Guest guest Posted July 12, 2006 Report Share Posted July 12, 2006 Thankyou for your lovely email, Connie. I'm actually quite pleased with my baldness, it looks good. I have a few wigs, some hats and some do rags, but I haven't needed to use them yet. I'm surprisingly comfortable as a baldy. But I have a question: How common is Chemo among neurosarc people? Also, good news: My once severe diabetes is beginning to normalize as I come down from 120mg pred. I was reading rose's thingy about nueropathy and i was alittle worried, I'm always injuring my feet, but never feel it. just half an hour ago I discovered a puddle of blood on the floor from apparently smashing my toe. Is this diabetes related? neurosarc related? I if anyone out there has any information they could give me it would be much appreciated. Also, I've heard that in the states there are sarcoid clinics. Is this true? Are there any close to B.C.? Or for that matter, are there anyh other neurosarc people in BC? Wishing everyone happy painless feet, Alyssa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2006 Report Share Posted July 13, 2006 Alyssa, I hust heard from someone in the group that when it comes to you neuropathy if you get pain first it is probably from diabetes andif you get numbness first it is probably the Sarcoidosis. Anyway the end result is pretty much the same. Pain and serious injury if you are not careful that could lead to loss of your foot. On a cellular level there is maybe a difference and diabetes might be a bit more distructive. I have had a neuropathic ulcer (sore) on my foot for 2 1/2 years. It was to the bone and about an inch and a quarter around. I saw several speciasts, wore strange boots and had two grafts done. Was on bedrest from Jan to May. hopped to the bathroom only. It is finally healed. And I had no injury, I wore a shoe that put pressure in the wrong place. Now I get to wear the really ugly shoes. Anyway- I think the end result can be the same. I am so happy, you seem a bit more up than the last email I saw. I hope things start to look up for you, Barb J.Connie Griffis wrote: Your most welcome Alyssa, as far as the chemo goes some of the other guys will have a better answer about that. As to the neuropathy both sarc & diabetes are bad about causing this problem, especially in the feet.////Take care - Southern Hugs ...Conniecastawayfay wrote: Thankyou for your lovely email, Connie. I'm actually quite pleased with my baldness, it looks good. I have a few wigs, some hats and some do rags, but I haven't needed to use them yet. I'm surprisingly comfortable as a baldy. But I have a question: How common is Chemo among neurosarc people? Also, good news: My once severe diabetes is beginning to normalize as I come down from 120mg pred. I was reading rose's thingy about nueropathy and i was alittle worried, I'm always injuring my feet, but never feel it. just half an hour ago I discovered a puddle of blood on the floor from apparently smashing my toe. Is this diabetes related? neurosarc related? I if anyone out there has any information they could give me it would be much appreciated. Also, I've heard that in the states there are sarcoid clinics. Is this true? Are there any close to B.C.? Or for that matter, are there anyh other neurosarc people in BC? Wishing everyone happy painless feet, Alyssa Sneak preview the all-new Yahoo.com. It's not radically different. Just radically better. Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2006 Report Share Posted July 13, 2006 Alyssa, I hust heard from someone in the group that when it comes to you neuropathy if you get pain first it is probably from diabetes andif you get numbness first it is probably the Sarcoidosis. Anyway the end result is pretty much the same. Pain and serious injury if you are not careful that could lead to loss of your foot. On a cellular level there is maybe a difference and diabetes might be a bit more distructive. I have had a neuropathic ulcer (sore) on my foot for 2 1/2 years. It was to the bone and about an inch and a quarter around. I saw several speciasts, wore strange boots and had two grafts done. Was on bedrest from Jan to May. hopped to the bathroom only. It is finally healed. And I had no injury, I wore a shoe that put pressure in the wrong place. Now I get to wear the really ugly shoes. Anyway- I think the end result can be the same. I am so happy, you seem a bit more up than the last email I saw. I hope things start to look up for you, Barb J.Connie Griffis wrote: Your most welcome Alyssa, as far as the chemo goes some of the other guys will have a better answer about that. As to the neuropathy both sarc & diabetes are bad about causing this problem, especially in the feet.////Take care - Southern Hugs ...Conniecastawayfay wrote: Thankyou for your lovely email, Connie. I'm actually quite pleased with my baldness, it looks good. I have a few wigs, some hats and some do rags, but I haven't needed to use them yet. I'm surprisingly comfortable as a baldy. But I have a question: How common is Chemo among neurosarc people? Also, good news: My once severe diabetes is beginning to normalize as I come down from 120mg pred. I was reading rose's thingy about nueropathy and i was alittle worried, I'm always injuring my feet, but never feel it. just half an hour ago I discovered a puddle of blood on the floor from apparently smashing my toe. Is this diabetes related? neurosarc related? I if anyone out there has any information they could give me it would be much appreciated. Also, I've heard that in the states there are sarcoid clinics. Is this true? Are there any close to B.C.? Or for that matter, are there anyh other neurosarc people in BC? Wishing everyone happy painless feet, Alyssa Sneak preview the all-new Yahoo.com. It's not radically different. Just radically better. Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
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