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Re: Re: Waiting and waiting and waiting..../Kim

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Hi

This was 14 years ago when biopsies were for research and free. But we did not get final results for 2 years. The Dr. wrote countless letters, and finally gave me the phone number, and I called and asked and they mailed the results to me? not the doctor, but I realize things have changed a lot since then. I'll be praying for you.

mom to Colby,13,COXIV,LCHAD,ACC,ADHD ,hypothroidism and osteopenia. Chad, 16, healthy, Caleb, 10, also healthy>From: AReckling@... >Reply-To: Mito >To: Mito >Subject: Re: Re: Waiting and waiting and waiting..../Kim >Date: Thu, 15 Apr 2004 19:43:33 EDT > >Thanks Kim, > >I am glad we made the decision to do the biopsy, although the wait is hard. I >was better right after we did it b/c I knew I had to be patient for about 12 >weeks. Now that those 12 weeks are up, it's taking its toll. > >I, too, just want some answers as to why the low muscle tone, fatigue, severe >gi dysmotility (to point of tube feeding), reflux, etc. has been going on >with my little guy. > >I'll post once I hear. >Anne R Lose those love handles! MSN Fitness shows you two moves to slim your waist.

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