuropsych tests require a different area of the brain to complete, so if you're getting signals that are shorting out -- you won't be able to do all the task requires. It can be the one set of tests that can confirm NS when there are no "granulomas or white spots" on the brain Ct's and such. If they work it with the EEG (brain wave study) and the EMG's (muscle studys) it can really show where signals aren't getting from the brain to your legs and feet, or hands, and it can verify that complaint that "Yes, this is why you can't hold that coffee cup, or why your fork does summersaults in your hand when you're eating spaghetti. (and wearing a white blouse.) The neuropsych testing along with the other two tests, can really help to pull the diagnosis out of the hat. It was what confirmed my NS and got my SSDI approved. Take care,TracieNS Co-owner/moderator

How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates.

[Guest guest]

Hey , I'm with you!!! I will turn 50 this coming Janurary, and that is a mile stone. I like you are just simply glad I made it.. well that is if I do.. Happy Birthday by the way!!!

-- Re: Word recalling - Forgetting Names of Things

....My husband took me out for my 50th b-day today and some other members of my family were also invited. One of my good friends stopped by too. I panicked when I knew i had to introduce her and remember her name and all their names. But I did it! What a funny/sad thing to be happy about. People have no idea what we go through do they... I got excited and proud that I could remember my own family's names....lol. ...then again it's kinda sad. Maybe it was that strawberry daiguirie(sp?) I had. Yeah, Tracie, I took extra milk thistle when I got home....lol. Somebody gave me a journal today, too. They are finally getting me stuff that's ME. At least three people asked me how I felt about turning 50...one person said it's all down hill. I said...Hey, I woke up yesterday(my real b-day) and thought Hey, I made it! I made it to see 50! I had a big frickin smile on my face all day. The last decade has been pretty bad... so I was just glad I made it this far. My comments kinda shocked and surprised them but it's all the truth now ain't it..... Despite the fact that it was nearly 100 here I felt great. It's so nice to have a really great day....it kinda makes up for the zillion that sucked. hugs S.tiodaat@... wrote:

This is where the Neuropsych testing should come in. Our MD's fall on that "you're getting older" bs too, and shrug it off. But for us, it's a true dementia issue caused by our brains being hit with the sarc in the area of the Right Frontal Lobe--where all the "executive functions" happen. Recall, short-term memory, problem solving, personality, sexuality, temper, multi-tasking are all in this part of the brain.The different tasks that you do with Neuropsych tests require a different area of the brain to complete, so if you're getting signals that are shorting out -- you won't be able to do all the task requires. It can be the one set of tests that can confirm NS when there are no "granulomas or white spots" on the brain Ct's and such. If they work it with the EEG (brain wave study) and the EMG's (muscle studys) it can really show where signals aren't getting from the brain to your legs and feet, or hands, and it can verify that complaint that "Yes, this is why you can't hold that coffee cup, or why your fork does summersaults in your hand when you're eating spaghetti. (and wearing a white blouse.) The neuropsych testing along with the other two tests, can really help to pull the diagnosis out of the hat. It was what confirmed my NS and got my SSDI approved. Take care,TracieNS Co-owner/moderator

How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates.

[Guest guest]

Hey , I'm with you!!! I will turn 50 this coming Janurary, and that is a mile stone. I like you are just simply glad I made it.. well that is if I do.. Happy Birthday by the way!!!

-- Re: Word recalling - Forgetting Names of Things

....My husband took me out for my 50th b-day today and some other members of my family were also invited. One of my good friends stopped by too. I panicked when I knew i had to introduce her and remember her name and all their names. But I did it! What a funny/sad thing to be happy about. People have no idea what we go through do they... I got excited and proud that I could remember my own family's names....lol. ...then again it's kinda sad. Maybe it was that strawberry daiguirie(sp?) I had. Yeah, Tracie, I took extra milk thistle when I got home....lol. Somebody gave me a journal today, too. They are finally getting me stuff that's ME. At least three people asked me how I felt about turning 50...one person said it's all down hill. I said...Hey, I woke up yesterday(my real b-day) and thought Hey, I made it! I made it to see 50! I had a big frickin smile on my face all day. The last decade has been pretty bad... so I was just glad I made it this far. My comments kinda shocked and surprised them but it's all the truth now ain't it..... Despite the fact that it was nearly 100 here I felt great. It's so nice to have a really great day....it kinda makes up for the zillion that sucked. hugs S.tiodaat@... wrote:

This is where the Neuropsych testing should come in. Our MD's fall on that "you're getting older" bs too, and shrug it off. But for us, it's a true dementia issue caused by our brains being hit with the sarc in the area of the Right Frontal Lobe--where all the "executive functions" happen. Recall, short-term memory, problem solving, personality, sexuality, temper, multi-tasking are all in this part of the brain.The different tasks that you do with Neuropsych tests require a different area of the brain to complete, so if you're getting signals that are shorting out -- you won't be able to do all the task requires. It can be the one set of tests that can confirm NS when there are no "granulomas or white spots" on the brain Ct's and such. If they work it with the EEG (brain wave study) and the EMG's (muscle studys) it can really show where signals aren't getting from the brain to your legs and feet, or hands, and it can verify that complaint that "Yes, this is why you can't hold that coffee cup, or why your fork does summersaults in your hand when you're eating spaghetti. (and wearing a white blouse.) The neuropsych testing along with the other two tests, can really help to pull the diagnosis out of the hat. It was what confirmed my NS and got my SSDI approved. Take care,TracieNS Co-owner/moderator

How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates.

[Guest guest]

, I think you will make it to January and beyond. I believe better times are coming. I feel so bad for those of you who suffer tremendously with this disease and you can't seem to have access to the kind of care that some others have. I think that sarcoidosis is a disease that is now interesting to the researchers and so more studies are being done. I believe that we will see a time when at least they can treat it more successfully. Come January we are all going to come visit you (in cyberspace, Tennessee) for your birthday. What color frosting do you want on your cake? You do live in TN don't you? Barb J. wrote: Hey , I'm with you!!! I will turn 50 this coming Janurary, and that is a mile stone. I like you are just simply glad I made it.. well that is if I do.. Happy Birthday by the way!!! -- Re: Word recalling - Forgetting Names of Things ...My husband took me out for my 50th b-day today and some other members of my family were also invited. One of my good friends stopped by too. I panicked when I knew i had to introduce

her and remember her name and all their names. But I did it! What a funny/sad thing to be happy about. People have no idea what we go through do they... I got excited and proud that I could remember my own family's names....lol. ...then again it's kinda sad. Maybe it was that strawberry daiguirie(sp?) I had. Yeah, Tracie, I took extra milk thistle when I got home....lol. Somebody gave me a journal today, too. They are finally getting me stuff that's ME. At least three people asked me how I felt about turning 50...one person said it's all down hill. I said...Hey, I woke up yesterday(my real b-day) and thought Hey, I made it! I made it to see 50! I had a big frickin smile on my face all day. The last decade has been pretty bad... so I was just glad I made it this far. My comments kinda shocked and surprised them but it's all the truth now ain't

it..... Despite the fact that it was nearly 100 here I felt great. It's so nice to have a really great day....it kinda makes up for the zillion that sucked. hugs S.tiodaat@... wrote: This is where the Neuropsych testing should come in. Our MD's fall on that "you're getting older" bs too, and shrug it off. But for us, it's a true dementia issue caused by our brains being hit with the sarc in the area of the Right Frontal Lobe--where all the "executive functions" happen. Recall, short-term memory, problem solving, personality, sexuality, temper, multi-tasking are all in this part of the brain.The different tasks that you do with

Neuropsych tests require a different area of the brain to complete, so if you're getting signals that are shorting out -- you won't be able to do all the task requires. It can be the one set of tests that can confirm NS when there are no "granulomas or white spots" on the brain Ct's and such. If they work it with the EEG (brain wave study) and the EMG's (muscle studys) it can really show where signals aren't getting from the brain to your legs and feet, or hands, and it can verify that complaint that "Yes, this is why you can't hold that coffee cup, or why your fork does summersaults in your hand when you're eating spaghetti. (and wearing a white blouse.) The neuropsych testing along with the other two tests, can really help to pull the diagnosis out of the hat. It was what confirmed my NS and got my SSDI approved. Take care,TracieNS Co-owner/moderator How low will we go? Check out Yahoo! Messenger?s low PC-to-Phone call rates. __________________________________________________

[Guest guest]

, I think you will make it to January and beyond. I believe better times are coming. I feel so bad for those of you who suffer tremendously with this disease and you can't seem to have access to the kind of care that some others have. I think that sarcoidosis is a disease that is now interesting to the researchers and so more studies are being done. I believe that we will see a time when at least they can treat it more successfully. Come January we are all going to come visit you (in cyberspace, Tennessee) for your birthday. What color frosting do you want on your cake? You do live in TN don't you? Barb J. wrote: Hey , I'm with you!!! I will turn 50 this coming Janurary, and that is a mile stone. I like you are just simply glad I made it.. well that is if I do.. Happy Birthday by the way!!! -- Re: Word recalling - Forgetting Names of Things ...My husband took me out for my 50th b-day today and some other members of my family were also invited. One of my good friends stopped by too. I panicked when I knew i had to introduce

her and remember her name and all their names. But I did it! What a funny/sad thing to be happy about. People have no idea what we go through do they... I got excited and proud that I could remember my own family's names....lol. ...then again it's kinda sad. Maybe it was that strawberry daiguirie(sp?) I had. Yeah, Tracie, I took extra milk thistle when I got home....lol. Somebody gave me a journal today, too. They are finally getting me stuff that's ME. At least three people asked me how I felt about turning 50...one person said it's all down hill. I said...Hey, I woke up yesterday(my real b-day) and thought Hey, I made it! I made it to see 50! I had a big frickin smile on my face all day. The last decade has been pretty bad... so I was just glad I made it this far. My comments kinda shocked and surprised them but it's all the truth now ain't

it..... Despite the fact that it was nearly 100 here I felt great. It's so nice to have a really great day....it kinda makes up for the zillion that sucked. hugs S.tiodaat@... wrote: This is where the Neuropsych testing should come in. Our MD's fall on that "you're getting older" bs too, and shrug it off. But for us, it's a true dementia issue caused by our brains being hit with the sarc in the area of the Right Frontal Lobe--where all the "executive functions" happen. Recall, short-term memory, problem solving, personality, sexuality, temper, multi-tasking are all in this part of the brain.The different tasks that you do with

Neuropsych tests require a different area of the brain to complete, so if you're getting signals that are shorting out -- you won't be able to do all the task requires. It can be the one set of tests that can confirm NS when there are no "granulomas or white spots" on the brain Ct's and such. If they work it with the EEG (brain wave study) and the EMG's (muscle studys) it can really show where signals aren't getting from the brain to your legs and feet, or hands, and it can verify that complaint that "Yes, this is why you can't hold that coffee cup, or why your fork does summersaults in your hand when you're eating spaghetti. (and wearing a white blouse.) The neuropsych testing along with the other two tests, can really help to pull the diagnosis out of the hat. It was what confirmed my NS and got my SSDI approved. Take care,TracieNS Co-owner/moderator How low will we go? Check out Yahoo! Messenger?s low PC-to-Phone call rates. __________________________________________________

[Guest guest]

, I think you will make it to January and beyond. I believe better times are coming. I feel so bad for those of you who suffer tremendously with this disease and you can't seem to have access to the kind of care that some others have. I think that sarcoidosis is a disease that is now interesting to the researchers and so more studies are being done. I believe that we will see a time when at least they can treat it more successfully. Come January we are all going to come visit you (in cyberspace, Tennessee) for your birthday. What color frosting do you want on your cake? You do live in TN don't you? Barb J. wrote: Hey , I'm with you!!! I will turn 50 this coming Janurary, and that is a mile stone. I like you are just simply glad I made it.. well that is if I do.. Happy Birthday by the way!!! -- Re: Word recalling - Forgetting Names of Things ...My husband took me out for my 50th b-day today and some other members of my family were also invited. One of my good friends stopped by too. I panicked when I knew i had to introduce

her and remember her name and all their names. But I did it! What a funny/sad thing to be happy about. People have no idea what we go through do they... I got excited and proud that I could remember my own family's names....lol. ...then again it's kinda sad. Maybe it was that strawberry daiguirie(sp?) I had. Yeah, Tracie, I took extra milk thistle when I got home....lol. Somebody gave me a journal today, too. They are finally getting me stuff that's ME. At least three people asked me how I felt about turning 50...one person said it's all down hill. I said...Hey, I woke up yesterday(my real b-day) and thought Hey, I made it! I made it to see 50! I had a big frickin smile on my face all day. The last decade has been pretty bad... so I was just glad I made it this far. My comments kinda shocked and surprised them but it's all the truth now ain't

it..... Despite the fact that it was nearly 100 here I felt great. It's so nice to have a really great day....it kinda makes up for the zillion that sucked. hugs S.tiodaat@... wrote: This is where the Neuropsych testing should come in. Our MD's fall on that "you're getting older" bs too, and shrug it off. But for us, it's a true dementia issue caused by our brains being hit with the sarc in the area of the Right Frontal Lobe--where all the "executive functions" happen. Recall, short-term memory, problem solving, personality, sexuality, temper, multi-tasking are all in this part of the brain.The different tasks that you do with

Neuropsych tests require a different area of the brain to complete, so if you're getting signals that are shorting out -- you won't be able to do all the task requires. It can be the one set of tests that can confirm NS when there are no "granulomas or white spots" on the brain Ct's and such. If they work it with the EEG (brain wave study) and the EMG's (muscle studys) it can really show where signals aren't getting from the brain to your legs and feet, or hands, and it can verify that complaint that "Yes, this is why you can't hold that coffee cup, or why your fork does summersaults in your hand when you're eating spaghetti. (and wearing a white blouse.) The neuropsych testing along with the other two tests, can really help to pull the diagnosis out of the hat. It was what confirmed my NS and got my SSDI approved. Take care,TracieNS Co-owner/moderator How low will we go? Check out Yahoo! Messenger?s low PC-to-Phone call rates. __________________________________________________

[Guest guest]

YEah Barb, I live in Tennessee.. just west of Nashville.. and I want Chocolate through and through.. lol See you then..

-- Re: Word recalling - Forgetting Names of Things

....My husband took me out for my 50th b-day today and some other members of my family were also invited. One of my good friends stopped by too. I panicked when I knew i had to introduce her and remember her name and all their names. But I did it! What a funny/sad thing to be happy about. People have no idea what we go through do they... I got excited and proud that I could remember my own family's names....lol. ...then again it's kinda sad. Maybe it was that strawberry daiguirie(sp?) I had. Yeah, Tracie, I took extra milk thistle when I got home....lol. Somebody gave me a journal today, too. They are finally getting me stuff that's ME. At least three people asked me how I felt about turning 50...one person said it's all down hill. I said...Hey, I woke up yesterday(my real b-day) and thought Hey, I made it! I made it to see 50! I had a big frickin smile on my face all day. The last decade has been pretty bad... so I was just glad I made it this far. My comments kinda shocked and surprised them but it's all the truth now ain't it..... Despite the fact that it was nearly 100 here I felt great. It's so nice to have a really great day....it kinda makes up for the zillion that sucked. hugs S.tiodaat@... wrote:

This is where the Neuropsych testing should come in. Our MD's fall on that "you're getting older" bs too, and shrug it off. But for us, it's a true dementia issue caused by our brains being hit with the sarc in the area of the Right Frontal Lobe--where all the "executive functions" happen. Recall, short-term memory, problem solving, personality, sexuality, temper, multi-tasking are all in this part of the brain.The different tasks that you do with Neuropsych tests require a different area of the brain to complete, so if you're getting signals that are shorting out -- you won't be able to do all the task requires. It can be the one set of tests that can confirm NS when there are no "granulomas or white spots" on the brain Ct's and such. If they work it with the EEG (brain wave study) and the EMG's (muscle studys) it can really show where signals aren't getting from the brain to your legs and feet, or hands, and it can verify that complaint that "Yes, this is why you can't hold that coffee cup, or why your fork does summersaults in your hand when you're eating spaghetti. (and wearing a white blouse.) The neuropsych testing along with the other two tests, can really help to pull the diagnosis out of the hat. It was what confirmed my NS and got my SSDI approved. Take care,TracieNS Co-owner/moderator

How low will we go? Check out Yahoo! Messenger?s low PC-to-Phone call rates.

__________________________________________________

[Guest guest]

YEah Barb, I live in Tennessee.. just west of Nashville.. and I want Chocolate through and through.. lol See you then..

-- Re: Word recalling - Forgetting Names of Things

....My husband took me out for my 50th b-day today and some other members of my family were also invited. One of my good friends stopped by too. I panicked when I knew i had to introduce her and remember her name and all their names. But I did it! What a funny/sad thing to be happy about. People have no idea what we go through do they... I got excited and proud that I could remember my own family's names....lol. ...then again it's kinda sad. Maybe it was that strawberry daiguirie(sp?) I had. Yeah, Tracie, I took extra milk thistle when I got home....lol. Somebody gave me a journal today, too. They are finally getting me stuff that's ME. At least three people asked me how I felt about turning 50...one person said it's all down hill. I said...Hey, I woke up yesterday(my real b-day) and thought Hey, I made it! I made it to see 50! I had a big frickin smile on my face all day. The last decade has been pretty bad... so I was just glad I made it this far. My comments kinda shocked and surprised them but it's all the truth now ain't it..... Despite the fact that it was nearly 100 here I felt great. It's so nice to have a really great day....it kinda makes up for the zillion that sucked. hugs S.tiodaat@... wrote:

This is where the Neuropsych testing should come in. Our MD's fall on that "you're getting older" bs too, and shrug it off. But for us, it's a true dementia issue caused by our brains being hit with the sarc in the area of the Right Frontal Lobe--where all the "executive functions" happen. Recall, short-term memory, problem solving, personality, sexuality, temper, multi-tasking are all in this part of the brain.The different tasks that you do with Neuropsych tests require a different area of the brain to complete, so if you're getting signals that are shorting out -- you won't be able to do all the task requires. It can be the one set of tests that can confirm NS when there are no "granulomas or white spots" on the brain Ct's and such. If they work it with the EEG (brain wave study) and the EMG's (muscle studys) it can really show where signals aren't getting from the brain to your legs and feet, or hands, and it can verify that complaint that "Yes, this is why you can't hold that coffee cup, or why your fork does summersaults in your hand when you're eating spaghetti. (and wearing a white blouse.) The neuropsych testing along with the other two tests, can really help to pull the diagnosis out of the hat. It was what confirmed my NS and got my SSDI approved. Take care,TracieNS Co-owner/moderator

How low will we go? Check out Yahoo! Messenger?s low PC-to-Phone call rates.

__________________________________________________