Re: Re: Urine odor/Anne

[Guest guest]

Hey Tamara!!! I owe you an email hun and am sorry I've been so far

behind lately!!!

Just wanted to share that this sounds like what we've been going through

with Abby since last fall. After being totally trained since she

was 3 1/2 she started having odd accidents here and there during the day

and then was wetting the bed almost nightly, starting when she was about

5 1/2. We could find no obvious reason for the issues and went through

urine testing to be sure there was no infection, went over changes in our

lives to see if there was something upsetting her, changes in routine,

ANYTHING, and we never could find a reasonable answer for why. When

we went to Mayo in October they did urodynamics testing on her (NOT a fun

test) and while things looked relatively normal, there was some spasming

of her bladder a little earlier than they would have expected (her brother

has this very severely).....basically meaning that her bladder is spasming

sooner than it should be and if she were to cough or laugh, OR go all night

without urinating, she's more likely to wet herself.

While normally the results would not have been such that they would

have medicated, due to her brothers issues and the severity of them, they

decided to try her on Ditropan, an anti-spasmodic, to see if it would help

at all. Really were not sure it would, and ultimatly, doubt its the

reason that things have gotten better. We additionally have her on

an every two hour schedule of urinating, have her go before bed of course,

and limit fluids after 6pm every day. It was a good three months

after starting all of this before she really quite suddenly quite wetting

the bed and she's had all of two accidents since then (so its been about

2 months now!!!). Docs are not sure what helped but decided to leave

things as they are and see how she does. Interestingly, and I think

indicative to some extent that this was fatigue related in some way, the

only two accidents she's had were the nights after she's had a big busy

day.

Wondering if your doc is wanting to wait and see in case his resolves

like hers has for the most part?? I wish I could tell you what has

made the difference over here, but something happened and she's been great

for a little while now. Hoping you all will see the same over there!!

Keep the faith!!

-- BIG hugs,

Kass, proud mom to Chance(10-Mito), Madison(7-Mito),

and Abby(6-Mito)

Updates (http://www.caringbridge.org/tx/mitowhat/)

"Life is not measured by the breaths we take, but by the moments

that take our breath away" Unknown

Tamara wrote:

Dear Anne,My son who just turned 5 years old

last week, has lost his ability to be potty trained at night time.

He was 100% potty trained for a year, up until 5 months ago. We are

very worried about it yet our doctors said lets watch it for a while(a

year). To us that is not awhile! That is a long wait!!

That is too long for me to wait. He does pretty good during the day.

And I'm sure it is a muscle tone issue.I wish you luck! Let us know

what you find out!!!!!Good Luck!!!!Tamara(mommy of age 5, unspecific

Mito)